End-of-life care for children and adults with intellectual and developmental disabilities

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Washington, DC: American Association on Intellectual and Developmental Disabilities (2010)
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Abstract

End-of-life care is the only major reference to systematically explore the unique medical, social, legal, political, and ethical issues to consider while providing care to adults and children with intellectual and developmental disabilities who are facing terminal illness or life-limiting conditions.

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R726.8.E5323 2010

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9781935304074   1935304070

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Chapters

Applying the dignity-conserving model.Zana M. Lutfiyya & Karen D. Schwartz
Complex medical problems affecting life and life span in children.Sandra L. Friedman
Constructing a "good death" : historical and social frameworks.David T. Helm & Sandra L. Friedman
Do-not-resuscitate orders and redirection of treatment.Jeffrey P. Burns & Christine Mitchell
End of life through a cultural lens.Tawara Goode & Patricia Maloof
End-of-life policies and practices.Anne L. Botsford & Angela King
Ethical foundations and legal issues.Judith Levy & Maureen van Stone
Ethical issues in the withdrawal of support : charting a course between Scylla and Charybdis.Peter J. Smith & John J. Hardt
Forgoing nutrition in infants and children with intellectual disabilities.Robert M. Veatch
Medical conditions in adults near the end of life.Marc T. Emmerich
Medical treatment and management at the end of life.Julie Hauer
Nutrition issues in end-of-life care.Sari Edelstein, Sharon Weston & Vanessa Ludlow
Palliative care and pain management : resources for direct care providers.Amy C. Stevens, Anne-Marie Barron & Patricia N. Rissmiller
Practical guide to health care decision making.Betsy B. Johnson
Spirituality issues and strategies : crisis and opportunity.William Gaventa
Struggling with grief and loss.Kenneth J. Doka
Supports and resources for adults.Teresa A. Savage
Supports and resources for families of children with special health care needs.Lauren C. Berman & SoYun Kwan
The persistent vegetative state.David L. Coulter
Use of person-centered planning for end-of-life decision making.Leigh Ann C. Kingsbury

Similar books and articles

End-of-Life Care for Children and Adults with Intellectual and Developmental Disabilities.Christopher F. Barber - 2012 - Nursing Philosophy 13 (1):78-79.
Nutrition issues in end-of-life care.Sari Edelstein, Sharon Weston & Vanessa Ludlow - 2010 - In Sandra L. Friedman & David T. Helm (eds.), End-of-life care for children and adults with intellectual and developmental disabilities. Washington, DC: American Association on Intellectual and Developmental Disabilities.
Ethical foundations and legal issues.Judith Levy & Maureen van Stone - 2010 - In Sandra L. Friedman & David T. Helm (eds.), End-of-life care for children and adults with intellectual and developmental disabilities. Washington, DC: American Association on Intellectual and Developmental Disabilities.
Medical conditions in adults near the end of life.Marc T. Emmerich - 2010 - In Sandra L. Friedman & David T. Helm (eds.), End-of-life care for children and adults with intellectual and developmental disabilities. Washington, DC: American Association on Intellectual and Developmental Disabilities.
Medical treatment and management at the end of life.Julie Hauer - 2010 - In Sandra L. Friedman & David T. Helm (eds.), End-of-life care for children and adults with intellectual and developmental disabilities. Washington, DC: American Association on Intellectual and Developmental Disabilities.
Spirituality issues and strategies : crisis and opportunity.William Gaventa - 2010 - In Sandra L. Friedman & David T. Helm (eds.), End-of-life care for children and adults with intellectual and developmental disabilities. Washington, DC: American Association on Intellectual and Developmental Disabilities.
Supports and resources for adults.Teresa A. Savage - 2010 - In Sandra L. Friedman & David T. Helm (eds.), End-of-life care for children and adults with intellectual and developmental disabilities. Washington, DC: American Association on Intellectual and Developmental Disabilities.
Forgoing nutrition in infants and children with intellectual disabilities.Robert M. Veatch - 2010 - In Sandra L. Friedman & David T. Helm (eds.), End-of-life care for children and adults with intellectual and developmental disabilities. Washington, DC: American Association on Intellectual and Developmental Disabilities.
End-of-life policies and practices.Anne L. Botsford & Angela King - 2010 - In Sandra L. Friedman & David T. Helm (eds.), End-of-life care for children and adults with intellectual and developmental disabilities. Washington, DC: American Association on Intellectual and Developmental Disabilities.
Practical guide to health care decision making.Betsy B. Johnson - 2010 - In Sandra L. Friedman & David T. Helm (eds.), End-of-life care for children and adults with intellectual and developmental disabilities. Washington, DC: American Association on Intellectual and Developmental Disabilities.

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