Results for 'Susan E. Wallace'

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  1. Whither Consent in Clinical Genetics?Susan E. Wallace - 2025 - In Bartha Maria Knoppers, E. S. Dove, Vasiliki Rahimzadeh & Michael J. S. Beauvais (eds.), Promoting the "human" in law, policy, and medicine: essays in honour of Bartha Maria Knoppers. Boston: Brill/Nijhoff.
     
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  2.  42
    The Needle in the Haystack: International Consortia and the Return of Individual Research Results.Susan E. Wallace - 2011 - Journal of Law, Medicine and Ethics 39 (4):631-639.
    Where research was once strictly confined to one laboratory or office, investigators now widely share and compare their plans, analyses, and results. With the advent of genomic knowledge, researchers are seeking to understand the genetics and genomics of complex human disease. They are combining their efforts into international consortia in order to take on problems that face individuals around the world, such as cancer and malaria — problems that are too large to solve by one country alone. These consortia bring (...)
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  3.  36
    Adding dynamic consent to a longitudinal cohort study: A qualitative study of EXCEED participant perspectives.Susan E. Wallace & José Miola - 2021 - BMC Medical Ethics 22 (1):1-10.
    Background Dynamic consent has been proposed as a process through which participants and patients can gain more control over how their data and samples, donated for biomedical research, are used, resulting in greater trust in researchers. It is also a way to respond to evolving data protection frameworks and new legislation. Others argue that the broad consent currently used in biobank research is ethically robust. Little empirical research with cohort study participants has been published. This research investigated the participants’ opinions (...)
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  4.  71
    Respecting Autonomy Over Time: Policy and Empirical Evidence on Re‐Consent in Longitudinal Biomedical Research.Susan E. Wallace, Elli G. Gourna, Graeme Laurie, Osama Shoush & Jessica Wright - 2015 - Bioethics 30 (3):210-217.
    Re-consent in research, the asking for a new consent if there is a change in protocol or to confirm the expectations of participants in case of change, is an under-explored issue. There is little clarity as to what changes should trigger re-consent and what impact a re-consent exercise has on participants and the research project. This article examines applicable policy statements and literature for the prevailing arguments for and against re-consent in relation to longitudinal cohort studies, tissue banks and biobanks. (...)
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  5.  38
    Family tree and ancestry inference: is there a need for a ‘generational’ consent?Susan E. Wallace, Elli G. Gourna, Viktoriya Nikolova & Nuala A. Sheehan - 2015 - BMC Medical Ethics 16 (1):1-9.
    BackgroundGenealogical research and ancestry testing are popular recreational activities but little is known about the impact of the use of these services on clients’ biological and social families. Ancestry databases are being enriched with self-reported data and data from deoxyribonucleic acid analyses, but also are being linked to other direct-to-consumer genetic testing and research databases. As both family history data and DNA can provide information on more than just the individual, we asked whether companies, as a part of the consent (...)
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  6.  49
    Harmonised consent in international research consortia: an impossible dream?Bartha M. Knoppers & Susan E. Wallace - 2011 - Genomics, Society and Policy 7 (1):1-12.
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  7.  16
    Cross-Cultural Biotechnology: A Reader.Stella Gonzalez Arnal, Donald Chalmers, David Kum-Wah Chan, Margaret Coffey, Jo Ann T. Croom, Mylène Deschênes, Henrich Ganthaler, Yuri Gariev, Ryuichi Ida, Jeffrey P. Kahn, Martin O. Makinde, Anna C. Mastroianni, Katharine R. Meacham, Bushra Mirza, Michael J. Morgan, Dianne Nicol, Edward Reichman, Susan E. Wallace & Larissa P. Zhiganova (eds.) - 2004 - Rowman & Littlefield Publishers.
    This book is a rich blend of analyses by leading experts from various cultures and disciplines. A compact introduction to a complex field, it illustrates biotechnology's profound impact upon the environment and society. Moreover, it underscores the vital relevance of cultural values. This book empowers readers to more critically assess biotechnology's value and effectiveness within both specific cultural and global contexts.
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  8.  33
    E-Tomorrow at Harvard University Press.Susan Wallace Boehmer - 2011 - Logos 22 (1):7-11.
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  9.  18
    Emerging Regulatory Issues for Human Stem Cell Medicine1.Kathleen Liddell & Susan Wallace - 2005 - Genomics, Society and Policy 1 (1):1-20.
    The regulation of stem cell research is an issue that has drawn much comment, criticism and even judicial arbitration in recent years. An emerging issue, addressed in this article, is how the fruits of that research-stem cell medicine-are likely to be regulated en route from lab to market. Taking account of the ethical, legal, social and safety issues raised by stem cell medicine and the goals of governance, the article explains the relevant regulatory instruments (e.g. the draft UK Stem Cell (...)
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  10.  50
    Listening to People: Using Social Psychology to Spotlight an Overlooked Virtue.Susan E. Notess - 2019 - Philosophy 94 (4):621-643.
    I offer a novel interdisciplinary approach to understanding the communicative task of listening, which is under-theorised compared to its more conspicuous counterpart, speech. By correlating a Rylean view of mental actions with a virtue ethical framework, I show listeners’ internal activity as a morally relevant feature of how they treat people. The listener employs a policy of responsiveness in managing the extent to which they allow a speaker's voice to be centred within their more effortful, engaged attention. A just listener's (...)
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  11. Hope for the future: Achieving the original intent of advance directives.Susan E. Hickman, Bernard J. Hammes, Alvin H. Moss & Susan W. Tolle - 2005 - Hastings Center Report 35 (6):s26-s30.
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  12.  33
    Public Bioethics and Publics: Consensus, Boundaries, and Participation in Biomedical Science Policy.Susan E. Kelly - 2003 - Science, Technology and Human Values 28 (3):339-364.
    Public bioethics bodies are used internationally as institutions with the declared aims of facilitating societal debate and providing policy advice in certain areas of scientific inquiry raising questions of values and legitimate science. In the United States, bioethical experts in these institutions use the language of consensus building to justify and define the outcome of the enterprise. However, the implications of public bioethics at science-policy boundaries are underexamined. Political interest in such bodies continues while their influence on societal consensus, public (...)
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  13.  41
    Understanding the Practice of Ethics Consultation: Results of an Ethnographic Multi-Site Study.Susan E. Kelly, Patricia A. Marshall, Lee M. Sanders, Thomas A. Raffin & Barbara A. Koenig - 1997 - Journal of Clinical Ethics 8 (2):136-149.
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  14.  53
    Walter Reed and the yellow fever experiments.Susan E. Lederer - 2008 - In Ezekiel J. Emanuel (ed.), The Oxford textbook of clinical research ethics. New York: Oxford University Press. pp. 9--17.
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  15. Partner‐Specific Adaptation in Dialog.Susan E. Brennan & Joy E. Hanna - 2009 - Topics in Cognitive Science 1 (2):274-291.
    No one denies that people adapt what they say and how they interpret what is said to them, depending on their interactive partners. What is controversial is when and how they do so. Several psycholinguistics research programs have found what appear to be failures to adapt to partners in the early moments of processing and have used this evidence to argue for modularity in the language processing architecture, claiming that the system cannot take into account a partner’s distinct needs or (...)
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  16. The Acropolis.Susan E. Alcock - 1991 - The Classical Review 41 (02):441-.
  17.  25
    Making sure you know whom to kill: spatial strategies and strategic boundaries in the Eastern Roman Empire.Susan E. Alcock - 2007 - Millennium 4 (1):13-20.
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  18.  13
    Artless Integrity: Moral Imagination, Agency, and Stories.Susan E. Babbitt - 2000 - Rowman & Littlefield Publishers.
    Susan Babbitt dissects a common moral perspective for judging importance which she calls 'moral imagination.' In order to explain ourselves, and to recognize in others, what we often already perceive intuitively to be right or good, we instinctively create a story as a framework. She argues that we intentionally create stories which appear artless or chaotic, something capable of imperfection. This allows the story-maker to eventually deviate if he or she chooses, without a loss of hope, even if that (...)
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  19.  10
    Whose Movement? STS and Social Justice.Susan E. Cozzens - 1993 - Science, Technology and Human Values 18 (3):275-277.
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  20. Where Shall Wisdom Be Found? Calvin's Exegesis of Job From Medieval and Modern Perspectives.Susan E. Schreiner - 1994
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  21. (1 other version)Impossible dreams: rationality, integrity, and moral imagination.E. Babbitt Susan - 1996 - Boulder, Colo.: Westview Press.
    Conventional wisdom and commonsense morality tend to take the integrity of persons for granted. But for people in systematically unjust societies, self-respect and human dignity may prove to be impossible dreams.Susan Babbitt explores the implications of this insight, arguing that in the face of systemic injustice, individual and social rationality may require the transformation rather than the realization of deep-seated aims, interests, and values. In particular, under such conditions, she argues, the cultivation and ongoing exercise of moral imagination is (...)
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  22.  19
    Michael Roemer, Telling Stories: Postmodernism and The Invalidation of Traditional Narrative.Susan E. Babbitt - 1997 - Journal of Aesthetics and Art Criticism 55 (3):331-332.
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  23.  9
    Keepin’ This Little Town Going: Gender and Volunteerism in Rural America.Susan E. Mannon & Peggy Petrzelka - 2006 - Gender and Society 20 (2):236-258.
    Past studies have shown that women’s volunteer work benefits communities but that women themselves tend to minimize their efforts. Most of these studies, however, have been limited to women volunteering in suburban and urban contexts. Drawing on a study of women volunteers in rural Iowa, the authors find that women frame their volunteer experiences in three ways: as an expression of their maternal nature, as a way to socialize, and as a contribution to the local economy. The authors’ findings depart (...)
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  24.  14
    Love in the Time of Neo-Liberalism: Gender, Work, and Power in a Costa Rican Marriage.Susan E. Mannon - 2006 - Gender and Society 20 (4):511-530.
    Households around the world have shifted structurally from a breadwinner/homemaker model to dual-income earning arrangements. What this trend means for marital power has been a contested issue among scholars. Most studies suggest that household power is determined by a complex interplay between each spouse's economic contributions to the household and existing gender norms. Few scholars, however, have examined how this interplay is worked out under particular political-economic conditions. Responding to the dearth of research on the developing world in this area, (...)
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  25. Collective memory or knowledge of the past : "Covering reality with flowers".Susan E. Babbitt - 2009 - In Sue Campbell, Letitia Meynell & Susan Sherwin (eds.), Embodiment and Agency. Pennsylvania State University Press.
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  26.  50
    Engineering education for sustainability: Reflections on “the Greening of engineers” (A. ansari).Susan E. Murcott - 2001 - Science and Engineering Ethics 7 (1):137-140.
  27.  22
    Three Ch'ing Critics on Yüan Painting and the Ideal of SpontaneityThree Ch'ing Critics on Yuan Painting and the Ideal of Spontaneity.Susan E. Nelson - 1986 - Journal of the American Oriental Society 106 (2):297.
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  28. Joint british academy/british psychological society lecture.Susan E. Gathercole - 2004 - Proceedings of the British Academy: Volume 125: 2003 Lectures 125:365-380.
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  29. Women In Mission: From the New Testament to Today.Susan E. Smith - 2007
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  30. Darkened by the shadow of the atom : Burn research in 1950s America.Susan E. Lederer - 2006 - In Wolfgang Uwe Eckart (ed.), Man, medicine, and the state: the human body as an object of government sponsored medical research in the 20th century. Stuttgart: Steiner.
     
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  31.  10
    Humanism and embodiment: from cause and effect to secularism.Susan E. Babbitt - 2014 - New York: Bloomsbury Academic.
    A live issue in anthropology and development studies, humanism is not typically addressed by analytic philosophers. Arguing for humanism as a view about truths, Humanism and Embodiment insists that disembodied reason, not religion, should be the target of secularists promoting freedom of enquiry and human community. Susan Babbitt's original study presents humanism as a meta-ethical view, paralleling naturalistic realism in recent analytic epistemology and philosophy of science. Considering the nature of knowledge, particularly the radical contingency of knowledge claims upon (...)
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  32. The elusive goal of informed consent by adolescents.Susan E. Zinner - 1995 - Theoretical Medicine and Bioethics 16 (4).
    While parents have traditionally provided proxy consent for minors to participate in research, this has proven inadequate for adolescents who are mentally and emotionally capable of making their own decisions. Research has proven that even young children, and certainly most adolescents, are developmentally prepared to make such decisions for themselves. The author challenges the assumption that both consent and assent are static concepts, and proposes that a sliding scale of competence be created to ascertain the adolescent's comprehension of the proposed (...)
     
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  33.  26
    Putting Death in Context.Susan E. Lederer - 2008 - Hastings Center Report 38 (6):3-3.
  34. Working memory and language.Susan E. Gathercole - 2009 - In Gareth Gaskell (ed.), Oxford Handbook of Psycholinguistics. Oxford University Press.
     
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  35.  53
    Two steps forward, one step back: Partner-specific effects in a psychology of dialogue.Susan E. Brennan & Charles A. Metzing - 2004 - Behavioral and Brain Sciences 27 (2):192-193.
    Pickering & Garrod's (P&G's) call to study language processing in dialogue context is an appealing one. Their interactive alignment model is ambitious, aiming to explain the converging behavior of dialogue partners via both intra- and interpersonal priming. However, they ignore the flexible, partner-specific processing demonstrated by some recent dialogue studies. We discuss implications of these data.
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  36.  11
    Derek Price and the Paradigm of Science Policy.Susan E. Cozzens - 1988 - Science, Technology, and Human Values 13 (3-4):361-372.
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  37.  6
    Reaffirming Old Commitments.Susan E. Cozzens - 1989 - Science, Technology and Human Values 14 (3):227-228.
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  38.  13
    The Disappearing Disciplines of STS.Susan E. Cozzens - 1990 - Bulletin of Science, Technology and Society 10 (1):1-5.
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  39. From "scraps and fragments" to "whole organisms" : Molecular biology, clinical research, and post genomic bodies.Susan E. Kelly - 2006 - In Paul Atkinson (ed.), New Genetics, New Indentities. Routledge.
  40.  18
    Early Buddhism as philosophy of existence: freedom and death.Susan E. Babbitt - 2022 - New York, USA: Anthem Press.
    This book makes the connection between early Buddhism and nature. Early Buddhism was a system of thinking which applied the universal laws of nature to human beings. It was not a religion. It was a comprehensive worldview. But after the first 400-500 years, it was slowly lost.
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  41. Priorities of counseling programs and outcomes within the Virginia community college system.Susan E. Short - 1998 - Inquiry (ERIC) 2 (1):62-67.
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  42.  75
    Coordinating cognition: The costs and benefits of shared gaze during collaborative search.Susan E. Brennan, Xin Chen, Christopher A. Dickinson, Mark B. Neider & Gregory J. Zelinsky - 2008 - Cognition 106 (3):1465-1477.
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  43.  12
    Letter from the Editor: To the Readers of ST&HV.Susan E. Cozzens - 1991 - Science, Technology and Human Values 16 (2):264-264.
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  44.  26
    Radical Philosophy: Tradition, Counter-Tradition, Politics.Susan E. Babbitt - 1995 - Philosophical Review 104 (1):166.
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  45.  8
    Letters to a mother on the philosophy of Froebel.Susan E. Blow - 1899 - New York,: D. Appleton and company.
    This work has been selected by scholars as being culturally important, and is part of the knowledge base of civilization as we know it. This work was reproduced from the original artifact, and remains as true to the original work as possible. Therefore, you will see the original copyright references, library stamps (as most of these works have been housed in our most important libraries around the world), and other notations in the work.This work is in the public domain in (...)
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  46.  17
    The Oxford Handbook of Cognitive Science: Volume 1.Susan E. F. Chipman (ed.) - 2016 - Oxford University Press USA.
    This handbook is currently in development, with individual articles publishing online in advance of print publication. At this time, we cannot add information about unpublished articles in this handbook, however the table of contents will continue to grow as additional articles pass through the review process and are added to the site. Please note that the online publication date for this handbook is the date that the first article in the title was published online.
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  47.  53
    Two Steps to Three Choices: A New Approach to Mandated Choice.Susan E. Herz - 1999 - Cambridge Quarterly of Healthcare Ethics 8 (3):340-347.
    Approximately 62,000 people in this country await organ transplants. Ten years ago the waiting list numbered 16,000. The line gets longer every day. Up to 30% of those waiting in line will die waiting. We face a chronic shortage of organs. While demand for organs steadily increases, the number of cadaveric organ donors remains relatively constant: approximately 4,000 in 1988, and approximately 5,500 in 1997. In response to this environment of scarcity, policymakers have considered initiatives in a number of domains.
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  48.  33
    (1 other version)Women and Autobiography.Susan E. Babbitt - 2003 - Hypatia 18 (3):215-218.
  49.  74
    The POLST (Physician Orders for Life-Sustaining Treatment) Paradigm to Improve End-of-Life Care: Potential State Legal Barriers to Implementation.Susan E. Hickman, Charles P. Sabatino, Alvin H. Moss & Jessica Wehrle Nester - 2008 - Journal of Law, Medicine and Ethics 36 (1):119-140.
    The Physician Orders for Life-Sustaining Treatment Paradigm is designed to improve end-of-life care by converting patients’ treatment preferences into medical orders that are transferable throughout the health care system. It was initially developed in Oregon, but is now implemented in multiple states with many others considering its use. Accordingly, an observational study was conducted in order to identify potential legal barriers to the implementation of a POLST Paradigm. Information was obtained from experts at state emergency medical services and long-term care (...)
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  50.  22
    Reasons, Explanation, and Saramago's Bell.Susan E. Babbitt - 2005 - Hypatia 20 (4):144-163.
    In this essay, I suggest that significant insights of recent feminist philosophy lead, among other things, to the thought that it is not always better to choose than to be compelled to do what one might have done otherwise. However, few feminists, if any, would defend such a suggestion. I ask why it is difficult to consider certain ideas that, while challenging in theory, are, nonetheless, rather unproblematic in practice. I suggest that some questions are not pursued seriously enough by (...)
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