5 found
Order:
Disambiguations
Justin N. Baker [4]Justin Nathaniel Baker [2]
  1.  48
    Ethics Consultation in Pediatrics: Long-Term Experience From a Pediatric Oncology Center.Liza-Marie Johnson, Christopher L. Church, Monika Metzger & Justin N. Baker - 2015 - American Journal of Bioethics 15 (5):3-17.
    There is little information about the content of ethics consultations in pediatrics. We sought to describe the reasons for consultation and ethical principles addressed during EC in pediatrics through retrospective review and directed content analysis of EC records at St. Jude Children's Research Hospital. Patient-based EC were highly complex and often involved evaluation of parental decision making, particularly consideration of the risks and benefits of a proposed medical intervention, and the physician's fiduciary responsibility to the patient. Nonpatient consultations provided guidance (...)
    Direct download (4 more)  
     
    Export citation  
     
    Bookmark   26 citations  
  2.  43
    Providing Research Results to Participants: Attitudes and Needs of Adolescents and Parents of Children with Cancer.Conrad Vincent Fernandez, Jun Gao, Caron Strahlendorf, Albert Moghrabi, Rebecca Davis Pentz, Raymond Carlton Barfield, Justin Nathaniel Baker, Darcy Santor, Charles Weijer & Eric Kodish - unknown
    PURPOSE: There is an increasing demand for researchers to provide research results to participants. Our aim was to define an appropriate process for this, based on needs and attitudes of participants. METHODS: A multicenter survey in five sites in the United States and Canada was offered to parents of children with cancer and adolescents with cancer. Respondents indicated their preferred mode of communication of research results with respect to implications; timing, provider, and content of the results; reasons for and against (...)
    Direct download  
     
    Export citation  
     
    Bookmark   9 citations  
  3.  47
    Decision-making by Adolescents and Parents of Children with Cancer Regarding Health Research Participation.Kate Read, Conrad Vincent Fernandez, Jun Gao, Caron Strahlendorf, Albert Moghrabi, Rebecca Davis Pentz, Raymond Carlton Barfield, Justin Nathaniel Baker, Darcy Santor, Charles Weijer & Eric Kodish - unknown
    Background: Low rates of participation of adolescents and young adults (AYAs) in clinical oncology trials may contribute to poorer outcomes. Factors that influence the decision of AYAs to participate in health research and whether these factors are different from those that affect the participation of parents of children with cancer. Methods: This is a secondary analysis of data from validated questionnaires provided to adolescents (>12 years old) diagnosed with cancer and parents of children with cancer at 3 sites in Canada (...)
    Direct download  
     
    Export citation  
     
    Bookmark   5 citations  
  4.  33
    Clinically Significant? Depends on Whom You Ask.Liza-Marie Johnson, Christopher L. Church, Michael F. Walsh & Justin N. Baker - 2012 - American Journal of Bioethics 12 (10):18-20.
    The American Journal of Bioethics, Volume 12, Issue 10, Page 18-20, October 2012.
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   2 citations  
  5.  21
    The Underappreciated Influence of Elisabeth Kübler-Ross on the Development of Palliative Care for Children.Bryan A. Sisk & Justin N. Baker - 2019 - American Journal of Bioethics 19 (12):70-72.
    In the history of palliative care, all roads lead back to Dame Cicely Saunders, a remarkable social worker/nurse/physician who promoted the concept of total pain and founded the first modern hospic...
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark