Results for 'Susan E. Kelly'

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  1.  11
    Public Bioethics and Publics: Consensus, Boundaries, and Participation in Biomedical Science Policy.Susan E. Kelly - 2003 - Science, Technology and Human Values 28 (3):339-364.
    Public bioethics bodies are used internationally as institutions with the declared aims of facilitating societal debate and providing policy advice in certain areas of scientific inquiry raising questions of values and legitimate science. In the United States, bioethical experts in these institutions use the language of consensus building to justify and define the outcome of the enterprise. However, the implications of public bioethics at science-policy boundaries are underexamined. Political interest in such bodies continues while their influence on societal consensus, public (...)
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  2.  33
    Understanding the Practice of Ethics Consultation: Results of an Ethnographic Multi-Site Study.Susan E. Kelly, Patricia A. Marshall, Lee M. Sanders, Thomas A. Raffin & Barbara A. Koenig - 1997 - Journal of Clinical Ethics 8 (2):136-149.
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  3.  63
    Beyond individualism: Is there a place for relational autonomy in clinical practice and research?Edward S. Dove, Susan E. Kelly, Federica Lucivero, Mavis Machirori, Sandi Dheensa & Barbara Prainsack - 2017 - Clinical Ethics 12 (3):150-165.
    The dominant, individualistic understanding of autonomy that features in clinical practice and research is underpinned by the idea that people are, in their ideal form, independent, self-interested and rational gain-maximising decision-makers. In recent decades, this paradigm has been challenged from various disciplinary and intellectual directions. Proponents of ‘relational autonomy’ in particular have argued that people’s identities, needs, interests – and indeed autonomy – are always also shaped by their relations to others. Yet, despite the pronounced and nuanced critique directed at (...)
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  4. From "scraps and fragments" to "whole organisms" : Molecular biology, clinical research, and post genomic bodies.Susan E. Kelly - 2006 - In Paul Atkinson (ed.), New Genetics, New Indentities. Routledge.
  5.  24
    Illness Online: Self-reported Data and Questions of Trust in Medical and Social Research.Sally Wyatt, Anna Harris, Samantha Adams & Susan E. Kelly - 2013 - Theory, Culture and Society 30 (4):131-150.
    Self-reported data are regarded by medical researchers as invalid and less reliable than data produced by experts in clinical settings, yet individuals can increasingly contribute personal information to medical research through a variety of online platforms. In this article we examine this ‘participatory turn’ in healthcare research, which claims to challenge conventional delineations of what is valid and reliable for medical practice, by using aggregated self-reported experiences from patients and ‘pre-patients’ via the internet. We focus on 23andMe, a genetic testing (...)
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  6.  16
    The Therapeutic Odyssey: Positioning Genomic Sequencing in the Search for a Child’s Best Possible Life.Janet Elizabeth Childerhose, Carla Rich, Kelly M. East, Whitley V. Kelley, Shirley Simmons, Candice R. Finnila, Kevin Bowling, Michelle Amaral, Susan M. Hiatt, Michelle Thompson, David E. Gray, James M. J. Lawlor, Richard M. Myers, Gregory S. Barsh, Edward J. Lose, Martina E. Bebin, Greg M. Cooper & Kyle Bertram Brothers - 2021 - AJOB Empirical Bioethics 12 (3):179-189.
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  7.  22
    Foucault On Psychoanalysis: Missed Encounter or Gordian Knot?Mark G. E. Kelly - 2020 - Foucault Studies 1 (28):96-119.
    Foucault’s remarks concerning psychoanalysis are ambivalent and even prima facie contra-dictory, at times lauding Freud and Lacan as anti-humanists, at others being severely criti-cal of their imbrication within psychiatric power. This has allowed a profusion of interpretations of his position, between so-called ‘Freudo-Foucauldians’ at one extreme and Foucauldians who condemn psychoanalysis as such at the other. In this article, I begin by surveying Foucault’s biographical and theoretical relationship to psychoanalysis and the sec-ondary scholarship on this relationship to date. I pay (...)
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  8. Moral Agency and Free Choice: Clarke's Unlikely Success against Hume.E. Kelly - 2002 - Archiv für Geschichte der Philosophie 84:297-318.
  9.  45
    Walter Reed and the yellow fever experiments.Susan E. Lederer - 2008 - In Ezekiel J. Emanuel (ed.), The Oxford textbook of clinical research ethics. New York: Oxford University Press. pp. 9--17.
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  10. Partner‐Specific Adaptation in Dialog.Susan E. Brennan & Joy E. Hanna - 2009 - Topics in Cognitive Science 1 (2):274-291.
    No one denies that people adapt what they say and how they interpret what is said to them, depending on their interactive partners. What is controversial is when and how they do so. Several psycholinguistics research programs have found what appear to be failures to adapt to partners in the early moments of processing and have used this evidence to argue for modularity in the language processing architecture, claiming that the system cannot take into account a partner’s distinct needs or (...)
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  11.  87
    Impossible dreams: rationality, integrity, and moral imagination.E. Babbitt Susan - 1996 - Boulder, Colo.: Westview Press.
    Conventional wisdom and commonsense morality tend to take the integrity of persons for granted. But for people in systematically unjust societies, self-respect and human dignity may prove to be impossible dreams.Susan Babbitt explores the implications of this insight, arguing that in the face of systemic injustice, individual and social rationality may require the transformation rather than the realization of deep-seated aims, interests, and values. In particular, under such conditions, she argues, the cultivation and ongoing exercise of moral imagination is (...)
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  12.  24
    Adding dynamic consent to a longitudinal cohort study: A qualitative study of EXCEED participant perspectives.Susan E. Wallace & José Miola - 2021 - BMC Medical Ethics 22 (1):1-10.
    Background Dynamic consent has been proposed as a process through which participants and patients can gain more control over how their data and samples, donated for biomedical research, are used, resulting in greater trust in researchers. It is also a way to respond to evolving data protection frameworks and new legislation. Others argue that the broad consent currently used in biobank research is ethically robust. Little empirical research with cohort study participants has been published. This research investigated the participants’ opinions (...)
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  13. Working memory and language.Susan E. Gathercole - 2009 - In Gareth Gaskell (ed.), Oxford Handbook of Psycholinguistics. Oxford University Press.
     
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  14. The elusive goal of informed consent by adolescents.Susan E. Zinner - 1995 - Theoretical Medicine and Bioethics 16 (4).
    While parents have traditionally provided proxy consent for minors to participate in research, this has proven inadequate for adolescents who are mentally and emotionally capable of making their own decisions. Research has proven that even young children, and certainly most adolescents, are developmentally prepared to make such decisions for themselves. The author challenges the assumption that both consent and assent are static concepts, and proposes that a sliding scale of competence be created to ascertain the adolescent's comprehension of the proposed (...)
     
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  15.  6
    Revisioning science: essays toward a new knowledge base for our culture.Susan E. Mehrtens (ed.) - 1996 - Waterbury, Vt.: Potlatch Group.
  16.  66
    Coordinating cognition: The costs and benefits of shared gaze during collaborative search.Susan E. Brennan, Xin Chen, Christopher A. Dickinson, Mark B. Neider & Gregory J. Zelinsky - 2008 - Cognition 106 (3):1465-1477.
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  17.  99
    Hope for the future: Achieving the original intent of advance directives.Susan E. Hickman, Bernard J. Hammes, Alvin H. Moss & Susan W. Tolle - 2005 - Hastings Center Report 35 (6):s26-s30.
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  18.  47
    Respecting Autonomy Over Time: Policy and Empirical Evidence on Re‐Consent in Longitudinal Biomedical Research.Susan E. Wallace, Elli G. Gourna, Graeme Laurie, Osama Shoush & Jessica Wright - 2015 - Bioethics 30 (3):210-217.
    Re-consent in research, the asking for a new consent if there is a change in protocol or to confirm the expectations of participants in case of change, is an under-explored issue. There is little clarity as to what changes should trigger re-consent and what impact a re-consent exercise has on participants and the research project. This article examines applicable policy statements and literature for the prevailing arguments for and against re-consent in relation to longitudinal cohort studies, tissue banks and biobanks. (...)
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  19. Balibar and Transindividuality.Mark G. E. Kelly & Dimitris Vardoulakis - 2018 - Australasian Philosophical Review 2 (1):1-4.
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  20.  36
    The Needle in the Haystack: International Consortia and the Return of Individual Research Results.Susan E. Wallace - 2011 - Journal of Law, Medicine and Ethics 39 (4):631-639.
    Where research was once strictly confined to one laboratory or office, investigators now widely share and compare their plans, analyses, and results. With the advent of genomic knowledge, researchers are seeking to understand the genetics and genomics of complex human disease. They are combining their efforts into international consortia in order to take on problems that face individuals around the world, such as cancer and malaria — problems that are too large to solve by one country alone. These consortia bring (...)
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  21.  17
    The Use of Narratives In Graduate Bioethics Education.Susan E. Zinner - 2019 - Cambridge Quarterly of Healthcare Ethics 28 (2):361-368.
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  22.  30
    Foucault Contra Honneth: Resistance or Recognition?Mark G. E. Kelly - 2017 - Critical Horizons 18 (3):214-230.
    This article deals with the relationship between the thought of Michel Foucault and that of Axel Honneth, arguing in favour of the former against the latter. I begin by considering Honneth’s early engagement in The Critique of Power with Foucault’s thought. I rebut Honneth’s criticisms of Foucault here as a misreading, one which prevents Honneth from coming to grips with Foucault’s position and hence the challenge that it poses to Honneth’s project. I then move on to offer a Foucauldian critique (...)
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  23.  8
    A Professional-Managerial Imperium: The National Security State and American Power.Mark G. E. Kelly - 2023 - Telos: Critical Theory of the Contemporary 2023 (205):103-126.
    ExcerptIn 2021, in the pages of this journal, I contended that a coalition of interests in the United States had coalesced in opposition to the presidency of Donald Trump and duly taken power through the vehicle of Joe Biden.1 This coalition includes the Democratic Party, corporate elites, the media, academia, and—the subject of the present article—the national security (natsec) state. In that earlier piece, I focused on particular components of this coalition: legacy and social media. I went on in a (...)
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  24.  11
    We, Voluntary Victorians: Foucault’s_ History of Sexuality _Volume 1 Revisited.Mark G. E. Kelly - 2023 - Telos: Critical Theory of the Contemporary 2023 (204):81-100.
    IntroductionAs we near the semicentennial of the 1976 publication of the first volume of Foucault’s History of Sexuality, for all its influence in the interim, this work remains today extraordinarily challenging in relation to our sexual mores. In this article, I will attempt to reapply its insights to analyze contemporary trends in sexuality and gender. Questions that I will consider include the continuing applicability of Foucault’s analyses, to what extent and how they may need to be revised in light of (...)
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  25.  82
    Racism and Philosophy.Susan E. Babbitt & Sue Campbell (eds.) - 1999 - Cornell University Press.
    By definitively establishing that racism has broad implications for how the entire field of philosophy is practiced -- and by whom -- this powerful and ...
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  26.  4
    Whose Movement? STS and Social Justice.Susan E. Cozzens - 1993 - Science, Technology and Human Values 18 (3):275-277.
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  27.  34
    Listening to People: Using Social Psychology to Spotlight an Overlooked Virtue.Susan E. Notess - 2019 - Philosophy 94 (4):621-643.
    I offer a novel interdisciplinary approach to understanding the communicative task of listening, which is under-theorised compared to its more conspicuous counterpart, speech. By correlating a Rylean view of mental actions with a virtue ethical framework, I show listeners’ internal activity as a morally relevant feature of how they treat people. The listener employs a policy of responsiveness in managing the extent to which they allow a speaker's voice to be centred within their more effortful, engaged attention. A just listener's (...)
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  28.  16
    Putting Death in Context.Susan E. Lederer - 2008 - Hastings Center Report 38 (6):3-3.
  29.  37
    The POLST (Physician Orders for Life-Sustaining Treatment) Paradigm to Improve End-of-Life Care: Potential State Legal Barriers to Implementation.Susan E. Hickman, Charles P. Sabatino, Alvin H. Moss & Jessica Wehrle Nester - 2008 - Journal of Law, Medicine and Ethics 36 (1):119-140.
    The Physician Orders for Life-Sustaining Treatment Paradigm is designed to improve end-of-life care by converting patients' treatment preferences into medical orders that are transferable throughout the health care system. It was initially developed in Oregon, but is now implemented in multiple states with many others considering its use. An observational study was conducted in order to identify potential legal barriers to the implementation of a POLST Paradigm. Information was obtained from experts at state emergency medical services and long-term care organizations/agencies (...)
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  30.  16
    The POLST (Physician Orders for Life-Sustaining Treatment) Paradigm to Improve End-of-Life Care: Potential State Legal Barriers to Implementation.Susan E. Hickman, Charles P. Sabatino, Alvin H. Moss & Jessica Wehrle Nester - 2008 - Journal of Law, Medicine and Ethics 36 (1):119-140.
    The Physician Orders for Life-Sustaining Treatment Paradigm is designed to improve end-of-life care by converting patients’ treatment preferences into medical orders that are transferable throughout the health care system. It was initially developed in Oregon, but is now implemented in multiple states with many others considering its use. Accordingly, an observational study was conducted in order to identify potential legal barriers to the implementation of a POLST Paradigm. Information was obtained from experts at state emergency medical services and long-term care (...)
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  31.  27
    Balibar’s Transindividualism: What Kind of Via Negativa?Mark G. E. Kelly - 2018 - Australasian Philosophical Review 2 (1):26-31.
    In this response, while agreeing with Balibar’s substantive positive position, I take issue with the way he situates it. Specifically, he casts it as a via negativa in relation to all previously existing thought. I suggest that it would be more accurate to say he is positioning the notion of the transindividual as a via media between two alleged extremes, individualism and organicism. I argue that the idea that there is an opposite and equal error to individualism is mistaken, and (...)
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  32.  5
    Can Cognitive Neuroscience Ground a Science of Learning?Anthony E. Kelly - 2011 - Educational Philosophy and Theory 43 (1):17-23.
    In this article, I review recent findings in cognitive neuroscience in learning, particularly in the learning of mathematics and of reading. I argue that while cognitive neuroscience is in its infancy as a field, theories of learning will need to incorporate and account for this growing body of empirical data.
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  33. Darkened by the shadow of the atom : Burn research in 1950s America.Susan E. Lederer - 2006 - In Wolfgang Uwe Eckart (ed.), Man, Medicine, and the State: The Human Body As an Object of Government Sponsored Medical Research in the 20th Century. Steiner.
     
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  34.  40
    Developmental changes in short-term memory: A revised working memory perspective.Susan E. Gathercole & Graham J. Hitch - 1993 - In A. Collins, S. Gathercole, Martin A. Conway & P. E. Morris (eds.), Theories of Memory. Lawrence Erlbaum. pp. 1--189.
  35. Where Shall Wisdom Be Found? Calvin's Exegesis of Job From Medieval and Modern Perspectives.Susan E. Schreiner - 1994
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  36. Collective memory or knowledge of the past : "Covering reality with flowers".Susan E. Babbitt - 2009 - In Sue Campbell, Letitia Meynell & Susan Sherwin (eds.), Embodiment and Agency. Pennsylvania State University Press.
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  37.  39
    Two Steps to Three Choices: A New Approach to Mandated Choice.Susan E. Herz - 1999 - Cambridge Quarterly of Healthcare Ethics 8 (3):340-347.
    Approximately 62,000 people in this country await organ transplants. Ten years ago the waiting list numbered 16,000. The line gets longer every day. Up to 30% of those waiting in line will die waiting. We face a chronic shortage of organs. While demand for organs steadily increases, the number of cadaveric organ donors remains relatively constant: approximately 4,000 in 1988, and approximately 5,500 in 1997. In response to this environment of scarcity, policymakers have considered initiatives in a number of domains.
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  38.  9
    Artless Integrity: Moral Imagination, Agency, and Stories.Susan E. Babbitt - 2000 - Rowman & Littlefield Publishers.
    Susan Babbitt dissects a common moral perspective for judging importance which she calls 'moral imagination.' In order to explain ourselves, and to recognize in others, what we often already perceive intuitively to be right or good, we instinctively create a story as a framework. She argues that we intentionally create stories which appear artless or chaotic, something capable of imperfection. This allows the story-maker to eventually deviate if he or she chooses, without a loss of hope, even if that (...)
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  39.  2
    Female Founders of STS.Susan E. Cozzens - 1993 - Science, Technology and Human Values 18 (4):403-407.
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  40.  5
    The Disappearing Disciplines of STS.Susan E. Cozzens - 1990 - Bulletin of Science, Technology and Society 10 (1):1-5.
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  41.  29
    Family tree and ancestry inference: is there a need for a ‘generational’ consent?Susan E. Wallace, Elli G. Gourna, Viktoriya Nikolova & Nuala A. Sheehan - 2015 - BMC Medical Ethics 16 (1):1-9.
    BackgroundGenealogical research and ancestry testing are popular recreational activities but little is known about the impact of the use of these services on clients’ biological and social families. Ancestry databases are being enriched with self-reported data and data from deoxyribonucleic acid analyses, but also are being linked to other direct-to-consumer genetic testing and research databases. As both family history data and DNA can provide information on more than just the individual, we asked whether companies, as a part of the consent (...)
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  42.  23
    Harmonised consent in international research consortia: an impossible dream?Susan E. Wallace & M. Knoppers Bartha - 2011 - Genomics, Society and Policy 7 (1):1-12.
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  43. Another Voice: Putting Death in Context.Susan E. Lederer - forthcoming - Hastings Center Report.
     
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  44.  6
    Disease in the Popular American Press: The Case of Diphtheria, Typhoid Fever, and Syphilis, 1870-1920Terra Ziporyn.Susan E. Lederer - 1990 - Isis 81 (4):794-795.
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  45.  16
    “Ethics and Clinical Research” in Biographical Perspective.Susan E. Lederer - 2016 - Perspectives in Biology and Medicine 59 (1):18-36.
    Fifty years ago, Henry Knowles Beecher published his essay on clinical research ethics in the New England Journal of Medicine. The culmination of more than a decade and a half’s rumination and reflection on the use of patients and “captive populations” in research, Beecher’s 1966 article understandably casts a large shadow in American bioethics. In 1976, the Institute of Society, Ethics and the Life Sciences established the Henry Knowles Beecher Award for Contributions to Ethics and the Life Sciences and named (...)
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  46.  16
    Frankenstein's Footsteps: Science, Genetics, and Popular Culture. Jon Turney.Susan E. Lederer - 1999 - Isis 90 (2):375-376.
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  47.  8
    Factories of Death: Japanese Biological Warfare 1932-45 and the American Cover-Up. Sheldon H. Harris.Susan E. Lederer - 1995 - Isis 86 (4):687-687.
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  48.  17
    Going for the Burn: Medical Preparedness in Early Cold War America.Susan E. Lederer - 2011 - Journal of Law, Medicine and Ethics 39 (1):48-53.
    This article looks at the context of research in treating burns at the dawn of the atomic age. Funded by the Army and other defense agencies, burn research increased as concerns over an atomic attack on an American city intensified.
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  49.  13
    Going for the Burn: Medical Preparedness in Early Cold War America.Susan E. Lederer - 2011 - Journal of Law, Medicine and Ethics 39 (1):48-53.
    On September 23, 1949, President Harry Truman announced that the Soviet Union had successfully detonated an atomic bomb. The news that the Soviet Union had done this came as little surprise to a number of American scientists and to some members of the intelligence community who had predicted that the Soviets would quickly acquire this advanced weapons technology. But for many Americans this news was disturbing. Truman’s announcement was taken up by, among others, a young Baptist evangelist named Billy Graham. (...)
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  50.  13
    Images of Animals: Anthropomorphism and Animal Mind. Eileen CristHumans and Other Animals. Arien Mack.Susan E. Lederer - 2000 - Isis 91 (4):834-835.
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