28 found
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  1. Disability Rights as a Necessary Framework for Crisis Standards of Care and the Future of Health Care.Laura Guidry-Grimes, Katie Savin, Joseph A. Stramondo, Joel Michael Reynolds, Marina Tsaplina, Teresa Blankmeyer Burke, Angela Ballantyne, Eva Feder Kittay, Devan Stahl, Jackie Leach Scully, Rosemarie Garland-Thomson, Anita Tarzian, Doron Dorfman & Joseph J. Fins - 2020 - Hastings Center Report 50 (3):28-32.
    In this essay, we suggest practical ways to shift the framing of crisis standards of care toward disability justice. We elaborate on the vision statement provided in the 2010 Institute of Medicine (National Academy of Medicine) “Summary of Guidance for Establishing Crisis Standards of Care for Use in Disaster Situations,” which emphasizes fairness; equitable processes; community and provider engagement, education, and communication; and the rule of law. We argue that interpreting these elements through disability justice entails a commitment to both (...)
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  2. Misfits: A Feminist Materialist Disability Concept.Rosemarie Garland-Thomson - 2011 - Hypatia 26 (3):591-609.
    This article offers the critical concept misfit in an effort to further think through the lived identity and experience of disability as it is situated in place and time. The idea of a misfit and the situation of misfitting that I offer here elaborate a materialist feminist understanding of disability by extending a consideration of how the particularities of embodiment interact with the environment in its broadest sense, to include both its spatial and temporal aspects. The interrelated dynamics of fitting (...)
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  3. The Case for Conserving Disability.Rosemarie Garland-Thomson - 2012 - Journal of Bioethical Inquiry 9 (3):339-355.
    It is commonly believed that disability disqualifies people from full participation in or recognition by society. This view is rooted in eugenic logic, which tells us that our world would be a better place if disability could be eliminated. In opposition to this position, I argue that that disability is inherent in the human condition and consider the bioethical question of why we might want to conserve rather than eliminate disability from our shared world. To do so, I draw together (...)
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  4.  55
    How We Got to CRISPR: The Dilemma of Being Human.Rosemarie Garland-Thomson - 2020 - Perspectives in Biology and Medicine 63 (1):28-43.
    we always get to this difficult conversation one way or another when I'm talking to friends who have kids with disabilities. It goes like this: "If there had been a test for autism when my wife was pregnant with our son," my close friend tells me, "she would definitely have had an abortion." He tells me this with candor because he knows I know that this does not mean that he regrets having the son, grown up now, that they do (...)
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  5.  43
    Disability Bioethics: From Theory to Practice.Rosemarie Garland-Thomson - 2017 - Kennedy Institute of Ethics Journal 27 (2):323-339.
    What has come to be called critical disability studies is an emergent field of academic research, teaching, theory building, public scholarship, and something I'll call "educational advocacy." The critical part of critical disability studies suggests its alignment with areas of intellectual inquiry, sometimes awkwardly called identity studies, rooted in the political and social transformations of the mid-20th century brought forward by the broad civil and human rights movement. These movements pressed both the law and the social order toward an expansion (...)
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  6.  67
    Staring: how we look.Rosemarie Garland-Thomson - 2009 - New York: Oxford University Press.
    In the first book of its kind, Garland-Thomson defines staring, explores the factors that motivate it, and considers the targets and the effects of the stare.
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  7.  27
    Disability Cultural Competence for All as a Model.Rosemarie Garland-Thomson & Lisa I. Iezzoni - 2021 - American Journal of Bioethics 21 (9):26-28.
    Berger and Miller assert that race and ethnicity based cultural competence is a failure because medicine grounds its conceptualization of cultural competence on a “flawed” understanding of r...
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  8. The Art of Medicine: From small beginnings: to build an anti-eugenic future.Benedict Ipgrave, Miroslava Chavez-Garcia, Marcy Darnovsky, Subhadra Das, Charlene Galarneau, Rosemarie Garland-Thomson, Nora Ellen Groce, Tony Platt, Milton Reynolds, Marius Turda & Robert A. Wilson - 2022 - The Lancet 10339 (399):1934-1935.
    Short overview of the From Small Beginnings Project and its relevance for resisting eugenics in contemporary society.
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  9.  12
    Evaluating the Lives of Others.Rosemarie Garland-Thomson - 2022 - American Journal of Bioethics 22 (9):30-33.
    Commentary on Rob Sparrow’s (2022) target article, “Human Germline Genome Editing: On the Nature of Our Reasons to Genome Edit,” should consider the collection of articles Sparrow has authored on g...
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  10.  29
    When Anti-Discrimination Discriminates.Harold Braswell & Rosemarie Garland-Thomson - 2023 - American Journal of Bioethics 23 (9):35-38.
    An attempt to reduce disability discrimination can do more harm than the ostensible discrimination itself. Such is the case with Shavelson et al.’s (2023) argument for equal access to medical aid i...
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  11.  43
    Human Biodiversity Conservation: A Consensual Ethical Principle.Rosemarie Garland-Thomson - 2015 - American Journal of Bioethics 15 (6):13-15.
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  12.  20
    Narrative Equity in Genomic Screening at the Population Level.Rosemarie Garland-Thomson & S. A. Larson - 2023 - American Journal of Bioethics 23 (7):121-123.
    Dive et al. argue to limit the scope, scale, and quantity of results in genomic screening programs at the population level. Their analysis offers two interrelated reasons for this recommendation: f...
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  13. Rethinking Fetal Personhood in Conceptualizing Roe.Rosemarie Garland-Thomson & Joel Michael Reynolds - 2022 - American Journal of Bioethics 22 (8):64-68.
    In this open peer commentary, we concur with the three target articles’ analysis and positions on abortion in the special issue on Roe v. Wade as the exercise of reproductive liberty essential for the bioethical commitment to patient autonomy and self-determination. Our proposed OPC augments that analysis by explicating more fully the concept crucial to Roe of fetal personhood. We explain that the development and use of predictive reproductive technologies over the fifty years since Roe has changed the literal image, (...)
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  14.  37
    A Habitable World: Harriet McBryde Johnson's “Case for My Life”.Rosemarie Garland-Thomson - 2015 - Hypatia 30 (1):300-306.
  15.  10
    Thinking Through How Race, Disability, and Gender Work Together.Rosemarie Garland-Thomson & Desiree Valentine - 2024 - American Journal of Bioethics 24 (10):35-37.
    Volume 24, Issue 10, October 2024, Page 35-37.
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  16.  32
    When Better Becomes Worse.Rosemarie Garland-Thomson - 2019 - American Journal of Bioethics 19 (7):24-26.
    Volume 19, Issue 7, July 2019, Page 24-26.
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  17.  6
    A Disability Critique of the Comparative View.Rebecca Mueller, Amber Knight, Sandy Sufian & Rosemarie Garland-Thomson - 2024 - American Journal of Bioethics 24 (8):40-42.
    Volume 24, Issue 8, August 2024, Page 40-42.
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  18. Eugenic World Building and Disability: The Strange World of Kazuo Ishiguro's Never Let Me Go.Rosemarie Garland-Thomson - 2017 - Journal of Medical Humanities 38 (2):133-145.
    A crucial challenge for critical disability studies is developing an argument for why disabled people should inhabit our democratic, shared public sphere. The ideological and material separation of citizens into worthy and unworthy based on physiological variations imagined as immutable differences is what I call eugenic world building. It is justified by the idea that social improvement and freedom of choice require eliminating devalued human traits in the interest of reducing human suffering, increasing life quality, and building a more desirable (...)
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  19.  11
    Julia Pastrana, the “extraordinary lady”.Rosemarie Garland-Thomson - 2017 - Alter - European Journal of Disability Research / Revue Européenne de Recherche Sur le Handicap 11 (1):35-49.
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  20.  11
    Putting a Face on WET Recipients.Rosemarie Garland-Thomson - 2024 - American Journal of Bioethics 24 (5):81-85.
    I have at least four close friends who seem to be ideal qualified recipients of WET. My friends have a variety of eyes: some prosthetic, some wandering, some misaligned, some absent, some shrouded...
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  21.  6
    What Misfitting Makes.Rosemarie Garland-Thomson - 2024 - Puncta 7 (1):5-22.
    Weaving together personal experience, disability studies scholarship, and art criticism, this paper explores the relationship between embodied experience of the world and the demands placed on us to conform to it. Misfitting forces us to recognize the fundamental distinction between flesh and world, and with it both the limits and possibilities of the human capacity to act and to be. The fundamental misfit all humans share is that we emerge from the sheltering womb into a material world that is indifferent (...)
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  22.  32
    What Her Body Taught : A Conversation.Brenda Jo Brueggemann, Rosemarie Garland-Thomson & Georgina Kleege - 2005 - Feminist Studies 31 (1):13-33.
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  23.  22
    A Cross-Cultural Neuroethics View on the Language of Disability.Rosemarie Garland-Thomson - 2019 - American Journal of Bioethics Neuroscience 10 (2):91-92.
    The AJOB Neuroscience insight article, “A Cross-Cultural Neuroethics View on the Language of Disability,” gathers social science empirical data detailing the words that structure the human variatio...
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  24.  1
    A Call to Wonder reimagining disability.Rosemarie Garland-Thomson - 2024 - Perspectives in Biology and Medicine 67 (4):483-495.
    In lieu of an abstract, here is a brief excerpt of the content:A Call to Wonder reimagining disabilityRosemarie Garland-ThomsonComing to WonderI came to wonder last summer on a research visit to the Ringling Brothers Museum in Sarasota, Florida. Scattered with garish posters and peculiar objects, the museum’s circus archive was a cabinet of curiosities documenting a lost world of the extraordinary. Circuses, sideshows, and early museums were entertainment venues that offered good jobs to people with disabilities at a time well (...)
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  25.  24
    Introduction.Rosemarie Garland-Thomson & Martha Stoddard Holmes - 2005 - Journal of Medical Humanities 26 (2-3):73-77.
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  26.  25
    Unexpected Creatures: Procreative Liberty and the Frankenstein Ballet.Rosemarie Garland-Thomson - 2018 - Hastings Center Report 48 (6):18-20.
    One of the most recent and original adaptations of Mary Wollstonecraft (Godwin) Shelley's Frankenstein; or, The Modern Prometheus (1818) is the ballet version choreographed by Liam Scarlett and performed by the Royal Ballet in 2016 and the San Francisco Ballet in 2017 and 2018. What emerges from this translation is an economical, emotionally wrenching, and visually elegant drama of family tragedy from which we can draw a cautionary tale about contemporary bioethical dilemmas in family making that new and forthcoming biomedical (...)
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  27. Velvet Eugenics : In the Best Interests of Our Future Children?Rosemarie Garland-Thomson - 2024 - In Neal Baer (ed.), The promise and peril of CRISPR. Baltimore: Johns Hopkins University Press.
     
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  28.  10
    What Du Bois and I Know About Dignity of Risk.Rosemarie Garland-Thomson - 2022 - Perspectives in Biology and Medicine 65 (2):171-178.
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