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We Have “Gifted” Enough: Indigenous Genomic Data Sovereignty in Precision Medicine
American Journal of Bioethics 21 (4):72-75 (2021)
Abstract
In “Obligations of the ‘Gift’: Reciprocity and Responsibility in Precision Medicine,” Lee rightly points out that disparities in health care access also lead to disparities in precision medi...My notes
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Citations of this work
The Pitfalls of Genomic Data Diversity.Anna Jabloner & Alexis Walker - 2023 - Hastings Center Report 53 (5):10-13.
Innovating for a Just and Equitable Future in Genomic and Precision Medicine Research.Deanne Dunbar Dolan, Mildred K. Cho & Sandra Soo-Jin Lee - 2023 - American Journal of Bioethics 23 (7):1-4.
Response to Open Peer Commentaries: Distinguishing the “Gift” from “Donation” as a Path toward Reciprocity and Relational Ethics.Sandra Soo-Jin Lee - 2021 - American Journal of Bioethics 21 (4):W1-W3.
Ethical and Equitable Digital Health Research: Ensuring Self-Determination in Data Governance for Racialized Communities.Mozharul Islam, Arafaat A. Valiani, Ranjan Datta, Mohammad Chowdhury & Tanvir C. Turin - forthcoming - Cambridge Quarterly of Healthcare Ethics:1-11.
References found in this work
Obligations of the “Gift”: Reciprocity and Responsibility in Precision Medicine.Sandra Soo-Jin Lee - 2021 - American Journal of Bioethics 21 (4):57-66.
Neither property right nor heroic gift, neither sacrifice nor aporia: the benefit of the theoretical lens of sharing in donation ethics. [REVIEW]Kristin Zeiler - 2014 - Medicine, Health Care and Philosophy 17 (2):171-181.
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