24 found
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  1.  88
    Obtaining informed consent for genomics research in Africa: analysis of H3Africa consent documents.Nchangwi Syntia Munung, Patricia Marshall, Megan Campbell, Katherine Littler, Francis Masiye, Odile Ouwe-Missi-Oukem-Boyer, Janet Seeley, D. J. Stein, Paulina Tindana & Jantina de Vries - 2016 - Journal of Medical Ethics 42 (2):132-137.
    Background The rise in genomic and biobanking research worldwide has led to the development of different informed consent models for use in such research. This study analyses consent documents used by investigators in the H3Africa (Human Heredity and Health in Africa) Consortium. Methods A qualitative method for text analysis was used to analyse consent documents used in the collection of samples and data in H3Africa projects. Thematic domains included type of consent model, explanations of genetics/genomics, data sharing and feedback of (...)
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  2.  87
    Voluntary participation and comprehension of informed consent in a genetic epidemiological study of breast cancer in Nigeria.Patricia A. Marshall, Clement A. Adebamowo, Adebowale A. Adeyemo, Temidayo O. Ogundiran, Teri Strenski, Jie Zhou & Charles N. Rotimi - 2014 - BMC Medical Ethics 15 (1):38.
    Studies on informed consent to medical research conducted in low or middle-income settings have increased, including empirical investigations of consent to genetic research. We investigated voluntary participation and comprehension of informed consent among women involved in a genetic epidemiological study on breast cancer in an urban setting of Nigeria comparing women in the case and control groups.
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  3. Clarifying the Ethics and Oversight of Chimeric Research.Josephine Johnston, Insoo Hyun, Carolyn P. Neuhaus, Karen J. Maschke, Patricia Marshall, Kaitlynn P. Craig, Margaret M. Matthews, Kara Drolet, Henry T. Greely, Lori R. Hill, Amy Hinterberger, Elisa A. Hurley, Robert Kesterson, Jonathan Kimmelman, Nancy M. P. King, Melissa J. Lopes, P. Pearl O'Rourke, Brendan Parent, Steven Peckman, Monika Piotrowska, May Schwarz, Jeff Sebo, Chris Stodgell, Robert Streiffer & Amy Wilkerson - 2022 - Hastings Center Report 52 (S2):2-23.
    This article is the lead piece in a special report that presents the results of a bioethical investigation into chimeric research, which involves the insertion of human cells into nonhuman animals and nonhuman animal embryos, including into their brains. Rapid scientific developments in this field may advance knowledge and could lead to new therapies for humans. They also reveal the conceptual, ethical, and procedural limitations of existing ethics guidance for human‐nonhuman chimeric research. Led by bioethics researchers working closely with an (...)
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  4.  46
    Accounting for Culture in a Globalized Bioethics.Patricia Marshall & Barbara Koenig - 2004 - Journal of Law, Medicine and Ethics 32 (2):252-266.
    As we look to the future in a world with porous borders and boundaries transgressed by technologies, an inevitable question is:Can there be a single, global bioethics? Intimately intertwined with this question is a second one: How might a global bioethics account for profound - and constantly transforming - sources of cultural difference? Can a uniform, global bioethics be relevant cross-culturally? These are not simple questions, rather, a multi-dimensional answer is required. It is important to distinguish between two meanings of (...)
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  5.  40
    Understanding the Practice of Ethics Consultation: Results of an Ethnographic Multi-Site Study.Susan E. Kelly, Patricia A. Marshall, Lee M. Sanders, Thomas A. Raffin & Barbara A. Koenig - 1997 - Journal of Clinical Ethics 8 (2):136-149.
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  6.  83
    The Difference That Culture Can Make in End-of-Life Decisionmaking.H. Eugene Hern, Barbara A. Koenig, Lisa Jean Moore & Patricia A. Marshall - 1998 - Cambridge Quarterly of Healthcare Ethics 7 (1):27-40.
    Cultural difference has been largely ignored within bioethics, particularly within the end-of-life discourses and practices that have developed over the past two decades in the U.S. healthcare system. Yet how should culturebe taken into account?
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  7.  55
    A perpetual source of DNA or something really different: ethical issues in the creation of cell lines for African genomics research.Jantina de Vries, Akin Abayomi, James Brandful, Katherine Littler, Ebony Madden, Patricia Marshall, Odile Ouwe Oukem-Boyer & Janet Seeley - 2014 - BMC Medical Ethics 15 (1):60.
    The rise of genomic studies in Africa – not least due to projects funded under H3Africa – is associated with the development of a small number of biorepositories across Africa. For the ultimate success of these biorepositories, the creation of cell lines including those from selected H3Africa samples would be beneficial. In this paper, we map ethical challenges in the creation of cell lines.
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  8.  35
    Protecting communities in biomedical research.Patricia A. Marshall & Jessica W. Berg - 2006 - American Journal of Bioethics 6 (3):28 – 30.
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  9.  43
    The Ethics of Caring for Conjoined Twins: The Lakeberg Twins.David C. Thomasma, Jonathan Muraskas, Patricia A. Marshall, Thomas Myers, Paul Tomich & James A. O'Neill - 1996 - Hastings Center Report 26 (4):4-12.
    In June 1993, conjoined twins Amy and Angela Lakeberg became the focus of national attention. They shared a complex six‐chambered heart and one liver; only one could survive separation surgery, and even her chances were slim. The medical challenge was great and the ethical challenges were even greater.
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  10.  97
    Human rights,cultural pluralism, and international health research.Patricia A. Marshall - 2005 - Theoretical Medicine and Bioethics 26 (6):529-557.
    In the field of bioethics, scholars have begun to consider carefully the impact of structural issues on global population health, including socioeconomic and political factors influencing the disproportionate burden of disease throughout the world. Human rights and social justice are key considerations for both population health and biomedical research. In this paper, I will briefly explore approaches to human rights in bioethics and review guidelines for ethical conduct in international health research, focusing specifically on health research conducted in resource-poor settings. (...)
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  11.  49
    Intercultural Reasoning: The Challenge for International Bioethics.Patricia Marshall, David Thomasma & Jurrit Bergsma - 1994 - Cambridge Quarterly of Healthcare Ethics 3 (3):321.
    The exportation of Western biomedicine throughout the world has not resulted in a systematic homogenization of scientific ideology but rather in the proliferation of many forms and practices of biomedicine. Similarly, in the last decade, bioethics has become increasingly an international enterprise. Although there may be consensus regarding the inherent value of ethical discourse as it relates to health and medical care, there are disagreements about the nature and parameters of medical morality. This lack of consensus exists because our beliefs (...)
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  12.  76
    Neonatal Viability in the 1990s: Held Hostage by Technology.Jonathan Muraskas, Patricia A. Marshall, Paul Tomich, Thomas F. Myers, John G. Gianopoulos & David C. Thomasma - 1999 - Cambridge Quarterly of Healthcare Ethics 8 (2):160-170.
    The emergence of new obstetrical and neonatal technologies, as well as more aggressive clinical management, has significantly improved the survival of extremely low birth weight infants. This development has heightened concerns about the limits of viability. ELBW infants, weighing less than 1,000 grams and no larger than the palm of one's hand, are often described as of late twentieth century technology. Improved survivability of ELBW infants has provided opportunities for long-term follow-up. Information on their physical and emotional development contributes to (...)
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  13. A contextual approach to clinical ethics consultation.Patricia A. Marshall - 2001 - In C. Barry Hoffmaster (ed.), Bioethics in social context. Philadelphia: Temple University Press. pp. 137--152.
     
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  14.  34
    Moral Status and the Oversight of Research Involving Chimeric Animals.Patricia Marshall, Kaitlynn P. Craig & Insoo Hyun - 2022 - Hastings Center Report 52 (S2):41-45.
    The use of nonhuman animals in research has long been a source of bioethical and scientific debate. We consider the oversight and use of nonhuman animals in chimeric research. We conducted interviews with twelve members of embryonic stem cell research oversight committees, nine members of institutional animal care and use committees, and fourteen scientists involved in human–nonhuman‐animal chimeric research in different areas of the United States. Interviews addressed animal welfare and conceptual issues associated with moral status and humanization of nonhuman (...)
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  15.  5
    The Individual and the Community in International Genetic Research.Patricia A. Marshall - 2004 - Journal of Clinical Ethics 15 (1):76-86.
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  16.  85
    Community engagement strategies for genomic studies in Africa: a review of the literature. [REVIEW]Paulina Tindana, Jantina de Vries, Megan Campbell, Katherine Littler, Janet Seeley, Patricia Marshall, Jennifer Troyer, Morisola Ogundipe, Vincent Pius Alibu, Aminu Yakubu & Michael Parker - 2015 - BMC Medical Ethics 16 (1):24.
    Community engagement has been recognised as an important aspect of the ethical conduct of biomedical research, especially when research is focused on ethnically or culturally distinct populations. While this is a generally accepted tenet of biomedical research, it is unclear what components are necessary for effective community engagement, particularly in the context of genomic research in Africa.
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  17.  20
    Cultivating Curious and Creative Minds: The Role of Teachers and Teacher Educators, Part I.Annette D. Digby, Gadi Alexander, Carole G. Basile, Kevin Cloninger, F. Michael Connelly, Jessica T. DeCuir-Gunby, John P. Gaa, Herbert P. Ginsburg, Angela McNeal Haynes, Ming Fang He, Terri R. Hebert, Sharon Johnson, Patricia L. Marshall, Joan V. Mast, Allison W. McCulloch, Christina Mengert, Christy M. Moroye, F. Richard Olenchak, Wynnetta Scott-Simmons, Merrie Snow, Derrick M. Tennial, P. Bruce Uhrmacher, Shijing Xu & JeongAe You (eds.) - 2009 - R&L Education.
    Presents a plethora of approaches to developing human potential in areas not conventionally addressed. Organized in two parts, this international collection of essays provides viable educational alternatives to those currently holding sway in an era of high-stakes accountability.
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  18.  10
    Ethical challenges in study design and informed consent for health research in resource-poor settings.Patricia Loomis Marshall - 2007 - Geneva, Switzerland: World Health Organization.
    This review considers ethical challenges to research design and informed consent in biomedical and behavioral studies conducted in resource-poor settings. A review of the literature explores relevant social, cultural, and ethical issues in the conduct of biomedical and social health research in developing countries. Ten case vignettes illustrate ethical challenges that arise in international research with culturally diverse populations. Recommendations for researchers and policy-makers concerned about ethical practices in multinational studies conducted in resource-poor settings are also listed.
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  19.  21
    Ethics in human reproduction research in the Muslim world.Patricia A. Marshall - 1991 - IRB: Ethics & Human Research 14 (2):6-6.
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  20. (1 other version)Introduction: Organ transplantation — defining the boundaries of personhood, equity and community.Patricia A. Marshall - 1996 - Theoretical Medicine and Bioethics 17 (1).
     
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  21.  24
    Research Ethics in Applied Anthropology.Patricia A. Marshall - 1992 - IRB: Ethics & Human Research 14 (6):1.
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  22.  16
    The SUPPORT Study: Who's Talking?Patricia A. Marshall - 1995 - Hastings Center Report 25 (6):9-11.
  23.  31
    “Cultural Competence” and Informed Consent in International Health Research.Patricia A. Marshall - 2008 - Cambridge Quarterly of Healthcare Ethics 17 (2):206-215.
    The notion of “cultural competency” in healthcare has gained currency in recent years. Health professionals are expected to be sensitive to the cultural backgrounds and language of their patients. Courses on cultural competency are now routinely offered to physicians, nurses, and others working in health fields. Although the rhetoric of cultural competency has been applied to clinical contexts, little attention has been given to its applicability in health research generally or, more specifically, in international health research. In this paper, I (...)
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  24. Book reviews. [REVIEW]Patricia A. Marshall, Carsten Cruse & August Herbst - 1990 - Theoretical Medicine and Bioethics 11 (4).
     
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