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  1.  26
    L’allocazione delle risorse sanitarie durante la pandemia da Covid-19: un’analisi comparativa dei documenti della SIAARTI e del CNB.Davide Battisti, Luca Marelli, Mario Picozzi, Massimo Reichlin & Virginia Sanchini - 2021 - Notizie di Politeia 141:25-45.
    In Italy, during the first wave of the Covid-19 pandemic, the Italian Society of Resuscitators and Pain Therapists (SIAARTI) and the Italian National Bioethics Committee (CNB) published ethical guidance on the allocation of scarce intensive care resources. In this paper, we outline and compare these documents in detail, highlighting differences and similarities. In particular, we argue that major differences exist with respect to the principles and values underpinning the documents and the normative allocation criteria proposed. Conversely, similarities can be traced (...)
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  2.  2
    Bioconstitutional Imaginaries and the Comparative Politics of Genetic Self-Knowledge.Sheila Jasanoff, Luca Marelli, Ingrid Metzler & J. Benjamin Hurlbut - 2020 - Science, Technology, and Human Values 45 (6):1087-1118.
    Genetic testing has become a vehicle through which basic constitutional relationships between citizens and the state are revisited, reaffirmed, or rearticulated. The interplay between the is of genetic knowledge and the ought of government unfolds in the context of diverse imaginaries of the forms of human well-being, freedom, and flourishing that states have a duty to support. This article examines how the United Kingdom, Germany, and the United States governed testing for Alzheimer’s disease, and how they diverged in defining potential (...)
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    Big Tech Platforms in Health Research: Re-Purposing Big Data Governance in Light of the General Data Protection Regulation’s Research Exemption.Ine Van Hoyweghen, Giuseppe Testa & Luca Marelli - 2021 - Big Data and Society 8 (1).
    The emergence of a global industry of digital health platforms operated by Big Tech corporations, and its growing entanglements with academic and pharmaceutical research networks, raise pressing questions on the capacity of current data governance models, regulatory and legal frameworks to safeguard the sustainability of the health research ecosystem. In this article, we direct our attention toward the challenges faced by the European General Data Protection Regulation in regulating the potentially disruptive engagement of Big Tech platforms in health research. The (...)
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