Results for 'Rob De Vries'

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  1.  22
    Health care ethics and health law in the Dutch discussion on end-of-life decisions: a historical analysis of the dynamics and development of both disciplines.Loes Kater, Rob Houtepen, Raymond De Vries & Guy Widdershoven - 2003 - Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences 34 (4):669-684.
    Over the past three or four decades, the concept of medical ethics has changed from a limited set of standards to a broad field of debate and research. We define medical ethics as an arena of moral issues in medicine, rather than a specific discipline. This paper examines how the disciplines of health care ethics and health care law have developed and operated within this arena. Our framework highlights the aspects of jurisdiction and the assignment of responsibilities . This theoretical (...)
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  2.  30
    Health care ethics and health law in the Dutch discussion on end-of-life decisions: a historical analysis of the dynamics and development of both disciplines.Loes Kater, Rob Houtepen, Raymond De Vries & Guy Widdershoven - 2003 - Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences 34 (4):669-684.
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  3.  10
    Health care ethics and health law in the Dutch discussion on end-of-life decisions: a historical analysis of the dynamics and development of both disciplines.Loes Kater, Rob Houtepen, Raymond De Vries & Guy Widdershoven - 2002 - Studies in History and Philosophy of Biological and Biomedical Sciences 34 (4):669-684.
    Over the past three or four decades, the concept of medical ethics has changed from a limited set of standards to a broad field of debate and research. We define medical ethics as an arena of moral issues in medicine, rather than a specific discipline. This paper examines how the disciplines of health care ethics and health care law have developed and operated within this arena. Our framework highlights the aspects of jurisdiction and the assignment of responsibilities. This theoretical framework (...)
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  4. Empirical ethics and its alleged meta-ethical fallacies.Rob de Vries & Bert Gordijn - 2009 - Bioethics 23 (4):193-201.
    This paper analyses the concept of empirical ethics as well as three meta-ethical fallacies that empirical ethics is said to face: the is-ought problem, the naturalistic fallacy and violation of the fact-value distinction. Moreover, it answers the question of whether empirical ethics (necessarily) commits these three basic meta-ethical fallacies.
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  5. Genetic engineering and the integrity of animals.Rob De Vries - 2006 - Journal of Agricultural and Environmental Ethics 19 (5):469-493.
    Genetic engineering evokes a number of objections that are not directed at the negative effects the technique might have on the health and welfare of the modified animals. The concept of animal integrity is often invoked to articulate these kind of objections. Moreover, in reaction to the advent of genetic engineering, the concept has been extended from the level of the individual animal to the level of the genome and of the species. However, the concept of animal integrity was not (...)
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  6.  28
    Fitting decisions: Mood and intuitive versus deliberative decision strategies.Marieke De Vries, Rob W. Holland & Cilia Lm Witteman - 2008 - Cognition and Emotion 22 (5):931-943.
    We investigated the influence of the compatibility between mood and decision strategies on the subjective value of a decision outcome. Several studies have provided evidence for the idea that a sad mood induces people to analyse information carefully, probably fitting well with a deliberative decision strategy. In a happy mood, people tend to act more strongly on their feelings, probably fitting well with an intuitive decision strategy. However, sometimes the situation demands the use of decision strategies that seem incompatible with (...)
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  7. Interpreting the role of patient organizations in democracy.Annemiek Nelis, Gerard de Vries & Rob Hagendijk - 2006 - In Paul Atkinson (ed.), New Genetics, New Indentities. Routledge.
     
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  8.  3
    Reducing normative bias in health technology assessment: Interactive evaluation and casuistry.Rob Reuzel, Gert-jan van der Wilt, Henk ten Have & Pieter de Vries Robbé - 1999 - Medicine, Health Care and Philosophy 2 (3):255-263.
    Health technology assessment (HTA) is often biased in the sense that it neglects relevant perspectives on the technology in question. To incorporate different perspectives in HTA, we should pursue agreement about what are relevant, plausible, and feasible research questions; interactive technology assessment (iTA) might be suitable for this goal. In this way a kind of procedural ethics is established. Currently, ethics too often is focussed on the application of general principles, which leaves a lot of confusion as to what really (...)
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  9.  40
    Reducing normative bias in health technology assessment: Interactive evaluation and casuistry.Rob P. B. Reuzel, Gert-Jan van Der Wilt, Henk A. M. J. ten Have & Pieter F. de Vries Robbé - 1999 - Medicine, Health Care and Philosophy 2 (3):255-263.
    Health technology assessment (HTA) is often biased in the sense that it neglects relevant perspectives on the technology in question. To incorporate different perspectives in HTA, we should pursue agreement about what are relevant, plausible, and feasible research questions; interactive technology assessment (iTA) might be suitable for this goal. In this way a kind of procedural ethics is established. Currently, ethics too often is focussed on the application of general principles, which leaves a lot of confusion as to what really (...)
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  10.  52
    A View from the Netherlands: Ethics as Interactive Evaluation.Rob Reuzel, Gert Jan Van der Wilt, Pieter de Vries Robbé & Henk ten Have - 2001 - Cambridge Quarterly of Healthcare Ethics 10 (1):110-114.
    From 1991 to 1994 the Dutch Health Insurance Council financed research on Extracorporeal Membrane Oxygenation (ECMO). This is a technique for providing cardiopulmonary bypass to patients with pulmonary and/or cardiac failure. Most often, these patients are premature neonates. During ECMO, blood is drained from the right atrium, pumped along a membrane where gas exchange takes place, and then redirected to the aorta. To prevent blood clotting, heparin is added. However, with the heparin added, the risk of hemorrhage is considerably increased. (...)
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  11.  5
    Equal before the Law: On the Machinery of Sameness in Forensic DNA Practice.Wiebe de Vries, Rob Hagendijk & Amade M’Charek - 2013 - Science, Technology, and Human Values 38 (4):542-565.
    The social and legal implications of forensic DNA are paramount. For this reason, forensic DNA enjoys ample attention from legal, bioethics, and science and technology studies scholars. This article contributes to the scholarship by focusing on the neglected issue of sameness. We investigate a forensic courtroom case which started in the early ’90s and focus on three modes of making similarities: creating equality before the law, making identity, and establishing standards. We argue that equality before the law is not merely (...)
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  12.  65
    Raymond De Vries replies.Raymond De Vries Iii - 2009 - Hastings Center Report 39 (4):4-5.
  13.  31
    Philosophy and the turn to religion.Hent de Vries - 1999 - Baltimore, Md.: Johns Hopkins University Press.
    If religion once seemed to have played out its role in the intellectual and political history of Western secular modernity, it has now returned with a vengeance. In this engaging study, Hent de Vries argues that a turn to religion discernible in recent philosophy anticipates and accompanies this development in the contemporary world. Though the book reaches back to Immanuel Kant, Martin Heidegger, and earlier, it takes its inspiration from the tradition of French phenomenology, notably Emmanuel Levinas, Jean-Luc Marion, (...)
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  14. Reflective Equilibrium and Empirical Data: Third Person Moral Experiences in Empirical Medical Ethics.Martine de Vries & Evert van Leeuwen - 2009 - Bioethics 24 (9):490-498.
    ABSTRACT In ethics, the use of empirical data has become more and more popular, leading to a distinct form of applied ethics, namely empirical ethics. This ‘empirical turn’ is especially visible in bioethics. There are various ways of combining empirical research and ethical reflection. In this paper we discuss the use of empirical data in a special form of Reflective Equilibrium (RE), namely the Network Model with Third Person Moral Experiences. In this model, the empirical data consist of the moral (...)
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  15.  38
    Minimal theologies: critiques of secular reason in Adorno and Levinas.Hent de Vries - 2005 - Baltimore: Johns Hopkins University Press.
    What, at this historical moment "after Auschwitz," still remains of the questions traditionally asked by theology? What now is theology's minimal degree? This magisterial study, the first extended comparison of the writings of Theodor W. Adorno and Emmanuel Levinas, explores remnants and echoes of religious forms in these thinkers' critiques of secular reason, finding in the work of both a "theology in pianissimo" constituted by the trace of a transcendent other. The author analyzes, systematizes, and formalizes this idea of an (...)
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  16. Teaching about technology: an introduction to the philosophy of technology for non-philosophers.Marc J. de Vries - 2005 - Dordrecht: Springer.
    Teaching about technology, at all levels of education, can only be done properly when those who teach have a clear idea about what it is that they teach. In other words: they should be able to give a decent answer to the question: what is technology? In the philosophy of technology that question is explored. Therefore the philosophy of technology is a discipline with a high relevance for those who teach about technology. Literature in this field, though, is not always (...)
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  17.  4
    Reflective Equilibrium and Empirical Data: Third Person Moral Experiences in Empirical Medical Ethics.Evert Van Leeuwen Martine De Vries - 2010 - Bioethics 24 (9):490-498.
    In ethics, the use of empirical data has become more and more popular, leading to a distinct form of applied ethics, namely empirical ethics. This ‘empirical turn’ is especially visible in bioethics. There are various ways of combining empirical research and ethical reflection. In this paper we discuss the use of empirical data in a special form of Reflective Equilibrium (RE), namely the Network Model with Third Person Moral Experiences. In this model, the empirical data consist of the moral experiences (...)
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  18.  3
    Re-Imagining a Politics of Life: From Governance of Order to Politics of Movement.Leonie Ansems de Vries - 2014 - New York: Rowman & Littlefield International.
    Unearthing the radical potential at the heart of canonical political thought, this book uses the work of Foucault and Deleuze to re-imagine theory in a way that embraces difference and resistance.
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  19. Bioethical concerns are global, bioethics is Western.Subrata Chattopadhyay & Raymond de Vries - 2008 - Eubios Journal of Asian and International Bioethics 18 (4):106-109.
    Modern bioethics was born in the West and thus reflects, not surprisingly, the traditions of Western moral philosophy and political and social theory. When the work of bioethics was confined to the West, this background of socio-political theory and moral tradition posed few problems, but as bioethics has moved into other cultures – inside and outside of the Western world – it has become an agent of moral imperialism. We describe the moral imperialism of bioethics, discuss its dangers, and suggest (...)
     
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  20. The Problem of the Fairy Tale.Jan de Vries & Edith Cooper - 1958 - Diogenes 6 (22):1-15.
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  21. The Enigma of the Icelandic Saga.Jan De Vries & Victor A. Velen - 1964 - Diogenes 12 (46):69-81.
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  22.  2
    Resource X: Sirkin and Smith on a Neglected Economic Staple.Paul de Vries - 1987 - Business and Professional Ethics Journal 6 (4):47 - 64.
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  23. The Present State of Studies On Germanic Religion.Jan de Vries - 1957 - Diogenes 5 (18):78-92.
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  24.  2
    Theologie im pianissimo & zwischen Rationalität und Dekonstruktion: die Aktualität der Denkfiguren Adornos und Levinas'.Hendrik de Vries & Hent de Vries - 1989 - Kampen: J.H. Kok.
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  25. Microaggressions, attributional ambiguity, and signaling failures.Bouke de Vries - forthcoming - Southern Journal of Philosophy.
    Being the victim of a microaggression, that is, a relatively minor act of hostility that targets someone's (marginalized) social identity, can be distressing, but so can merely being in doubt over whether one has been the victim of such aggression. To address this last problem, Regina Rini has proposed a novel understanding of microaggressions that is meant to eliminate such doubts. On her “Ambiguous Experience Account,” whenever members of marginalized groups believe they might have been subjected to a microaggression, a (...)
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  26.  1
    Spinoza.Theun de Vries - 1972 - Amsterdam: de Prom.
    Biografie van de Nederlandse wijsgeer (1632-1677).
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  27. Spel bij Plato.Gerrit Jacob de Vries - 1949 - Amsterdam,: Noord-Hollandsche Uitg. Mij.
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  28.  26
    Why Can't We All Just Get Along? A Comment on Turner's Plea to Social Scientists and Bioethicists.Raymond de Vries - 2009 - Cambridge Quarterly of Healthcare Ethics 18 (1):43.
    Okay, Professor Turner is not Rodney King. He is not responding to bioethicists and social scientists running amuck, setting automobiles aflame, and pelting each other with rocks and broken bottles. He does not come right out and ask, “Why can't we all just get along?” But in its academic way, Turner's essay is an effort to negotiate a truce in the interdisciplinary squabbles that plague bioethics, a plea to move bioethics beyond the “misleading” and “unhelpful” “demarcation of disciplinary goals” that (...)
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  29. Spinoza als staatkundig denker: Rede.Theun de Vries - 1963 - Leiden,: Brill.
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  30.  65
    Respect for cultural diversity in bioethics is an ethical imperative.Subrata Chattopadhyay & Raymond De Vries - 2013 - Medicine, Health Care and Philosophy 16 (4):639-645.
    The field of bioethics continues to struggle with the problem of cultural diversity: can universal principles guide ethical decision making, regardless of the culture in which those decisions take place? Or should bioethical principles be derived from the moral traditions of local cultures? Ten Have and Gordijn and Bracanovic defend the universalist position, arguing that respect for cultural diversity in matters ethical will lead to a dangerous cultural relativity where vulnerable patients and research subjects will be harmed. We challenge the (...)
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  31. Social science and bioethics: morality from the ground up.R. G. de Vries, L. Turner, K. Orfali & C. L. Bosk - 2007 - Clinical Ethics 2 (1):33-35.
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  32.  23
    Ethical implications of the use of whole genome methods in medical research.Jane Kaye, Paula Boddington, Jantina de Vries, Naomi Hawkins & Karen Melham - unknown
    The use of genome-wide association studies in medical research and the increased ability to share data give a new twist to some of the perennial ethical issues associated with genomic research. GWAS create particular challenges because they produce fine, detailed, genotype information at high resolution, and the results of more focused studies can potentially be used to determine genetic variation for a wide range of conditions and traits. The information from a GWA scan is derived from DNA that is a (...)
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  33.  19
    Community engagement in global health research that advances health equity.Bridget Pratt & Jantina de Vries - 2018 - Bioethics 32 (7):454-463.
    Community engagement is gaining prominence in global health research. So far, a philosophical rationale for why researchers should perform community engagement during such research has not been provided by ethics scholars. Its absence means that conducting community engagement is still often viewed as no more than a ‘good idea’ or ‘good practice’ rather than ethically required. In this article, we argue that shared health governance can establish grounds for requiring the engagement of low‐ and middle‐income country (LMIC) community members in (...)
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  34.  7
    Where is knowledge from the global South? An account of epistemic justice for a global bioethics.Bridget Pratt & Jantina de Vries - 2023 - Journal of Medical Ethics 49 (5):325-334.
    The silencing of the epistemologies, theories, principles, values, concepts and experiences of the global South constitutes a particularly egregious epistemic injustice in bioethics. Our shared responsibility to rectify that injustice should be at the top of the ethics agenda. That it is not, or only is in part, is deeply problematic and endangers the credibility of the entire field. As a first step towards reorienting the field, this paper offers a comprehensive account of epistemic justice for global health ethics. We (...)
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  35.  90
    ‘Nobody tosses a dwarf!’ The relation between the empirical and the normative reexamined.Carlo Leget, Pascal Borry & Raymond de Vries - 2009 - Bioethics 23 (4):226-235.
    This article discusses the relation between empirical and normative approaches in bioethics. The issue of dwarf tossing, while admittedly unusual, is chosen as a point of departure because it challenges the reader to look with fresh eyes upon several central bioethical themes, including human dignity, autonomy, and the protection of vulnerable people. After an overview of current approaches to the integration of empirical and normative ethics, we consider five ways that the empirical and normative can be brought together to speak (...)
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  36.  7
    What constitutes good ethical practice in genomic research in Africa? Perspectives of participants in a genomic research study in Uganda.Rwamahe Rutakumwa, Jantina de Vries, Michael Parker, Paulina Tindana, Oliver Mweemba & Janet Seeley - 2019 - Global Bioethics:1-15.
    Previous research has consistently highlighted the importance of stakeholder engagement in identifying and developing solutions to ethical challenges in genomic research, especially in Africa where such research is relatively new. In this paper, we examine what constitutes good ethical practice in research, from the perspectives of genomic research participants in Uganda. Our study was part of a multi-site qualitative study exploring these issues in Uganda, Ghana and Zambia. We purposively sampled various stakeholders including genomic research participants, researchers, research ethics committee (...)
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  37.  44
    Ethical issues in human genomics research in developing countries.Jantina de Vries, Susan J. Bull, Ogobara Doumbo, Muntaser Ibrahim, Odile Mercereau-Puijalon, Dominic Kwiatkowski & Michael Parker - 2011 - BMC Medical Ethics 12 (1):5.
    BackgroundGenome-wide association studies (GWAS) provide a powerful means of identifying genetic variants that play a role in common diseases. Such studies present important ethical challenges. An increasing number of GWAS is taking place in lower income countries and there is a pressing need to identify the particular ethical challenges arising in such contexts. In this paper, we draw upon the experiences of the MalariaGEN Consortium to identify specific ethical issues raised by such research in Africa, Asia and Oceania.DiscussionWe explore ethical (...)
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  38.  23
    Regulation of genomic and biobanking research in Africa: a content analysis of ethics guidelines, policies and procedures from 22 African countries.Jantina de Vries, Syntia Nchangwi Munung, Alice Matimba, Sheryl McCurdy, Odile Ouwe Missi Oukem-Boyer, Ciara Staunton, Aminu Yakubu & Paulina Tindana - 2017 - BMC Medical Ethics 18 (1):1-9.
    The introduction of genomics and biobanking methodologies to the African research context has also introduced novel ways of doing science, based on values of sharing and reuse of data and samples. This shift raises ethical challenges that need to be considered when research is reviewed by ethics committees, relating for instance to broad consent, the feedback of individual genetic findings, and regulation of secondary sample access and use. Yet existing ethics guidelines and regulations in Africa do not successfully regulate research (...)
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  39.  14
    Genomics governance: advancing justice, fairness and equity through the lens of the African communitarian ethic of Ubuntu.Nchangwi Syntia Munung, Jantina de Vries & Bridget Pratt - 2021 - Medicine, Health Care and Philosophy 24 (3):377-388.
    There is growing interest for a communitarian approach to the governance of genomics, and for such governance to be grounded in principles of justice, equity and solidarity. However, there is a near absence of conceptual studies on how communitarian-based principles, or values, may inform, support or guide the governance of genomics research. Given that solidarity is a key principle in Ubuntu, an African communitarian ethic and theory of justice, there is emerging interest about the extent to which Ubuntu could offer (...)
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  40.  13
    What constitutes good ethical practice in genomic research in Africa? Perspectives of participants in a genomic research study in Uganda.Rwamahe Rutakumwa, Jantina de Vries, Michael Parker, Paulina Tindana, Oliver Mweemba & Janet Seeley - 2020 - Global Bioethics 31 (1):169-183.
    ABSTRACT Previous research has consistently highlighted the importance of stakeholder engagement in identifying and developing solutions to ethical challenges in genomic research, especially in Africa where such research is relatively new. In this paper, we examine what constitutes good ethical practice in research, from the perspectives of genomic research participants in Uganda. Our study was part of a multi-site qualitative study exploring these issues in Uganda, Ghana and Zambia. We purposively sampled various stakeholders including genomic research participants, researchers, research ethics (...)
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  41.  45
    Teaching and learning the nature of technical artifacts.I. Frederik, W. Sonneveld & M. J. De Vries - unknown
    Artifacts are probably our most obvious everyday encounter with technology. Therefore, a good understanding of the nature of technical artifacts is a relevant part of technological literacy. In this article we draw from the philosophy of technology to develop a conceptualization of technical artifacts that can be used for educational purposes. Furthermore we report a small exploratory empirical study to see to what extent teachers’ intuitive ideas about artifacts match with the way philosophers write about the nature of artifacts. Finally, (...)
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  42.  7
    A New Conceptual ‘Cylinder’ Framework for Sustainable Bioeconomy Systems and Their Actors.Monique Axelos, Mechthild Donner & Hugo de Vries - 2021 - Journal of Agricultural and Environmental Ethics 34 (2):1-26.
    Concepts for sustainable bioeconomy systems are gradually replacing the ones on linear product chains. The reason is that continuously expanding linear chain activities are considered to contribute to climate change, reduced biodiversity, over-exploitation of resources, food insecurity, and the double burden of disease. Are sustainable bioeconomy systems a guarantee for a healthy planet? If yes, why, when, and how? In literature, different sustainability indicators have been presented to shed light on this complicated question. Due to high degrees of complexity and (...)
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  43.  13
    Taking the burden off: a study of the quality of ethics consultation in the time of COVID-19.Lulia Kana, Andrew Shuman, Raymond De Vries & Janice Firn - 2022 - Journal of Medical Ethics 48 (4):244-249.
    BackgroundThe quality of ethics consults is notoriously difficult to measure. Survey-based assessments cannot capture nuances of consultations. To address this gap, we conducted interviews with health professionals who requested ethics consults during the initial phase of the COVID-19 pandemic.MethodHealthcare professionals requesting ethics consultation between March 2020 and May 2020 at a tertiary academic medical centre were eligible to participate. We asked participants to comment on the consults they called and thematically analysed responses to identify features associated with optimal quality consultations.ResultsOf (...)
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  44.  20
    “I passed the test!” Evidence of diagnostic misconception in the recruitment of population controls for an H3Africa genomic study in Cape Town, South Africa.Francis Masiye, Bongani Mayosi & Jantina de Vries - 2017 - BMC Medical Ethics 18 (1):12.
    Advances in genetic and genomic research have introduced challenges in obtaining informed consent for research in low and middle-income settings. However, there are only few studies that have explored challenges in obtaining informed consent in genetic and genomic research in Africa and none in South Africa. To start filling this gap, we conducted an empirical study to investigate the efficacy of informed consent procedures for an H3Africa genomic study on Rheumatic Heart Disease at the University of Cape Town in South (...)
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  45.  47
    Framing Neuroethics: A Sociological Assessment of the Neuroethical Imagination.Raymond De Vries - 2005 - American Journal of Bioethics 5 (2):25-27.
    *Work on this paper was funded in part by NIH grant K01-AT00054, National Center for Complementary and Alternative Medicine. Know then thyself, presume not God to scan The proper study of mankind i...
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  46. Informed consent instead of assent is appropriate in children from the age of twelve: Policy implications of new findings on children’s competence to consent to clinical research.Irma M. Hein, Martine C. De Vries, Pieter W. Troost, Gerben Meynen, Johannes B. Van Goudoever & Ramón J. L. Lindauer - 2015 - BMC Medical Ethics 16 (1):1-7.
    BackgroundFor many decades, the debate on children’s competence to give informed consent in medical settings concentrated on ethical and legal aspects, with little empirical underpinnings. Recently, data from empirical research became available to advance the discussion. It was shown that children’s competence to consent to clinical research could be accurately assessed by the modified MacArthur Competence Assessment Tool for Clinical Research. Age limits for children to be deemed competent to decide on research participation have been studied: generally children of 11.2 (...)
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  47. ELSI Priorities for Brain Imaging.Judy Illes, Raymond De Vries, Mildred K. Cho & Pam Schraedley-Desmond - 2006 - American Journal of Bioethics 6 (2):W24-W31.
    As one of the most compelling technologies for imaging the brain, functional MRI (fMRI) produces measurements and persuasive pictures of research subjects making cognitive judgments and even reasoning through difficult moral decisions. Even after centuries of studying the link between brain and behavior, this capability presents a number of novel significant questions. For example, what are the implications of biologizing human experience? How might neuroimaging disrupt the mysteries of human nature, spirituality, and personal identity? Rather than waiting for an ethical (...)
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  48.  14
    Research participants'" irrational" expectations: common or commonly mismeasured?S. Y. Kim, R. de Vries, R. Wilson, S. Parnami, S. Frank, K. Kieburtz & R. G. Holloway - 2013 - IRB: Ethics & Human Research 35 (1):1-9.
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  49.  7
    Informed consent in genomic research and biobanking: taking feedback of findings seriously.Paulina Tindana, Cornelius Depuur, Jantina de Vries, Janet Seeley & Michael Parker - 2020 - Global Bioethics 31 (1):200-215.
    ABSTRACT Genomic research and biobanking present several ethical, social and cultural challenges, particularly when conducted in settings with limited scientific research capacity. One of these challenges is determining the model of consent that should support the sharing of human biological samples and data in the context of international collaborative research. In this paper, we report on the views of key research stakeholders in Ghana on what should count as good ethical practice when seeking consent for genomic research and biobanking in (...)
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  50.  13
    Informed consent in genomic research and biobanking: taking feedback of findings seriously.Paulina Tindana, Cornelius Depuur, Jantina de Vries, Janet Seeley & Michael Parker - 2020 - Global Bioethics 31 (1):200-215.
    Genomic research and biobanking present several ethical, social and cultural challenges, particularly when conducted in settings with limited scientific research capacity. One of these challenges is determining the model of consent that should support the sharing of human biological samples and data in the context of international collaborative research. In this paper, we report on the views of key research stakeholders in Ghana on what should count as good ethical practice when seeking consent for genomic research and biobanking in Africa. (...)
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