Family members are widely believed to be the best decisionmakers for those with brain injuries, but the rehabilitation process does not in fact give them that authority.

The U.S. patent office has granted patents on segments of human DNA to several biotechnology companies, enabling them to control the development of DNA-related "products." While it is recognized that expanded knowledge of DNA codes is extremely important in helping to overcome genetic diseases, such knowledge can easily also be used to redefine genetically the human person. Much wisdom is needed for such an endeavor. This paper suggests that the market should not have control of this important knowledge because it (...) is incapable of exercising such wisdom, specifically because of the salient traits that govern the market. Those traits are: expediency, efficiency, the need for quantifiable results, and impersonality. The very structures of the market necessarily lead to a deterministic and reductionist view of the human person and overlook important issues of distributive justice. (shrink)

PERSONS WHO ARE IN A MINIMALLY CONSCIOUS STATE DIFFER FROM those who are vegetative in that they have some awareness of themselves and others. Because of this awareness, their care should differ from the custodial care that is given to people in a persistent vegetative state. It should also include rehabilitative services that would help to increase their ability to function at their optimal level. This care also needs to include assistance in restructuring identity. Because persons in a minimally conscious (...) state have a story, a narrative, that both precedes and follows their time in health care institutions, their families are best equipped to help them work on their identity issues. Many families are willing to accept this challenge if proper support systems have been put in place. The principle of subsidiarity suggests that this should be done. In addition, this approach would build on the relational components of these individuals and would eliminate the feelings of abandonment that most patients in a minimally conscious state and their families currently experience. (shrink)