4 found
  1.  15
    The Promise and Reality of Public Engagement in the Governance of Human Genome Editing Research.John M. Conley, R. Jean Cadigan, Arlene M. Davis, Eric T. Juengst, Kriste Kuczynski, Rami Major, Hayley Stancil, Julio Villa-Palomino, Margaret Waltz & Gail E. Henderson - 2023 - American Journal of Bioethics 23 (7):9-16.
    This paper analyses the activities of five organizations shaping the debate over the global governance of genome editing in order to assess current approaches to public engagement (PE). We compare the recommendations of each group with its own practices. All recommend broad engagement with the general public, but their practices vary from expert-driven models dominated by scientists, experts, and civil society groups to citizen deliberation-driven models that feature bidirectional consultation with local citizens, as well as hybrid models that combine elements (...)
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  2.  17
    Grudging Trust and the Limits of Trustworthy Biorepository Curation.Karen M. Meagher, Eric T. Juengst & Gail E. Henderson - 2018 - American Journal of Bioethics 18 (4):23-25.
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    Vulnerability to Influence: A Two-Way Street.Gail E. Henderson - 2004 - American Journal of Bioethics 4 (3):50-52.
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    What Bioethicists Need to Know About the Social Determinants of Health—and Why.Gail E. Henderson - 2022 - Perspectives in Biology and Medicine 65 (4):664-671.
    ABSTRACT:What more can be said about COVID-19 and the social determinants of health? This article describes neglected perspectives that derive from the history of social epidemiology, a field that identifies the social etiology of disease and variations in disease incidence among people differentially located in the social structure. The "discovery" of social determinants of diseases like COVID-19 is nothing new for epidemiology: debate over how to analyze structural determinants versus individual-level risk factors persisted throughout the 19th and 20th centuries. By (...)
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