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  1.  78
    Obtaining informed consent for genomics research in Africa: analysis of H3Africa consent documents.Nchangwi Syntia Munung, Patricia Marshall, Megan Campbell, Katherine Littler, Francis Masiye, Odile Ouwe-Missi-Oukem-Boyer, Janet Seeley, D. J. Stein, Paulina Tindana & Jantina de Vries - 2016 - Journal of Medical Ethics 42 (2):132-137.
    Background The rise in genomic and biobanking research worldwide has led to the development of different informed consent models for use in such research. This study analyses consent documents used by investigators in the H3Africa (Human Heredity and Health in Africa) Consortium. Methods A qualitative method for text analysis was used to analyse consent documents used in the collection of samples and data in H3Africa projects. Thematic domains included type of consent model, explanations of genetics/genomics, data sharing and feedback of (...)
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  2.  50
    Global health inequalities and the need for solidarity: a view from the Global South.Mbih J. Tosam, Primus Che Chi, Nchangwi Syntia Munung, Odile Ouwe Missi Oukem-Boyer & Godfrey B. Tangwa - 2017 - Developing World Bioethics 18 (3):241-249.
    Although the world has experienced remarkable progress in health care since the last half of the 20th century, global health inequalities still persist. In some poor countries life expectancy is between 37-40 years lower than in rich countries; furthermore, maternal and infant mortality is high and there is lack of access to basic preventive and life-saving medicines, as well a high prevalence of neglected diseases, HIV/AIDS, tuberculosis, and malaria. Moreover, globalization has made the world more connected than before such that (...)
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  3.  28
    Genomics governance: advancing justice, fairness and equity through the lens of the African communitarian ethic of Ubuntu.Nchangwi Syntia Munung, Jantina de Vries & Bridget Pratt - 2021 - Medicine, Health Care and Philosophy 24 (3):377-388.
    There is growing interest for a communitarian approach to the governance of genomics, and for such governance to be grounded in principles of justice, equity and solidarity. However, there is a near absence of conceptual studies on how communitarian-based principles, or values, may inform, support or guide the governance of genomics research. Given that solidarity is a key principle in Ubuntu, an African communitarian ethic and theory of justice, there is emerging interest about the extent to which Ubuntu could offer (...)
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  4.  30
    COVID-19: Africa’s relation with epidemics and some imperative ethics considerations of the moment.Godfrey B. Tangwa & Nchangwi Syntia Munung - 2020 - Research Ethics 16 (3-4):1-11.
    COVID-19 is a very complex pandemic. It has affected individuals, different countries and regions of the world equally in some senses and differently in other senses. While sub-Saharan Africa has weathered a range of outbreaks of emerging and re-emerging infectious diseases, the manner in which the COVID-19 pandemic has evolved necessitates some observations, remarks and conclusions from our own situated observation point. Compared to previous epidemics/pandemics, many African countries have displayed a sense of solidarity in the face of COVID-19 that (...)
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  5.  86
    Informed consent in a tuberculosis genetic study in Cameroon: information overload, situational vulnerability and diagnostic misconception.Ali Ibrahim Mohammed-Ali, Eyoab Iyasu Gebremeskel, Emmanuel Yenshu, Theobald Nji, Apungwa Cornelius Ntabe, Samuel Wanji, Godfrey B. Tangwa & Nchangwi Syntia Munung - 2022 - Research Ethics 18 (4):265-280.
    Research Ethics, Volume 18, Issue 4, Page 265-280, October 2022. Concerns around comprehension and recall of consent information by research participants have typically been associated with low health and research literacy levels. In genomics research, this concern is heightened as the scientific and ethical complexities of genetics research, such as biobanking, genetic susceptibility, data sharing, and incidental findings may be more difficult for potential research participants to understand. However, challenges to research participants’ comprehension of consent information may be compounded by (...)
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  6.  29
    Engaging research ethics committees to develop an ethics and governance framework for best practices in genomic research and biobanking in Africa: the H3Africa model.Paulina Tindana, Aminu Yakubu, Ciara Staunton, Alice Matimba, Katherine Littler, Ebony Madden, Nchangwi Syntia Munung & Jantina de Vries - 2019 - BMC Medical Ethics 20 (1):1-7.
    In the past decade, there has been an increase in genomic research and biobanking activities in Africa. Research initiatives such as the Human Heredity and Health in Africa Consortium are contributing to the development of scientific capacity and infrastructure to support these studies on the continent. Despite this growth, genomic research and biobanking have raised important ethical challenges for key research stakeholders, including members of research ethics committees. One of these is the limited ethical and regulatory frameworks to guide the (...)
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  7.  42
    Sprinting Research and Spot Jogging Regulation: The State of Bioethics in Cameroon.Godfrey B. Tangwa & Nchangwi Syntia Munung - 2011 - Cambridge Quarterly of Healthcare Ethics 20 (3):356-366.
    Cameroon is a Central African country lying at latitude 6°N and longitude 12°E. The country has a surface area of circa 475,442 square kilometers, and is bordered by several other African countries: Nigeria, Chad, the Central African Republic, the Republic of Congo, Equatorial Guinea, and Gabon. With a population of nearly 20 million inhabitants, Cameroon is a very diverse country, geographically, culturally, and linguistically.
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  8.  27
    Small is beautiful: demystifying and simplifying standard operating procedures: a model from the ethics review and consultancy committee of the Cameroon Bioethics Initiative.Odile Ouwe Missi Oukem-Boyer, Nchangwi Syntia Munung & Godfrey B. Tangwa - 2016 - BMC Medical Ethics 17 (1):1.
    Research ethics review is a critical aspect of the research governance framework for human subjects research. This usually requires that research protocols be submitted to a research ethics committee for review and approval. This has led to very rapid developments in the domain of research ethics, as RECs proliferate all over the globe in rhyme with the explosion in human subjects research. The work of RECs has increasingly become elaborate, complex, and in many cases urgent, necessitating supporting rules and procedures (...)
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  9.  46
    Are students kidding with health research ethics? The case of HIV/aids research in Cameroon.Nchangwi Syntia Munung, Godfrey B. Tangwa, Chi Primus Che, Laurent Vidal & Odile Ouwe-Missi-Oukem-Boyer - 2012 - BMC Medical Ethics 13 (1):1-7.
    Background Universities in Cameroon are playing an active part in HIV/AIDS research and much of this research is carried out by students, usually for the purpose of a dissertation/thesis. Student theses/dissertations present research findings in a much more comprehensive manner and have been described as the stepping-stone of a budding scientist’s potential in becoming an independent researcher. It is therefore important to verify how students handle issues of research ethics. Method Theses/dissertations on HIV/AIDS that described research studies involving the use (...)
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  10.  30
    Lessons from the Ebola epidemics and their applications for COVID‐19 pandemic response in sub‐Saharan Africa.Muhammed O. Afolabi, Morenike Oluwatoyin Folayan, Nchangwi Syntia Munung, Aminu Yakubu, Gibril Ndow, Ayodele Jegede, Jennyfer Ambe & Francis Kombe - 2021 - Developing World Bioethics 21 (1):25-30.
    COVID‐19, caused by a novel coronavirus named SARS‐CoV‐2, was identified in December 2019, in Wuhan, China. It was first confirmed in sub‐Saharan Africa in Nigeria on 27 February 2020 and has since spread quickly to all sub‐Saharan African countries, causing more than 111,309 confirmed cases and 2,498 deaths as of 03 June 2020. The lessons learned during the recent Ebola virus disease (EVD) outbreaks in some sub‐Saharan African countries were expected to shape and influence the region’s responses to COVID‐19 pandemic. (...)
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  11.  19
    Towards equitable genomics governance in Africa: Guiding principles from theories of global health governance and the African moral theory of Ubuntu.Nchangwi Syntia Munung, Jantina de Vries & Bridget Pratt - 2022 - Bioethics 36 (4):411-422.
    The post‐genomics era promises a revolution characterized by precision medicine and the integration of genomics into almost every area of biomedical research. At the same time, there are concerns that if care is not taken, the genomics revolution may widen global inequities in science and health. In Africa, these concerns are primarily linked to the underrepresentation of African populations in genomics research, limited genomics research capacity in Africa and associated macro‐level justice issues such as benefit sharing, inequitable international research collaborations, (...)
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  12.  17
    Towards equitable genomics governance in Africa: Guiding principles from theories of global health governance and the African moral theory of Ubuntu.Nchangwi Syntia Munung, Jantina Vries & Bridget Pratt - 2022 - Bioethics 36 (4):411-422.
    Bioethics, Volume 36, Issue 4, Page 411-422, May 2022.
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  13.  11
    Assent, parental consent and reconsent for health research in Africa: thematic analysis of national guidelines and lessons from the SickleInAfrica registry.Ambroise Wonkam, Charmaine Royale, Kofi Anie, Malula Nkanyemka, Hilda Tutuba, Daima Bukini, Okocha Emmanuel Chide, Marsha Treadwell, Lawrence Osei-Tutu, Victoria Nembaware & Nchangwi Syntia Munung - 2022 - BMC Medical Ethics 23 (1):1-10.
    The enrolment of children and adolescents in health research requires that attention to be paid to specific assent and consent requirements such as the age range for seeking assent; conditions for parental consent (and waivers); the age group required to provide written assent; content of assent forms; if separate assent and parental consent forms should be used, consent from emancipated young adults; reconsent at the age of adulthood when a waiver of assent requirements may be appropriate and the conditions for (...)
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