Results for 'Susan J. Bull'

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  1.  49
    Tailoring consent to context: designing an appropriate consent process for a biomedical study in a low income setting.Fasil Tekola, Susan J. Bull, Bobbie Farsides, Melanie J. Newport, Adebowale Adeyemo, Charles N. Rotimi & Gail Davey - unknown
    Background Currently there is increasing recognition of the need for research in developing countries where disease burden is high. Understanding the role of local factors is important for undertaking ethical research in developing countries. We explored factors relating to information and communication during the process of informed consent, and the approach that should be followed for gaining consent. The study was conducted prior to a family-based genetic study among people with podoconiosis (non-filarial elephantiasis) in southern Ethiopia. Methodology/Principal Findings We adapted (...)
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  2.  63
    Ethical issues in human genomics research in developing countries.Jantina de Vries, Susan J. Bull, Ogobara Doumbo, Muntaser Ibrahim, Odile Mercereau-Puijalon, Dominic Kwiatkowski & Michael Parker - 2011 - BMC Medical Ethics 12 (1):5.
    BackgroundGenome-wide association studies (GWAS) provide a powerful means of identifying genetic variants that play a role in common diseases. Such studies present important ethical challenges. An increasing number of GWAS is taking place in lower income countries and there is a pressing need to identify the particular ethical challenges arising in such contexts. In this paper, we draw upon the experiences of the MalariaGEN Consortium to identify specific ethical issues raised by such research in Africa, Asia and Oceania.DiscussionWe explore ethical (...)
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  3.  49
    Towards a new model of global health justice: the case of COVID-19 vaccines.Nancy S. Jecker, Caesar A. Atuire & Susan J. Bull - 2023 - Journal of Medical Ethics 49 (5):367-374.
    This paper questions an exclusively state-centred framing of global health justice and proposes a multilateral alternative. Using the distribution of COVID-19 vaccines to illustrate, we bring to light a broad range of global actors up and down the chain of vaccine development who contribute to global vaccine inequities. Section 1 (Background) presents an overview of moments in which diverse global actors, each with their own priorities and aims, shaped subsequent vaccine distribution. Section 2 (Collective action failures) characterises collective action failures (...)
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  4.  26
    SARS-CoV-2 challenge studies: ethics and risk minimisation.Susan Bull, Euzebiusz Jamrozik, Ariella Binik & Michael J. Parker - 2021 - Journal of Medical Ethics 47 (12):e79-e79.
    COVID-19 poses an exceptional threat to global public health and well-being. Recognition of the need to develop effective vaccines at unprecedented speed has led to calls to accelerate research pathways ethically, including by conducting challenge studies ) with SARS-CoV-2. Such research is controversial, with concerns being raised about the social, legal, ethical and clinical implications of infecting healthy volunteers with SARS-CoV-2 for research purposes. Systematic risk evaluations are critical to inform assessments of the ethics of any proposed SARS-CoV-2 CHIs. Such (...)
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  5.  5
    Research Ethics in Epidemics and Pandemics: A Casebook.Susan Bull, Michael Parker, Joseph Ali, Monique Jonas, Vasantha Muthuswamy, Carla Saenz, Maxwell J. Smith, Teck Chuan Voo, Katharine Wright & Jantina de Vries (eds.) - 2023 - Springer Verlag.
    This open access casebook addresses complex and important ethical challenges arising when health-related research in conducted in the context of epidemics and pandemics. This book provides contextually-rich real-world case studies illustrating research ethics issues encountered by researchers, ethics reviewers and regulators around the globe during the COVID-19 pandemic. The accompanying commentaries outline relevant conceptual approaches and ethical considerations. These promote understanding and reflection on relevant ethical issues, ethical approaches and competing considerations in a manner supporting thoughtful evaluation of their implications (...)
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  6. Impact of social stigma on the process of obtaining informed consent for genetic research on podoconiosis: a qualitative study.Fasil Tekola, Susan Bull, Bobbie Farsides, Melanie J. Newport, Adebowale Adeyemo, Charles N. Rotimi & Gail Davey - 2009 - BMC Medical Ethics 10 (1):13-.
    BackgroundThe consent process for a genetic study is challenging when the research is conducted in a group stigmatized because of beliefs that the disease is familial. Podoconiosis, also known as 'mossy foot', is an example of such a disease. It is a condition resulting in swelling of the lower legs among people exposed to red clay soil. It is a very stigmatizing problem in endemic areas of Ethiopia because of the widely held opinion that the disease runs in families and (...)
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  7.  30
    Sharing Individual-Level Health Research Data: Experiences, Challenges and a Research Agenda.Phaik Yeong Cheah, Nicholas P. J. Day, Michael Parker & Susan Bull - 2017 - Asian Bioethics Review 9 (4):393-400.
    Since January 2016, the Mahidol Oxford Tropical Medicine Research Unit has trialled a data-sharing policy where requests to access research datasets are processed through a Data Access Committee. In this paper, we share our experiences establishing data management systems and data-sharing infrastructure including a data-sharing policy, data access committee and related procedures. We identified a number of practical and ethical challenges including requests for datasets collected without specific or broad consent to data sharing and requests from pharmaceutical companies for data (...)
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  8.  35
    Challenges arising when seeking broad consent for health research data sharing: a qualitative study of perspectives in Thailand.Phaik Yeong Cheah, Nattapat Jatupornpimol, Borimas Hanboonkunupakarn, Napat Khirikoekkong, Podjanee Jittamala, Sasithon Pukrittayakamee, Nicholas P. J. Day, Michael Parker & Susan Bull - 2018 - BMC Medical Ethics 19 (1):86.
    Research funders, regulatory agencies, and journals are increasingly expecting that individual-level data from health research will be shared. Broad consent to such sharing is considered appropriate, feasible and acceptable in low- and middle-income settings, but to date limited empirical research has been conducted to inform the design of such processes. We examined stakeholder perspectives about how best to seek broad consent to sharing data from the Mahidol Oxford Tropical Medicine Research Unit, which implemented a data sharing policy and broad consent (...)
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  9.  8
    Essentials of nursing law and ethics.Susan J. Westrick - 2014 - Burlington, Massachusetts: Jones & Bartlett Learning.
    The legal environment -- Regulation of nursing practice -- Nurses in legal actions -- Standards of care -- Defenses to negligence or malpractice -- Prevention of malpractice -- Nurses as witnesses -- Professional liability insurance -- Accepting or refusing an assignment/patient abandonment -- Delegation to unlicensed assistive personnel -- Patients' rights and responsibilities -- Confidential communication -- Competency and guardianship -- Informed consent -- Refusal of treatment -- Pain control -- Patient teaching and health counseling -- Medication administration -- Clients (...)
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  10.  7
    Hermeneutics and the sociology of knowledge.Susan J. Hekman - 1986 - Notre Dame, Ind.: University of Notre Dame Press.
  11. Aftermath: Violence and the Remaking of a Self.Susan J. Brison - 2002 - Princeton University Press.
    Violence and the Remaking of a Self Susan J. Brison. Political activism (including lobbying for new legislation, speaking out, educating others, helping survivors) can also help to undo the double bind of self-blame versus helplessness.
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  12.  64
    Aftermath: Violence and the Remaking of a Self.Susan J. Brison - 2002 - Princeton University Press.
    On July 4, 1990, while on a morning walk in southern France, Susan Brison was attacked from behind, severely beaten, sexually assaulted, strangled to unconsciousness, and left for dead. She survived, but her world was destroyed. Her training as a philosopher could not help her make sense of things, and many of her fundamental assumptions about the nature of the self and the world it inhabits were shattered.At once a personal narrative of recovery and a philosophical exploration of trauma, (...)
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  13. There is no stream of consciousness.Susan J. Blackmore - 2002 - Journal of Consciousness Studies 9 (5-6):17-28.
    Throughout history there have been people who say it is all illusion. I think they may be right. But if they are right what could this mean? If you just say "It's all an illusion" this gets you nowhere - except that a whole lot of other questions appear. Why should we all be victims of an illusion, instead of seeing things the way they really are? What sort of illusion is it anyway? Why is it like that and not (...)
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  14. Consciousness: An Introduction.Susan J. Blackmore - 2003 - New York: Oxford University Press. Edited by Emily Troscianko.
    Is there a theory that explains the essence of consciousness? Or is consciousness itself just an illusion? The "last great mystery of science," consciousness was excluded from serious research for most of the last century but is now a rapidly expanding area of study for students of psychology, philosophy, and neuroscience. Recently the topic has also captured growing popular interest. This groundbreaking book is the first volume to bring together all the major theories of consciousness studies--from those rooted in traditional (...)
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  15. Is the richness of our visual world an illusion? Transsaccadic memory for complex scenes.Susan J. Blackmore, Gavin Brelstaff, Katherine Nelson & Tom Troscianko - 1995 - Perception 24:1075-81.
  16.  31
    Gender and knowledge: elements of a postmodern feminism.Susan J. Hekman - 2007 - Malden, MA: Polity Press.
    After the success of the hardback, students and academics will welcome the publication of this book in paperback. The aim of the book is to explore the connection between two perspectives that have had a profound effect upon contemporary thought: post–modernism and feminism. Through bringing together and systematically analysing the relations between these, Hekman is able to make a major intervention into current debates in social theory and philosophy. The critique of Enlightenment knowledge, she argues, is at the core of (...)
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  17.  56
    Individual Differences in the Acceptability of Unethical Information Technology Practices: The Case of Machiavellianism and Ethical Ideology.Susan J. Winter, Antonis C. Stylianou & Robert A. Giacalone - 2004 - Journal of Business Ethics 54 (3):275-296.
    While information technologies present organizations with opportunities to become more competitive, unsettled social norms and lagging legislation guiding the use of these technologies present organizations and individuals with ethical dilemmas. This paper presents two studies investigating the relationship between intellectual property and privacy attitudes, Machiavellianism and Ethical Ideology, and working in R&D and computer literacy in the form of programming experience. In Study 1, Machiavellians believed it was more acceptable to ignore the intellectual property and privacy rights of others. Programmers (...)
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  18.  44
    Moral Voices, Moral Selves: Carol Gilligan and Feminist Moral Theory.Susan J. Hekman - 1995 - University Park, Pa.: Polity.
    This book is an original discussion of key problems in moral theory. The author argues that the work of recent feminist theorists in this area, particularly that of Carol Gilligan, marks a radically new departure in moral thinking. Gilligan claims that there is not only one true, moral voice, but two: one masculine, one feminine. Moral values and concerns associated with a feminine outlook are relational rather than autonomous; they depend upon interaction with others. In a far-reaching examination and critique (...)
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  19. Surviving Sexual Violence: A Philosophical Perspective.Susan J. Brison - 2019 - In Wanda Teays (ed.), Analyzing Violence Against Women. Cham: Springer. pp. 11-26.
    This chapter examines sexual assault from the point of view of a survivor, indicating that its consequences extend beyond the emotional or physical. Philosophical issues are raised by this experience, such as its effects on personal identity, notions of “harm“Notions of "harm", the role of denial, victim blaming, as well as its political implications for gender equality. Given the significance of these concerns and the extent of sexual assaults, it is imperative the harms of violence against women be taken more (...)
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  20.  45
    The Material of Knowledge: Feminist Disclosures.Susan J. Hekman (ed.) - 2010 - Indiana University Press.
    Susan Hekman believes we are witnessing an intellectual sea change. The main features of this change are found in dichotomies between language and reality, discourse and materiality. Hekman proposes that it is possible to find a more intimate connection between these pairs, one that does not privilege one over the other. By grounding her work in feminist thought and employing analytic philosophy, scientific theory, and linguistic theory, Hekman shows how language and reality can be understood as an indissoluble unit. (...)
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  21. Outliving Oneself: Trauma, memory and personal identity.Susan J. Brison - 1997 - In Diana T. Meyers (ed.), Feminists rethink the self. Boulder, Colo.: Westview Press.
     
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  22.  76
    A test of a person -- issue contingent model of ethical decision making in organizations.Susan J. Harrington - 1997 - Journal of Business Ethics 16 (4):363-375.
    Despite the existence of a large number of models to explain the ethical decision-making process, rarely have the models been tested. This research validated the use of such models by showing that both issue-contingent variables and individual characteristics affect two commonly-proposed model components: i.e., moral judgment and moral intent. As proposed by Jones' (1991) ethical decision-making model and elaborated on by the author, the main effect of an issue-contingent variable, social consensus, and a closely-related variable, seriousness of consequences, influenced both (...)
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  23.  17
    Moral Voices, Moral Selves: Carol Gilligan and Feminist Moral Theory.Susan J. Hekman - 1995 - University Park, Pa.: Polity.
    This book is an original discussion of key problems in moral theory. The author argues that the work of recent feminist theorists in this area, particularly that of Carol Gilligan, marks a radically new departure in moral thinking. Gilligan claims that there is not only one true, moral voice, but two: one masculine, one feminine. Moral values and concerns associated with a feminine outlook are relational rather than autonomous; they depend upon interaction with others. In a far-reaching examination and critique (...)
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  24.  37
    Free Speech in the Digital Age.Susan J. Brison & Katharine Gelber (eds.) - 2018 - Oup Usa.
    This collection of thirteen new essays is the first to examine, from a range of disciplinary perspectives, how the new technologies and global reach of the Internet are changing the theory and practice of free speech.
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  25. Relational autonomy and freedom of expression.Susan J. Brison - 2000 - In Catriona Mackenzie & Natalie Stoljar (eds.), Relational Autonomy: Feminist Perspectives on Autonomy, Agency, and the Social Self. New York: Oxford University Press.
     
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  26. What is it like to be...?Susan J. Blackmore - 2003 - In Consciousness: An Introduction. Oxford University Press.
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  27.  3
    From the Other To the Enemy Within: Brave New Worlds in Modern Japanese Fiction.Susan J. Napier - 1987 - Bulletin of Science, Technology and Society 7 (3-4):526-542.
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  28.  50
    In Praise of Pigs.Susan J. Armstrong - 1992 - Between the Species 8 (1):8.
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  29. Speech, Harm, and the Mind-Body Problem in First Amendment Jurisprudence.Susan J. Brison - 1998 - Legal Theory 4 (1):39-61.
    “Sticks and stones will break my bones,” Justice Scalia pronounced from the bench in oral arguments in Schenck v. Pro-Choice Network, “but words can never hurt me. That's the First Amendment,” he added. Jay Alan Sekulow, the lawyer for the petitioners, anti-abortion protesters who had been enjoined from moving closer than fifteen feet away from those entering an abortion facility, was obviously pleased by this characterization of the right to free speech, replying, “That's certainly our position on it, and that (...)
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  30.  59
    Reasoning about containment events in very young infants.Susan J. Hespos & Renée Baillargeon - 2001 - Cognition 78 (3):207-245.
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  31.  76
    Current Emotion Research in History: Or, Doing History from the Inside Out.Susan J. Matt - 2011 - Emotion Review 3 (1):117-124.
    The history of the emotions first developed as a field of inquiry in Europe. It took root in the United States only in the 1980s. Today, the field has expanded dramatically. Historians of the emotions share the conviction that culture gives some shape to emotional life and that consequently, feelings vary across time and culture. Working on that assumption, recent historical works have investigated the changing role of emotions in politics, economics, and private life. There are a number of contentious (...)
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  32.  30
    Young infants’ actions reveal their developing knowledge of support variables: Converging evidence for violation-of-expectation findings.Susan J. Hespos & Renée Baillargeon - 2008 - Cognition 107 (1):304-316.
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  33.  9
    The Call for Internationalization of the University.Susan J. Cook, Charles S. Colgan & Kathleen Ashley - 1991 - Inquiry: Critical Thinking Across the Disciplines 7 (2):10-13.
  34.  21
    The Call for Internationalization of the University.Susan J. Cook, Charles S. Colgan & Kathleen Ashley - 1991 - Inquiry: Critical Thinking Across the Disciplines 7 (2):10-13.
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  35.  26
    Feminist Interpretations of Michel Foucault.Susan J. Hekman (ed.) - 1996 - Pennsylvania State University Press.
    This volume presents an exploration of the intersection between the work of Michel Foucault and feminist theory, focusing on Foucault's theories of sex/body, identity/subject, and power/politics. Like the other books in this series, this volume seeks to bring a feminist perspective to bear on the interpretation of a major figure in the philosophical canon. In the case of Michel Foucault, however, this aim is somewhat ironic because Foucault sees his work as disrupting that very canon. Since feminists see their work (...)
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  36.  20
    Feminist Interpretations of Michel Foucault.Susan J. Hekman (ed.) - 1996 - Pennsylvania State University Press.
    This volume presents an exploration of the intersection between the work of Michel Foucault and feminist theory, focusing on Foucault's theories of sex/body, identity/subject, and power/politics. Like the other books in this series, this volume seeks to bring a feminist perspective to bear on the interpretation of a major figure in the philosophical canon. In the case of Michel Foucault, however, this aim is somewhat ironic because Foucault sees his work as disrupting that very canon. Since feminists see their work (...)
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  37. Consciousness in meme machines.Susan J. Blackmore - 2003 - Journal of Consciousness Studies 10 (4-5):19-30.
    Setting aside the problems of recognising consciousness in a machine, this article considers what would be needed for a machine to have human-like conscious- ness. Human-like consciousness is an illusion; that is, it exists but is not what it appears to be. The illusion that we are a conscious self having a stream of experi- ences is constructed when memes compete for replication by human hosts. Some memes survive by being promoted as personal beliefs, desires, opinions and pos- sessions, leading (...)
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  38. Contentious Freedom: Sex Work and Social Construction.Susan J. Brison - 2001 - Hypatia 21 (4):192-200.
    In this article, Brison extends the analysis of freedom developed in Nancy J Hirschmann's book, The Subject of Liberty: Toward a Feminist Theory of Freedom, to an area of controversy among feminist theorists: that of sex work, including prostitution and participation in the production of pornography. This topic raises some of the same issues concerning choice and consent as the three topics Hirschmann discusses in her book—domestic violence, the current welfare system in the United States, and Islamic veiling—but it also (...)
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  39.  5
    Consciousness.Susan J. Blackmore - 2018 - New York, NY: Routledge. Edited by Emily Troscianko.
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  40.  17
    Shifting Gears: Technology, Literature, Culture in Modernist America. Cecelia Tichi.Susan J. Douglas - 1987 - Isis 78 (4):661-662.
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  41. Dynamic mental representation in infancy1Portions of this research have been presented at the International Conference on Infant Studies, Society for Research in Child Development, and Association for Research in Vision and Opthamology.1.Susan J. Hespos & Philippe Rochat - 1997 - Cognition 64 (2):153-188.
  42.  15
    The Poetics of Childhood and Politics of Resistance in Tuareg Society: Some Thoughts on Studying “the Other” and Adult‐Child Relationships.Susan J. Rasmussen - 1994 - Ethos: Journal of the Society for Psychological Anthropology 22 (3):343-372.
  43.  49
    Beauvoir and feminism: interview and reflections.Susan J. Brison - 2003 - In Claudia Card (ed.), The Cambridge Companion to Simone de Beauvoir. Cambridge University Press. pp. 189--207.
  44. Contentious Freedom: Sex Work and Social Construction.Susan J. Brison - 2006 - Hypatia 21 (4):192-200.
    In this article, Brison extends the analysis of freedom developed in Nancy J Hirschmann's book, The Subject of Liberty: Toward a Feminist Theory of Freedom, to an area of controversy among feminist theorists: that of sex work, including prostitution and participation in the production of pornography. This topic raises some of the same issues concerning choice and consent as the three topics Hirschmann discusses in her book—domestic violence, the current welfare system in the United States, and Islamic veiling—but it also (...)
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  45.  37
    Spatial and movement-based heuristics for encoding pattern information through touch.Susan J. Lederman, Roberta L. Klatzky & Paul O. Barber - 1985 - Journal of Experimental Psychology 114 (1):33-49.
  46.  49
    Private Selves, Public Identities: Reconsidering Identity Politics.Susan J. Hekman - 2004 - Pennsylvania State University Press.
    In an age when "we are all multiculturalists now," as Nathan Glazer has said, the politics of identity has come to pose new challenges to our liberal polity and the presuppositions on which it is founded. Just what identity means, and what its role in the public sphere is, are questions that are being hotly debated. In this book Susan Hekman aims to bring greater theoretical clarity to the debate by exposing some basic misconceptions—about the constitution of the self (...)
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  47.  8
    Ownership at Issue.Susan J. Rasmussen - 1990 - American Journal of Semiotics 7 (4):83-108.
  48.  5
    Ownership at Issue.Susan J. Rasmussen - 1990 - American Journal of Semiotics 7 (4):83-108.
  49.  27
    The Friend at a Distance.Susan J. Rasmussen - 1994 - American Journal of Semiotics 11 (3/4):115 - 153.
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  50.  22
    Within the Tent and at the Crossroads: Travel and Gender Identity among the Tuareg of Niger.Susan J. Rasmussen - 1998 - Ethos: Journal of the Society for Psychological Anthropology 26 (2):153-182.
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