Abstract

Objective: This study explores the information teenagers, parents, and physicians want included in an information disclosure for stimulant medication treatment of Attention Defi cit Hyperactivity Disorder . Method: 30 physicians, 30 parents of youth with ADHD, and 30 youth with ADHD, ages 12-16, were surveyed about their information preferences. Results: The majority of participants wanted general information about ADHD, and a general statement about rare risks included. With respect to specifi c rare risks associated with stimulant medication, half of participants wanted information about arrythmias, seizure and stroke included. For the other rare risks, there was a range of responses across all groups. Conclusions: About half of parents and teenagers want disclosure of cardiovascular and cerebrovascular events. Physicians cannot assume that their personal information preferences refl ect that of their patients; they need to understand their patients’ information needs when informing them about the benefi ts and risks of medications