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Giving Voice to Patients: Developing a Discussion Method to Involve Patients in Translational Research
NanoEthics 12 (3):181-197 (2018)
Abstract
Biomedical research policy in recent years has often tried to make such research more ‘translational’, aiming to facilitate the transfer of insights from research and development to health care for the benefit of future users. Involving patients in deliberations about and design of biomedical research may increase the quality of R&D and of resulting innovations and thus contribute to translation. However, patient involvement in biomedical research is not an easy feat. This paper discusses the development of a method for involving patients in biomedical research aiming to address its main challenges.Author's Profile
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Citations of this work
Transitioning Responsibly Toward a Circular Bioeconomy: Using Stakeholder Workshops to Reveal Market Dependencies.Greet Overbeek, Simone van der Burg & Anne-Charlotte Hoes - 2021 - Journal of Agricultural and Environmental Ethics 34 (4):1-21.
References found in this work
Anticipating the Interaction between Technology and Morality: A Scenario Study of Experimenting with Humans in Bionanotechnology.Marianne Boenink, Tsjalling Swierstra & Dirk Stemerding - 2010 - Studies in Ethics, Law, and Technology 4 (2).
Knowing Patients: Turning Patient Knowledge into Science.Jeannette Pols - 2014 - Science, Technology, and Human Values 39 (1):73-97.
Reconsidering Patient Participation in Guideline Development.Hester M. van de Bovenkamp & Margo J. Trappenburg - 2009 - Health Care Analysis 17 (3):198.
A Lay Ethics Quest for Technological Futures: About Tradition, Narrative and Decision-Making.Simone van der Burg - 2016 - NanoEthics 10 (3):233-244.
The Benefits of Patient Involvement for Translational Research.Lieke van der Scheer, Elisa Garcia, Anna Laura van der Laan, Simone van der Burg & Marianne Boenink - 2017 - Health Care Analysis 25 (3):225-241.
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