9 found
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  1.  30
    Pragmatic Clinical Trial-Collateral Findings: Recognizing the Needs of Low-Resource Research Participants.Courtney A. Stewart, Kayla E. Cooper, Megan B. Raymond, Faith E. Fletcher & Vence L. Bonham - 2020 - American Journal of Bioethics 20 (1):19-21.
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  2.  13
    Patient Perceptions on the Advancement of Noninvasive Prenatal Testing for Sickle Cell Disease among Black Women in the United States.Shameka P. Thomas, Faith E. Fletcher, Rachele Willard, Tiara Monet Ranson & Vence L. Bonham - 2024 - AJOB Empirical Bioethics 15 (2):154-163.
    Background Noninvasive prenatal testing (NIPT) designed to screen for fetal genetic conditions, is increasingly being implemented as a part of routine prenatal care screening in the United States (US). However, these advances in reproductive genetic technology necessitate empirical research on the ethical and social implications of NIPT among populations underrepresented in genetic research, particularly Black women with sickle cell disease (SCD).Methods Forty (N = 40) semi-structured interviews were conducted virtually with Black women in the US (19 participants with SCD; 21 (...)
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  3.  25
    Herstory as an Important Force in Bioethics.Stephen Sodeke, Faith E. Fletcher, Virginia A. Brown, John R. Stone, Cynthia B. Wilson, Tené Hamilton Franklin, Charmaine D. M. Royal & Vence L. Bonham - 2022 - Hastings Center Report 52 (S1):83-88.
    Hastings Center Report, Volume 52, Issue S1, Page S83-S88, March‐April 2022.
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  4.  32
    Taking a Stand: The Genetics Community's Responsibility for Intelligence Research.Shawneequa L. Callier & Vence L. Bonham - 2015 - Hastings Center Report 45 (S1):54-58.
    There is a longstanding debate about genetics research into intelligence. Some scholars question the value of focusing on genetic contributions to intelligence in a society where social and environmental determinants powerfully influence cognitive ability and educational outcomes. Others warn that censoring certain research questions, such as inquiries about genetic differences in intellectual potential, compromises academic freedom. Still others view interest in this subject as a corollary to a long and troublesome history of eugenics research. The dawn of a new era (...)
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  5.  56
    Race, Ethnicity, and Pain Treatment: Striving to Understand the Causes and Solutions to the Disparities in Pain Treatment.Vence L. Bonham - 2001 - Journal of Law, Medicine and Ethics 29 (1):52-68.
    would like for them to know that I am in pain or this part of my body hurts or the other part hurts — that I am not lying about it. To examine me and to cut down on the pain….And help me out.Patient with Sickle Cell Disease, Focus Group ParticipantPain in the United States is widely recognized to be undertreated; however, the capacity to treat pain has never been greater. The causes of this undertreatment are varied. As we focus (...)
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  6.  29
    The Role of the Health Care Provider in Building Trust Between Patients and Precision Medicine Research Programs.Anitra Persaud & Vence L. Bonham - 2018 - American Journal of Bioethics 18 (4):26-28.
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  7.  28
    The Meaning of Informed Consent: Genome Editing Clinical Trials for Sickle Cell Disease.Stacy Desine, Brittany M. Hollister, Khadijah E. Abdallah, Anitra Persaud, Sara Chandros Hull & Vence L. Bonham - 2020 - AJOB Empirical Bioethics 11 (4):195-207.
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  8.  36
    Intersectionality and Clinical Decision Making: The Role of Race.Yen Ji Julia Byeon, Sherrill L. Sellers & Vence L. Bonham - 2019 - American Journal of Bioethics 19 (2):20-22.
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  9.  67
    Inclusion of Racial and Ethnic Minorities in Genetic Research: Advance the Spirit by Changing the Rules?Sarah Knerr, Dawn Wayman & Vence L. Bonham - 2011 - Journal of Law, Medicine and Ethics 39 (3):502-512.
    As genetic and genomic research has progressed since the sequencing of the human genome, scientists have continued to struggle to understand the role of genetic and socio-cultural factors in racial and ethnic health disparities. Recognition that race and ethnicity correlate imperfectly with differences in allele frequency, environmental exposures, and significant health outcomes has made framing the relationship between genetic variation, race, ethnicity, and disease one of the most heated debates of the genome era. Because racial and ethnic identities reflect a (...)
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