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Inez de Beaufort [22]Inez D. de Beaufort [8]
  1.  14
    Should Pregnant Women Be Charged for Non-Invasive Prenatal Screening? Implications for Reproductive Autonomy and Equal Access.Eline M. Bunnik, Adriana Kater-Kuipers, Robert-Jan H. Galjaard & Inez D. de Beaufort - 2020 - Journal of Medical Ethics 46 (3):194-198.
    The introduction of non-invasive prenatal testing in healthcare systems around the world offers an opportunity to reconsider funding policies for prenatal screening. In some countries with universal access healthcare systems, pregnant women and their partners are asked to pay for NIPT. In this paper, we discuss two important rationales for charging women for NIPT: to prevent increased uptake of NIPT and to promote informed choice. First, given the aim of prenatal screening, high or low uptake rates are not intrinsically desirable (...)
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  2.  17
    Ethics of Routine: A Critical Analysis of the Concept of ‘Routinisation’ in Prenatal Screening.Adriana Kater-Kuipers, Inez D. de Beaufort, Robert-Jan H. Galjaard & Eline M. Bunnik - 2018 - Journal of Medical Ethics 44 (9):626-631.
    In the debate surrounding the introduction of non-invasive prenatal testing in prenatal screening programmes, the concept of routinisation is often used to refer to concerns and potential negative consequences of the test. A literature analysis shows that routinisation has many different meanings, which can be distinguished in three major versions of the concept. Each of these versions comprises several inter-related fears and concerns regarding prenatal screening and particularly regarding NIPT in three areas: informed choice, freedom to choose and consequences for (...)
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  3.  30
    Ethical Framework for the Detection, Management and Communication of Incidental Findings in Imaging Studies, Building on an Interview Study of Researchers’ Practices and Perspectives.Eline M. Bunnik, Lisa van Bodegom, Wim Pinxten, Inez D. de Beaufort & Meike W. Vernooij - 2017 - BMC Medical Ethics 18 (1):10.
    As thousands of healthy research participants are being included in small and large imaging studies, it is essential that dilemmas raised by the detection of incidental findings are adequately handled. Current ethical guidance indicates that pathways for dealing with incidental findings should be in place, but does not specify what such pathways should look like. Building on an interview study of researchers’ practices and perspectives, we identified key considerations for the set-up of pathways for the detection, management and communication of (...)
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  4.  7
    Forced Caesareans: Applying Ordinary Standards to an Extraordinary Case.Hafez Ismaili M’Hamdi & Inez de Beaufort - 2021 - Journal of Medical Ethics 47 (4):233-238.
    Is it morally justifiable to force non-consenting pregnant women to submit to caesarean surgery to save their fetus in distress? Even though proponents and opponents largely agree on the interests at stake, such as the health and life of the fetus and the respect for bodily integrity and autonomy of pregnant women, they disagree on which moral weight to attach to these interests. This is why disagreements about the justifiability of forced caesareans tend to be pervasive and intractable. To sidestep (...)
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  5.  33
    Nudge Me, Help My Baby: On Other-Regarding Nudges.Hafez Ismaili M'hamdi, Medard Hilhorst, Eric A. P. Steegers & Inez de Beaufort - 2017 - Journal of Medical Ethics 43 (10):702-706.
    There is an increasing interest in the possibility of using nudges to promote people's health. Following the advances in developmental biology and epigenetics, it is clear that one's health is not always the result of one's own choices. In the period surrounding pregnancy, maternal choice behaviour has a significant influence on perinatal morbidity and mortality as well as the development of chronic diseases later in life. One's health is thus a matter of one's own as well as one's maternal choices. (...)
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  6.  10
    Forced Caesareans: Applying Ordinary Standards to an Extraordinary Case.Hafez Ismaili M’Hamdi & Inez de Beaufort - 2018 - Journal of Medical Ethics:medethics-2018-104828.
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  7.  29
    Doing the Right Thing: A Qualitative Investigation of Retractions Due to Unintentional Error.Mohammad Hosseini, Medard Hilhorst, Inez de Beaufort & Daniele Fanelli - 2018 - Science and Engineering Ethics 24 (1):189-206.
    Retractions solicited by authors following the discovery of an unintentional error—what we henceforth call a “self-retraction”—are a new phenomenon of growing importance, about which very little is known. Here we present results of a small qualitative study aimed at gaining preliminary insights about circumstances, motivations and beliefs that accompanied the experience of a self-retraction. We identified retraction notes that unambiguously reported an honest error and that had been published between the years 2010 and 2015. We limited our sample to retractions (...)
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  8.  7
    The Impact of Incidental Findings Detected During Brain Imaging on Research Participants of the Rotterdam Study: An Interview Study.Charlotte H. C. Bomhof, Lisa van Bodegom, Meike W. Vernooij, Wim Pinxten, Inez D. de Beaufort & Eline M. Bunnik - 2020 - Cambridge Quarterly of Healthcare Ethics 29 (4):542-556.
    This interview study investigates the short- and long-term implications of incidental findings detected through brain imaging on research participants’ lives and their surroundings. For this study, nine participants of the Rotterdam Scan Study with an incidental finding were approached and interviewed. When examining research participants’ narratives on the impact of the disclosure of incidental findings, the authors identified five sets of tensions with regard to motivations for and expectations of research participation, preferences regarding disclosure, short- and long-term impacts and impacts (...)
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  9.  6
    Rethinking Counselling in Prenatal Screening: An Ethical Analysis of Informed Consent in the Context of Non‐Invasive Prenatal Testing.Adriana Kater‐Kuipers, Inez D. De Beaufort, Robert‐Jan H. Galjaard & Eline M. Bunnik - 2020 - Bioethics 34 (7):671-678.
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  10.  50
    Preconception Care: A Parenting Protocol. A Moral Inquiry Into the Responsibilities of Future Parents Towards Their Future Children.Z. E. E. der & Inez de Beaufort - 2011 - Bioethics 25 (8):451-457.
    In the Netherlands fertility doctors increasingly formulate protocols, which oblige patients to quit their unhealthy lifestyle before they are admitted to IVF procedures. We argue that moral arguments could justify parenting protocols that concern all future parents. In the first part we argue that want-to-be parents have moral responsibilities towards their future children to prevent them from harm by diminishing or eliminating risk factors before as well as during the pregnancy. This is because of the future children's potential to become (...)
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  11. The Merits of Procedure-Level Risk-Benefit Assessment.Anna Westra & Inez de Beaufort - 2011 - IRB: Ethics & Human Research 33 (5):7-13.
    For each research protocol that they review, institutional review boards must assess whether the risks of the protocol are acceptable in relation to the potential direct benefits to study participants and/or society. This requirement means that an IRB should first identify risks that are not compensated by direct benefits to the subjects and then judge whether these so-called net risks are acceptable in relation to the benefits to society. We argue that the conventional approach to risk-benefit assessment is not accurate (...)
     
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  12.  18
    Preconception Care: A Parenting Protocol. A Moral Inquiry Into the Responsibilities of Future Parents Towards Their Future Children.Boukje van der Zee & Inez de Beaufort - 2011 - Bioethics 25 (8):451-457.
  13.  20
    Improving the Helsinki Declaration's Guidance on Research in Incompetent Subjects.Anna Eva Westra & Inez de Beaufort - 2015 - Journal of Medical Ethics 41 (3):278-280.
    Research involving children or other incompetent subjects who are deemed unable to provide informed consent is complex, particularly in the case of research that does not directly benefit the research subjects themselves. The Helsinki Declaration, the World Medical Association's landmark document for research ethics, therefore states that incompetent research subjects must not be included in such research unless it entails only minimal risk and minimal burden. In this paper, we argue that now that research in these groups is expected to (...)
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  14.  21
    Regulating “Higher Risk, No Direct Benefit” Studies in Minors.Anna E. Westra, Jan M. Wit, Rám N. Sukhai & Inez D. de Beaufort - 2011 - American Journal of Bioethics 11 (6):29 - 31.
    The American Journal of Bioethics, Volume 11, Issue 6, Page 29-31, June 2011.
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  15.  19
    Cui Bono? Good for Whom? Some Apologies, Confessions, Musings, Unsubstantiated Views, Not Empirically Founded Statements, Lists, a Few Commandments, Reading Suggestions, and Rather Practical Tips for Aspiring and Experienced Bioethicists.Inez de Beaufort - 2015 - Journal of Medical Ethics 41 (1):56-59.
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  16.  23
    Ethical Issues in the Beauty Salon: The Development of National Ethics Guidelines for Aestheticians in the Netherlands.Eline M. Bunnik, Frans Meulenberg & Inez D. de Beaufort - forthcoming - Narrative Inquiry in Bioethics.
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  17. Indiase sloppenbewoners, demente bejaarden, embryo's in incubators, en bevriende dokters: Drie wagen aan Govert den Hartogh.Inez de Beaufort - 2009 - Algemeen Nederlands Tijdschrift voor Wijsbegeerte 101 (3):196-199.
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  18. Jaarverslagenseizoen - 'Inflat Se Tamquam Rana'.Inez de Beaufort - 1997 - Filosofie En Praktijk 18:208-208.
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  19. Recensie-Genoeg is genoeg en misschien wel te veel.Inez de Beaufort - 2009 - Filosofie En Praktijk 30 (2):53.
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  20.  9
    Why NIPT Should Be Publicly Funded.Eline Maria Bunnik, Adriana Kater-Kuipers, Robert-Jan H. Galjaard & Inez de Beaufort - 2020 - Journal of Medical Ethics 46 (11):783-784.
    Asking pregnant women to pay for non-invasive prenatal testing out of pocket leads to unequal access across socioeconomic strata. To avoid these social justice issues, first-trimester prenatal screening should be publicly funded in countries such as the Netherlands, with universal coverage healthcare systems that offer all other antenatal care services and screening programmes free of charge. In this reply, we offer three additional reasons for public funding of NIPT. First, NIPT may not primarily have medical utility for women and children, (...)
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  21.  11
    On Surprises, Stigma, Sports, Sprouts.Inez de Beaufort - 2018 - Public Health Ethics 11 (3):362-363.
    Given the plethora of weight loss interventions, Devine and Barnhill rightly propose to also investigate unintended consequences. I agree. Some questions need to be raised: unintended consequences is a messy concept. How to distinguish between surprises and pseudo-unintended consequences? How to make sure that such research is not a box-ticking formality? And will results be implemented?
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  22.  14
    Eyewitness in Erewhon Academic Hospital.Inez de Beaufort & Frans Meulenberg - 2010 - Journal of Medical Ethics 36 (10):578-579.
    Part 12: The fall of the house of ethics‘Sometimes a cliché is the best way to make ones point’From: Whatever works.For some seconds Gordon is blinded by the lights the television crews direct at him. More than 20 cameras focus on him, and one journalist yells “there he is!” Even Gordon is not used to that much attention, but vanity is a speedy advisor. Within seconds he has clad himself in the aura of important person, and knowledgeable ethicist, even if (...)
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  23.  11
    Down the Slippery Slope?Inez de Beaufort - 2009 - Asian Bioethics Review 1 (1):61-64.
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  24. Individual Responsibility for Health.Inez de Beaufort - 2001 - In Rebecca Bennett & Charles A. Erin (eds.), Hiv and Aids, Testing, Screening, and Confidentiality. Clarendon Press.
     
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  25.  10
    To Stop or Not to Stop: Dissent and Undue Burden as Reasons to Stop Participation in Paediatric Research.Wendy Bos, Anna Westra, Inez de Beaufort & Suzanne van de Vathorst - 2017 - Journal of Medical Ethics 43 (8):519-523.
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  26.  22
    The View From Before.Inez de Beaufort - 2007 - American Journal of Bioethics 7 (4):57 – 58.
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  27.  6
    Ethical Issues in the Beauty Salon: The Development of National Ethics Guidelines for Aestheticians in the Netherlands.Eline M. Bunnik, Frans Meulenberg & Inez D. de Beaufort - 2018 - Narrative Inquiry in Bioethics 8 (3):247-260.
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  28.  3
    Health Agency and Perfectionism: The Case of Perinatal Health Inequalities.Hafez Ismaili M’Hamdi & Inez de Beaufort - forthcoming - Public Health Ethics.
    Poor pregnancy outcomes and inequalities in these outcomes remain a major challenge, even in prosperous societies that have high-quality health care and public health policy in place. In this article, we propose that justice demands the improvement of what we call the ‘health agency’ of parents-to-be as part of a response to these poor outcomes. We take health agency to have three aspects: the capacity to form health-goals one has reason to value, the control one perceives to have over achieving (...)
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  29.  1
    Being There: A Commentary on Göran Hermerén’s “A Future for Migrants with Acute Heart Problems Seeking Asylum?” (CQ 30 (2)). [REVIEW]Inez de Beaufort - 2022 - Cambridge Quarterly of Healthcare Ethics 31 (1):150-159.
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  30.  4
    Prevention in the Age of Personal Responsibility: Epigenetic Risk-Predictive Screening for Female Cancers as a Case Study.Ineke Bolt, Eline M. Bunnik, Krista Tromp, Nora Pashayan, Martin Widschwendter & Inez de Beaufort - 2021 - Journal of Medical Ethics 47 (12):46-46.
    Epigenetic markers could potentially be used for risk assessment in risk-stratified population-based cancer screening programmes. Whereas current screening programmes generally aim to detect existing cancer, epigenetic markers could be used to provide risk estimates for not-yet-existing cancers. Epigenetic risk-predictive tests may thus allow for new opportunities for risk assessment for developing cancer in the future. Since epigenetic changes are presumed to be modifiable, preventive measures, such as lifestyle modification, could be used to reduce the risk of cancer. Moreover, epigenetic markers (...)
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