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  1.  11
    An ethical code for collecting, using and transferring sensitive health data: outcomes of a modified Policy Delphi process in Singapore.Bernadette Richards, Hui Jin Toh, James Scheibner, Hui Yun Chan & Tamra Lysaght - 2023 - BMC Medical Ethics 24 (1):1-14.
    One of the core goals of Digital Health Technologies (DHT) is to transform healthcare services and delivery by shifting primary care from hospitals into the community. However, achieving this goal will rely on the collection, use and storage of large datasets. Some of these datasets will be linked to multiple sources, and may include highly sensitive health information that needs to be transferred across institutional and jurisdictional boundaries. The growth of DHT has outpaced the establishment of clear legal pathways to (...)
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  2.  13
    Sharing precision medicine data with private industry: Outcomes of a citizens’ jury in Singapore.Annette Braunack-Mayer, Chris Degeling, Stacy Carter, Ainsley J. Newson, E. Shyong Tai, Vicki Xafis, G. Owen Schaefer, Andrew Lau, Serene Ong, Hui Jin Toh, Tamra Lysaght & Angela Ballantyne - 2022 - Big Data and Society 9 (1).
    Precision medicine is an emerging approach to treatment and disease prevention that relies on linkages between very large datasets of health information that is shared amongst researchers and health professionals. While studies suggest broad support for sharing precision medicine data with researchers at publicly funded institutions, there is reluctance to share health information with private industry for research and development. As the private sector is likely to play an important role in generating public benefits from precision medicine initiatives, it is (...)
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    Religious Perspectives on Precision Medicine in Singapore.Tamra Lysaght, Zhixia Tan, You Guang Shi, Swami Samachittananda, Sarabjeet Singh, Roland Chia, Raza Zaidi, Malminderjit Singh, Hung Yong Tay, Chitra Sankaran, Serene Ai Kiang Ong, Angela Ballantyne & Hui Jin Toh - 2021 - Asian Bioethics Review 13 (4):473-483.
    Precision medicine (PM) aims to revolutionise healthcare, but little is known about the role religion and spirituality might play in the ethical discourse about PM. This Perspective reports the outcomes of a knowledge exchange fora with religious authorities in Singapore about data sharing for PM. While the exchange did not identify any foundational religious objections to PM, ethical concerns were raised about the possibility for private industry to profiteer from social resources and the potential for genetic discrimination by private health (...)
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