Disability Discrimination and Patient-Sensitive Health-Related Quality of Life

Cambridge Quarterly of Healthcare Ethics 32 (2):142-153 (2023)
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Abstract

It is generally accepted that morally justified healthcare rationing must be non-discriminatory and cost-effective. However, given conventional concepts of cost-effectiveness, resources spent on disabled people are spent less cost-effectively, ceteris paribus, than resources spent on non-disabled people. Thus, it is reasonable to assume that standard cost-effectiveness discriminates against the disabled. Call this thedisability discrimination problem.Part of the disability discrimination involved in cost-effectiveness stems from the way in which health-related quality of life is accounted for and measured. This paper offers and defends a patient-sensitive account of health-related quality of life, which can effectively make cost-effectiveness less discriminatory against the disabled and thus more morally justified.

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Lasse Nielsen
Palacky University

References found in this work

Preference and urgency.T. M. Scanlon - 1975 - Journal of Philosophy 72 (19):655-669.
QALYfying the value of life.J. Harris - 1987 - Journal of Medical Ethics 13 (3):117-123.
Lifetime QALY prioritarianism in priority setting.Trygve Ottersen - 2013 - Journal of Medical Ethics 39 (3):175-180.
Disability and the Goods of Life.Stephen M. Campbell, Sven Nyholm & Jennifer K. Walter - 2021 - Journal of Medicine and Philosophy 46 (6):704-728.

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