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Lynn Gillam [56]L. Gillam [11]Lee Gillam [2]Lynn H. Gillam [1]
  1. The Zone of Parental Discretion: An Ethical Tool for Dealing with Disagreement Between Parents and Doctors About Medical Treatment for a Child.Lynn Gillam - 2016 - Clinical Ethics 11 (1):1-8.
    Dealing with situations where parents’ views about treatment for their child are strongly opposed to doctors’ views is one major area of ethical challenge in paediatric health care. The traditional approach focuses on the child’s best interests, but this is problematic for a number of reasons. The Harm Principle test is regarded by many ethicists as more appropriate than the best interests test. Despite this, use of the best interests test for intervening in parental decisions is still very common in (...)
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  2.  13
    Forever Young? The Ethics of Ongoing Puberty Suppression for Non-Binary Adults.Lauren Notini, Brian D. Earp, Lynn Gillam, Rosalind J. McDougall, Julian Savulescu, Michelle Telfer & Ken C. Pang - 2020 - Journal of Medical Ethics 46 (11):743-752.
    In this article, we analyse the novel case of Phoenix, a non-binary adult requesting ongoing puberty suppression to permanently prevent the development of secondary sex characteristics, as a way of affirming their gender identity. We argue that the aim of OPS is consistent with the proper goals of medicine to promote well-being, and therefore could ethically be offered to non-binary adults in principle; there are additional equity-based reasons to offer OPS to non-binary adults as a group; and the ethical defensibility (...)
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  3. Should Patients with Self–Inflicted Illness Receive Lower Priority in Access to Healthcare Resources.K. Sharkey & L. Gillam - 2010 - Journal of Medical Ethics 36 (11):661-665.
    The distribution of scarce healthcare resources is an increasingly important issue due to factors such as expensive ‘high tech’ medicine, longer life expectancies and the rising prevalence of chronic illness. Furthermore, in the current healthcare context lifestyle-related factors such as high blood pressure, tobacco use and obesity are believed to contribute significantly to the global burden of disease. As such, this paper focuses on an ongoing debate in the academic literature regarding the role of responsibility for illness in healthcare resource (...)
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  4.  24
    Can the Ethical Best Practice of Shared Decision-Making Lead to Moral Distress?Trisha M. Prentice & Lynn Gillam - 2018 - Journal of Bioethical Inquiry 15 (2):259-268.
    When healthcare professionals feel constrained from acting in a patient’s best interests, moral distress ensues. The resulting negative sequelae of burnout, poor retention rates, and ultimately poor patient care are well recognized across healthcare providers. Yet an appreciation of how particular disciplines, including physicians, come to be “constrained” in their actions is still lacking. This paper will examine how the application of shared decision-making may contribute to the experience of moral distress for physicians and why such distress may go under-recognized. (...)
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  5.  26
    The Role of Emotions in Health Professional Ethics Teaching.Lynn Gillam, Clare Delany, Marilys Guillemin & Sally Warmington - 2014 - Journal of Medical Ethics 40 (5):331-335.
    In this paper, we put forward the view that emotions have a legitimate and important role in health professional ethics education. This paper draws upon our experience of running a narrative ethics education programme for ethics educators from a range of healthcare disciplines. It describes the way in which emotions may be elicited in narrative ethics teaching and considers the appropriate role of emotions in ethics education for health professionals. We argue there is a need for a pedagogical framework to (...)
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  6.  10
    Reflecting Before, During, and After the Heat of the Moment: A Review of Four Approaches for Supporting Health Staff to Manage Stressful Events. [REVIEW]C. Delany, S. Jones, J. Sokol, L. Gillam & T. Prentice - 2021 - Journal of Bioethical Inquiry 18 (4):573-587.
    Being a healthcare professional in both paediatric and adult hospitals will mean being exposed to human tragedies and stressful events involving conflict, misunderstanding, and moral distress. There are a number of different structured approaches to reflection and discussion designed to support healthcare professionals process and make sense of their feelings and experiences and to mitigate against direct and vicarious trauma. In this paper, we draw from our experience in a large children’s hospital and more broadly from the literature to identify (...)
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  7.  4
    Identity, Well-Being and Autonomy in Ongoing Puberty Suppression for Non-Binary Adults: A Response to the Commentaries.Lauren Notini, Brian D. Earp, Lynn Gillam, Julian Savulescu, Michelle Telfer & Ken C. Pang - 2020 - Journal of Medical Ethics 46 (11):761-762.
    We thank the commentators for their thoughtful responses to our article.1 Due to space constraints, we will confine our discussion to just three key issues. The first issue relates to the central ethical conundrum for clinicians working with young people like Phoenix: namely, how to respect, value and defer to a person’s own account of their identity and what is needed for their well-being, while staying open to the possibility that such an account may reflect a work in progress. This (...)
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  8.  72
    Predictive Genetic Testing in Minors for Late-Onset Conditions: A Chronological and Analytical Review of the Ethical Arguments: Figure 1.Cara Mand, Lynn Gillam, Martin B. Delatycki & Rony E. Duncan - 2012 - Journal of Medical Ethics 38 (9):519-524.
    Predictive genetic testing is now routinely offered to asymptomatic adults at risk for genetic disease. However, testing of minors at risk for adult-onset conditions, where no treatment or preventive intervention exists, has evoked greater controversy and inspired a debate spanning two decades. This review aims to provide a detailed longitudinal analysis and concludes by examining the debate's current status and prospects for the future. Fifty-three relevant theoretical papers published between 1990 and December 2010 were identified, and interpretative content analysis was (...)
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  9.  16
    Balancing Health Worker Well-Being and Duty to Care: An Ethical Approach to Staff Safety in COVID-19 and Beyond.Rosalind J. McDougall, Lynn Gillam, Danielle Ko, Isabella Holmes & Clare Delany - 2021 - Journal of Medical Ethics 47 (5):318-323.
    The COVID-19 pandemic has highlighted the risks that can be involved in healthcare work. In this paper, we explore the issue of staff safety in clinical work using the example of personal protective equipment in the COVID-19 crisis. We articulate some of the specific ethical challenges around PPE currently being faced by front-line clinicians, and develop an approach to staff safety that involves balancing duty to care and personal well-being. We describe each of these values, and present a decision-making framework (...)
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  10.  5
    The Practice of Balancing in Clinical Ethics Case Consultation.Rosalind McDougall, Cade Shadbolt & Lynn Gillam - 2020 - Clinical Ethics 15 (1):49-55.
    Models for clinical ethics case consultation often make reference to ‘balancing’ or ‘weighing’ moral considerations, without further detail. In this paper, we investigate balancing in clinical ethics case consultation. We suggest that, while clinical ethics services cannot resolve ongoing deep philosophical debates about the nature of ethical reasoning, clinical ethicists can and should be more systematic and transparent when balancing considerations in case consultations. We conceptualise balancing on a spectrum from intuitive to deliberative, and argue that good balancing in case (...)
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  11.  11
    Collaboration in Clinical Ethics Consultation: A Method for Achieving “Balanced Accountability”.Rosalind McDougall, Clare Delany, Merle Spriggs & Lynn Gillam - 2014 - American Journal of Bioethics 14 (6):47-48.
  12.  43
    Prenatal Diagnosis and Discrimination Against the Disabled.L. Gillam - 1999 - Journal of Medical Ethics 25 (2):163-171.
    Two versions of the argument that prenatal diagnosis discriminates against the disabled are distinguished and analysed. Both are shown to be inadequate, but some valid concerns about the social effects of prenatal diagnosis are highlighted.
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  13.  7
    The Value of Open Deliberation in Clinical Ethics, and the Role of Parents’ Reasons in the Zone of Parental Discretion.Rosalind McDougall, Clare Delany & Lynn Gillam - 2018 - American Journal of Bioethics 18 (8):47-49.
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  14.  5
    Managing Aggression in Hospitals: A Role for Clinical Ethicists.Clare Delany, Anusha Hingalagoda, Lynn Gillam & Neil Wimalasundera - 2021 - Clinical Ethics 16 (3):252-258.
    Hospitals are places where patients are unwell, where patients and their families may be upset, confused, frustrated, in pain, and vulnerable. The likelihood of these experiences and emotions manifesting in anger and aggressive behaviour is high. In this paper, we describe the involvement of a clinical ethics service responding to a request to discuss family aggression within a rehabilitation department in a large paediatric hospital in Australia. We suggest two key advantages of involving a clinical ethics service in discussions about (...)
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  15.  16
    The Zone of Parental Discretion and the Complexity of Paediatrics: A Response to Alderson.Rosalind McDougall, Lynn Gillam, Merle Spriggs & Clare Delany - 2018 - Clinical Ethics 13 (4):172-174.
    Alderson critiques our recent book on the basis that it overlooks children’s own views about their medical treatment. In this response, we discuss the complexity of the paediatric clinical context and the value of diverse approaches to investigating paediatric ethics. Our book focuses on a specific problem: entrenched disagreements between doctors and parents about a child’s medical treatment in the context of a paediatric hospital. As clinical ethicists, our research question arose from clinicians’ concerns in practice: What should a clinician (...)
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  16.  8
    Understanding the Reasons Behind Healthcare Providers’ Conscientious Objection to Voluntary Assisted Dying in Victoria, Australia.Casey M. Haining, Louise A. Keogh & Lynn H. Gillam - 2021 - Journal of Bioethical Inquiry 18 (2):277-289.
    During the debates about the legalization of Voluntary Assisted Dying in Victoria, Australia, the presence of anti-VAD health professionals in the medical community and reported high rates of conscientious objection to VAD suggested access may be limited. Most empirical research on CO has been conducted in the sexual and reproductive health context. However, given the fundamental differences in the nature of such procedures and the legislation governing it, these findings may not be directly transferable to VAD. Accordingly, we sought to (...)
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  17. What Is the Ethical Goal of Empowering Parents in Emergent Decision-Making About Their Premature Newborn?Lynn Gillam & Trisha M. Prentice - 2022 - American Journal of Bioethics 22 (11):38-40.
    The idea of “postponed withholding,” proposed by Syltern et al., is a provocative one, and like all good provocative ideas, provokes deeper thinking from fresh perspectives. Our attention wa...
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  18.  33
    Human Research Ethics in Practice: Deliberative Strategies, Processes and Perceptions.Lynn Gillam, Marilys Guillemin, Annie Bolitho & Doreen Rosenthal - 2009 - Monash Bioethics Review 28 (1):07-1.
    In theory, HREC members should use the ethical guidelines in the National Statement on the Ethical Conduct of Research Involving Humans as the basis for their decisions, and researchers should design their research in accordance with these guidelines However, very little is known about what researchers and HREC members actually do in practice. In this paper, we report some of the key findings of the study “Human Research Ethics in Practice”, a qualitative interview-based study of health researchers and HREC members (...)
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  19.  44
    Developing “Ethical Mindfulness” in Continuing Professional Development in Healthcare: Use of a Personal Narrative Approach.Marilys Guillemin, Rosalind Mcdougall & Lynn Gillam - 2009 - Cambridge Quarterly of Healthcare Ethics 18 (2):197.
  20.  35
    Arguing by Analogy in the Fetal Tissue Debate.Lynn Gillam - 1997 - Bioethics 11 (5):397-412.
    In the debate over fetal tissue use, an analogy is often drawn between removing organs from the body of a person who has been murdered to use for transplantation, and collecting tissue from an aborted fetus to use for the same purpose. The murder victim analogy is taken by its proponents to show that even if abortion is the moral equivalent of murder, there is still no good reason to refrain from using the fetal tissue, since as a society we (...)
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  21.  31
    Body Dysmorphic Disorder: Contraindication or Ethical Justification for Female Genital Cosmetic Surgery in Adolescents.Merle Spriggs & Lynn Gillam - 2016 - Bioethics 30 (9):706-713.
    Is Female Genital Cosmetic Surgery for an adolescent with Body Dysmorphic Disorder ever ethically justified? Cosmetic genital surgery for adolescent girls is one of the most ethically controversial forms of cosmetic surgery and Body Dysmorphic Disorder is typically seen as a contraindication for cosmetic surgery. Two key ethical concerns are that Body Dysmorphic Disorder undermines whatever capacity for autonomy the adolescent has; and even if there is valid parental consent, the presence of Body Dysmorphic Disorder means that cosmetic surgery will (...)
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  22. When Medicine Went Mad: Bioethics and the Holocaust.Arthur L. Caplan & Lynn Gillam - 1996 - Bioethics 10 (2):180-181.
     
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  23.  37
    Balancing Obligations: Should Written Information About Life-Sustaining Treatment Be Neutral?Vicki Xafis, Dominic Wilkinson, Lynn Gillam & Jane Sullivan - 2015 - Journal of Medical Ethics 41 (3):234-239.
    Parents who are facing decisions about life-sustaining treatment for their seriously ill or dying child are supported by their child's doctors and nurses. They also frequently seek other information sources to help them deal with the medical and ethical questions that arise. This might include written or web-based information. As part of a project involving the development of such a resource to support parents facing difficult decisions, some ethical questions emerged. Should this information be presented in a strictly neutral fashion? (...)
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  24.  54
    The Unique Nature of Clinical Ethics in Allied Health Pediatrics: Implications for Ethics Education.Clare Delany, Merle Spriggs, Craig L. Fry & Lynn Gillam - 2010 - Cambridge Quarterly of Healthcare Ethics 19 (4):471-480.
    Ethics education is recognized as an integral component of health professionals’ education and has been occurring in various guises in the curricula of health professional training in many countries since at least the 1970s. However, there are a number of different aims and approaches adopted by individual educators, programs, and, importantly, different health professions that may be characterized according to strands or trends in ethics education.
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  25.  7
    Therapeutic Appropriation: A New Concept in the Ethics of Clinical Research.Rosalind McDougall, Dominique Martin, Lynn Gillam, Nina Hallowell, Alison Brookes & Marilys Guillemin - 2016 - Journal of Medical Ethics 42 (12):805-808.
    Ethical concerns about therapeutic misconception have been raised since the early 1980s. This concept was originally described as research participants' assumptions that decisions relating to research interventions are made on the basis of their individual therapeutic needs. The term has since been used to refer to a range of ‘misunderstandings’ that research participants may have. In this paper, we describe a new concept—therapeutic appropriation. Therapeutic appropriation occurs when patients, or clinicians, actively reframe research participation as an opportunity to enhance patients' (...)
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  26.  17
    Ethics of Fertility Preservation for Prepubertal Children: Should Clinicians Offer Procedures Where Efficacy is Largely Unproven?Rosalind J. McDougall, Lynn Gillam, Clare Delany & Yasmin Jayasinghe - 2018 - Journal of Medical Ethics 44 (1):27-31.
    Young children with cancer are treated with interventions that can have a high risk of compromising their reproductive potential. ‘Fertility preservation’ for children who have not yet reached puberty involves surgically removing and cryopreserving reproductive tissue prior to treatment in the expectation that strategies for the use of this tissue will be developed in the future. Fertility preservation for prepubertal children is ethically complex because the techniques largely lack proven efficacy for this age group. There is professional difference of opinion (...)
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  27.  11
    “I Don’T See That as a Medical Problem”: Clinicians’ Attitudes and Responses to Requests for Cosmetic Genital Surgery by Adolescents.Merle Spriggs & Lynn Gillam - 2018 - Journal of Bioethical Inquiry 15 (4):535-548.
    Labiaplasty is a form of genital surgery to reduce large or protruding labia minora. Internationally, the rates of this surgery among women and girls is increasing and is viewed as a worrying trend. Currently, the main clinical strategy is to reassure adolescents that they are normal by talking about the variation of labia size and appearance and showing pictures demonstrating the wide range of normal female genital appearance. For the most part, policy documents recommend against labiaplasty in adolescents, claiming that (...)
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  28.  10
    Making Meaning From Experience: A Working Typology for Pediatrics Ethics Consultations.Lynn Gillam, Rosalind McDougall & Clare Delany - 2015 - American Journal of Bioethics 15 (5):24-26.
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  29.  15
    Ethics of fertility preservation for prepubertal children: should clinicians offer procedures where efficacy is largely unproven?Rosalind J. McDougall, Lynn Gillam, Clare Delany & Yasmin Jayasinghe - 2017 - Journal of Medical Ethics Recent Issues 44 (1):27-31.
    Young children with cancer are treated with interventions that can have a high risk of compromising their reproductive potential. ‘Fertility preservation’ for children who have not yet reached puberty involves surgically removing and cryopreserving reproductive tissue prior to treatment in the expectation that strategies for the use of this tissue will be developed in the future. Fertility preservation for prepubertal children is ethically complex because the techniques largely lack proven efficacy for this age group. There is professional difference of opinion (...)
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  30.  14
    Ethical Complexities in Child Co-Research.Merle Spriggs & Lynn Gillam - 2017 - Research Ethics 15 (1):1-16.
    Child co-research has become popular in social research involving children. This is attributed to the emphasis on children’s rights and is seen as a way to promote children’s agency and voice. It is a way of putting into practice the philosophy, common amongst childhood researchers, that children are experts on childhood. In this article, we discuss ethical complexities of involving children as co-researchers, beginning with an analysis of the literature, then drawing on data from interviews with researchers who conduct child (...)
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  31.  14
    The Concept of “Continuing Creation” Will Not Save Us From Difficult Decisions.Trisha Prentice, Peter G. Davis & Lynn Gillam - 2017 - American Journal of Bioethics 17 (8):23-25.
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  32.  9
    A Commentary on the NH&MRC Draft Values and Ethics in Aboriginal and Torres Strait Islander Health Research.Lynn Gillam & Priscilla Pyett - 2003 - Monash Bioethics Review 22 (4):8-19.
    In this paper, we discuss and critically evaluate the National Health and Medical Research Council’s recently released document entitled ‘Draft Values and Ethics in Aboriginal and Torres Strait Islander Health Research’. We provide a brief account of its development, philosophy and contents, and then consider how the document could be used by HRECs. We recommend that three specially targeted documents be developed from this one document, to meet the particular needs of HRECs, Indigenous people and researchers. We propose a system (...)
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  33.  7
    Telling the Truth to Seriously Ill Children: Considering Children's Interests When Parents Veto Telling the Truth.Lynn Gillam, Merle Spriggs, Maria McCarthy & Clare Delany - 2022 - Bioethics 36 (7):765-773.
    Bioethics, Volume 36, Issue 7, Page 765-773, September 2022.
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  34.  13
    Deception of Children in Research.Merle Spriggs & Lynn Gillam - 2015 - Journal of Medical Ethics 41 (2):179-182.
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  35.  73
    Clinical Ethics: Genetic Selection for Deafness: The Views of Hearing Children of Deaf Adults.C. Mand, R. E. Duncan, L. Gillam, V. Collins & M. B. Delatycki - 2009 - Journal of Medical Ethics 35 (12):722-728.
    The concept of selecting for a disability, and deafness in particular, has triggered a controversial and sometimes acrimonious debate between key stakeholders. Previous studies have concentrated on the views of the deaf and hard of hearing, health professionals and ethicists towards reproductive selection for deafness. This study, however, is the first of its kind examining the views of hearing children of deaf adults towards preimplantation genetic diagnosis and prenatal diagnosis to select for or against deafness. Hearing children of deaf adults (...)
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  36.  16
    Enhancing the Ethical Conduct of Genetic Research: Investigating Views of Parents on Including Their Healthy Children in a Study on Mild Hearing Loss.L. Gillam - 2006 - Journal of Medical Ethics 32 (9):537-541.
    Clinical genetic research is often regarded as more ethically problematic than other forms of research, and in some countries is subject to specific regulation, requiring researchers to follow specialised guidelines. In this paper, an approach to enhancing the ethical conduct of genetic research is proposed, which is believed to be more effective than simply attempting to follow general guidelines. The potential concerns, likely areas of misunderstanding and negative reactions of the participant group are systematically investigated before starting a study on (...)
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  37.  80
    Pure Selection: The Ethics Of Pre-Implantation Genetic Diagnosis And Choosing Children Without Abortion: Christian Munthe, Goteborg, Acta Universitatis Gothoburgensis, 1999, 310 Pages, 180 Kroner. [REVIEW]Lynn Gillam - 2001 - Journal of Medical Ethics 27 (6):415-416.
  38.  2
    Addressing Moral Distress: Lessons Learnt From a Non-Interventional Longitudinal Study on Moral Distress.Trisha M. Prentice, Dilini I. Imbulana, Lynn Gillam, Peter G. Davis & Annie Janvier - 2022 - AJOB Empirical Bioethics 13 (4):226-236.
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  39.  6
    Ethical Issues in Transplantation.Lynn Gillam - 1992 - Monash Bioethics Review 11 (2):28-39.
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  40. Expertise and Knowledge Required to Support Health Staff to Manage Stressful Events.Clare Delany, Sarah Jones, Jenni Sokol, Lynn Gillam & Trisha Prentice - forthcoming - Journal of Bioethical Inquiry:1-2.
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  41. Life Choices: A Hastings Center Introduction to Bioethics Edited by Joseph H. Howell and Frederick Sale.L. Gillam - 1996 - Bioethics 10:264-264.
     
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  42. Research Ethics: Cases and Materials Edited by Robin Levin Penslar.L. Gillam - 1996 - Bioethics 10:265-266.
     
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  43. When Medicine Went Mad: Bioethics and the Holocaust Edited by Arthur L. Caplan.L. Gillam - 1996 - Bioethics 10:180-181.
     
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  44. Research Ethics: Cases and Materials.Robin Levin Penslar & Lynn Gillam - 1996 - Bioethics 10 (3):265-265.
     
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  45. ‘Obstructive and Power Hungry’?: The Australian Human Research Ethics Process.Doreen Rosenthal, Marilys Guillemin & Lynn Gillam - 2006 - Monash Bioethics Review 25 (2):S30-S38.
    ObjectivesTo investigate the views of Human Research Ethics Committee members and of researchers concerning the human research ethics review process in Australia.To examine whether there are differences between views of researchers and HREC members.Design and settingRegistrants at the NHMRC Ethics in Human Research Conference held in Canberra in May 2005 were surveyed by anonymous questionnaire comprising 14 questionnaire items and background demographic questions.ResultsOf the 407 registrants, 252 completed the questionnaire. Respondents comprised 219 HREC members or administrators, and 33 researchers who (...)
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  46.  6
    Secret Ethics Business?Lynn Gillam - 2003 - Monash Bioethics Review 22 (1):52-62.
    In this paper, I question the common assumption that the workings of Human Research Ethics Committees should be treated as confidential This is actually quite a complex issue, since there are many stages in the ethics approval process, and a number of different stakeholders who might wish to claim access, or restrict access, to different sorts of information. Here I consider just one aspect — whether ethics committee members should be free to reveal in public the details of what occurs (...)
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  47.  14
    Facial Feminization Surgery: Privacy, Personal Identity, Compensatory Justice, and Resource Allocation.Lauren Notini, Lynn Gillam & Ken C. Pang - 2018 - American Journal of Bioethics 18 (12):12-15.
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  48.  22
    Response.Lynn Gillam - 2007 - Journal of Bioethical Inquiry 4 (2):153-153.
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  49.  21
    Deception Detection for the Tangled Web.Anna Vartapetiance & Lee Gillam - 2012 - Acm Sigcas Computers and Society 42 (1):34-47.
    Deception is a reasonably common part of daily life that society sometimes demonstrates a degree of acceptance of, and occasionally people are very willing to be deceived. But can a computer identify deception and distinguish it from that which is not deceptive? We explore deception in various guises, differentiating it from lies, and highlighting the influence of medium and message in both deception and its detection. Our investigations to date have uncovered disagreements relating to the measurements of such cues, and (...)
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  50.  10
    Democratizing “Psychotropic Neuroenhancement”.Jared Cooze & Lynn Gillam - 2010 - American Journal of Bioethics Neuroscience 1 (1):19-20.
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