Results for 'Susan M. Cox'

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  1.  77
    Accessing Health Services Through the Back Door: A Qualitative Interview Study Investigating Reasons Why People Participate in Health Research in Canada. [REVIEW]Anne Townsend & Susan M. Cox - 2013 - BMC Medical Ethics 14 (1):40.
    Although there is extensive information about why people participate in clinical trials, studies are largely based on quantitative evidence and typically focus on single conditions. Over the last decade investigations into why people volunteer for health research have become increasingly prominent across diverse research settings, offering variable based explanations of participation patterns driven primarily by recruitment concerns. Therapeutic misconception and altruism have emerged as predominant themes in this literature on motivations to participate in health research. This paper contributes to more (...)
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  2.  24
    Courtney S. Campbell is the Hundere.Helen Stanton Chapple, Jessica C. Cox, Leonard M. Fleck, Marian Fontana, Susan Gilbert & Lawrence O. Gostin - forthcoming - Hastings Center Report.
  3.  73
    Stephen Ogden, Carol Poster, Cathleen M. Bauschatz, Geoffrey Galt Harpham, Paul J. Korshin, Harvey L. Hix, William Walker, John Goodliffe, William Flesch, Anthony J. Cascardi, Graham Zanker, Ellen S. Fine, James G. Williams, John D. Cox, Véronique M. Fóti, Robert W. Burch, Susan B. Brill, John Durham Peters, David Gorman, Tony E. Jackson, Dora E. Polachek, Mark Stocker, Eric Dean, David Herman, Virginia A. La Charité, Edward E. Foster, C. W. Spinks, Paul M. Hedeen, Ruth Groenhout, Adriano P. Palma, Roblin Meeks, David Wetsel, Tom Conley, Dan Latimer, Michael Calabrese, Edward Donald Kennedy, Catharine Savage Brosman, Merold Westphal, Patrick Henry. [REVIEW]David Novitz - 1995 - Philosophy and Literature 19 (2):360.
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  4.  67
    Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations.Susan M. Wolf, Frances P. Lawrenz, Charles A. Nelson, Jeffrey P. Kahn, Mildred K. Cho, Ellen Wright Clayton, Joel G. Fletcher, Michael K. Georgieff, Dale Hammerschmidt, Kathy Hudson, Judy Illes, Vivek Kapur, Moira A. Keane, Barbara A. Koenig, Bonnie S. LeRoy, Elizabeth G. McFarland, Jordan Paradise, Lisa S. Parker, Sharon F. Terry, Brian Van Ness & Benjamin S. Wilfond - 2008 - Journal of Law, Medicine and Ethics 36 (2):219-248.
    No consensus yet exists on how to handle incidental fnd-ings in human subjects research. Yet empirical studies document IFs in a wide range of research studies, where IFs are fndings beyond the aims of the study that are of potential health or reproductive importance to the individual research participant. This paper reports recommendations of a two-year project group funded by NIH to study how to manage IFs in genetic and genomic research, as well as imaging research. We conclude that researchers (...)
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  5.  60
    Feminism & Bioethics: Beyond Reproduction.Susan M. Wolf (ed.) - 1996 - Oxford University Press.
    Bioethics has paid surprisingly little attention to the special problems faced by women and to feminist analyses of current health care issues other than ...
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  6.  36
    Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.Susan M. Wolf, Rebecca Branum, Barbara A. Koenig, Gloria M. Petersen, Susan A. Berry, Laura M. Beskow, Mary B. Daly, Conrad V. Fernandez, Robert C. Green, Bonnie S. LeRoy, Noralane M. Lindor, P. Pearl O'Rourke, Carmen Radecki Breitkopf, Mark A. Rothstein, Brian Van Ness & Benjamin S. Wilfond - 2015 - Journal of Law, Medicine and Ethics 43 (3):440-463.
    Genomic research results and incidental findings with health implications for a research participant are of potential interest not only to the participant, but also to the participant's family. Yet investigators lack guidance on return of results to relatives, including after the participant's death. In this paper, a national working group offers consensus analysis and recommendations, including an ethical framework to guide investigators in managing this challenging issue, before and after the participant's death.
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  7.  50
    The Relational Self: An Interpersonal Social-Cognitive Theory.Susan M. Andersen & Serena Chen - 2002 - Psychological Review 109 (4):619-645.
  8.  8
    Return of Results in Participant-Driven Research: Learning From Transformative Research Models.Susan M. Wolf - 2020 - Journal of Law, Medicine and Ethics 48 (S1):159-166.
    Participant-driven research is a burgeoning domain of research innovation, often facilitated by mobile technologies. Return of results and data are common hallmarks, grounded in transparency and data democracy. PDR has much to teach traditional research about these practices and successful engagement. Recommendations calling for new state laws governing research with mHealth modalities common in PDR and federal creation of review mechanisms, threaten to stifle valuable participant-driven innovation, including in return of results.
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  9.  34
    The Law of Incidental Findings in Human Subjects Research: Establishing Researchers' Duties.Susan M. Wolf, Jordan Paradise & Charlisse Caga-Anan - 2008 - Journal of Law, Medicine and Ethics 36 (2):361-383.
    Technology has outpaced the capacity of researchers performing research on human participants to interpret all data generated and handle those data responsibly. This poses a critical challenge to existing rules governing human subjects research. The technologies used in research to generate images, scans, and data can now produce so much information that there is significant potential for incidental findings, findings generated in the course of research but beyond the aims of the study. Neuroimaging scans may visualize the entire brain and (...)
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  10.  4
    Integrating Rules for Genomic Research, Clinical Care, Public Health Screening and DTC Testing: Creating Translational Law for Translational Genomics.Susan M. Wolf, Pilar N. Ossorio, Susan A. Berry, Henry T. Greely, Amy L. McGuire, Michelle A. Penny & Sharon F. Terry - 2020 - Journal of Law, Medicine and Ethics 48 (1):69-86.
    Human genomics is a translational field spanning research, clinical care, public health, and direct-to-consumer testing. However, law differs across these domains on issues including liability, consent, promoting quality of analysis and interpretation, and safeguarding privacy. Genomic activities crossing domains can thus encounter confusion and conflicts among these approaches. This paper suggests how to resolve these conflicts while protecting the rights and interests of individuals sequenced. Translational genomics requires this more translational approach to law.
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  11.  69
    Teaching Business Ethics: The Effectiveness of Common Pedagogical Practices in Developing Students' Moral Judgment Competence.Susan M. Bosco, David E. Melchar, Laura L. Beauvais & David E. Desplaces - 2010 - Ethics and Education 5 (3):263 - 280.
    This study investigates the effectiveness of pedagogical practices used to teach business ethics. The business community has greatly increased its demands for better ethics education in business programs. Educators have generally agreed that the ethical principles of business people have declined. It is important, then, to examine how common methods of instruction used in business ethics could contribute to the development of higher levels of moral judgment competence for students. To determine the effectiveness of these methods, moral judgment competence levels (...)
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  12.  33
    Beyond "Genetic Discrimination": Toward the Broader Harm of Geneticism.Susan M. Wolf - 1995 - Journal of Law, Medicine and Ethics 23 (4):345-353.
    The current explosion of genetic knowledge and the rapid proliferation of genetic tests has rightly provoked concern that we are approaching a future in which people will be labeled and disadvantaged based on genetic information. Indeed, some have already suffered harm, including denial of health insurance. This concern has prompted an outpouring of analysis. Yet almost all of it approaches the problem of genetic disadvantage under the rubric of “genetic discrimination.”This rubric is woefully inadequate to the task at hand. It (...)
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  13.  24
    The Challenge of Incidental Findings.Susan M. Wolf - 2008 - Journal of Law, Medicine and Ethics 36 (2):216-218.
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  14.  49
    The Moral Self and the Indirect Passions.Susan M. Purviance - 1997 - Hume Studies 23 (2):195-212.
    I argue that Hume and Kant avoid any scepticism about the unity of the self which would undermine a practical notion of the moral self. Specifically, David Hume provides for the authenticity of a moral self unified by the indirect passions of pride and humility. These passions take the self as their object and, thus, make moot any worries about personal identity from Book One of Hume's Treatise. This account of the moral self, which I call the fact of agency (...)
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  15.  46
    Gene Therapy Oversight: Lessons for Nanobiotechnology.Susan M. Wolf, Rishi Gupta & Peter Kohlhepp - 2009 - Journal of Law, Medicine and Ethics 37 (4):659-684.
    Oversight of human gene transfer research presents an important model with potential application to oversight of nanobiology research on human participants. Gene therapy oversight adds centralized federal review at the National Institutes of Health's Office of Biotechnology Activities and its Recombinant DNA Advisory Committee to standard oversight of human subjects research at the researcher's institution and at the federal level by the Office for Human Research Protections. The Food and Drug Administration's Center for Biologics Evaluation and Research oversees human gene (...)
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  16.  10
    Health Care Reform and the Future of Physician Ethics.Susan M. Wolf - 1994 - Hastings Center Report 24 (2):28-41.
  17.  34
    Connecting the Two Faces of Csr: Does Employee Volunteerism Improve Compliance?Susan M. Houghton, Joan T. A. Gabel & David W. Williams - 2009 - Journal of Business Ethics 87 (4):477 - 494.
    In 2004, the United States Sentencing Commission amended the Federal Sentencing Guidelines to allow firms that create “effective compliance and ethics programs” to receive better treatment if prosecuted for fraud. Effective compliance and ethics, however, appear to be limited to activities focused on complying with the firms’ internal legal and ethical standards. We explored a potential connection between the firms’ external corporate social responsibility (CSR) behaviors and internal compliance: Is there an organizationally valid relationship between these two firm activities? That (...)
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  18.  9
    The Continuing Evolution of Ethical Standards for Genomic Sequencing in Clinical Care: Restoring Patient Choice.Susan M. Wolf - 2017 - Journal of Law, Medicine and Ethics 45 (3):333-340.
    Developing ethical standards for clinical use of large-scale genome and exome sequencing has proven challenging, in part due to the inevitability of incidental or secondary findings. Policy of the American College of Medical Genetics and Genomics has evolved but remains problematic. In 2013, ACMG issued policy recommending mandatory analysis of 56 extra genes whenever sequencing was ordered for any indication, in order to ascertain positive findings in pathogenic and actionable genes. Widespread objection yielded a 2014 amendment allowing patients to opt-out (...)
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  19. The Unconscious Relational Self.Susan M. Andersen, Inga Reznik & Noah S. Glassman - 2005 - In Ran R. Hassin, James S. Uleman & John A. Bargh (eds.), The New Unconscious. Oxford Series in Social Cognition and Social Neuroscience. Oxford University Press. pp. 421-481.
  20.  9
    The Past, Present, and Future of Informed Consent in Research and Translational Medicine.Susan M. Wolf, Ellen Wright Clayton & Frances Lawrenz - 2018 - Journal of Law, Medicine and Ethics 46 (1):7-11.
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  21.  3
    Compensation and Reparations for Victims and Bystanders of the U.S. Public Health Service Research Studies in Tuskegee and Guatemala: Who Do We Owe What?Susan M. Reverby - 2020 - Bioethics 34 (9):893-898.
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  22.  10
    Ethics Committees: In The Courts.Susan M. Wolf - 1986 - Hastings Center Report 16 (3):12-15.
  23. Confronting Physician Assisted Suicide and Euthanasia: My Father's Death.Susan M. Wolf - 2008 - Hastings Center Report 38 (5):pp. 23-26.
  24.  8
    Mapping the Ethics of Translational Genomics: Situating Return of Results and Navigating the Research‐Clinical Divide.Susan M. Wolf, Wylie Burke & Barbara A. Koenig - 2015 - Journal of Law, Medicine and Ethics 43 (3):486-501.
    Both bioethics and law have governed human genomics by distinguishing research from clinical practice. Yet the rise of translational genomics now makes this traditional dichotomy inadequate. This paper pioneers a new approach to the ethics of translational genomics. It maps the full range of ethical approaches needed, proposes a “layered” approach to determining the ethics framework for projects combining research and clinical care, and clarifies the key role that return of results can play in advancing translation.
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  25.  32
    Using Preimplantation Genetic Diagnosis to Create a Stem Cell Donor: Issues, Guidelines & Limits.Susan M. Wolf, Jeffrey P. Kahn & John E. Wagner - 2003 - Journal of Law, Medicine and Ethics 31 (3):327-339.
    Successful preimplantation genetic diagnosis to avoid creating a child affected by a genetically-based disorder was reported in 1989. Since then PGD has been used to biopsy and analyze embryos created through in viuo fertilization to avoid transferring to the mother’s uterus an embryo affected by a mutation or chromosomal abnormality associated with serious illness. PGD to avoid serious and early-onset illness in the child-to-be is widely accepted. PGD prevents gestation of an affected embryo and reduces the chance that the parents (...)
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  26.  27
    Pragmatic Tools for Sharing Genomic Research Results with the Relatives of Living and Deceased Research Participants.Susan M. Wolf, Emily Scholtes, Barbara A. Koenig, Gloria M. Petersen, Susan A. Berry, Laura M. Beskow, Mary B. Daly, Conrad V. Fernandez, Robert C. Green, Bonnie S. LeRoy, Noralane M. Lindor, P. Pearl O'Rourke, Carmen Radecki Breitkopf, Mark A. Rothstein, Brian Van Ness & Benjamin S. Wilfond - 2018 - Journal of Law, Medicine and Ethics 46 (1):87-109.
    Returning genomic research results to family members raises complex questions. Genomic research on life-limiting conditions such as cancer, and research involving storage and reanalysis of data and specimens long into the future, makes these questions pressing. This author group, funded by an NIH grant, published consensus recommendations presenting a framework. This follow-up paper offers concrete guidance and tools for implementation. The group collected and analyzed relevant documents and guidance, including tools from the Clinical Sequencing Exploratory Research Consortium. The authors then (...)
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  27. A Hierarchical Biased-Competition Model of Domain-Dependent Working Memory Mainatenance and Executive Control.Susan M. Courtney, Jennifer K. Roth & Sala & B. Joseph - 2007 - In Naoyuki Osaka, Robert H. Logie & Mark D'Esposito (eds.), The Cognitive Neuroscience of Working Memory. Oxford University Press.
     
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  28.  12
    Holding the Line on Euthanasia.Susan M. Wolf - 1989 - Hastings Center Report 19 (1):13-15.
  29.  51
    Due Process in Ethics Committee Case Review.Susan M. Wolf - 1992 - HEC Forum 4 (2):83-96.
  30.  33
    Bioethics Matures: The Field Faces the Future.Susan M. Wolf & Jeffrey P. Kahn - 2005 - Hastings Center Report 35 (4):22.
  31.  37
    An Explanation and Analysis of How World Religions Formulate Their Ethical Decisions on Withdrawing Treatment and Determining Death.Susan M. Setta & Sam D. Shemie - 2015 - Philosophy, Ethics, and Humanities in Medicine 10:6.
    This paper explores definitions of death from the perspectives of several world and indigenous religions, with practical application for health care providers in relation to end of life decisions and organ and tissue donation after death. It provides background material on several traditions and explains how different religions derive their conclusions for end of life decisions from the ethical guidelines they proffer.
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  32.  15
    New Partners in Community Legal Preparedness: Public Health and the Health Care Bar.Lorraine Spencer, Susan K. Steeg, Gary Cox, Gene Matthews & Montrece Ransom - 2004 - Journal of Law, Medicine and Ethics 32 (S4):45-46.
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  33.  17
    New Partners in Community Legal Preparedness: Public Health and the Health Care Bar.Lorraine Spencer, Susan K. Steeg, Gary Cox, Gene Matthews & Montrece Ransom - 2004 - Journal of Law, Medicine and Ethics 32 (s4):45-46.
  34.  14
    Conflict Between Doctor and Patient.Susan M. Wolf - 1988 - Journal of Law, Medicine and Ethics 16 (3-4):197-203.
  35.  42
    Shaftesbury on Self as a Practice.Susan M. Purviance - 2004 - Journal of Scottish Philosophy 2 (2):154-163.
  36.  11
    The Philosopher's Child: Critical Perspectives in the Western Tradition.Susan M. Turner & Gareth B. Matthews (eds.) - 1998 - University of Rochester Press.
    This collection of essays examines how philosophers in the Western tradition have viewed and written about children through the ages. (Philosophy).
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  37.  9
    Using Preimplantation Genetic Diagnosis to Create a Stem Cell Donor: Issues, Guidelines & Limits.Susan M. Wolf, Jeffrey P. Kahn & John E. Wagner - 2003 - Journal of Law, Medicine and Ethics 31 (3):327-339.
    Successful preimplantation genetic diagnosis to avoid creating a child affected by a genetically-based disorder was reported in 1989. Since then PGD has been used to biopsy and analyze embryos created through in viuo fertilization to avoid transferring to the mother’s uterus an embryo affected by a mutation or chromosomal abnormality associated with serious illness. PGD to avoid serious and early-onset illness in the child-to-be is widely accepted. PGD prevents gestation of an affected embryo and reduces the chance that the parents (...)
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  38.  8
    Toward a Theory of Process.Susan M. Wolf - 1992 - Journal of Law, Medicine and Ethics 20 (4):278-290.
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  39.  18
    Concepts of Nerve Fiber Development, 1839-1930.Susan M. Billings - 1971 - Journal of the History of Biology 4 (2):275 - 305.
    It was thus the combination of observational and experimental approaches that ultimately led to confirmation of the outgrowth theory. The observational method was essential for defining various possible methods of nerve fiber development. The multicellular, protoplasmic bridge and outgrowth theories were each postulated to explain purely observational evidence. However, the lack of truly suitable equipment and techniques to study the developing nervous system made it impossible to agree on a single theory on this basis alone. The experimental method provided a (...)
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  40.  4
    Social Reactions to the Expression of Emotion.Susan M. Labott, Randall B. Martin, Patricia S. Eason & Elayne Y. Berkey - 1991 - Cognition and Emotion 5 (5-6):397-417.
  41.  78
    A Respectful World: Merleau-Ponty and the Experience of Depth.Susan M. Bredlau - 2010 - Human Studies 33 (4):411-423.
    The everyday experience of someone, or something, getting in one’s face reveals a depth that is the difference between a world that is intrusive and a world that is respectful. This depth, I argue, should be conceived, not in feet and inches, but in terms of violation and honor. I explore three factors that contribute to this depth’s emergence. First, I examine our body’s capacity, at the level of sense experience, for giving the world a figure/ground structure; this structure insures (...)
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  42.  14
    The Processing of Auditory and Visual Recognition of Self-Stimuli.Susan M. Hughes & Shevon E. Nicholson - 2010 - Consciousness and Cognition 19 (4):1124-1134.
    This study examined self-recognition processing in both the auditory and visual modalities by determining how comparable hearing a recording of one’s own voice was to seeing photograph of one’s own face. We also investigated whether the simultaneous presentation of auditory and visual self-stimuli would either facilitate or inhibit self-identification. Ninety-one participants completed reaction-time tasks of self-recognition when presented with their own faces, own voices, and combinations of the two. Reaction time and errors made when responding with both the right and (...)
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  43.  20
    Beyonde Viande: The Ethics of Faux Flesh, Fake Fur and Thriftshop Leather.Susan M. Turner - 2005 - Between the Species 13 (5):6.
    Moral debate over vegetarianism forms the backdrop to a preliminary consideration of the questions: Is it ethical to produce, sell and eat faux meat? Is it ethical to produce, sell and wear fake animal skin? Is it ethical to sell or wear secondhand or thriftshop genuine animal skin? If vegetarianism is morally required, the question of just what uses of nonhuman animals are ethical or unethical and on what grounds is always on tap. In this piece, I examine the above (...)
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  44.  20
    More Than Fact and Fiction: Cultural Memory and the Tuskegee Syphilis Study.Susan M. Reverby - 2001 - Hastings Center Report 31 (5):22-28.
  45.  33
    What Has Covid‐19 Exposed in Bioethics? Four Myths.Susan M. Wolf - 2021 - Hastings Center Report 51 (3):3-4.
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  46.  3
    INTRODUCTION: Return of Research Results: What About the Family?Susan M. Wolf - 2015 - Journal of Law, Medicine and Ethics 43 (3):437-439.
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  47.  87
    Neurolaw: The Big Question.Susan M. Wolf - 2008 - American Journal of Bioethics 8 (1):21 – 22.
  48.  18
    Genetic Testing and the Future of Disability Insurance: Ethics, Law & Policy.Susan M. Wolf & Jeffrey P. Kahn - 2007 - Journal of Law, Medicine and Ethics 35 (s2):6-32.
    Predictive genetic testing poses fundamental questions for disability insurance, a crucial resource funding basic needs when disability prevents income from work. This article, from an NIH-funded project, presents the first indepth analysis of the challenging issues: Should disability insurers be permitted to consider genetics and exclude predicted disability? May disabilities with a recognized genetic basis be excluded from coverage as pre-existing conditions? How can we assure that private insurers writing individual and group policies, employers, and public insurers deal competently and (...)
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  49.  11
    Reflections on Apologies and the Studies in Tuskegee and Guatemala.Susan M. Reverby - 2012 - Ethics and Behavior 22 (6):493-495.
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  50.  3
    The Rights of Reason: A Study of Kant's Philosophy and Politics.Susan M. Shell & Susan Meld Shell - 1980 - University of Toronto Press.
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