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Sara Goering [68]Sara Lynn Goering [1]
  1.  50
    Staying in the Loop: Relational Agency and Identity in Next-Generation DBS for Psychiatry.Sara Goering, Eran Klein, Darin D. Dougherty & Alik S. Widge - 2017 - American Journal of Bioethics Neuroscience 8 (2):59-70.
    In this article, we explore how deep brain stimulation (DBS) devices designed to “close the loop”—to automatically adjust stimulation levels based on computational algorithms—may risk taking the individual agent “out of the loop” of control in areas where (at least apparent) conscious control is a hallmark of our agency. This is of particular concern in the area of psychiatric disorders, where closed-loop DBS is attracting increasing attention as a therapy. Using a relational model of identity and agency, we consider whether (...)
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  2.  43
    Recommendations for Responsible Development and Application of Neurotechnologies.Sara Goering, Eran Klein, Laura Specker Sullivan, Anna Wexler, Blaise Agüera Y. Arcas, Guoqiang Bi, Jose M. Carmena, Joseph J. Fins, Phoebe Friesen, Jack Gallant, Jane E. Huggins, Philipp Kellmeyer, Adam Marblestone, Christine Mitchell, Erik Parens, Michelle Pham, Alan Rubel, Norihiro Sadato, Mina Teicher, David Wasserman, Meredith Whittaker, Jonathan Wolpaw & Rafael Yuste - 2021 - Neuroethics 14 (3):365-386.
    Advancements in novel neurotechnologies, such as brain computer interfaces and neuromodulatory devices such as deep brain stimulators, will have profound implications for society and human rights. While these technologies are improving the diagnosis and treatment of mental and neurological diseases, they can also alter individual agency and estrange those using neurotechnologies from their sense of self, challenging basic notions of what it means to be human. As an international coalition of interdisciplinary scholars and practitioners, we examine these challenges and make (...)
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  3.  42
    Mapping the Dimensions of Agency.Andreas Schönau, Ishan Dasgupta, Timothy Brown, Erika Versalovic, Eran Klein & Sara Goering - 2021 - American Journal of Bioethics Neuroscience 12 (2):172-186.
    Neural devices have the capacity to enable users to regain abilities lost due to disease or injury – for instance, a deep brain stimulator (DBS) that allows a person with Parkinson’s disease to regain the ability to fluently perform movements or a Brain Computer Interface (BCI) that enables a person with spinal cord injury to control a robotic arm. While users recognize and appreciate the technologies’ capacity to maintain or restore their capabilities, the neuroethics literature is replete with examples of (...)
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  4.  59
    Minding Rights: Mapping Ethical and Legal Foundations of ‘Neurorights’.Sjors Ligthart, Marcello Ienca, Gerben Meynen, Fruzsina Molnar-Gabor, Roberto Andorno, Christoph Bublitz, Paul Catley, Lisa Claydon, Thomas Douglas, Nita Farahany, Joseph J. Fins, Sara Goering, Pim Haselager, Fabrice Jotterand, Andrea Lavazza, Allan McCay, Abel Wajnerman Paz, Stephen Rainey, Jesper Ryberg & Philipp Kellmeyer - 2023 - Cambridge Quarterly of Healthcare Ethics 32 (4):461-481.
    The rise of neurotechnologies, especially in combination with artificial intelligence (AI)-based methods for brain data analytics, has given rise to concerns around the protection of mental privacy, mental integrity and cognitive liberty – often framed as “neurorights” in ethical, legal, and policy discussions. Several states are now looking at including neurorights into their constitutional legal frameworks, and international institutions and organizations, such as UNESCO and the Council of Europe, are taking an active interest in developing international policy and governance guidelines (...)
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  5.  15
    Fostering Neuroethics Integration with Neuroscience in the BRAIN Initiative: Comments on the NIH Neuroethics Roadmap.Sara Goering & Eran Klein - 2020 - American Journal of Bioethics Neuroscience 11 (3):184-188.
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  6.  26
    Ethical Issues in Intraoperative Neuroscience Research: Assessing Subjects’ Recall of Informed Consent and Motivations for Participation.Anna Wexler, Rebekah J. Choi, Ashwin G. Ramayya, Nikhil Sharma, Brendan J. McShane, Love Y. Buch, Melanie P. Donley-Fletcher, Joshua I. Gold, Gordon H. Baltuch, Sara Goering & Eran Klein - 2022 - AJOB Empirical Bioethics 13 (1):57-66.
    BackgroundAn increasing number of studies utilize intracranial electrophysiology in human subjects to advance basic neuroscience knowledge. However, the use of neurosurgical patients as human research subjects raises important ethical considerations, particularly regarding informed consent and undue influence, as well as subjects’ motivations for participation. Yet a thorough empirical examination of these issues in a participant population has been lacking. The present study therefore aimed to empirically investigate ethical concerns regarding informed consent and voluntariness in Parkinson’s disease patients undergoing deep brain (...)
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  7. The Role of Family Members in Psychiatric Deep Brain Stimulation Trials: More Than Psychosocial Support.Marion Boulicault, Sara Goering, Eran Klein, Darin Dougherty & Alik S. Widge - 2023 - Neuroethics 16 (2):1-18.
    Family members can provide crucial support to individuals participating in clinical trials. In research on the “newest frontier” of Deep Brain Stimulation (DBS)—the use of DBS for psychiatric conditions—family member support is frequently listed as a criterion for trial enrollment. Despite the significance of family members, qualitative ethics research on DBS for psychiatric conditions has focused almost exclusively on the perspectives and experiences of DBS recipients. This qualitative study is one of the first to include both DBS recipients and their (...)
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  8.  70
    Engineering the Brain: Ethical Issues and the Introduction of Neural Devices.Eran Klein, Tim Brown, Matthew Sample, Anjali R. Truitt & Sara Goering - 2015 - Hastings Center Report 45 (6):26-35.
    Neural engineering technologies such as implanted deep brain stimulators and brain-computer interfaces represent exciting and potentially transformative tools for improving human health and well-being. Yet their current use and future prospects raise a variety of ethical and philosophical concerns. Devices that alter brain function invite us to think deeply about a range of ethical concerns—identity, normality, authority, responsibility, privacy, and justice. If a device is stimulating my brain while I decide upon an action, am I still the author of the (...)
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  9.  11
    Privacy Protections in and across Contexts: Why We Need More Than Contextual Integrity.Sara Goering, Asad Beck, Natalie Dorfman, Sofia Schwarzwalder & Nicolai Wohns - 2024 - American Journal of Bioethics Neuroscience 15 (2):149-151.
    Do we need a right to mental privacy? In an era of increasing sophistication in recording, interpreting, and directly intervening on our neural activity – not to mention efforts at combining neural...
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  10.  68
    Postnatal reproductive autonomy: Promoting relational autonomy and self-trust in new parents.Sara Goering - 2008 - Bioethics 23 (1):9-19.
    New parents suddenly come face to face with myriad issues that demand careful attention but appear in a context unlikely to provide opportunities for extended or clear-headed critical reflection, whether at home with a new baby or in the neonatal intensive care unit. As such, their capacity for autonomy may be compromised. Attending to new parental autonomy as an extension of reproductive autonomy, and as a complicated phenomenon in its own right rather than simply as a matter to be balanced (...)
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  11.  18
    Asking questions that matter – Question prompt lists as tools for improving the consent process for neurotechnology clinical trials.Andreas Schönau, Sara Goering, Erika Versalovic, Natalia Montes, Tim Brown, Ishan Dasgupta & Eran Klein - 2022 - Frontiers in Human Neuroscience 16.
    Implantable neurotechnology devices such as Brain Computer Interfaces and Deep Brain Stimulators are an increasing part of treating or exploring potential treatments for neurological and psychiatric disorders. While only a few devices are approved, many promising prospects for future devices are under investigation. The decision to participate in a clinical trial can be challenging, given a variety of risks to be taken into consideration. During the consent process, prospective participants might lack the language to consider those risks, feel unprepared, or (...)
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  12.  5
    Brain Pioneers and Moral Entanglement: An Argument for Post‐trial Responsibilities in Neural‐Device Trials.Sara Goering, Andrew I. Brown & Eran Klein - 2024 - Hastings Center Report 54 (1):24-33.
    We argue that in implanted neurotechnology research, participants and researchers experience what Henry Richardson has called “moral entanglement.” Participants partially entrust researchers with access to their brains and thus to information that would otherwise be private, leading to created intimacies and special obligations of beneficence for researchers and research funding agencies. One of these obligations, we argue, is about continued access to beneficial technology once a trial ends. We make the case for moral entanglement in this context through exploration of (...)
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  13.  19
    Stimulating Autonomy: DBS and the Prospect of Choosing to Control Ourselves Through Stimulation.Sara Goering - 2015 - American Journal of Bioethics Neuroscience 6 (4):1-3.
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  14.  20
    Is it Still Me? DBS, Agency, and the Extended, Relational Me.Sara Goering - 2014 - American Journal of Bioethics Neuroscience 5 (4):50-51.
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  15.  10
    Can I Hold That Thought for You? Dementia and Shared Relational Agency.Eran Klein & Sara Goering - 2023 - Hastings Center Report 53 (5):17-29.
    Agency is talked about by many as something that people living with dementia lose, once they've lost much else—autonomy, identity, and privacy, among other things. While the language of loss may capture some of what transpires in dementia, it can obscure how people living with dementia and their loved ones share agency through sharing capacities for memory, language, and decision‐making. We suggest that one consequence of adopting a framework of loss is that it makes the default response to changes in (...)
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  16.  18
    Neurotechnology ethics and relational agency.Sara Goering, Timothy Brown & Eran Klein - 2021 - Philosophy Compass 16 (4):e12734.
    Novel neurotechnologies, like deep brain stimulation and brain‐computer interface, offer great hope for treating, curing, and preventing disease, but raise important questions about effects these devices may have on human identity, authenticity, and autonomy. After briefly assessing recent narrative work in these areas, we show that agency is a phenomenon key to all three goods and highlight the ways in which neural devices can help to draw attention to the relational nature of our agency. Drawing on insights from disability theory, (...)
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  17.  42
    Keeping Disability in Mind: A Case Study in Implantable Brain–Computer Interface Research.Laura Specker Sullivan, Eran Klein, Tim Brown, Matthew Sample, Michelle Pham, Paul Tubig, Raney Folland, Anjali Truitt & Sara Goering - 2018 - Science and Engineering Ethics 24 (2):479-504.
    Brain–Computer Interface research is an interdisciplinary area of study within Neural Engineering. Recent interest in end-user perspectives has led to an intersection with user-centered design. The goal of user-centered design is to reduce the translational gap between researchers and potential end users. However, while qualitative studies have been conducted with end users of BCI technology, little is known about individual BCI researchers’ experience with and attitudes towards UCD. Given the scientific, financial, and ethical imperatives of UCD, we sought to gain (...)
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  18.  47
    Transforming genetic research practices with marginalized communities: A case for responsive justice.Sara Goering, Suzanne Holland & Kelly Fryer-Edwards - 2008 - Hastings Center Report 38 (2):43-53.
    : Genetics researchers often work with distinct communities. To take moral account of how their research affects these communities, they need a richer conception of justice and they need to make those communities equal participants in decision-making about how the research is conducted and what is produced and published out of it.
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  19.  91
    Views of stakeholders at risk for dementia about deep brain stimulation for cognition.Eran Klein, Natalia Montes Daza, Ishan Dasgupta, Kate MacDuffie, Andreas Schönau, Garrett Flynn, Dong Song & Sara Goering - 2023 - Brain Stimulation 16 (3):742-747.
  20.  25
    Data, Privacy, and Agency: Beyond Transparency to Empowerment.Erika Versalovic, Sara Goering & Eran Klein - 2022 - American Journal of Bioethics 22 (7):63-65.
    Separation-based accounts of privacy define privacy as being left alone and unaccessed. Pyrrho et al. propose a more control-based account where privacy is about having the age...
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  21.  16
    Genetic Prospects: Essays on Biotechnology, Ethics, and Public Policy.Harold W. Baillie, William A. Galston, Sara Goering, Deborah Hellman, Mark Sagoff, Paul B. Thompson, Robert Wachbroit, David T. Wasserman & Richard M. Zaner (eds.) - 2003 - Rowman & Littlefield Publishers.
    The essays in this volume apply philosophical analysis to address three kinds of questions: What are the implications of genetic science for our understanding of nature? What might it influence in our conception of human nature? What challenges does genetic science pose for specific issues of private conduct or public policy?
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  22.  16
    Introduction to the Special Section: Feminist Approaches to Neurotechnologies.Sara Goering & Laura Specker Sullivan - 2020 - International Journal of Feminist Approaches to Bioethics 13 (1):89-97.
    Bioethics has already had a rich interaction with the relatively new field of neurotechnology. Scholars have wondered whether neurotechnological interventions, such as deep brain stimulation, are threats to personal identity, lead to alienation or create dilemmas between authenticity and autonomy, impact autonomy, detract from agency, or lead to self-estrangement. Many of these ethical investigations are concerned not with the targeted health benefits of neurotechnology but with whether and how they fit into users' lives in more personal and profound ways.In some (...)
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  23. Gene Therapies and the Pursuit of a Better Human.Sara Goering - 2000 - Cambridge Quarterly of Healthcare Ethics 9 (3):330-341.
    As a philosopher interested in biomedical ethics, I find recent advances in genetic technologies both fascinating and frightening. Future technologies for genetic therapies and elimination of clearly deleterious genes offer us the ability to get rid of the cause of much human suffering, seemingly at its physiological root. But memories of past eugenics programs gone horribly awry must make cautious our initial optimism for these generally well-intentioned programs. Most often the scientist proceeds in research with the best of intentions, but (...)
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  24.  62
    Revisiting the Relevance of the Social Model of Disability.Sara Goering - 2010 - American Journal of Bioethics 10 (1):54-55.
  25.  28
    Navigating Growth Attenuation in Children with Profound Disabilities.Benjamin S. Wilfond, Paul Steven Miller, Carolyn Korfiatis, Douglas S. Diekema, Denise M. Dudzinski & Sara Goering - 2010 - Hastings Center Report 40 (6):27-40.
    A twenty‐person working group convened to discuss the ethical and policy considerations of the controversial intervention called “growth attenuation,” and if possible to develop practical guidance for health professionals. A consensus proved elusive, but most of the members did reach a compromise.
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  26.  25
    Genetic Research Practices with Marginalized Communities: A Case for Responsive Justice.Sara Goering, Suzanne Holland & Kelly Fryer-Edwards - 2012 - Hastings Center Report 38 (2):43-53.
    Genetics researchers often work with distinct communities. To take moral account of how their research affects these communities, they need a richer conception of justice and they need to make those communities equal participants in decision‐making about how the research is conducted and what is produced and published out of it.
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  27.  16
    Trading Vulnerabilities: Living with Parkinson’s Disease before and after Deep Brain Stimulation.Sara Goering, Anna Wexler & Eran Klein - 2021 - Cambridge Quarterly of Healthcare Ethics 30 (4):623-630.
    Implanted medical devices—for example, cardiac defibrillators, deep brain stimulators, and insulin pumps—offer users the possibility of regaining some control over an increasingly unruly body, the opportunity to become part “cyborg” in service of addressing pressing health needs. We recognize the value and effectiveness of such devices, but call attention to what may be less clear to potential users—that their vulnerabilities may not entirely disappear but instead shift. We explore the kinds of shifting vulnerabilities experienced by people with Parkinson’s disease (PD) (...)
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  28.  44
    Navigating Growth Attenuation in Children with Profound Disabilities.Benjamin S. Wilfond, Paul Steven Miller, Carolyn Korfiatis, Douglas S. Diekema, Denise M. Dudzinski, Sara Goering & The Seattle Growth Attenuation and Ethics Working Group - 2010 - Hastings Center Report 40 (6):27-40.
    A twenty‐person working group convened to discuss the ethical and policy considerations of the controversial intervention called “growth attenuation,” and if possible to develop practical guidance for health professionals. A consensus proved elusive, but most of the members did reach a compromise.
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  29.  91
    Race-Based Medicine and Justice as Recognition: Exploring the Phenomenon of BiDil.Joon-ho Yu, Sara Goering & Stephanie M. Fullerton - 2009 - Cambridge Quarterly of Healthcare Ethics 18 (1):57.
    In the United States, health disparities have been framed by categories of race. Racial health disparities have been documented for cardiovascular disease, cancer, diabetes, HIV/AIDS, and numerous other diseases and measures of health status. Although such disparities can be read as symptoms of disparities in healthcare access, pervasive social and economic inequities, and discrimination, some have suggested that the disparities might be due, at least in part, to biological differences based on race. Or, to be more precise, if race itself (...)
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  30.  97
    Choosing our friends: Moral partiality and the value of diversity.Sara Goering - 2003 - Journal of Social Philosophy 34 (3):400–413.
  31.  15
    Choosing Our Friends: Moral Partiality and the Value of Diversity.Sara Goering - 2003 - Journal of Social Philosophy 34 (3):400-413.
  32.  26
    Reasonable people, double jeopardy, and justice.Sara Goering & Annette Dula - 2004 - American Journal of Bioethics 4 (4):37 – 39.
  33.  13
    Why Should Adamancy of an Uninformed View Give Moral Weight?Sara Goering - 2020 - American Journal of Bioethics 20 (8):78-79.
    Volume 20, Issue 8, August 2020, Page 78-79.
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  34.  29
    Philosophy in schools: an introduction for philosophers and teachers.Sara Goering, Nicholas J. Shudak & Thomas E. Wartenberg (eds.) - 2013 - New York: Routledge.
    All of us ponder the big and enduring human questions—Who am I? Am I free? What should I do? What is good? Is there justice?
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  35.  16
    Facing the consequences of facial transplantation: Individual choices, social effects.Sara Goering - 2004 - American Journal of Bioethics 4 (3):37 – 39.
  36.  10
    Asilomar Survey: Researcher Perspectives on Ethical Guidelines for BCI Research.Michelle Trang Pham, Sara Goering, Matthew Sample, Jane Huggins & Eran Klein - 2018 - Brain-Computer Interfaces 4 (5):97-111.
    Brain-computer Interface (BCI) research is rapidly expanding, and it engages domains of human experience that many find central to our current understanding of ourselves. Ethical principles or guidelines can provide researchers with tools to engage in ethical reflection and to address practical problems in research. Though researchers have called for clearer ethical principles or guidelines, there is little existing data on what form these should take. We developed a prospective set of ethical principles for BCI research with specific guidelines and (...)
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  37.  29
    Others' Contributions to an Individual's Narrative Identity Matter.Sara Goering, Timothy Brown & Jenan Alsarraf - 2017 - American Journal of Bioethics Neuroscience 8 (3):176-178.
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  38.  14
    "Mental Illness" and Justice as Recognition.Sara Goering - 2009 - Philosophy & Public Policy Quarterly 29 (1/2):14.
    Disability scholars have argued that the disadvantage of disability is caused primarily by social factors and calls out for social change as a matter of justice. But what about psychiatric disability? While noting several factors that make psychiatric disability a special casethe mentally ill individuals unreliability of judgment and instability of functioningSara Goering argues that much is gained by viewing mental illness through the lens of social oppression and workingtoward recognition of individuals with mental illness as equal members of the (...)
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  39.  74
    What Makes Suffering "Unbearable and Hopeless"? Advance Directives, Dementia and Disability.Sara Goering - 2007 - American Journal of Bioethics 7 (4):62-63.
  40.  15
    Unbounding ELSI: The Ongoing Work of Centering Equity and Justice.Chessa Adsit-Morris, Rayheann NaDejda Collins, Sara Goering, James Karabin, Sandra Soo-Jin Lee & Jenny Reardon - 2023 - American Journal of Bioethics 23 (7):103-105.
    ELSI efforts long have been troubled by critiques that they privilege scientific frameworks and grant scientists the power to set ethical agendas. As the first director of the Human Genome Project’...
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  41. Beyond the Medical Model? Disability, Formal Justice, and the Exception for the "Profoundly Impaired".Sara Goering - 2002 - Kennedy Institute of Ethics Journal 12 (4):373-388.
    The formal justice model proposed by Anita Silvers in Disability, Discrimination, and Difference emphasizes the social model of disability and the need for full equality of opportunity, and it suggests that a distributive model of justice that gives special benefits to individuals with disabilities is self-defeating. Yet in that work, Silvers allows an exception for the "profoundly impaired." In this paper, I show how the formal justice theory falls short when it comes to defining and dealing with "profoundly impaired" individuals (...)
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  42.  7
    Why Taking Psychosocial Effects of Neurotechnology Seriously Matters.Sara Goering & Eran Klein - 2023 - American Journal of Bioethics Neuroscience 14 (3):307-309.
    The potential psychosocial effects of neurotechnology, particularly deep brain stimulation (DBS), have been at the center of a contentious debate within neuroethics. Many scholars have argued that...
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  43.  30
    Resisting Transhumanist Fantasies.Sara Goering - 2022 - Hastings Center Report 52 (1):61-63.
    Hastings Center Report, Volume 52, Issue 1, Page 61-63, January/February 2022.
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  44.  17
    Rebecca Dresser is Daniel Noyes.Denise M. Dudzinski & Sara Goering - forthcoming - Hastings Center Report.
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  45.  45
    The Summer Philosophy Institute of Colorado.Robert Figueroa & Sara Goering - 1997 - Teaching Philosophy 20 (2):155-168.
    This paper presents an overview of the goals, structure, and results of an annual, week-long, summer philosophy institute for high school students. Inspired by other similar programs, the Summer Philosophy Institute of Colorado (SPI-CO) was designed for a culturally diverse group of students, aiming to expose college-track high school students to philosophy, to encourage students in lower-track classifications to pursue college, to offer advising to students on how to make college a reality, to expose both groups of students to critical (...)
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  46.  40
    Kelly Fryer-Edwards is an ethics facul.Susan Gilbert, Sara Goering & Lawrence O. Gostin - forthcoming - Hastings Center Report.
  47.  2
    Ambiguous Agency as a Frame on Neural Device User Experience.Sara Goering, Erika Versalovic & Timothy Brown - 2023 - American Journal of Bioethics Neuroscience 14 (1):50-52.
    Haeusermann et al. (2023) provide a valuable ethnographic window into how RNS device users understand themselves in relation to refractory epilepsy, the medications for it, and the use of the impla...
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  48.  13
    Book ReviewMichael Allen Fox,. Deep Vegetarianism. Philadelphia: Temple University Press, 1999. Pp. 234. $15.95.Sara Goering - 2001 - Ethics 111 (3):632-634.
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  49.  73
    Conformity through cosmetic surgery: the medical erasure of race and disability.Sara Goering - 2003 - In Robert Figueroa & Sandra G. Harding (eds.), Science and Other Cultures: Issues in Philosophies of Science and Technology. Routledge. pp. 172--88.
  50.  49
    Doing Philosophy with Young Students.Sara Goering - 2001 - Questions: Philosophy for Young People 1:2-2.
    Goering argues that children, at any age, have the potential to utilize logic and generate philosophical thinking through role-playing yet challenging games. This activity fosters a philosophical imagination for children.
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