15 found
Order:
  1.  35
    Mapping trust relationships in organ donation and transplantation: a conceptual model.Janet Delgado, Sabine Wöhlke, Jorge Suárez, David Rodríguez-Arias, Gurch Randhawa, Nadia Primc, Krzysztof Pabisiak, Alberto Molina-Pérez, Leah McLaughlin & María Victoria Martínez-López - 2023 - BMC Medical Ethics 24 (1):1-14.
    The organ donation and transplantation (ODT) system heavily relies on the willingness of individuals to donate their organs. While it is widely believed that public trust plays a crucial role in shaping donation rates, the empirical support for this assumption remains limited. In order to bridge this knowledge gap, this article takes a foundational approach by elucidating the concept of trust within the context of ODT. By examining the stakeholders involved, identifying influential factors, and mapping the intricate trust relationships among (...)
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   1 citation  
  2.  28
    Ethics of sleep tracking: techno-ethical particularities of consumer-led sleep-tracking with a focus on medicalization, vulnerability, and relationality.Nadia Primc, Jonathan Hunger, Robert Ranisch, Eva Kuhn & Regina Müller - 2023 - Ethics and Information Technology 25 (1):1-12.
    Consumer-targeted sleep tracking applications (STA) that run on mobile devices (e.g., smartphones) promise to be useful tools for the individual user. Assisted by built-in and/or external sensors, these apps can analyze sleep data and generate assessment reports for the user on their sleep duration and quality. However, STA also raise ethical questions, for example, on the autonomy of the sleeping person, or potential effects on third parties. Nevertheless, a specific ethical analysis of the use of these technologies is still missing (...)
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark   1 citation  
  3.  15
    'You have to put a lot of trust in me': autonomy, trust, and trustworthiness in the context of mobile apps for mental health.Regina Müller, Nadia Primc & Eva Kuhn - 2023 - Medicine, Health Care and Philosophy 26 (3):313-324.
    Trust and trustworthiness are essential for good healthcare, especially in mental healthcare. New technologies, such as mobile health apps, can affect trust relationships. In mental health, some apps need the trust of their users for therapeutic efficacy and explicitly ask for it, for example, through an avatar. Suppose an artificial character in an app delivers healthcare. In that case, the following questions arise: Whom does the user direct their trust to? Whether and when can an avatar be considered trustworthy? Our (...)
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark   1 citation  
  4.  22
    Das „framing“ der sechsmonatigen Karenzregel in der Lebertransplantation. Ein Beispiel für sprachlich vermittelte Deutungsmuster zur Eingrenzung des Indikationsgebietes.Nadia Primc - 2020 - Ethik in der Medizin 32 (3):239-253.
    Die deutschen Richtlinien zur Lebertransplantation sehen vor, dass Patient*innen mit alkoholbedingten Lebererkrankungen in der Regel eine sechsmonatige Karenz nachweisen müssen, bevor sie auf die Warteliste für eine Lebertransplantation aufgenommen werden können. Die international weit verbreitete Karenzregel wurde von Beginn an sehr kritisch diskutiert, da hiermit Patient*innen eine wirksame und potentiell lebensrettende Therapie zumindest vorübergehend vorenthalten wird. Sie kommt in der Praxis einer Eingrenzung der Indikation zur Lebertransplantation gleich. Aus der medizinischen Fachliteratur lassen sich vier Interpretationsrahmen rekonstruieren, die mittels Herausstellung bestimmter (...)
    No categories
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   2 citations  
  5.  8
    The framing of the six-month abstinence rule in liver transplantation. An example of linguistically mediated patterns of interpretation used to limit indication area.Nadia Primc - 2020 - Ethik in der Medizin 32 (3):239-253.
    BackgroundThe German guidelines for liver transplantation stipulate that every patient with alcohol-related liver disease needs to prove evidence of a 6-month abstinence period before they can be admitted to the waiting list for liver transplantation. This internationally widespread abstinence rule has been criticised as it prevents patients at least temporarily from receiving an effective and potentially life-saving therapy. This poses the question of how this abstinence rule is depicted and justified by transplantation professionals.ArgumentsIn case of the 6‑month abstinence rule, guidelines (...)
    No categories
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   2 citations  
  6.  29
    Correction to: Mapping trust relationships in organ donation and transplantation: a conceptual model.María Victoria Martínez-López, Leah McLaughlin, Alberto Molina-Pérez, Krzysztof Pabisiak, Nadia Primc, Gurch Randhawa, David Rodríguez-Arias, Jorge Suárez, Sabine Wöhlke & Janet Delgado - 2024 - BMC Medical Ethics 25 (1):1-2.
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark  
  7.  45
    Do we have a right to an unmanipulated genome? The human genome as the common heritage of mankind.Nadia Primc - 2019 - Bioethics 34 (1):41-48.
    The human genome is commonly regarded as a ‘natural’ connection between all human beings, as it has been handed down to us by our predecessors. As such, it is believed to represent common heritage of humanity, e.g. a resource of outstanding value that should be the object of special protection and international concern. Some critics argue that germline manipulation would disrupt this natural heritage and that we have a duty to preserve the integrity of the human germline. However, a closer (...)
    Direct download  
     
    Export citation  
     
    Bookmark   2 citations  
  8.  19
    Healthy and Happy? An Ethical Investigation of Emotion Recognition and Regulation Technologies (ERR) within Ambient Assisted Living (AAL).Kris Vera Hartmann, Giovanni Rubeis & Nadia Primc - 2024 - Science and Engineering Ethics 30 (1):1-17.
    Ambient Assisted Living (AAL) refers to technologies that track daily activities of persons in need of care to enhance their autonomy and minimise their need for assistance. New technological developments show an increasing effort to integrate automated emotion recognition and regulation (ERR) into AAL systems. These technologies aim to recognise emotions via different sensors and, eventually, to regulate emotions defined as “negative” via different forms of intervention. Although these technologies are already implemented in other areas, AAL stands out by its (...)
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark  
  9.  12
    Shared decision making, prospektive Lebensqualität und das beste Interesse des Kindes: ethische Herausforderungen im Kontext von Behandlungsentscheidungen bei Frühgeborenen an der Grenze der Lebensfähigkeit.Diana Carvalho & Nadia Primc - 2023 - Ethik in der Medizin 35 (4):487-506.
    Zusammenfassung Behandlungsentscheidungen bei Frühgeburten an der Grenze der Lebensfähigkeit stellen eine große Herausforderung dar. In der Neonatologie hat sich das Konzept einer prognostischen Grauzone etabliert, die als ein Grenzbereich verstanden wird, in dem sich aus medizinischer Sicht die Nutzen-Risiko-Abwägung aufgrund der unsicheren Prognose sehr schwierig gestaltet und sich aus ethischer Sicht sowohl eine kurative als auch eine palliative Versorgung prinzipiell rechtfertigen lassen. Innerhalb der Grauzone wird zumeist eine gemeinsame Entscheidungsfindung mit den Eltern in Form eines „shared-decision making“ (SDM) favorisiert, die (...)
    No categories
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark  
  10.  20
    Lost in translation? Conceptions of privacy and independence in the technical development of AI-based AAL.Kris Vera Hartmann, Nadia Primc & Giovanni Rubeis - 2023 - Medicine, Health Care and Philosophy 26 (1):99-110.
    AAL encompasses smart home technologies that are installed in the personal living environment in order to support older, disabled, as well as chronically ill people with the goal of delaying or reducing their need for nursing care in a care facility. Artificial intelligence (AI) is seen as an important tool for assisting the target group in their daily lives. A literature search and qualitative content analysis of 255 articles from computer science and engineering was conducted to explore the usage of (...)
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark  
  11.  11
    Should responsibility be used as a tiebreaker in allocation of deceased donor organs for patients suffering from alcohol-related end-stage liver disease?Diehua Hu & Nadia Primc - 2023 - Medicine, Health Care and Philosophy 26 (2):243-255.
    There is a long-standing debate concerning the eligibility of patients suffering from alcohol-related end-stage liver disease (ARESLD) for deceased donor liver transplantation. The question of retrospective and/or prospective responsibility has been at the center of the ethical discussion. Several authors argue that these patients should at least be regarded as partly responsible for their ARESLD. At the same time, the arguments for retrospective and/or prospective responsibility have been strongly criticized, such that no consensus has been reached. A third option was (...)
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark  
  12.  11
    A typology of nurses' interaction with relatives in emergency situations.Nadia Primc, Sven Schwabe, Juliane Poeck, Andreas Günther, Martina Hasseler & Giovanni Rubeis - 2023 - Nursing Ethics 30 (2):232-244.
    Background In nursing homes, residents’ relatives represent important sources of support for nurses. However, in the heightened stress of emergency situations, interaction between nurses and relatives can raise ethical challenges. Research objectives The present analysis aimed at elaborating a typology of nurses’ experience of ethical support and challenges in their interaction with relatives in emergency situations. Research design Thirty-three semi-structured interviews and six focus groups were conducted with nurses from different nursing homes in Germany. Data were analysed according to Mayring’s (...)
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark  
  13.  17
    Das Verhältnis von Lebenswelt und Wissenschaft.Nadia Primc - 2012 - Würzburg: Königshausen & Neumann.
    Die vorliegende Untersuchung bemüht sich um eine Klärung des Verhältnisses von Lebenswelt und Wissenschaft. Zum einen treten die Wissenschaften bereits ihrem Begriffe nach mit dem Anspruch auf eine besondere Qualität des von ihnen zur Verfügung gestellten Wissens auf. Soll es sich hierbei nicht um ein leeres Versprechen handeln, muss sich zeigen lassen, inwiefern sich die Wissenschaften von anderen Wissensformen wie eben dem Alltagswissen abheben. Die Klärung dieses Verhältnisses stellt also implizit eine Bestimmung der besonderen Qualität der Wissenschaften dar - eine (...)
    Direct download  
     
    Export citation  
     
    Bookmark  
  14.  11
    Germline Modifications as a Severe Intervention into Human Nature.Nadia Primc - 2018 - In Matthias Braun, Hannah Schickl & Peter Dabrock (eds.), Between Moral Hazard and Legal Uncertainty: Ethical, Legal and Societal Challenges of Human Genome Editing. Wiesbaden: Springer Fachmedien Wiesbaden. pp. 99-110.
    Manipulation of the human germline is sometimes criticised as a severe intervention into human nature. In order to assess the tenability of this claim, different uses of the term “human nature” and distinct scientific and clinical contexts must be differentiated. The first live birth of an edited human child will probably take the form of an unproven intervention and not a clinical trial. As an unproven intervention, germline manipulation must be regarded as a severe intervention into the nature of a (...)
    Direct download  
     
    Export citation  
     
    Bookmark  
  15.  18
    Solveig Lena Hansen, Silke Schicktanz (Hrsg) (2021) Ethical challenges of organ transplantation. Current debates and international perspectives: Transcript Verlag, Bielefeld, 358 Seiten, 40,00 €, ISBN 978-3-8376-4643-6.Nadia Primc - 2022 - Ethik in der Medizin 34 (2):275-276.
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark