French cultural theorist and urbanist Paul Virilio is best known for his writings on media, technology, and architecture. Gathered here in _A Winter’s Journey _are four remarkable conversations in which Virilio and architectural writer Marianne Brausch look at a twentieth century characterized by enormous technological acceleration and by technocultural accidents of barbarism and horror. The dialogues in _A Winter_’_s Journey—_structured loosely around the dates 1940, 1950, 1960, and 1980—chart Virilio’s intimate intellectual biography, from his childhood lived against the unstable backdrop (...) of a heavily bombed, wartime Nantes to maturity in a crisis space that is neither entirely militarized nor yet fully civilian, but somewhere between the two. In the course of these conversations, Virilio and Brausch ultimately find hope that in understanding the events of the last century and the cultural responses spawned by them, we can create a more humane era that is more adept at handling the transformations of its technology and culture. _A Winter’s Journey _is a revealing and engaging look into the intellectual life and ideas of one of the most influential theorists of contemporary civilization. (shrink)

Our paper consists of three parts. In the first part we provide an overall picture of the concept of the Cartesian mind. In the second, we outline some of the crucial tenets of the theory of the embodied mind and the main objections it makes to the concept of the Cartesian mind. In the third part, we take aim at the heart of the theory of the embodied mind; we present three examples which show that the thesis of embodiment of (...) the subjective perspective is an untenable position. However, everything these examples testify to can be accommodated and explained by our non-embodied or Cartesian view. (shrink)

Phenomenology has been adapted for use in qualitative health research, where it’s often used as a method for conducting interviews and analyzing interview data. But how can phenomenologists study subjects who cannot accurately reflect upon or report their own experiences, for instance, because of a psychiatric or neurological disorder? For conditions like these, qualitative researchers may gain more insight by conducting observational studies in lieu of, or in conjunction with, interviews. In this article, we introduce a phenomenological approach to conducting (...) this kind of observational research. The approach relies on conceptual grounding to focus a study on specific aspects of the participants’ experiences. Moreover, the approach maintains the openness to novel discoveries that qualitative research requires while also providing a structured framework for data collection and analysis. To illustrate its practical application, we use examples of hemispatial neglect—a neurologic disorder in which patients characteristically lack awareness of their own illness and bodily capacities. However, the approach that we describe can be applied more broadly to the study of complex illness experiences and other experiential alterations. (shrink)

In this paper, we are interested in the effects of institutional context on public attitudes towards climate policies, where institutions are defined as the conventions, norms and formally sanctioned rules of any given society. Building on a 2014 survey experiment, we conducted thirty qualitative interviews with car-owners in Oslo, Norway, to investigate the ways in which institutional context and political-value orientation affect public attitudes towards emissions policies. One context highlighted individual rationality, emphasising the ways in which local pollution impacts the (...) individual citizen; the other highlighted social rationality, emphasising the wider significance of carbon emissions and global responsibility for climate change. We analysed the effects of these contexts on attitudes, finding that institutional context influenced individuals' perspectives as well as their attitudes towards climate policies. Groups with different value orientations differed in terms of their evaluations but not their interpretations of these contexts. (shrink)

Is the Miranda warning, which lets an accused know of the right to remain silent, more about procedural fairness or about the conventions of speech acts and silences? Do U.S. laws about Native Americans violate the preferred or traditional "silence" of the peoples whose religions and languages they aim to "protect" and "preserve"? In Just Silences, Marianne Constable draws on such examples to explore what is at stake in modern law: a potentially new silence as to justice.Grounding her claims about (...) modern law in rhetorical analyses of U.S. law and legal texts and locating those claims within the tradition of Nietzsche, Heidegger, and Foucault, Constable asks what we are to make of silences in modern law and justice. She shows how what she calls "sociolegal positivism" is more important than the natural law/positive law distinction for understanding modern law. Modern law is a social and sociological phenomenon, whose instrumental, power-oriented, sometimes violent nature raises serious doubts about the continued possibility of justice. She shows how particular views of language and speech are implicated in such law.But law--like language--has not always been positivist, empirical, or sociological, nor need it be. Constable examines possibilities of silence and proposes an alternative understanding of law--one that emerges in the calling, however silently, of words to justice. Profoundly insightful and fluently written, Just Silences suggests that justice today lies precariously in the silences of modern positive law. (shrink)

During the last decades several tools have been developed to anticipate the future impact of new and emerging technologies. Many of these focus on ‘hard,’ quantifiable impacts, investigating how novel technologies may affect health, environment and safety. Much less attention is paid to what might be called ‘soft’ impacts: the way technology influences, for example, the distribution of social roles and responsibilities, moral norms and values, or identities. Several types of technology assessment and of scenario studies can be used to (...) anticipate such soft impacts. We argue, however, that these methods do not recognize the dynamic character of morality and its interaction with technology. As a result, they miss an important opportunity to broaden the scope of social and political deliberation on new and emerging technologies.In this paper we outline a framework for building scenarios that enhance the techno-moral imagination by anticipating how technology, morality and their interaction might evolve. To show what kind of product might result from this framework, a scenario is presented as an exemplar. This scenario focuses on developments in biomedical nanotechnology and the moral regime of experimenting with human beings. Finally, the merits and limitations of our framework and the resulting type of scenarios are discussed. (shrink)

In much environmentally concerned literature, there is a burgeoning concern for the status and sustainability of human hope. Within Christian circles, this attention has often taken the form of eschatological reflection. While there is important warrant for attention to eschatology in Christian examinations of hope, I claim that to move so quickly from hope to eschatology is to confuse a species of Christian hope for a definition of hope itself; as such, it is important for theological ethicists to examine hope (...) also from the experiential perspective of the human hoper. In particular, this is important today given the shortcomings of an eschatological focus in addressing anxieties arising due to the environmental crisis. Through examining hope as a fallible human activity, one can come to better understand hope's importance to human life, its profound ambiguity, and the potential threat that the environmental crisis poses to it. (shrink)

Democracy is usually justified either on intrinsic or instrumental, particularly epistemic, grounds. Intrinsic justifications stress the values inherent in the democratic process itself, whereas epistemic ones stress that it results in good outcomes. This article examines whether epistemic justifications for deliberative democracy are superior to intrinsic ones. The Condorcet jury theorem is the most common epistemic justification of democracy. I argue that it is not appropriate for deliberative democracy. Yet deliberative democrats often explicitly state that the process will favour the (...) best argument. This can only be the case if deliberation improves the overall competence of the group and of the individuals that constitute it. I analyse when deliberation will increase competences and when it will not do so and find that individual competences will not reliably increase as a result of deliberation. In order for deliberative democracy to be epistemically more effective than representative democracy, strong procedural assumptions need to be made and deliberative democracy needs to be justified based on a combination of epistemic and intrinsic elements. (shrink)

In spite of the global diffusion of democracy and a general commitment to democratic values, there is a widespread alienation from the political process in advanced democracies. Deliberative democracy has received much attention in recent years as a possible solution to this malaise. Its promise of a more engaged and collective form of politics has drawn the interest of policy makers and political philosophers – generating new avenues of thought in contemporary democratic theory as well as heated debates about its (...) utility in practice. -/- This book provides an ideal starting point in understanding the core concepts of deliberative democracy. It is the first text to offer a systematic introduction to the theories and debates in the field and to combine this with a detailed critique of both the theory and the practice of deliberative democracy. It examines the core values of deliberative democrats and evaluates the implementation of deliberative practices at the local, national and global level – considering, along the way, how far it is possible to introduce meaningful deliberative reform in existing democracies. Giving readers a state-of-the-art account of the field, this book addresses fundamental questions about deliberative democracy and also charts the future directions for contemporary democratic thought. (shrink)

Mehr Markt und Wettbewerb im Gesundheitswesen, so der Tenor aktueller gesundheitspolitischer Debatten, soll Transparenz schaffen, Kosten senken, Missbräuche verhindern und die Qualität der Leistungen steigern. Marianne Rychner zeigt anhand objektiv-hermeneutischer Materialanalysen, in welcher Weise professionalisierte ärztliche Praxis und die Logik des Marktes in einem Widerspruch zueinander stehen. Dies wird deutlich anhand einer detailgetreuen Rekonstruktion zweier ärztlicher Konsultationen. In der Interaktion zwischen Ärztin und Patient entfaltet sich eine komplexe Handlungslogik. Diese konfrontiert die Autorin mit aktuellen Versuchen, der ärztlichen Praxis den Charakter (...) eines marktkonformen Produkts zu geben. (shrink)

Background Since the enactment of the euthanasia law in the Netherlands, there has been a lively public debate on assisted dying that may influence the way patients talk about euthanasia and physician-assisted suicide with their physicians and the way physicians experience the practice of EAS. Aim To show what developments physicians see in practice and how they perceive the influence of the public debate on the practice of EAS. Methods We conducted a secondary analysis of in-depth interviews with 28 Dutch (...) physicians who had experience with a complex case of EAS. Respondents were recruited both by the network of physicians working for SCEN as well as via a national questionnaire, wherein participating physicians could indicate their willingness to be interviewed. Results Three themes came up in analysing the interviews. First, the interviewed physicians experienced a change in what patients would expect from them: from a role as an involved caregiver to being the mere performer of EAS. Second, interviewees said that requests for EAS based on non-medical reasons came up more frequently and wondered if EAS was the right solution for these requests. Last, respondents had the impression that the standards of EAS are shifting and that the boundaries of the EAS regulation were stretched. Conclusions The perceived developments could make physicians less willing to consider a request for EAS. Our results also raise questions about the role of physicians and of EAS in society. (shrink)

Social media is an endless source of texts and images about almost everything. Accordingly, the number of analyses based on this source increases daily. Among the numerous methods social media can be analysed by, our attention focusses on discourse analysis. DA is a complex approach which makes it possible to capture not only the linguistic characteristics of given texts, but also their socially constructive and socially constructed features. Therefore, we carried out a systematic examination of the articles at one of (...) the largest academic databases, EBSCO available in 2019 which used DA in social media research. Our investigation studies not only the geographical distribution of this corpus, but the different self-proclaimed DA approaches. Furthermore, we developed a three-level scale in order to capture the methodological complexity of the collected articles. At one end of the scale there are those research papers where discourse appears only as a label for the textual material gathered, without further indication of any DA theories or methodologies. The other end, however, refers to those research projects which applied DA both in their theoretical and methodological frameworks, providing complex discourse analytical investigations of social media texts. This way we were able to demonstrate the wide array of DA perspectives employed in social media research. (shrink)

Remnants of ancient retroviral infections during evolution litter all mammalian genomes. In modern humans, such endogenous retroviral (ERV) sequences comprise at least 8% of the genome. While ERVs and other types of transposable elements undoubtedly contribute to the genomic “junk yard”, functions for some ERV sequences have been demonstrated, with growing evidence that ERVs can be important players in gene regulatory processes. Here we focus on one particular large family of human ERVs, termed HERVH, which several recent studies suggest has (...) a key regulatory role in human pluripotent stem cells. Remarkably, this is not the first instance of an ERV controlling pluripotency. We speculate as to why this convergent evolution might have come about, suggesting that it may reflect selection on the virus to extend the time available for transposition. Alternatively it may reflect serendipity alone. (shrink)

This study examines the similarities and differences in pre- and post-Sarbanes-Oxley corporate ethics codes and codes of conduct using the framework of structuration theory. Following the passage of the Sarbanes-Oxley (SOX) legislation in 2002 in the United States, publicly traded companies there undertook development and revision of their codes of ethics in response to new regulatory requirements as well as incentives under the U.S. Corporate Sentencing Guidelines, which were also revised as part of the SOX mandates. Questions that remain are (...) whether these new or revised codes are effective means of communicating changed ethical foci and attitudes in organizations. Centering resonance analysis (CRA) is used to identify differences and similarities across time and industries by analyzing word networks of 46 pre- and post-SOX corporate codes of ethics. Analyses focus on content and structure of generated word networks as well as resulting factors that emerged from the texts. Results are interpreted from the structuration perspective that content and structure of codes are constrained and enabled by system structures while they function to produce and reproduce those structures. Results indicate that corporate codes of ethics are formal discourses of ethics, laws, and control. Code structure has changed across time, with an increased emphasis on compliance in post-SOX codes. Implications for research and practice are discussed in light of findings. (shrink)

Democracy is usually justified either on intrinsic or instrumental, particularly epistemic, grounds. Intrinsic justifications stress the values inherent in the democratic process itself, whereas epistemic ones stress that it results in good outcomes. This article examines whether epistemic justifications for deliberative democracy are superior to intrinsic ones. The Condorcet jury theorem is the most common epistemic justification of democracy. I argue that it is not appropriate for deliberative democracy. Yet deliberative democrats often explicitly state that the process will favour the (...) best argument. This can only be the case if deliberation improves the overall competence of the group and of the individuals that constitute it. I analyse when deliberation will increase competences and when it will not do so and find that individual competences will not reliably increase as a result of deliberation. In order for deliberative democracy to be epistemically more effective than representative democracy, strong procedural assumptions need to be made and deliberative democracy needs to be justified based on a combination of epistemic and intrinsic elements. (shrink)

This paper discusses the definition of argumentation as a means for persuading an audience on the acceptability of a thesis. It is argued that persuasion is a goal that relates more to the communicative situation, the type of interaction or the type of discourse, rather than to the argumentative nature of it. Departing from the analysis of a short conversational sequence between people who agree on an issue and nevertheless argue, I suggest that a definition of argumentation in terms of (...) persuasion fails to account for what people are actually doing in these situations. I propose instead that several functions may be assigned to argumentation when considering the context in which it is produced: a cognitive function (which helps participants to elaborate a position on the discussed issue), and an identifying function (which enables them to portray themselves through the expression and the justification of their opinion). In the case analyzed here, a third function to which the argumentative activity contributes can also be identified, namely the enhancing of the emotional tonality of the relationship between the participants. While it becomes clear from the discussion of this argumentative sequence that the participants do not seek to persuade each other or some third party, it is not suggested that argumentation never aims at persuading an audience, but rather that persuasion cannot be considered as a defining feature of argumentation. (shrink)

In this book, Marianne Moyaert develops a new interreligious appropriation of Paul Ricoeur’s hermeneutical philosophy. Viewed in context of his philosophical, anthropological, and ethical work, Ricoeur’s fragmentary reflections on the encounters between religions provide insights on global cooperation practices and religious identity concerns.

Deliberative processes provide an important alternative input to environmental politics as they may, in contrast to often used market simulations, provide an arena for 1) discussion of lay participants' values, 2) articulating arguments grounded in other values than consequentialistic, and 3) capturing weakly comparable values. A case study of a Citizens' Jury on genetically modified plants was used to investigate how the framing of the process affected the attitude formation among the citizens. The formal set up of this specific CJ (...) made value discussions less relevant. While it opened for value plurality, it failed to facilitate the articulation of weakly comparable values. (shrink)

Although scientific practice sometimes encounters philosophical dif- ficulties, it cannot shoulder the burden of resolving them. This can lead to controversies. An unavoidable difficulty is rooted in the linguistic attitude, i.e., in the fact that to a considerable extent we express our thoughts in words. I will attempt to illuminate some important characteristics of linguistic expres- sion which lead to paradoxical situations, identifiable thanks to philosophy. In my argument, I will investigate how the notion of consciousness has altered over the (...) course of philosophical investigation and how it relates to recent scientific practice. In conclusion, I will focus on a few recent so-called radical positions in philosophy with regard to a framework within which consciousness and more generally mental phenomena can be regarded in a new light, as well as on the barriers we face when trying to unify scientific results. (shrink)

Various theories suggest conscious phenomena are based exclusively on brain activity, while others regard them as a result of the interaction between embodied agents and their environment. In this paper, I will consider whether this divergence entails the acceptance of the fact that different theories can be applied in different scales, or if they are reconcilable. I will suggest that investigating how the term representation is used can reveal some hints, building upon which we can bridge the gulf between the (...) two poles in the long run. In my argumentation I will rely on some earlier philosophical insights, such as those of Descartes, James, Wittgenstein and Merleau-Ponty, as well as research based on global workspace theory, and the conceptions of embodied and enacted cognition. I will suggest that within a wider horizon of investigation, the ambiguity as regards the term representation will decrease. (shrink)

This literature review of professionalism was prepared by San Jose State University graduate student Marianne Allison as a research committee project of the Mass Communication and Society Division, Association for Education in Journalism and Mass Communication. The project was prepared under the guidance of Professor Diana Stover Tillinghast. It reviews the literature on two approaches to professionalism in general and of the professionalism of journalists in particular: the ?structural?functionalist approach?; and the ?power approach.?; Traditional and recent discussions of the nature (...) of professionalism in occupational sociology are presented. Studies of the professionalism of journalists both in the United States and cross?culturally are critiqued. The paper suggests several areas of fruitful research, and contains an extensive bibliography. (shrink)

Enacting Images is devoted to images as they can mobilize cognition and theorizing. Though we can speak of a pictorial turn now that images have become a distinct and full-fledged topic of investigation, some may continue to cling to the impression that images should still be considered within a fundamentally representationalist framework. As an alternative, the enactive approach provides a conceptual setup within which images, beyond their informational, immersive, and aesthetic power, can be considered as being the manifestations of a (...) new epistemic access to the world. The present volume is a collection of essays that reflectively investigate the theoretical prerequisites, scope, and limits of enactive approach. (shrink)

Ten years before the publication of this new monograph, William A. Johnson set out an elaborate paradigm for the understanding of ancient reading in a Gildersleeve Prize-winning article in this very journal. Moving beyond the traditional contrast between silent and loud reading, he argued that ancient reading is best understood neither as an act, nor as a cognitive process or technology, but rather as "the negotiated construction of meaning within a particular socio-cultural context". In this monograph he undertakes an investigation (...) into the notion of imperial Rome as a "reading culture" under just such a definition; in particular, he analyzes select communities of literary exchange in the second-century empire in detail to assess the social and cultural values constructed through the reading experience. (shrink)

This study investigates whether addressees visually attend to speakers’ gestures in interaction and whether attention is modulated by changes in social setting and display size. We compare a live face-to-face setting to two video conditions. In all conditions, the face dominates as a fixation target and only a minority of gestures draw fixations. The social and size parameters affect gaze mainly when combined and in the opposite direction from the predicted with fewer gestures fixated on video than live. Gestural holds (...) and speakers’ gaze at their own gestures reliably attract addressees’ fixations in all conditions. The attraction force of holds is unaffected by changes in social and size parameters, suggesting a bottom-up response, whereas speaker-fixated gestures draw significantly less attention in both video conditions, suggesting a social effect for overt gaze-following and visual joint attention. The study provides and validates a video-based paradigm enabling further experimental but ecologically valid explorations of cross-modal information processing. (shrink)

In the advertising discourse of human genetic database projects, of genetic ancestry tracing companies, and in popular books on anthropological genetics, what I refer to as the anthropological gene and genome appear as documents of human history, by far surpassing the written record and oral history in scope and accuracy as archives of our past. How did macromolecules become "documents of human evolutionary history"? Historically, molecular anthropology, a term introduced by Emile Zuckerkandl in 1962 to characterize the study of primate (...) phylogeny and human evolution on the molecular level, asserted its claim to the privilege of interpretation regarding hominoid, hominid, and human phylogeny and evolution vis-à-vis other historical sciences such as evolutionary biology, physical anthropology, and paleoanthropology. This process will be discussed on the basis of three key conferences on primate classification and evolution that brought together exponents of the respective fields and that were held in approximately ten-years intervals between the early 1960s and the 1980s. I show how the anthropological gene and genome gained their status as the most fundamental, clean, and direct records of historical information, and how the prioritizing of these epistemic objects was part of a complex involving the objectivity of numbers, logic, and mathematics, the objectivity of machines and instruments, and the objectivity seen to reside in the epistemic objects themselves. (shrink)

Do you want to make sure you · Don’t invest your money in the next Enron? · Don’t go to work for the next WorldCom right before the crash? · Identify and solve problems in your organization before they send it crashing to the ground? Marianne Jennings has spent a lifetime studying business ethics---and ethical failures. In demand nationwide as a speaker and analyst on business ethics, she takes her decades of findings and shows us in The Seven Signs of (...) Ethical Collapse the reasons that companies and nonprofits undergo ethical collapse, including: · Pressure to maintain numbers · Fear and silence · Young ’uns and a larger-than-life CEO · A weak board · Conflicts · Innovation like no other · Belief that goodness in some areas atones for wrongdoing in others Don’t watch the next accounting disaster take your hard-earned savings, or accept the perfect job only to find out your boss is cooking the books. If you’re just interested in understanding the (not-so) ethical underpinnings of business today, The Seven Signs of Ethical Collapse is both a must-have tool and a fascinating window into today’s business world. (shrink)

In environmental ethics, there has been too little attention to the question of why changes in environmental beliefs do not simply result in changes in behavior, given that this gap between belief and behavior is widespread. In this essay, I argue that two forms of inaction that exhibit this gap can be helpfully analyzed by reading them in terms of a Lutheran account of sin. To make the argument, I distinguish seven forms of and reasons for inaction, from which I (...) pull out two “privileged” forms of inaction that characterize people who could act and yet do not. Using psychological and sociological research, I interpret these two forms of inaction as, on the one hand, people’s attempts at securing righteousness and, on the other hand, people’s terrorized consciences in response to the complexity and gravity of climate change. I end suggesting a turn to justification within Christian environmental ethics. (shrink)

Trente-cinq ans après le numéro d'hommage que lui consacrait à sa mort La Nouvelle Revue française, cet ouvrage rassemble une matière inédite sur le philosophe, écrivain et éditeur Brice Parain. Il s'agit, d'une part, de textes et témoignages prononcés lors d'une journée d'études en juin 2002 organisée par la Bibliothèque nationale de France, détentrice de ses archives personnelles. On y a joint, d'autre part, un ensemble de documents éclairant d'un nouveau jour le parcours singulier d'une des grandes figures intellectuelles françaises (...) du siècle dernier. Les analyses des historiens se mêlent ici, documents et archives à l'appui, aux travaux des philosophes et des critiques pour porter un regard plus renseigné sur ses multiples interventions dans la vie intellectuelle, littéraire et politique du pays : son rapport au communisme et aux communistes français, son rôle exact dans l'histoire éditoriale de la NRF, son dialogue avec les nouvelles figures dominantes de la vie intellectuelle de l'après-guerre son célèbre affrontement avec Jean-Paul Sartre est l'épisode le plus souvent cité ; mais il y en aura d'autres... Et voilà bien sûr que, par d'autres voies, on interroge à nouveau, en s'efforçant de la saisir sous tous ses aspects et variations et dans sa grande profondeur, ce qui demeure la grande question de sa vie : qu'est-ce qu'un langage à la mesure et au service de l'homme? Homme de courage et de cœur autant qu'homme de lettres, Parain tire sans doute son opiniâtreté d'une enfance paysanne où l'on ne se payait pas de mots. Les témoignages abondent pour dépeindre la gentillesse, l'ouverture d'esprit, l'obstination aussi du " philosophe paysan " qui n'a jamais rien oublié de la campagne de son enfance. Ni de la Russie, d'ailleurs, qu'il connaissait intimement et dont il contribua à faire connaître les grands auteurs passés et contemporains en menant une politique active de publications et de traductions - des grandes traductions données par la " Pléiade " au Docteur Jivago de Boris Pasternak. Un Français à l'âme slave, donc. Et une personnalité très attachante. (shrink)

Enactivism has much to offer to moral, social and political philosophy through giving a new perspective on existing ethical problems and improving our understanding of morally ambiguous behaviours. I illustrate this through the case of self-injury, a common problematic behaviour which has so far received little philosophical attention. My aim in this paper has been to use ideas from enactivism in order to explore self-injury without assuming a priori that it is morally or socially wrong under all circumstances, seeking to (...) establish a less implicitly value-laden analysis. Enactivism can help us in making this behaviour more intelligible and contextualising it through examining the relations of individual embodied action and social practices with the help of enactivist theories of habits and affordances. (shrink)

Recent results confirm that long‐term expression of therapeutic transgenes can be achieved by using a transposon‐based system in primary stem cells and in vivo. Transposable elements are natural DNA transfer vehicles that are capable of efficient genomic insertion. The latest generation, Sleeping Beauty transposon‐based hyperactive vector (SB100X), is able to address the basic problem of non‐viral approaches – that is, low efficiency of stable gene transfer. The combination of transposon‐based non‐viral gene transfer with the latest improvements of non‐viral delivery techniques (...) could provide a long‐term therapeutic effect without compromising biosafety. The new challenges of pre‐clinical research will focus on further refinement of the technology in large animal models and improving the safety profile of SB vectors by target‐selected transgene integration into genomic “safe harbors.” The first clinical application of the SB system will help to validate the safety of this approach. (shrink)

References to publications written by women constitute a significantly larger proportion of citations in articles written by women than in articles written by men in the same subfields. Further, the difference between citation patterns of men and women authors increases as the proportion of women in the discipline decreases, showing that these women are doubly disadvantaged in accumulating citations. These results suggest that the problems of members of an out-group tend to be most serious when their numbers are small and (...) that they will find it increasingly easier to gain acceptance and recognition as their numbers increase. (shrink)

Although it is now generally acknowledged that new biomedical technologies often produce new definitions and sometimes even new concepts of disease, this observation is rarely used in research that anticipates potential ethical issues in emerging technologies. This article argues that it is useful to start with an analysis of implied concepts of disease when anticipating ethical issues of biomedical technologies. It shows, moreover, that it is possible to do so at an early stage, i.e. when a technology is only just (...) emerging. The specific case analysed here is that of ‘molecular medicine’. This group of emerging technologies combines a ‘cascade model’ of disease processes with a ‘personal pattern’ model of bodily functioning. Whereas the ethical implications of the first are partly familiar from earlier—albeit controversial—forms of preventive and predictive medicine, those of the second are quite novel and potentially far-reaching. (shrink)

With disagreement, doubts, or ambiguous grounds in end–of-life decisions, doctors are advised to involve a clinical ethics committee. However, little has been published on doctors’ experiences with discussing an end-of-life decision in a CEC. As part of the quality assurance of this work, we wanted to find out if clinicians have benefited from discussing end-of-life decisions in CECs and why. We will disseminate some Norwegian doctors’ experiences when discussing end-of-life decisions in CECs, based on semi-structured interviews with fifteen Norwegian physicians (...) who had brought an end-of-life decision case to a CEC. Almost half of the cases involved conflicts with the patients’ relatives. In a majority of the cases, there was uncertainty about what would be the ethically preferable solution. Reasons for referring the case to the CEC were to get broader illumination of the case, to get perspective from people outside the team, to get advice, or to get moral backing on a decision already made. A great majority of the clinicians reported an overall positive experience with the CECs’ discussions. In cases where there was conflict, the clinicians reported less satisfaction with the CECs’ discussions. The study shows that most doctors who have used a CEC in an end-of-life decision find it useful to have ethical and/or legal aspects illuminated, and to have the dilemma scrutinized from a new perspective. A systematic discussion seems to be significant to the clinicians. (shrink)