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    Do we understand the intervention? What complex intervention research can teach us for the evaluation of clinical ethics support services.Jan Schildmann, Stephan Nadolny, Joschka Haltaufderheide, Marjolein Gysels, Jochen Vollmann & Claudia Bausewein - 2019 - BMC Medical Ethics 20 (1):48.
    Evaluating clinical ethics support services has been hailed as important research task. At the same time, there is considerable debate about how to evaluate CESS appropriately. The criticism, which has been aired, refers to normative as well as empirical aspects of evaluating CESS. In this paper, we argue that a first necessary step for progress is to better understand the intervention in CESS. Tools of complex intervention research methodology may provide relevant means in this respect. In a first step, we (...)
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    Is the qualitative research interview an acceptable medium for research with palliative care patients and carers?Marjolein Gysels, Cathy Shipman & Irene J. Higginson - 2008 - BMC Medical Ethics 9 (1):7-.
    BackgroundContradictory evidence exists about the emotional burden of participating in qualitative research for palliative care patients and carers and this raises questions about whether this type of research is ethically justified in a vulnerable population. This study aimed to investigate palliative care patients' and carers' perceptions of the benefits and problems associated with open interviews and to understand what causes distress and what is helpful about participation in a research interview.MethodsA descriptive qualitative study. The data were collected in the context (...)
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  3. Outcomes of clinical ethics support near the end of life: A systematic review.Joschka Haltaufderheide, Stephan Nadolny, Marjolein Gysels, Claudia Bausewein, Jochen Vollmann & Jan Schildmann - 2020 - Nursing Ethics 27 (3):838-854.
    Background: Clinical ethics support services have been advocated in recent decades. In clinical practice, clinical ethics support services are often requested for difficult decisions near the end of life. However, their contribution to improving healthcare has been questioned and demands for evaluation have been put forward. Research indicates that there are considerable challenges associated with defining adequate outcomes for clinical ethics support services. In this systematic review, we report findings of qualitative studies and surveys, which have been conducted to evaluate (...)
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