26 found
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  1.  17
    Ethics of Medical AI.Giovanni Rubeis - 2024 - Springer Verlag.
    This is the first book to provide a coherent overview over the ethical implications of AI-related technologies in medicine. It explores how these technologies transform practices, relationships, and environments in the clinical field. It provides an introduction into ethical issues such as data security and privacy protection, bias and algorithmic fairness, trust and transparency, challenges to the doctor-patient relationship, and new perspectives for informed consent. The book focuses on the transformative impact that technology is having on medicine, and discusses several (...)
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  2.  40
    A burden from birth? Non‐invasive prenatal testing and the stigmatization of people with disabilities.Giovanni Rubeis & Florian Steger - 2018 - Bioethics 33 (1):91-97.
    The notion of being a burden to others is mostly discussed in the context of care‐intensive diseases or end‐of‐life decisions. But the notion is also crucial in decision‐making at the beginning of life, namely regarding prenatal testing. Ever more sophisticated testing methods, especially non‐invasive prenatal testing (NIPT), allow the detection of genetic traits in the unborn child that may cause disabilities. A positive result often influences the decision of the pregnant women towards a termination of the pregnancy. Thus, critics claim (...)
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  3.  32
    The Application of Standards and Recommendations to Clinical Ethics Consultation in Practice: An Evaluation at German Hospitals.Maximilian Schochow, Giovanni Rubeis & Florian Steger - 2017 - Science and Engineering Ethics 23 (3):793-799.
    The executive board of the Academy for Ethics in Medicine and two AEM working groups formulated standards and recommendations for clinical ethics consultation in 2010, 2011, and 2013. These guidelines comply with the international standards like those set by the American Society for Bioethics and Humanities. There is no empirical data available yet that could indicate whether these standards and recommendations have been implemented in German hospitals. This desideratum is addressed in the present study. We contacted 1.858 German hospitals between (...)
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  4.  20
    Guardians of humanity? The challenges of nursing practice in the digital age.Giovanni Rubeis - 2021 - Nursing Philosophy 22 (2):e12331.
    Digital technologies have become a crucial factor in nursing. Given the fact that many tasks could also be done by robots or AI systems, the place for the nurse in this scenario is unclear. In what way and to what extent will the implementation of ever more sophisticated technology affect nursing practice? It is the aim of this paper to analyse the potential challenges of nursing practice in the digital age. The analysis is conducted through the lens of new materialism, (...)
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  5.  23
    Nichtinvasive Pränataltests als Teil der vorgeburtlichen Regelversorgung.Giovanni Rubeis, Marcin Orzechowski & Florian Steger - 2020 - Ethik in der Medizin 32 (1):49-63.
    In March 2019, the German Gemeinsamer Bundesausschuss (G‑BA; Federal Joint Committee) presented the result of the method assessment process on non-invasive prenatal testing (NIPT). The aim of this method assessment process was to decide whether NIPT should become a publicly funded procedure of routine prenatal care. The G‑BA decided in favor of NIPT, making the implementation of NIPT very likely, provided that other healthcare and political institutions also agree. This development could be interpreted as empowering from the perspective of reproductive (...)
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  6.  18
    Nichtinvasive Pränataltests als Teil der vorgeburtlichen Regelversorgung.Giovanni Rubeis, Marcin Orzechowski & Florian Steger - 2020 - Ethik in der Medizin 32 (1):49-63.
    In March 2019, the German Gemeinsamer Bundesausschuss (G‑BA; Federal Joint Committee) presented the result of the method assessment process on non-invasive prenatal testing (NIPT). The aim of this method assessment process was to decide whether NIPT should become a publicly funded procedure of routine prenatal care. The G‑BA decided in favor of NIPT, making the implementation of NIPT very likely, provided that other healthcare and political institutions also agree. This development could be interpreted as empowering from the perspective of reproductive (...)
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  7.  17
    Nichtinvasive Pränataltests als Teil der vorgeburtlichen Regelversorgung.Giovanni Rubeis, Marcin Orzechowski & Florian Steger - 2020 - Ethik in der Medizin 32 (1):49-63.
    In March 2019, the German Gemeinsamer Bundesausschuss (G‑BA; Federal Joint Committee) presented the result of the method assessment process on non-invasive prenatal testing (NIPT). The aim of this method assessment process was to decide whether NIPT should become a publicly funded procedure of routine prenatal care. The G‑BA decided in favor of NIPT, making the implementation of NIPT very likely, provided that other healthcare and political institutions also agree. This development could be interpreted as empowering from the perspective of reproductive (...)
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  8.  18
    Nichtinvasive Pränataltests als Teil der vorgeburtlichen Regelversorgung.Giovanni Rubeis, Marcin Orzechowski & Florian Steger - 2020 - Ethik in der Medizin 32 (1):49-63.
    In March 2019, the German Gemeinsamer Bundesausschuss (G‑BA; Federal Joint Committee) presented the result of the method assessment process on non-invasive prenatal testing (NIPT). The aim of this method assessment process was to decide whether NIPT should become a publicly funded procedure of routine prenatal care. The G‑BA decided in favor of NIPT, making the implementation of NIPT very likely, provided that other healthcare and political institutions also agree. This development could be interpreted as empowering from the perspective of reproductive (...)
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  9.  24
    Patient Autonomy and Quality of Care in Telehealthcare.Giovanni Rubeis, Maximilian Schochow & Florian Steger - 2018 - Science and Engineering Ethics 24 (1):93-107.
    Telemedicine is a complex field including various applications and target groups. Especially telehealthcare is seen by many as a means to revolutionize medicine. It gives patients the opportunity to take charge of their own health by using self-tracking devices and allows health professionals to treat patients from a distance. To some, this means an empowerment of patient autonomy as well as an improvement in the quality of care. Others state the dangers of depersonalization of medicine and the pathologization of daily (...)
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  10.  20
    Foundations of critical medical ethics.Giovanni Rubeis - forthcoming - Ethik in der Medizin:1-16.
    Definition of the problem Medical ethics is increasingly faced with issues that result from power asymmetries and epistemic injustice. However, medical ethics lacks the epistemic lenses for analyzing these social context factors of clinical practice. A theoretical and conceptual reconfiguration is necessary in order to be able to address these issues. Arguments This paper discusses the foundations of critical medical ethics, which takes perspectives and epistemic categories from critical theories. This includes the Critical Theory of the Frankfurt School as well (...)
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  11.  19
    Healthy and Happy? An Ethical Investigation of Emotion Recognition and Regulation Technologies (ERR) within Ambient Assisted Living (AAL).Kris Vera Hartmann, Giovanni Rubeis & Nadia Primc - 2024 - Science and Engineering Ethics 30 (1):1-17.
    Ambient Assisted Living (AAL) refers to technologies that track daily activities of persons in need of care to enhance their autonomy and minimise their need for assistance. New technological developments show an increasing effort to integrate automated emotion recognition and regulation (ERR) into AAL systems. These technologies aim to recognise emotions via different sensors and, eventually, to regulate emotions defined as “negative” via different forms of intervention. Although these technologies are already implemented in other areas, AAL stands out by its (...)
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  12.  21
    Gute Elternschaft. Zum normativen Gehalt der Indikation in der Reproduktionsmedizin.Giovanni Rubeis - 2020 - Ethik in der Medizin 32 (3):255-266.
    Die Möglichkeiten der Reproduktionsmedizin erweitern sich ständig. Bei einigen Maßnahmen assistierter Reproduktion ist es oft unklar, ob eine Indikation vorliegt oder ob diese Maßnahmen als wunscherfüllend anzusehen sind. Die Unterscheidung zwischen medizinisch indizierter Maßnahme und wunscherfüllender Behandlung hängt von dem hier verwendeten Konzept der Indikation ab. Daher kommt dem Konzept der Indikation auf dem Gebiet der Reproduktionsmedizin ein besonderer Stellenwert zu. Dabei fällt auf, dass die Abgrenzung zwischen medizinisch indizierter Behandlung und Wunschbehandlung nicht allein klinisch begründet ist, sondern implizit oder (...)
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  13.  16
    Good parenting. On the normative implications of indication in reproductive medicine.Giovanni Rubeis - 2020 - Ethik in der Medizin 32 (3):255-266.
    Definition of the problemThe options of reproductive medicine are expanding. In some cases, it is unclear whether there is a medical indication for applying procedures of assisted reproduction or whether this application is wish-fulfilling. The distinction between medical indication and wish fulfilment depends on the concept of indication. Thus, the concept of indication has a special status in reproductive medicine. The distinction between medical indication and wish-fulfilling treatment is mostly based on implicit or explicit normative judgements, rather than on mere (...)
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  14.  10
    Ethical implications of blockchain technology in biomedical research.Giovanni Rubeis - forthcoming - Ethik in der Medizin:1-14.
    Definition of the problem Biomedical research based on big data offers immense benefits. Large multisite research that integrates large amounts of personal health data, especially genomic and genetic data, might contribute to a more personalized medicine. This type of research requires the transfer and storage of highly sensitive data, which raises the question of how to protect data subjects against data harm, such as privacy breach, disempowerment, disenfranchisement, and exploitation. As a result, there is a trade-off between reaping the benefits (...)
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  15.  52
    Risks and benefits of human germline genome editing: An ethical analysis.Giovanni Rubeis & Florian Steger - 2018 - Asian Bioethics Review 10 (2):133-141.
    With the arrival of new methods of genome editing, especially CRISPR/cas 9, new perspectives on germline interventions have arisen. Supporters of germ line genome editing claim that the procedure could be used as a means of disease prevention. As a possible life-saving therapy, it provides benefits that outweigh its risks. Opponents of GGE claim that the medical and societal risks, especially the use of GGE for genetic enhancement, are too high. In our paper, we analyze the risks and benefits of (...)
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  16.  23
    Social Freezing in Medical Practice. Experiences and Attitudes of Gynecologists in Germany.Maximilian Schochow, Giovanni Rubeis, Grit Büchner-Mögling, Hansjakob Fries & Florian Steger - 2018 - Science and Engineering Ethics 24 (5):1483-1492.
    Surveys of the German public have revealed a high acceptance of social freezing, i.e. oocyte conservation without medical indication. Up to now, there are no investigations available on the experiences and attitudes of health professionals towards social freezing. Between August 2015 and January 2016, we surveyed gynecologists Germany-wide on the topic social freezing. Five gynecologists specialized in reproductive medicine and five office-based gynecologists in standard care were chosen for the survey. The survey was conducted with an explorative, qualitative research design. (...)
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  17.  20
    Lost in translation? Conceptions of privacy and independence in the technical development of AI-based AAL.Kris Vera Hartmann, Nadia Primc & Giovanni Rubeis - 2023 - Medicine, Health Care and Philosophy 26 (1):99-110.
    AAL encompasses smart home technologies that are installed in the personal living environment in order to support older, disabled, as well as chronically ill people with the goal of delaying or reducing their need for nursing care in a care facility. Artificial intelligence (AI) is seen as an important tool for assisting the target group in their daily lives. A literature search and qualitative content analysis of 255 articles from computer science and engineering was conducted to explore the usage of (...)
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  18.  11
    A typology of nurses' interaction with relatives in emergency situations.Nadia Primc, Sven Schwabe, Juliane Poeck, Andreas Günther, Martina Hasseler & Giovanni Rubeis - 2023 - Nursing Ethics 30 (2):232-244.
    Background In nursing homes, residents’ relatives represent important sources of support for nurses. However, in the heightened stress of emergency situations, interaction between nurses and relatives can raise ethical challenges. Research objectives The present analysis aimed at elaborating a typology of nurses’ experience of ethical support and challenges in their interaction with relatives in emergency situations. Research design Thirty-three semi-structured interviews and six focus groups were conducted with nurses from different nursing homes in Germany. Data were analysed according to Mayring’s (...)
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  19.  11
    Adiaphorisation and the digital nursing gaze: Liquid surveillance in long‐term care.Giovanni Rubeis - 2023 - Nursing Philosophy 24 (1):e12388.
    The nursing gaze, that is the specific ways of observing the patient in nursing practice, has been the object of ethical debates for decades. It has been argued that the specific feature of observing patients in nursing is the stereoscopic vision that allows nurses to see the patient at the same time as a subject and a body. However, with the increased use of technology in nursing and the focus on quantifiable biomedical data, some commentators see a shift from the (...)
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  20.  11
    Claudia Wiesemann (2016) Moral Equality, Bioethics, and the Child: International Library of Ethics, Law, and the New Medicine, Vol. 67, Springer, 155 Seiten, 85,59 Euro, ISBN 978-3-319-32402-9.Giovanni Rubeis - 2017 - Ethik in der Medizin 29 (4):343-345.
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  21.  8
    Digitale Interventionen für Geflüchtete. Herausforderungen, Chancen und die Perspektive der agency.Giovanni Rubeis - 2021 - Ethik in der Medizin 33 (3):335-352.
    Geflüchtete weisen eine hohe Prävalenz an psychischen Störungen auf. Dem hohen Behandlungsbedarf stehen jedoch Barrieren gegenüber, die den Zugang zu psychischen Versorgungsleistungen behindern. Zu den Zugangsbarrieren gehören strukturelle Hürden ebenso wie kulturell differente Haltungen gegenüber psychischer Gesundheit und Krankheit sowie therapeutischen Maßnahmen. Eine Möglichkeit, diese Zugangsbarrieren zu überwinden und Geflüchteten Versorgungsleistungen nach ihrem Bedarf zukommen zu lassen, wird in digitalen Interventionen gesehen. In Form von interaktiven Websites oder Smartphone-Apps haben sich diese internet- und mobilgestützten Interventionen bereits in der Versorgung bewährt. (...)
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  22.  15
    Digital interventions for refugees. Challenges, opportunities, and perspectives of agency.Giovanni Rubeis - 2021 - Ethik in der Medizin 33 (3):335-352.
    Definition of the problem Refugees show a high prevalence of mental health burden. Catering to the need for mental health services is made difficult by access barriers. These barriers consist of structural factors as well as culturally different attitudes towards mental health, mental illness, and therapeutic interventions. One option to overcome these access barriers and to provide mental healthcare services in an appropriate manner is seen in digital interventions. In the form of interactive websites or smartphone apps, these interventions have (...)
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  23.  11
    Equity in AgeTech for Ageing Well in Technology-Driven Places: The Role of Social Determinants in Designing AI-based Assistive Technologies.Giovanni Rubeis, Mei Lan Fang & Andrew Sixsmith - 2022 - Science and Engineering Ethics 28 (6):1-15.
    AgeTech involves the use of emerging technologies to support the health, well-being and independent living of older adults. In this paper we focus on how AgeTech based on artificial intelligence (AI) may better support older adults to remain in their own living environment for longer, provide social connectedness, support wellbeing and mental health, and enable social participation. In order to assess and better understand the positive as well as negative outcomes of AI-based AgeTech, a critical analysis of ethical design, digital (...)
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  24.  35
    Ethical and conceptual aspects of mitochondrial replacement techniques (“three-parent child”).Giovanni Rubeis & Florian Steger - 2019 - Ethik in der Medizin 31 (2):143-158.
    Der weltweit erste Mitochondrien-Transfer, auch als Erzeugung eines „Drei-Eltern-Kindes“ bezeichnet, hat 2016 eine intensive Debatte ausgelöst. Hinsichtlich des Verfahrens, das bisher nur in Großbritannien zugelassen ist, werden auch verschiedene ethische Aspekte angesprochen. Dazu gehören die Risikoabwägung, die reproduktive Selbstbestimmung und die psychosoziale Entwicklung eines Kindes, das von drei Individuen abstammt. Dabei fällt auf, dass zentrale konzeptuelle Fragen hinsichtlich des Mitochondrien-Transfers nicht geklärt sind. Ist der Mitochondrien-Transfer eine genetische Intervention in die Keimbahn? Handelt es sich bei dem Verfahren um eine medizinisch (...)
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  25.  17
    Human Germline Genome Editing in the Clinical Context.Giovanni Rubeis - 2018 - In Matthias Braun, Hannah Schickl & Peter Dabrock (eds.), Between Moral Hazard and Legal Uncertainty: Ethical, Legal and Societal Challenges of Human Genome Editing. Wiesbaden: Springer Fachmedien Wiesbaden. pp. 149-160.
    Interventions in the human germline have been regarded as a red line in genetic engineering up to now. However, with the recent progress in genome editing techniques, first and foremost CRISPR-based methods, the tide seems to be turning. The therapeutic benefits in particular are brought forward as an argument in favor of germline genome editing. According to this view, the main benefit of GGE is disease prevention. The procedure could be used to prevent monogenetic conditions for which no treatment is (...)
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  26.  8
    Koncepcja medycyny upolitycznionej. Podstawy teoretyczne.Giovanni Rubeis - 2016 - Etyka 53:37-53.
    It is the aim of this paper to establish the concept of politicized medicine. The starting point is the work by Steger and Schochow on the Closed Venerological Wards in the GDR. Steger and Schochow operate with the concept of politicized medicine, although they do not elaborate it due to their primarily empirical approach. In this paper, the theoretical foundations for this concept shall be laid. Therefore, the results of the research by Steger and Schochow as well as the different (...)
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