13 found
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  1.  84
    Overriding parents’ medical decisions for their children: a systematic review of normative literature.Rosalind J. McDougall & Lauren Notini - 2014 - Journal of Medical Ethics 40 (7):448-452.
    This paper reviews the ethical literature on conflicts between health professionals and parents about medical decision-making for children. We present the results of a systematic review which addressed the question ‘when health professionals and parents disagree about the appropriate course of medical treatment for a child, under what circumstances is the health professional ethically justified in overriding the parents’ wishes?’ We identified nine different ethical frameworks that were put forward by their authors as applicable across various ages and clinical scenarios. (...)
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  2.  30
    Forever young? The ethics of ongoing puberty suppression for non-binary adults.Lauren Notini, Brian D. Earp, Lynn Gillam, Rosalind J. McDougall, Julian Savulescu, Michelle Telfer & Ken C. Pang - 2020 - Journal of Medical Ethics 46 (11):743-752.
    In this article, we analyse the novel case of Phoenix, a non-binary adult requesting ongoing puberty suppression to permanently prevent the development of secondary sex characteristics, as a way of affirming their gender identity. We argue that the aim of OPS is consistent with the proper goals of medicine to promote well-being, and therefore could ethically be offered to non-binary adults in principle; there are additional equity-based reasons to offer OPS to non-binary adults as a group; and the ethical defensibility (...)
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  3.  22
    Drawing the line on in vitro gametogenesis.Lauren Notini, Christopher Gyngell & Julian Savulescu - 2019 - Bioethics 34 (1):123-134.
    In vitro gametogenesis (IVG) might offer numerous research and clinical benefits. Some potential clinical applications of IVG, such as allowing opposite‐sex couples experiencing infertility to have genetically related children, have attracted support. Others, such as enabling same‐sex reproduction and solo reproduction, have attracted significantly more criticism. In this paper, we examine how different ethical principles might help us to draw lines and distinguish between ethically desirable and undesirable uses of IVG. We discuss the alleged distinction between therapeutic and non‐therapeutic uses (...)
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  4.  12
    What kinds of cases do paediatricians refer to clinical ethics? Insights from 184 case referrals at an Australian paediatric hospital.Rosalind J. McDougall & Lauren Notini - 2016 - Journal of Medical Ethics 42 (9):586-591.
    Clinical ethics has been developing in paediatric healthcare for several decades. However, information about how paediatricians use clinical ethics case consultation services is extremely limited. In this project, we analysed a large set of case records from the clinical ethics service of one paediatric hospital in Australia. We applied a paediatric-specific typology to the case referrals, based on the triadic doctor–patient–parent relationship. We reviewed the 184 cases referred to the service in the period 2005–2014, noting features including the type of (...)
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  5.  14
    Identity, well-being and autonomy in ongoing puberty suppression for non-binary adults: a response to the commentaries.Lauren Notini, Brian D. Earp, Lynn Gillam, Julian Savulescu, Michelle Telfer & Ken C. Pang - 2020 - Journal of Medical Ethics 46 (11):761-762.
    We thank the commentators for their thoughtful responses to our article.1 Due to space constraints, we will confine our discussion to just three key issues. The first issue relates to the central ethical conundrum for clinicians working with young people like Phoenix: namely, how to respect, value and defer to a person’s own account of their identity and what is needed for their well-being, while staying open to the possibility that such an account may reflect a work in progress. This (...)
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  6.  13
    Ethical issues associated with solid organ transplantation and substance use: a scoping review.Daniel Z. Buchman, Ani Orchanian-Cheff, Denitsa Vasileva & Lauren Notini - 2019 - Monash Bioethics Review 37 (3-4):111-135.
    While solid organ transplantation for patients with substance use issues has attracted ethical discussion, a typology of the ethics themes has not been articulated in the literature. We conducted a scoping review of peer-reviewed literature on solid organ transplantation and substance use published between January 1997 and April 2016. We aimed to identify and develop a typology of the main ethical themes discussed in this literature and to identify gaps worthy of future research. Seventy articles met inclusion criteria and underwent (...)
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  7.  48
    Conflicts Between Parents and Health Professionals About a Child’s Medical Treatment: Using Clinical Ethics Records to Find Gaps in the Bioethics Literature.Rosalind McDougall, Lauren Notini & Jessica Phillips - 2015 - Journal of Bioethical Inquiry 12 (3):429-436.
    Clinical ethics records offer bioethics researchers a rich source of cases that clinicians have identified as ethically complex. In this paper, we suggest that clinical ethics records can be used to point to types of cases that lack attention in the current bioethics literature, identifying new areas in need of more detailed bioethical work. We conducted an analysis of the clinical ethics records of one paediatric hospital in Australia, focusing specifically on conflicts between parents and health professionals about a child’s (...)
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  8.  30
    Should Parental Refusal of Puberty-Blocking Treatment be Overridden? The Role of the Harm Principle.Lauren Notini, Rosalind McDougall & Ken C. Pang - 2019 - American Journal of Bioethics 19 (2):69-72.
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  9.  30
    Should clinicians make chest surgery available to transgender male adolescents?Rosalind McDougall, Lauren Notini, Clare Delany, Michelle Telfer & Ken C. Pang - 2021 - Bioethics 35 (7):696-703.
    Bioethics, Volume 35, Issue 7, Page 696-703, September 2021.
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  10.  12
    Offering and Returning Secondary Findings in the Context of Exome Sequencing for Hearing Loss: Clinicians’ Views and Experiences.Lauren Notini, Clara Gaff, Julian Savulescu & Danya F. Vears - 2023 - AJOB Empirical Bioethics 14 (2):74-83.
    Background There is ongoing debate regarding whether and under which circumstances secondary findings (SF) should be offered in the pediatric context. Although studies have examined patient perspectives on receiving SF, little research has been conducted examining the experiences of clinicians offering SF to parents of newborns receiving genomic sequencing for a recently diagnosed medical condition.Methods To address this, we conducted qualitative interviews exploring the views and experiences of 12 clinicians who offered SF to parents of infants who had diagnostic exome (...)
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  11.  16
    Facial Feminization Surgery: Privacy, Personal Identity, Compensatory Justice, and Resource Allocation.Lauren Notini, Lynn Gillam & Ken C. Pang - 2018 - American Journal of Bioethics 18 (12):12-15.
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  12.  18
    Philosophy of Healthcare Ethics Practice Statements: Quality Attestation and Beyond.Lauren Notini - 2018 - HEC Forum 30 (4):341-360.
    One element of the American Society for Bioethics and Humanities’ recently-piloted quality attestation portfolio for clinical ethics consultants is a “philosophy of clinical ethics consultation statement” describing the candidate’s approach to clinical ethics consultation. To date, these statements have been under-explored in the literature, in contrast to philosophy statements in other fields such as academic teaching. In this article, I argue there is merit in expanding the content of these statements beyond clinical ethics consultation alone to describe the author’s approach (...)
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  13.  13
    When (if ever) may doctors discuss religion with their patients?Lauren Notini & Justin Oakley - 2022 - Bioethics 37 (1):72-80.
    There is ongoing debate within the bioethics literature regarding to what extent (if any) it is ethically justifiable for doctors to engage in religious discussion with their patients, in cases where patients cite religious considerations as influencing their medical decision-making. In this paper, we concede that certain forms of religious discussion between doctors and patients are morally permissible (though not necessarily morally obligatory), insofar as patients’ religious beliefs may comprise an important part of their overall wellbeing and can influence their (...)
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