9 found
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  1.  50
    How patients experience respect in healthcare: findings from a qualitative study among multicultural women living with HIV.Sofia B. Fernandez, Alya Ahmad, Mary Catherine Beach, Melissa K. Ward, Michele Jean-Gilles, Gladys Ibañez, Robert Ladner & Mary Jo Trepka - 2024 - BMC Medical Ethics 25 (1):1-12.
    Background Respect is essential to providing high quality healthcare, particularly for groups that are historically marginalized and stigmatized. While ethical principles taught to health professionals focus on patient autonomy as the object of respect for persons, limited studies explore patients’ views of respect. The purpose of this study was to explore the perspectives of a multiculturally diverse group of low-income women living with HIV (WLH) regarding their experience of respect from their medical physicians. Methods We analyzed 57 semi-structured interviews conducted (...)
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  2.  48
    Respect and Dignity: A Conceptual Model for Patients in the Intensive Care Unit.Leslie Meltzer Henry, Cynda Rushton, Mary Catherine Beach & Ruth Faden - 2015 - Narrative Inquiry in Bioethics 5 (1):5-14.
    Although the concept of dignity is commonly invoked in clinical care, there is not widespread agreement—in either the academic literature or in everyday clinical conversations—about what dignity means. Without a framework for understanding dignity, it is difficult to determine what threatens patients’ dignity and, conversely, how to honor commitments to protect and promote it. This article aims to change that by offering the first conceptual model of dignity for patients in the intensive care unit. The conceptual model we present is (...)
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  3.  32
    Understanding Treatment with Respect and Dignity in the Intensive Care Unit.Hanan Aboumatar, Lindsay Forbes, Emily Branyon, Joseph Carrese, Gail Geller, Mary Catherine Beach & Jeremy Sugarman - 2015 - Narrative Inquiry in Bioethics 5 (1):55-67.
    Despite wide recognition of the importance of treating patients with respect and dignity, little is known about what constitutes treatment in this regard. The intensive care unit (ICU) is a unique setting that can pose specific threats to treatment with respect and dignity owing to the critical state of patients, stress and anxiety amongst patients and their family members, and the highly technical nature of the environment. In attempt to understand various stakeholders’ perspectives of treatment with respect and dignity, patients (...)
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  4.  39
    Patient and Family Perspectives on Respect and Dignity in the Intensive Care Unit.Mary Catherine Beach, Lindsay Forbes, Emily Branyon, Hanan Aboumatar, Joseph Carrese, Jeremy Sugarman & Gail Geller - 2015 - Narrative Inquiry in Bioethics 5 (1):15-25.
    Respect and dignity are central to moral life, and have a particular importance in health care settings such as the intensive care unit (ICU). We conducted 15 semistructured interviews with 21 participants during an ICU admission to explore the definition of, and specific behaviors that demonstrate, respect and dignity during treatment in the ICU. We transcribed interviews and conducted thematic qualitative analysis. Seven themes emerged that focused on what it means to be treated with respect and/or dignity: treated as a (...)
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  5.  33
    Analyzing Reflective Narratives to Assess the Ethical Reasoning of Pediatric Residents.Margaret Moon, Holly A. Taylor, Erin L. McDonald, Mark T. Hughes, Mary Catherine Beach & Joseph A. Carrese - 2013 - Narrative Inquiry in Bioethics 3 (2):165-174.
    A limiting factor in ethics education in medical training has been difficulty in assessing competence in ethics. This study was conducted to test the concept that content analysis of pediatric residents’ personal reflections about ethics experiences can identify changes in ethical sensitivity and reasoning over time. Analysis of written narratives focused on two of our ethics curriculum’s goals: 1) To raise sensitivity to ethical issues in everyday clinical practice and 2) to enhance critical reflection on personal and professional values as (...)
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  6.  30
    Health Care Professionals’ Perceptions and Experiences of Respect and Dignity in the Intensive Care Unit.Gail Geller, Emily Branyon, Lindsay Forbes, Cynda H. Rushton, Mary Catherine Beach, Joseph Carrese, Hanan Aboumatar & Jeremy Sugarman - 2015 - Narrative Inquiry in Bioethics 5 (1):27-42.
    Little is known about health care professionals’ perceptions regarding what it means to treat patients and families with respect and dignity in the intensive care unit (ICU) setting. To address this gap, we conducted nine focus groups with different types of health care professionals (attending physicians, residents/fellows, nurses, social workers, pastoral care, etc.) working in either a medical or surgical ICU within the same academic health system. We identified three major thematic domains, namely, intrapersonal (attitudes and beliefs), interpersonal (behaviors), and (...)
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  7.  42
    Measuring Patients’ Experiences of Respect and Dignity in the Intensive Care Unit: A Pilot Study.Hanan Aboumatar, Mary Catherine Beach, Ting Yang, Emily Branyon, Lindsay Forbes & Jeremy Sugarman - 2015 - Narrative Inquiry in Bioethics 5 (1):69-84.
    In this study, we tested the feasibility of conducting quantitative assessments of patients’ experiences with care in the intensive care unit (ICU), in regard to treatment with respect and dignity. Patients completed the Patient Dignity Inventory, Collaborate, and selected domains from the Hospital Consumer Assessment of Health Providers and Systems Survey. Family members were additionally surveyed using the Family Satisfaction in ICU Care questionnaire. Overall, patients reported high levels of satisfaction in terms of nurses and doctors treating them with courtesy (...)
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  8.  32
    Observations of Respect and Dignity in the Intensive Care Unit.Joseph Carrese, Lindsay Forbes, Emily Branyon, Hanan Aboumatar, Gail Geller, Mary Catherine Beach & Jeremy Sugarman - 2015 - Narrative Inquiry in Bioethics 5 (1):43-53.
    Treating patients and their family members with respect and dignity is a broadly accepted goal of health care. The work presented in this article is part of a larger project aimed at better understanding what constitutes treatment with respect and dignity in the ICU to improve the care that patients and family members receive in this regard. Direct observation was selected as one of the methods to facilitate this understanding because it provides the opportunity to see and document what actually (...)
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  9.  27
    Reason for Hospital Admission: A Pilot Study Comparing Patient Statements with Chart Reports.Zackary Berger, Anne Dembitzer & Mary Catherine Beach - 2013 - Narrative Inquiry in Bioethics 3 (1):67-79.
    Providers and patients bring different understandings of health and disease to their encounters in the hospital setting. The literature to date only infrequently addresses patient and provider concordance on the reported reason for hospitalization, that is, whether they express this reason in similar ways. An agreement or common ground between such understandings can serve as a basis for future communication regarding an illness and its treatment. We interviewed a convenience sample of patients on the medical wards of an urban academic (...)
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