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  1.  5
    The Nordic Data Imaginary.Heta Tarkkala, Karoliina Snell & Aaro Tupasela - 2020 - Big Data and Society 7 (1).
    The Nordic countries aim to have a unique place within the European and global health data economy. They have extensive nationally maintained and centralized health data records, as well as numerous biobanks where data from individuals can be connected based on personal identification numbers. Much of this phenomenon can be attributed to the emergence and development of the Nordic welfare state, where Nordic countries sought to systematically collect large amounts of population data to guide decision making and improve the health (...)
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  2.  18
    Health as the Moral Principle of Post-Genomic Society: Data-Driven Arguments Against Privacy and Autonomy.Karoliina Snell - 2019 - Cambridge Quarterly of Healthcare Ethics 28 (2):201-214.
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  3.  4
    Questioning the Rhetoric of a ‘Willing Population’ in Finnish Biobanking.Heta Tarkkala & Karoliina Snell - 2019 - Life Sciences, Society and Policy 15 (1):1-11.
    According to surveys and opinion polls, citizens in Nordic welfare societies have positive, supportive attitudes towards medical research and biobanking. In Finland, it was expected that this would result in the active biobank participation of patients and citizens. Indeed, public support has been rhetorically utilised as a unique societal factor and advantage in the promotion of Finnish biobanks, underlining the potential Finland offers for the international biomedical enterprise. In this paper, we critically analyse the use of notions such as ‘willing (...)
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  4.  1
    Constructing Populations in Biobanking.Jose A. Cañada, Karoliina Snell & Aaro Tupasela - 2015 - Life Sciences, Society and Policy 11 (1).
    This article poses the question of whether biobanking practices and standards are giving rise to the construction of populations from which various biobanking initiatives increasingly draw on for legitimacy? We argue that although recent biobanking policies encourage various forms of engagement with publics to ensure legitimacy, different biobanks conceptualize their engagement strategies very differently. We suggest that biobanks undertake a broad range of different strategies with regard to engagement. We argue that these different approaches to engagement strategies are contributing to (...)
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  5.  6
    By Rens Lj Vandenberg & Wouter Pc Boon 1-21.Thomas Lemke, Theo Papaioannou, Lyn Turney, Elina Hemminki, Aaro Tupasela, Piia Jallinoja, Arja J. Aro, Karoliina Snell, Sinikka Sihvo & Almut Caspary - 2009 - Genomics, Society and Policy 5 (2):1-13.
    The purpose of the research was to study Finnish people's attitudes towards biomedical research and whether the research sponsor makes a difference to those attitudes. A survey questionnaire was sent to a random sample of 25-64 years old. Respondents had a positive attitude towards biomedical research and there were only small variations by population group. When asked whether one's own clinical blood samples could be used in scientific biomedical research, 84 per cent of the respondents would allow it. The most (...)
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