4 found
  1.  60
    Building on relationships of trust in biobank research.M. G. Hansson - 2005 - Journal of Medical Ethics 31 (7):415-418.
    Trust among current and future patients is essential for the success of biobank research. The submission of an informed consent is an act of trust by a patient or a research subject, but a strict application of the rule of informed consent may not be sensitive to the multiplicity of patient interests at stake, and could thus be detrimental to trust. According to a recently proposed law on “genetic integrity” in Sweden, third parties will be prohibited from requesting or seeking (...)
    Direct download (9 more)  
    Export citation  
    Bookmark   21 citations  
  2.  41
    Split views among parents regarding children's right to decide about participation in research: a questionnaire survey.U. Swartling, G. Helgesson, M. G. Hansson & J. Ludvigsson - 2009 - Journal of Medical Ethics 35 (7):450-455.
    Based on extensive questionnaire data, this paper focuses on parents’ views about children’s right to decide about participation in research. The data originates from 4000 families participating in a longitudinal prospective screening as 1997. Although current regulations and recommendations underline that children should have influence over their participation, many parents in this study disagree. Most (66%) were positive providing information to the child about relevant aspects of the study. However, responding parents were split about whether or not children should at (...)
    Direct download (6 more)  
    Export citation  
    Bookmark   4 citations  
  3.  64
    Ethical Issues in Cancer Register Follow-Up of Hormone Treatment in Adolescence.C. M. Hultman, A. -C. Lindgren, M. G. Hansson, J. Carlstedt-Duke, M. Ritzen, I. Persson & H. Kieler - 2009 - Public Health Ethics 2 (1):30-36.
    Since the 1970s, estrogen have sometimes been used in adolescent girls to reduce very tall adult expected height. Worries about long-term effects have led to a proposal to link treatment data with cancer registers. How should one deal with informed consent for such a study? We designed a qualitative study with semi-structured telephone interviews. From 1200 women who were to be followed-up in cancer registers, we randomly selected 22 women. Major themes were a wish to be involved and a positive (...)
    Direct download (8 more)  
    Export citation  
  4.  67
    Cancellations of elective surgery may cause an inferior postoperative course: the 'invisible hand' of health-care prioritization?H. Magnusson, L. Fellander-Tsai, M. G. Hansson & L. Ryd - 2011 - Clinical Ethics 6 (1):27-31.
    Elective surgery can be cancelled when resources are overwhelmed by emergency cases. We hypothesized that such cancellations, on psychological grounds, are followed also by inferior clinical results and we conducted a retrospective survey of patients following joint replacement surgery. Sixty patients having suffered from administrative cancellation prior to their operation during an 18-month period and with six months follow-up were identified and compared with another 60 matched patients after having the same type of surgery but without prior cancellation. All patients (...)
    Direct download  
    Export citation  
    Bookmark   1 citation