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  1.  5
    A Scoping Review of Genetics and Genomics Research Ethics Policies and Guidelines for Africa.Joseph Ochieng, Nelson K. Sewankambo, John Barugahare, Betty Kwagala, Juli M. Bollinger, Erisa Mwaka, Betty Cohn & Joseph Ali - 2021 - BMC Medical Ethics 22 (1):1-15.
    BackgroundGenetics and genomics research is increasingly being conducted around the world; yet, researchers and research oversight entities in many countries have struggled with ethical challenges. A range of ethics and regulatory issues need to be addressed through comprehensive policy frameworks that integrate with local environments. While important efforts have been made to enhance understanding and awareness of ethical dimensions of GGR in Africa, including through the H3Africa initiative, there remains a need for in-depth policy review, at a country-level, to inform (...)
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    Exploring Institutional Research Ethics Systems: A Case Study From Uganda.Adnan A. Hyder, Joseph Ali, Kristina Hallez, Tara White, Nelson K. Sewankambo & Nancy E. Kass - 2015 - Ajob Empirical Bioethics 6 (3):1-14.
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    Ethical Tensions in the Informed Consent Process for Randomized Clinical Trials in Emergency Obstetric and Newborn Care in Low and Middle-Income Countries.Dan K. Kaye, Gershom Chongwe & Nelson K. Sewankambo - 2019 - BMC Medical Ethics 20 (1):27.
    There is unanimous agreement regarding the need to ethically conduct research for improving therapy for patients admitted to hospital with acute conditions, including in emergency obstetric care. We present a conceptual analysis of ethical tensions inherent in the informed consent process for randomized clinical trials for emergency obstetric care and suggest ways in which these could be mitigated. A valid consenting process, leading to an informed consent, is a cornerstone of this aspect necessary for preservation and maintenance of respect for (...)
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    Perspectives and Ethical Considerations for Return of Genetics and Genomics Research Results: A Qualitative Study of Genomics Researchers in Uganda.Nelson K. Sewankambo, Joseph Ali, Deborah Ekusai-Sebatta, Erisa Mwaka, John Barugahare, Betty Kwagala & Joseph Ochieng - 2021 - BMC Medical Ethics 22 (1):1-9.
    BackgroundThe return of genetics and genomics research results has been a subject of ongoing global debate. Such feedback is ethically desirable to update participants on research findings particularly those deemed clinically significant. Although there is limited literature, debate continues in African on what constitutes appropriate practice regarding the return of results for genetics and genomics research. This study explored perspectives and ethical considerations of Ugandan genomics researchers regarding the return of genetics and genomics research results.MethodsThis was a qualitative study that (...)
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