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    Stakeholder Opinions and Ethical Perspectives Support Complete Disclosure of Incidental Findings in MRI Research.John P. Phillips, Caitlin Cole, John P. Gluck, Jody M. Shoemaker, Linda E. Petree, Deborah L. Helitzer, Ronald M. Schrader & Mark T. Holdsworth - 2015 - Ethics and Behavior 25 (4):332-350.
    How far does a researcher’s responsibility extend when an incidental finding is identified? Balancing pertinent ethical principles such as beneficence, respect for persons, and duty to rescue is not always straightforward, particularly in neuroimaging research where empirical data that might help guide decision making are lacking. We conducted a systematic survey of perceptions and preferences of 396 investigators, research participants, and Institutional Review Board members at our institution. Using the partial entrustment model as described by Richardson, we argue that our (...)
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  2.  50
    Disclosing neuroimaging incidental findings: a qualitative thematic analysis of health literacy challenges.Caitlin E. Rancher, Jody M. Shoemaker, Linda E. Petree, Mark Holdsworth, John P. Phillips & Deborah L. Helitzer - 2016 - BMC Medical Ethics 17 (1):58.
    BackgroundReturning neuroimaging incidental findings may create a challenge to research participants’ health literacy skills as they must interpret and make appropriate healthcare decisions based on complex radiology jargon. Disclosing IF can therefore present difficulties for participants, research institutions and the healthcare system. The purpose of this study was to identify the extent of the health literacy challenges encountered when returning neuroimaging IF. We report on findings from a retrospective survey and focus group sessions with major stakeholders involved in disclosing IF.MethodsWe (...)
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  3.  40
    ‘Ethical responsibility’ or ‘a whole can of worms’: differences in opinion on incidental finding review and disclosure in neuroimaging research from focus group discussions with participants, parents, IRB members, investigators, physicians and community members.Caitlin Cole, Linda E. Petree, John P. Phillips, Jody M. Shoemaker, Mark Holdsworth & Deborah L. Helitzer - 2015 - Journal of Medical Ethics 41 (10):841-847.
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