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Eva De Clercq [23]Eva Https://Orcidorg de Clercq [1]
  1.  22
    Relational Capacity: Broadening the Notion of Decision-Making Capacity in Paediatric Healthcare.Katharina M. Ruhe, Eva De Clercq, Tenzin Wangmo & Bernice S. Elger - 2016 - Journal of Bioethical Inquiry 13 (4):515-524.
    Problems arise when applying the current procedural conceptualization of decision-making capacity to paediatric healthcare: Its emphasis on content-neutrality and rational cognition as well as its implicit assumption that capacity is an ability that resides within a person jeopardizes children’s position in decision-making. The purpose of the paper is to challenge this dominant account of capacity and provide an alternative for how capacity should be understood in paediatric care. First, the influence of developmental psychologist Jean Piaget upon the notion of capacity (...)
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  2.  22
    Towards a pragmatist dealing with algorithmic bias in medical machine learning.Georg Starke, Eva De Clercq & Bernice S. Elger - 2021 - Medicine, Health Care and Philosophy 24 (3):341-349.
    Machine Learning (ML) is on the rise in medicine, promising improved diagnostic, therapeutic and prognostic clinical tools. While these technological innovations are bound to transform health care, they also bring new ethical concerns to the forefront. One particularly elusive challenge regards discriminatory algorithmic judgements based on biases inherent in the training data. A common line of reasoning distinguishes between justified differential treatments that mirror true disparities between socially salient groups, and unjustified biases which do not, leading to misdiagnosis and erroneous (...)
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  3.  20
    Continuous Deep Sedation and Euthanasia in Pediatrics: Does One Really Exclude the Other for Terminally Ill Patients?Domnita O. Badarau, Eva De Clercq & Bernice S. Elger - 2019 - Journal of Medicine and Philosophy 44 (1):50-70.
    Debates on morally acceptable and lawful end-of-life practices in pediatrics were reignited by the recent amendment in Belgian law to allow euthanasia for minors of any age who meet the criteria for capacity. Euthanasia and its legalization in pediatrics are often opposed based on the availability of aggressive palliative sedation. For terminally ill patients, this type of sedation is often identified as continuous and deep sedation until death. We demonstrate that this reasoning is based on flawed assumptions: CDS is a (...)
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  4.  5
    “Waking up” the sleeping metaphor of normality in connection to intersex or DSD: a scoping review of medical literature.Eva De Clercq, Georg Starke & Michael Rost - 2022 - History and Philosophy of the Life Sciences 44 (4):1-37.
    The aim of the study is to encourage a critical debate on the use of normality in the medical literature on DSD or intersex. For this purpose, a scoping review was conducted to identify and map the various ways in which “normal” is used in the medical literature on DSD between 2016 and 2020. We identified 75 studies, many of which were case studies highlighting rare cases of DSD, others, mainly retrospective observational studies, focused on improving diagnosis or treatment. The (...)
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  5.  20
    The Best Interest Standard: An Exhaustive Guide for Medical Decision Making in Pediatrics?Eva De Clercq & Katharina Ruhe - 2018 - American Journal of Bioethics 18 (8):69-71.
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  6.  20
    Better to know than to imagine: Including children in their health care.Tenzin Wangmo, Eva De Clercq, Katharina M. Ruhe, Maja Beck-Popovic, Johannes Rischewski, Regula Angst, Marc Ansari & Bernice S. Elger - 2017 - AJOB Empirical Bioethics 8 (1):11-20.
    Background: This article describes the overall attitudes of children, their parents, and attending physicians toward including or excluding pediatric patients in medical communication and health care decision-making processes. Methods: Fifty-two interviews were carried out with pediatric patients (n = 17), their parents (n = 19), and attending oncologists (n = 16) in eight Swiss pediatric oncology centers. The interviews were analyzed using thematic coding. Results: Parenting styles, the child's personality, and maturity are factors that have a great impact upon the (...)
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  7.  23
    Body matters: rethinking the ethical acceptability of non-beneficial clinical research with children.Eva De Clercq, Domnita Oana Badarau, Katharina M. Ruhe & Tenzin Wangmo - 2015 - Medicine, Health Care and Philosophy 18 (3):421-431.
    The involvement of children in non-beneficial clinical research is extremely important for improving pediatric care, but its ethical acceptability is still disputed. Therefore, various pro-research justifications have been proposed throughout the years. The present essay aims at contributing to the on-going discussion surrounding children’s participation in non-beneficial clinical research. Building on Wendler’s ‘contribution to a valuable project’ justification, but going beyond a risk/benefit analysis, it articulates a pro-research argument which appeals to a phenomenological view on the body and vulnerability. It (...)
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  8.  32
    Decision making in pediatric oncology: Views of parents and physicians in two European countries.Domnita O. Badarau, Katharina Ruhe, Thomas Kühne, Eva De Clercq, Anca Colita, Bernice S. Elger & Tenzin Wangmo - 2017 - AJOB Empirical Bioethics 8 (1):21-31.
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  9.  21
    Is decision-making capacity an “essentially contested” concept in pediatrics?Eva De Clercq, Katharina Ruhe, Michel Rost & Bernice Elger - 2017 - Medicine, Health Care and Philosophy 20 (3):425-433.
    Key legislations in many countries emphasize the importance of involving children in decisions regarding their own health at a level commensurate with their age and capacities. Research is engaged in developing tools to assess capacity in children in order to facilitate their responsible involvement. These instruments, however, are usually based on the cognitive criteria for capacity assessment as defined by Appelbaum and Grisso and thus ill adapted to address the life-situation of children. The aim of this paper is to revisit (...)
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  10.  19
    Erratum to: Body matters: rethinking the ethical acceptability of non-beneficial clinical research with children.Eva De Clercq, Domnita Oana Badarau, Katharina M. Ruhe & Tenzin Wangmo - 2015 - Medicine, Health Care and Philosophy 18 (3):433-433.
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  11.  6
    Rethinking advanced motherhood: a new ethical narrative.Eva De Clercq, Andrea Martani, Nicolas Vulliemoz, Bernice S. Elger & Tenzin Wangmo - 2023 - Medicine, Health Care and Philosophy 26 (4):591-603.
    The aim of the study is to rethink the ethics of advanced motherhood. In the literature, delayed childbearing is usually discussed in the context of reproductive justice, and in relationship to ethical issues associated with the use and risk of assisted reproductive technologies. We aim to go beyond these more “traditional” ways in which reproductive ethics is framed by revisiting ethics itself through the lens of the figure of the so-called “older” mother. For this purpose, we start by exploring some (...)
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  12.  8
    Machine learning and its impact on psychiatric nosology: Findings from a qualitative study among German and Swiss experts.Georg Starke, Bernice Simone Elger & Eva De Clercq - 2023 - Philosophy and the Mind Sciences 4.
    The increasing integration of Machine Learning (ML) techniques into clinical care, driven in particular by Deep Learning (DL) using Artificial Neural Nets (ANNs), promises to reshape medical practice on various levels and across multiple medical fields. Much recent literature examines the ethical consequences of employing ML within medical and psychiatric practice but the potential impact on psychiatric diagnostic systems has so far not been well-developed. In this article, we aim to explore the challenges that arise from the recent use of (...)
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  13.  18
    Cancer care in Romania: challenges and pitfalls of children's and adolescents' multifaceted involvement.Domnita O. Badarau, Eva De Clercq, Tenzin Wangmo, Monica Dragomir, Ingrid Miron, Thomas Kühne & Bernice S. Elger - 2016 - Journal of Medical Ethics 42 (12):757-761.
    Communication about diagnosis and medical treatment for children suffering from life-threatening illnesses is complex. It is a primary step in involving underage patients and families in care and lays the foundation for obtaining parental permission and patient assent for treatment. In practice child participation in care is often difficult to obtain due to patients' different and sometimes fluctuating preferences, but also parents' protective strategies. Physicians may be susceptible to parental wishes to limit information and feel uncomfortable discussing issues related to (...)
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  14.  8
    A Tsunami of Love: Overcoming the Violence of Curiosity—The Lived Experiences of Young Adults Born with Variations of Sex Characteristics.Eva De Clercq - 2021 - International Journal of Feminist Approaches to Bioethics 14 (2):11-35.
    This study provides insight into the experiences of young adults born with variations of sex characteristics to identify aspects of care and social support that need improvement. Semi-structured interviews with intersex youths in Switzerland were analyzed using interpretative, phenomenological analysis. Young adults desire timely, patient-centered information about their diagnoses. Peer support is key to delivering high-quality care but rarely systematically implemented. Intersex youth often face misrepresentation, stigma, and discrimination in medical settings and in society. Increased visibility alone cannot tackle these (...)
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  15.  5
    Normality in medicine: an empirical elucidation.Eva De Clercq, Maddalena Favaretto & Michael Rost - 2022 - Philosophy, Ethics and Humanities in Medicine 17 (1):1-14.
    BackgroundNormality is both a descriptive and a normative concept. Undoubtedly, the normal often operates normatively as an exclusionary tool of cultural authority. While it has prominently found its way into the field of medicine, it remains rather unclear in what sense it is used. Thus, our study sought to elucidate people’s understanding of normality in medicine and to identify concepts that are linked to it.MethodsUsing convenient sampling, we carried out a cross-sectional survey. Since the survey was advertised through social media, (...)
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  16.  1
    On How Ploughing a Lonely Furrow Might Affect Youths’ Sexual Health.Eva De Clercq - 2021 - Journal of Clinical Ethics 32 (1):69-72.
    This article aims to make a case for the need to sensitize the medical community on the importance of providing sexual health information in the care of intersex adolescents and young adults for whom sexuality and intimacy are sensitive subjects—and to go beyond a narrow focus on surgical outcomes. For this purpose, this article gives voice to the lived experience of “Emma,” a young adult who identifies as intersex. Setting up strong collaboration between medical teams and intersex support groups might (...)
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  17.  11
    Special Parents for “Special” Children? The Narratives of Health Care Providers and Parents of Intersex Children.Eva De Clercq & Jürg Streuli - 2019 - Narrative Inquiry in Bioethics 9 (2):133-147.
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  18.  12
    The Vulnerability of the Body.Eva de Clercq - 2011 - Bijdragen 72 (2):183-200.
    ‘Religion and corporeality’. At first sight, the coordinating conjunction «and» sounds rather odd here because in the vision of many people spirituality and materiality necessarily exclude each other. Still, many scholars have offered abundant evidence that Christianity is a religion of embodiment. Yet, as will become clear from the works of the theologians Erik Peterson and André Guindon, the turn toward the body within Christianity is primarily a turn toward a clothed body. This may explain why the Italian philosopher Giorgio (...)
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  19.  6
    “Undoing” Capacity: The Capability Approach in Pediatrics.Eva De Clercq, Jürg Streuli, Katherina Ruhe & Bernice S. Elger - 2019 - Perspectives in Biology and Medicine 62 (2):319-336.
    Viola and Ben, two pediatric oncology patients, need to undergo chemotherapy that might decrease their fertility. Both of them want to participate in the decisions related to their cancer treatment and fertility preservation. Should they be involved, and if so when and how?In many jurisdictions, children are not entitled to provide legally valid consent for medical decisions.1 As a result, others, usually parents, take on the role of surrogate decision-makers who act in their best interest. Still, it is important to (...)
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  20.  19
    Education and Reproductive Autonomy: The Case of Married Nigerian Women.Chitu Womehoma Princewill, Eva De Clercq, Anita Riecher-Rössler, Ayodele Samuel Jegede, Tenzin Wangmo & Bernice Simone Elger - 2017 - Narrative Inquiry in Bioethics 7 (3):231-244.
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  21.  11
    “Boiling up the problem of violence” in childbirth?—an ethical viewpoint on medical professional responses to women’s reports of mistreatment in childbirth.Michael Rost, Louisa Arnold & Eva De Clercq - 2020 - Ethik in der Medizin 32 (2):189-193.
    In den letzten Jahren berichteten mehr und mehr Frauen von Gewalt und Respektlosigkeit in der Geburtshilfe. Inzwischen hat sich auch die Forschung verstärkt dieses Themas angenommen. Prävalenzschätzungen sind jedoch aufgrund erheblicher methodischer Schwächen noch nicht hinreichend genau zu beziffern. Die Vielzahl und Vielfalt der bestehenden Forschungsergebnisse lassen dennoch den Schluss zu, dass es in der Geburtshilfe in fast allen Regionen der Erde regelmäßig zu Gewalt und Respektlosigkeit und damit zu Menschenrechtsverletzungen kommt. Die Folgen reichen bis hin zu Posttraumatischen Belastungsstörungen, was (...)
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