14 found
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  1.  27
    African bioethics: methodological doubts and insights.John Barugahare - 2018 - BMC Medical Ethics 19 (1):98.
    A trend called ‘African bioethics’ is growing on the continent due to perceptions of existing bioethics, especially guidelines for international collaborative research, as ‘ethical imperialism’. As a potential alternative to ‘Western Principlism,’ ‘African bioethics’ is supposed to be indigenous to Africa and reflective of African identity. However, despite many positive insights in the on-going discussions, it is feared that the growth of bioethics in Africa lacks a clear direction. Some of the views threaten to distort the essence of bioethics and (...)
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  2.  32
    A scoping review of genetics and genomics research ethics policies and guidelines for Africa.Joseph Ochieng, Nelson K. Sewankambo, John Barugahare, Betty Kwagala, Juli M. Bollinger, Erisa Mwaka, Betty Cohn & Joseph Ali - 2021 - BMC Medical Ethics 22 (1):1-15.
    BackgroundGenetics and genomics research (GGR) is increasingly being conducted around the world; yet, researchers and research oversight entities in many countries have struggled with ethical challenges. A range of ethics and regulatory issues need to be addressed through comprehensive policy frameworks that integrate with local environments. While important efforts have been made to enhance understanding and awareness of ethical dimensions of GGR in Africa, including through the H3Africa initiative, there remains a need for in-depth policy review, at a country-level, to (...)
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  3.  13
    Perspectives and ethical considerations for return of genetics and genomics research results: a qualitative study of genomics researchers in Uganda.Nelson K. Sewankambo, Joseph Ali, Deborah Ekusai-Sebatta, Erisa Mwaka, John Barugahare, Betty Kwagala & Joseph Ochieng - 2021 - BMC Medical Ethics 22 (1):1-9.
    BackgroundThe return of genetics and genomics research results has been a subject of ongoing global debate. Such feedback is ethically desirable to update participants on research findings particularly those deemed clinically significant. Although there is limited literature, debate continues in African on what constitutes appropriate practice regarding the return of results for genetics and genomics research. This study explored perspectives and ethical considerations of Ugandan genomics researchers regarding the return of genetics and genomics research results.MethodsThis was a qualitative study that (...)
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  4.  10
    Managing community engagement in research in Uganda: insights from practices in HIV/aids research.Nancy E. Kass & John Barugahare - 2022 - BMC Medical Ethics 23 (1):1-12.
    BackgroundCommunity engagement in research is valuable for instrumental and intrinsic reasons. Despite existing guidance on how to ensure meaningful CE, much of what it takes to achieve this goal differs across settings. Considering the emerging trend towards mandating CE in many research studies, this study aimed at documenting how CE is conceptualized and implemented, and then providing context-specific guidance on how researchers and research regulators in Uganda could think about and manage CE in research.MethodsWe conducted qualitative interviews and focus group (...)
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  5.  20
    Bioethical reflexivity and requirements of valid consent: conceptual tools.John Barugahare - 2019 - BMC Medical Ethics 20 (1):44.
    Despite existing international, regional and national guidance on how to obtain valid consent to health-related research, valid consent remains both a practical and normative challenge. This challenge persists despite additional evidence-based guidance obtained through conceptual and empirical research in specific localities on the same subject. The purpose of this paper is to provide an account for why, despite this guidance, this challenge still persist and suggest conceptual resources that can help make sense of this problem and eventually mitigate it’. This (...)
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  6.  22
    Obligations of poor countries in ensuring global justice: The case of uganda.John Barugahare & Reidar K. Lie - unknown
    Obligations of global justice rest mainly on the global rich but also to a lesser extent on the global poor. The governments of poor countries are obliged to fulfill requirements of non-aggression, good governance and decency, along with all other requirements which facilitate the achievement of global justice. So far, obligations of poor countries seem to be taken as given yet the behavior of governments in poor countries and occurrences therein attest to the contrary;this suggests a need to mainstream these (...)
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  7.  10
    ‘Bioethical Realism’: A Framework for Implementing Universal Research Ethics.John Barugahare - 2018 - Developing World Bioethics 19 (3):128-138.
    Implementation of existing ethical guidelines for international collaborative medical and health research is still largely controversial in sub-Saharan Africa for two major reasons: One, they are seen as foreign and allegedly inconsistent with what has been described as an ‘African worldview’, hence, demand for their strict implementations reeks of ‘bioethical imperialism’. Two, they have other discernible inadequacies – lack of sufficient detail, apparent as well as real ambiguities, vagueness and contradictions. Similar charges exist(ed) in other non-Western societies. Consequently, these guidelines (...)
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  8.  14
    ‘Bioethical Realism’: A Framework for Implementing Universal Research Ethics.John Barugahare - 2018 - Developing World Bioethics 19 (3):128-138.
    Implementation of existing ethical guidelines for international collaborative medical and health research is still largely controversial in sub-Saharan Africa for two major reasons: One, they are seen as foreign and allegedly inconsistent with what has been described as an ‘African worldview’, hence, demand for their strict implementations reeks of ‘bioethical imperialism’. Two, they have other discernible inadequacies – lack of sufficient detail, apparent as well as real ambiguities, vagueness and contradictions. Similar charges exist(ed) in other non-Western societies. Consequently, these guidelines (...)
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  9.  5
    Obligations of poor countries in ensuring global justice: The case of Uganda.John Barugahare & Reidar K. Lie - 2014 - Etikk I Praksis - Nordic Journal of Applied Ethics 2:82-96.
    Obligations of global justice rest mainly on the global rich but also to a lesser extent on the global poor. The governments of poor countries are obliged to fulfill requirements of non-aggression, good governance and decency, along with all other requirements which facilitate the achievement of global justice. So far, obligations of poor countries seem to be taken as given yet the behavior of governments in poor countries and occurrences therein attest to the contrary;this suggests a need to mainstream these (...)
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  10.  22
    Ethical and human rights considerations in public health in low and middle-income countries: an assessment using the case of Uganda’s responses to COVID-19 pandemic.Nelson K. Sewankambo, Joseph Ochieng, Erisa Mwaka Sabakaki, Fredrick Nelson Nakwagala & John Barugahare - 2020 - BMC Medical Ethics 21 (1):1-12.
    BackgroundIn response to COVID-19 pandemic, the Government of Uganda adopted public health measures to contain its spread in the country. Some of the initial measures included refusal to repatriate citizens studying in China, mandatory institutional quarantine, and social distancing. Despite being a public health emergency, the measures adopted deserve critical appraisal using an ethics and human rights approach. The goal of this paper is to formulate an ethics and human rights criteria for evaluating public health measures and use it to (...)
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  11.  11
    Community engagement in genetics and genomics research: a qualitative study of the perspectives of genetics and genomics researchers in Uganda.Harriet Nankya, Edward Wamala, Vincent Pius Alibu & John Barugahare - 2024 - BMC Medical Ethics 25 (1):1-13.
    Background Generally, there is unanimity about the value of community engagement in health-related research. There is also a growing tendency to view genetics and genomics research (GGR) as a special category of research, the conduct of which including community engagement (CE) as needing additional caution. One of the motivations of this study was to establish how differently if at all, we should think about CE in GGR. Aim To assess the perspectives of genetics and genomics researchers in Uganda on CE (...)
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  12.  11
    Nature and history of the CIOMS International Ethical Guidelines and implications for local implementation: A perspective from East Africa.John Barugahare & Paul Kutyabami - 2019 - Developing World Bioethics 20 (4):175-183.
    The theme of the 10th Annual Research Ethics Conference organized by the Uganda National Council for Science and Technology (2018) was “Evolution of Research Ethics in Uganda and the Region: Past, Present and Future”. We were asked to address the topic: “The History of CIOMS and the recent changes in the international ethics guidelines: implications for local research”. The thrust of the conference was to track progress in ensuring ethical conduct of research, highlight challenges encountered, and to propose strategies for (...)
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  13.  47
    Obligations of low income countries in ensuring equity in global health financing.John Barugahare & Reidar K. Lie - 2015 - BMC Medical Ethics 16 (1):1-11.
    Background. Despite common recognition of joint responsibility for global health by all countries particularly to ensure justice in global health, current discussions of countries’ obligations for global health largely ignore obligations of developing countries. This is especially the case with regards to obligations relating to health financing. Bearing in mind that it is not possible to achieve justice in global health without achieving equity in health financing at both domestic and global levels, our aim is to show how fulfilling the (...)
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  14.  24
    Understanding the futility of countries’ obligations for health rights: realising justice for the global poor.John Barugahare & Reidar K. Lie - unknown
    Background: Although health is a right of all individuals without any distinction, the realisation of this right has remained very difficult for the marginalised populations of poor countries. Inequitable distribution of health opportunities globally is a major factor in explaining why this is the case. Whereas the Protection, Promotion and Fulfilment of the health rights of poor country citizens are a joint responsibility of both domestic and external governments, most governments flout their obligations. So far disproportionate effort has been dedicated (...)
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