Results for 'Human genetics. '

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  1.  15
    Human Genetics Commission calls for tougher rules on use and storage of genetic data.Human Genetics Commission - 2003 - Human Reproduction and Genetic Ethics 9 (1):3.
  2.  41
    Making Babies: Reproductive Decisions and Genetic Technologies.Human Genetics Commission - 2006 - Jahrbuch für Wissenschaft Und Ethik 11 (1).
  3.  23
    The case against sex selection.Genetics Alert Human - 2005 - Human Reproduction and Genetic Ethics 11 (1):3.
  4.  50
    Human Genetics and Politics as Mutually Beneficial Resources: The Case of the Kaiser Wilhelm Institute for Anthropology, Human Heredity and Eugenics During the Third Reich.Sheila Faith Weiss - 2006 - Journal of the History of Biology 39 (1):41-88.
    This essay analyzes one of Germany's former premier research institutions for biomedical research, the Kaiser Wilhelm Institute for Anthropology, Human Heredity and Eugenics (KWIA) as a test case for the way in which politics and human heredity served as resources for each other during the Third Reich. Examining the KWIA from this perspective brings us a step closer to answering the questions at the heart of most recent scholarship concerning the biomedical community under the swastika: (1) How do (...)
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  5.  38
    Human genetic biobanks in Asia: politics of trust and scientific advancement.Margaret Sleeboom-Faulkner (ed.) - 2009 - New York: Routledge.
    This volume investigates human genetic biobanking and its regulation in various Asian countries and areas, including Japan, Mainland China, Taiwan, Hong Kong, ...
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  6.  47
    Human genetic research, race, ethnicity and the labeling of populations: recommendations based on an interdisciplinary workshop in Japan.Yasuko Takezawa, Kazuto Kato, Hiroki Oota, Timothy Caulfield, Akihiro Fujimoto, Shunwa Honda, Naoyuki Kamatani, Shoji Kawamura, Kohei Kawashima, Ryosuke Kimura, Hiromi Matsumae, Ayako Saito, Patrick E. Savage, Noriko Seguchi, Keiko Shimizu, Satoshi Terao, Yumi Yamaguchi-Kabata, Akira Yasukouchi, Minoru Yoneda & Katsushi Tokunaga - 2014 - BMC Medical Ethics 15 (1):33.
    A challenge in human genome research is how to describe the populations being studied. The use of improper and/or imprecise terms has the potential to both generate and reinforce prejudices and to diminish the clinical value of the research. The issue of population descriptors has not attracted enough academic attention outside North America and Europe. In January 2012, we held a two-day workshop, the first of its kind in Japan, to engage in interdisciplinary dialogue between scholars in the humanities, (...)
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  7.  39
    Human genetic testing under examination by the european union.Raymond E. Spier - 2004 - Science and Engineering Ethics 10 (3):579-586.
  8.  15
    Ethics of Human Genetic Studies in Sub‐Saharan Africa: The Case of Cameroon Through a Bibliometric Analysis.Ambroise Wonkam, Marcel Azabji Kenfack, Walinjom F. T. Muna & Odile Ouwe-Missi-Oukem-Boyer - 2011 - Developing World Bioethics 11 (3):120-127.
    Many ethical concerns surrounding human genetics studies remain unresolved. We report here the situation in Cameroon.Objectives: To describe the profile of human genetic studies that used Cameroonian DNA samples, with specific focus on i) the research centres that were involved, ii) authorship, iii) population studied, iv) research topics and v) ethics disclosure, with the aim of raising ethical issues that emerged from these studies.Method: Bibliometric Studies; we conducted a PubMed-based systematic review of all the studies on human (...)
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  9.  10
    Human genetics and its social import.Eliot Slater - 1936 - The Eugenics Review 28 (3):225.
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  10. Regulating human genetics in a neo-eugenic era.Han Somsen - 2009 - In Thérèse Murphy (ed.), New technologies and human rights. New York: Oxford University Press.
  11.  22
    Human genetic selection and enhancement: parental perspectives and law.Marta Soniewicka - 2018 - New York: Peter Lang.
    The book analyses moral and legal problems of assisted reproduction providing a pluralistic approach which combines principles of procreative beneficence, procreative nonmaleficence, reproductive autonomy and rationality with the meaning and nature of the parent-child relationship as the main criterion of moral assessment.
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  12.  18
    Human Genetic Enhancement: Is It Really a Matter of Perfection? A Dialog With Hanson, Keenan and Shuman.Paulina Taboada - 1999 - Christian Bioethics 5 (2):183-196.
    The author reviews the arguments made by Mark Hanson, James Keenan, S.J., and Joel Shuman in this issue. In the first section, she argues that they offer a significant contribution toward an understanding of the inner logic of a new trend in contemporary medicine, genetic engineering. However, she criticizes the authors for relying excessively on procedural guidelines and for failing to bring the practical realities of medicine and technology to bear on theory. She argues that more concrete guidelines, which are (...)
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  13. Human genetic enhancements: A transhumanist perspective.Nick Bostrom - 2003 - Journal of Value Inquiry 37 (4):493-506.
    Transhumanism is a loosely defined movement that has developed gradually over the past two decades. It promotes an interdisciplinary approach to understanding and evaluating the opportunities for enhancing the human condition and the human organism opened up by the advancement of technology. Attention is given to both present technologies, like genetic engineering and information technology, and anticipated future ones, such as molecular nanotechnology and artificial intelligence.
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  14.  22
    Human Genetics Studies: The Case for Group Rights.Laura S. Underkuffler - 2007 - Journal of Law, Medicine and Ethics 35 (3):383-395.
    During the past 20 years, the importance of human genetic information has exploded. Whether sought for medical treatment, disease prediction studies, cultural studies, or the general study of human origins, human genetic information is now viewed as crucial for scientific research and general attempts at human understanding.With the importance of genetic information have come bitter battles over its control. The demonstrated power of human genetic information has moved the issue of its “ownership” from the realm (...)
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  15.  69
    Human genetic research: emerging trends in ethics.Ruth Chadwick & Bartha Maria Knoppers - 2005 - .
    Genetic research has moved from Mendelian genetics to sequence maps to the study of natural human genetic variation at the level of the genome. This past decade of discovery has been accompanied by a shift in emphasis towards the ethical principles of reciprocity, mutuality, solidarity, citizenry and universality.
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  16.  21
    Human Genetics Studies: The Case for Group Rights.Laura S. Underkuffler - 2007 - Journal of Law, Medicine and Ethics 35 (3):383-395.
    In this essay, the author focuses on an underlying theoretical issue which she believes seriously affects our collective response to the idea of group rights in the genetic-control context. That issue is to what extent are our responses to claims of group rights hampered by our bringing to the table a model which is structured to acknowledge only individual concerns? Put another way, to what extent are our objections to group rights in this context a product of our inability to (...)
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  17. Human genetic biobanking in Asia : issues of trust, wealth and ambition.Margaret Sleeboom-Faulkner - 2009 - In Human genetic biobanks in Asia: politics of trust and scientific advancement. New York: Routledge.
     
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  18. Human genetic sampling in Indonesia : the interplay between biosocieties and non-biosocieties.Margaret Sleeboom-Faulkner - 2009 - In Human genetic biobanks in Asia: politics of trust and scientific advancement. New York: Routledge.
     
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  19. Human genetic diversity: Lewontin's fallacy.Anthony W. F. Edwards - 2003 - Bioessays 25 (8):798-801.
    In popular articles that play down the genetical differences among human populations, it is often stated that about 85% of the total genetical variation is due to individual differences within populations and only 15% to differences between populations or ethnic groups. It has therefore been proposed that the division of Homo sapiens into these groups is not justified by the genetic data. This conclusion, due to R.C. Lewontin in 1972, is unwarranted because the argument ignores the fact that most (...)
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  20.  5
    Human genetics and the Nazi Spectre.Torbjörn TÄnnsjö - 1999 - Monash Bioethics Review 18 (1):13-21.
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  21.  39
    Between Treatment and Enhancement: Islamic Discourses on the Boundaries of Human Genetic Modification.Ayman Shabana - 2022 - Journal of Religious Ethics 50 (3):386-411.
    Recent developments in genomic technology, especially those enabling gene editing, promise to put an end to hitherto intractable medical problems and to usher us into the age of personalized medicine. These technologies, however, raise a number of serious ethical challenges. Given the global impact of this technology, recent international regulations emphasize the need for intercultural dialogue on these ethical issues. This paper concentrates on Islamic perspectives on human genetic modification. It examines Islamic juristic discourses on the issue of genetic (...)
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  22. Regulating human genetics in a neo-genetic era.J. Somsen - 2009 - In Thérèse Murphy (ed.), New technologies and human rights. New York: Oxford University Press. pp. 85--127.
     
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  23. Human genetic banking: altruism, benefit and consent.Doris Schroeder & Garrath Williams - 2004 - New Genetics and Society 23 (1):89-103.
    This article considers how we should frame the ethical issues raised by current proposals for large-scale genebanks with on-going links to medical and lifestyle data, such as the Wellcome Trust and Medical Research Council's 'UK Biobank'. As recent scandals such as Alder Hey have emphasised, there are complex issues concerning the informed consent of donors that need to be carefully considered. However, we believe that a preoccupation with informed consent obscures important questions about the purposes to which such collections are (...)
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  24. Human Genetic Technology, Eugenics, and Social Justice.W. Malcolm Byrnes - 2001 - The National Catholic Bioethics Quarterly 1 (4):555-581.
    In this new post-genomic age of medicine and biomedical technology, there will be novel approaches to understanding disease, and to finding drugs and cures for diseases. Hundreds of new “disease genes” thought to be the causative agents of various genetic maladies will be identified and added to the list of hundreds of such genes already identified. Based on this knowledge, many new genetic tests will be developed and used in genetic screening programs. Genetic screening is the foundation upon which reproductive (...)
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  25. Human genetics and genetic enhancement.Peter Turnpenny & John Bryant - forthcoming - Bioethics for Scientists:241--264.
     
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  26.  8
    Human Genetics: The Basics.Ricki Lewis - 2016 - Routledge.
    Human genetics has blossomed from an obscure biological science and explanation for rare disorders to a field that is profoundly altering health care for everyone. This thoroughly updated new edition of _Human Genetics: The Basics_ provides a concise background of gene structure and function through the lens of real examples, from families living with inherited diseases to population-wide efforts in which millions of average people are learning about their genetic selves. The book raises compelling issues concerning: • The role (...)
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  27.  89
    Can human genetic enhancement be prohibited?William Gardner - 1995 - Journal of Medicine and Philosophy 20 (1):65-84.
    This article seeks to reframe the ethical discussion of genetic enhancement, which is the use of genetic engineering to supply a characteristic that a parent might want in a child that does not involve the treatment or prevention of disease. I consider whether it is likely that enhancement can be successfully prohibited. If genetic enhancement is feasible, it is likely that there will be demand for it because parents compete to produce able children and nations compete to accumulate human (...)
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  28.  26
    Human genetic diversity, a critical resource for man's future.Hampton L. Carson - 1993 - Biology and Philosophy 8 (1):33-45.
    The human gene pool displays exuberant genetic variation; this is normal for a sexual species. Even small isolated populations contain a large percentage of the total variability, emphasizing the basic genetic unity of our species. As modern man spread across the world from its African source, the genetic basis for man''s unique mental acuity was retained everywhere. Nevertheless, some geographical genetic variation such as skin color, stature and physiognomy was established. These changes were biologically relatively insignificant. Most of the (...)
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  29. A Human Genetics Parable.Jay Joseph - 2011 - Journal of Mind and Behavior 32 (3):209.
    Human genetics research appears to be approaching a period of re-examination due to the decades-long failure of molecular genetic research to uncover the genes presumed to underlie psychiatric disorders, psychological traits, and some common medical conditions. As currently dominant theories of genetic causation come more into question, we will see a renewed interest in reassessing the potential roles of genes and environment in these areas. To illustrate the potentially harmful and diversionary impact of emphasizing genetics over the environment, the (...)
     
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  30. F18. Human Genetics and Bioethics in China.Hiraku Takebe - forthcoming - Bioethics in Asia: The Proceedings of the Unesco Asian Bioethics Conference (Abc'97) and the Who-Assisted Satellite Symposium on Medical Genetics Services, 3-8 Nov, 1997 in Kobe/Fukui, Japan, 3rd Murs Japan International Symposium, 2nd Congress of the Asi.
     
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  31.  49
    Potential International Approaches to Ownership/Control of Human Genetic Resources.Catherine Rhodes - 2016 - Health Care Analysis 24 (3):260-277.
    In its governance activities for genetic resources, the international community has adopted various approaches to their ownership, including: free access; common heritage of mankind; intellectual property rights; and state sovereign rights. They have also created systems which combine elements of these approaches. While governance of plant and animal genetic resources is well-established internationally, there has not yet been a clear approach selected for human genetic resources. Based on assessment of the goals which international governance of human genetic resources (...)
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  32.  8
    Human Genetic Intervention: Portent of a Brave New World?Robert H. Blank - 1989 - Journal of Interdisciplinary Studies 1 (1-2):103-121.
    The centerpiece of Aldous Huxley's Brave New World is state control of the human reproduction process as a means of ensuring social stability. Although written as fiction, recent advances in human genetic and reproductive technology promise to give us more control over our biological destiny, including procreation. Concurrently, they create new social policy dilemmas, challenge prevailing "givens" of the human condition, and, technologically, increase the possibility of centralized control over reproduction. After reviewing the current status of (...) genetic technology and discussing its use in the United States, this article analyzes the implications of these innovations for the future. (shrink)
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  33.  16
    Human genetics: The molecular challenge.Walter F. Bodmer - 1987 - Bioessays 7 (1):41-45.
    The 1986 Cold Spring Harbor Symposium was on the subject of human genetics; it was the first symposium at Cold Spring Harbor on this topic since 1964. In the opening remarks for the conference, Walter F. Bodmer first summarized the progress in this field since 1964. He then described what is presently known about the functional complexity of the human genome and discussed the case for a definitive characterization and sequencing of the human genome. The following is (...)
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  34.  10
    Human genetics in post-WWII Italy: blood, genes and platforms.Mauro Capocci - 2023 - History and Philosophy of the Life Sciences 45 (1):1-17.
    Italian Life sciences in post-WWII faced important challenges: the reconstruction of a scientific panorama suffering heavily after two decades of Fascism and the damages of war. Modernization was not only a matter of recreating a favorable environment for research, by modernizing Italian biomedical institutions and connecting the Italian scientists with the new ideas coming from abroad. The introduction of new genetics required a new array of concepts and instruments, but also, the ability to connect to international networks and to become (...)
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  35.  15
    Benefit-sharing: an inquiry regarding the meaning and limits of the concept in human genetic research.Kadri Simm - 2005 - Genomics, Society and Policy 1 (2):1-12.
    The Human Genome Project and the related research and development activities have raised heated discussions around some very basic ethical and social issues. A much debated concern is that of justice in human genetic research and in possible applications, especially pertaining to questions of just benefit-sharing - who and based on what sort of argumentation has the right to require benefits arising from research and discoveries, and what can even be considered as benefits? In what follows I will (...)
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  36. Biosocial goals and human genetics: An impact study of NSF workshops.Margaret L. While, Jon R. Hendrix & Thomas R. Mertens - 1987 - Science Education 71 (2):137-144.
     
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  37. The Evolutionary Biological Implications of Human Genetic Engineering.Russell Powell - 2012 - Journal of Medicine and Philosophy 37 (1):22.
    A common worry about the genetic engineering of human beings is that it will reduce human genetic diversity, creating a biological monoculture that could not only increase our susceptibility to disease but also hasten the extinction of our species. Thus far, however, the evolutionary implications of human genetic modification remain largely unexplored. In this paper, I consider whether the widespread use of genetic engineering technology is likely to narrow the present range of genetic variation, and if so, (...)
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  38.  22
    Human genetics after the bomb: Archives, clinics, proving grounds and board rooms.Susan Lindee - 2016 - Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences 55:45-53.
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  39.  43
    Between Treatment and Enhancement: Islamic Discourses on the Boundaries of Human Genetic Modification.Ayman Shabana - 2022 - Journal of Religious Ethics 50 (3):386-411.
    Recent developments in genomic technology, especially those enabling gene editing, promise to put an end to hitherto intractable medical problems and to usher us into the age of personalized medicine. These technologies, however, raise a number of serious ethical challenges. Given the global impact of this technology, recent international regulations emphasize the need for intercultural dialogue on these ethical issues. This paper concentrates on Islamic perspectives on human genetic modification. It examines Islamic juristic discourses on the issue of genetic (...)
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  40.  9
    Ren lei yi chuan yan jiu huo dong zhong de zhi qing tong yi: lun li, fa lü yu she hui de duo wei si kao = A study on informed consent in human genetic research: from the perspective of ethical, legal and social implications.Chunyan Wu - 2016 - Beijing Shi: Fa lü chu ban she.
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  41.  8
    Genetic Testing and its Implications: Human Genetics Researchers Grapple with Ethical Issues.Isaac Rabino - 2003 - Science, Technology and Human Values 28 (3):365-402.
    To better understand ethical issues involved in the field of human genetics and promote debate within the scientific community, the author surveyed scientists who engage in human genetics research about the pros, cons, and ethical implications of genetic testing. This study contributes systematic data on attitudes of scientific experts. The survey finds respondents are highly supportive of voluntary testing and the right to know one's genetic heritage. The majority consider in utero testing and consequent pregnancy termination acceptable for (...)
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  42.  8
    Human genetics and its foundations.Norman C. Nevin - 1966 - The Eugenics Review 58 (2):99.
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  43.  8
    Human Genetics and the Value of Non-epistemic Values for Restituting Identity in Argentine.Livio Mattarollo - 2020 - Humanities Journal of Valparaiso 16:255-275.
    Within the context of the discussion about value-free science ideal, Heather Douglas claims that in several cases non-epistemic values are needed for good reasoning in science. In this article I aim at recovering her viewpoint in order to examine the research driving to the Genetic Grandparent Inclusion-Probability Index, a crucial element to restitute the identity of children who were abducted during Argentinean dictatorship. Thus, my purposes are to reconstruct Douglas´ main theoretical contributions, specifically her reasons to reject the ideal as (...)
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  44.  8
    Human Genetics and the Value of Non-epistemic Values for Restituting Identity in Argentine.Livio Mattarollo - 2020 - Revista de Humanidades de Valparaíso 16:255-275.
    Within the context of the discussion about value-free science ideal, Heather Douglas claims that in several cases non-epistemic values are needed for good reasoning in science. In this article I aim at recovering her viewpoint in order to examine the research driving to the Genetic Grandparent Inclusion-Probability Index, a crucial element to restitute the identity of children who were abducted during Argentinean dictatorship. Thus, my purposes are to reconstruct Douglas´ main theoretical contributions, specifically her reasons to reject the ideal as (...)
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  45.  8
    Human genetics – from eugenics to real science. Physician to the gene pool: Genetic lessons and other stories (1994). By James V. Neel. John Wiley and Sons, New York. X+457 pp. $24.95. ISBN 0‐471‐30844‐7. [REVIEW]Adam S. Wilkins - 1995 - Bioessays 17 (8):742-743.
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  46.  13
    Governing Human Genetic Databases, Biobanks and Research Tissue Banks.Susan M. C. Gibbons - 2007 - Research Ethics 3 (3):106-108.
    This paper reports on a recent symposium seminar series entitled ‘Governing genetic databases – collection, storage and use’ hosted by the Ethox Centre at the University of Oxford. It outlines the inadequacy of the current UK framework for governing genetic databases and biobanks and some of the implications of this. It then briefly describes and reflects on each of the five symposium papers.
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  47.  40
    Public policy implications of human genetic technology: Genetic screening.Robert H. Blank - 1982 - Journal of Medicine and Philosophy 7 (4):355-374.
    As rapid advances in human genetic research are transferred into new areas of genetic technology, questions relatingto the use of these techniques will escalate. This paper examines some of the policy concerns surrounding recent developments in genetic screening. It discusses the impetus and implications of genetic screening in general, examines various applications, and analyzes the costs and benefits of screening programs currently in existence. Special emphasis is placed on whether or not screening should be considered a matter of public (...)
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  48.  36
    FACE Facts: Why Human Genetics Will Always Provoke Bioethics.Eric T. Juengst - 2004 - Journal of Law, Medicine and Ethics 32 (2):267-275.
    Over the last decade, more U.S. taxpayers money has been spent trying to anticipate and address the bioethical issues raised by advances in human genetics than any other set of issues in the field. Does this make sense? Not everyone in bioethics thinks so. Some think there are more important topics, like issues of health care justice, that will be neglected if the field continues to follow the money to dwell on the moral challenges of a relatively small community (...)
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  49. Bioethical regulation and human genetic databases in mainland China : a national survey among scientists and regulators on consent issues and benefit-sharing.Xinqing Zhang - 2009 - In Margaret Sleeboom-Faulkner (ed.), Human genetic biobanks in Asia: politics of trust and scientific advancement. New York: Routledge.
     
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  50.  20
    The Double-Edged Helix: Social Implications of Genetics in a Diverse Society.Joseph S. Alper, Catherine Ard, Adrienne Asch, Peter Conrad, Jon Beckwith, American Cancer Society Research Professor of Microbiology and Molecular Genetics Jon Beckwith, Harry Coplan Professor of Social Sciences Peter Conrad & Lisa N. Geller - 2002
    The rapidly changing field of genetics affects society through advances in health-care and through implications of genetic research. This study addresses the impacts of new genetic discoveries and technologies on different segments of today's society. The book begins with a chapter on genetic complexity, and subsequent chapters discuss moral and ethical questions arising from today's genetics from the perspectives of health care professionals, the media, the general public, special interest groups and commercial interests.
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