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  1.  29
    Pediatric Deep Brain Stimulation for Dystonia: Current State and Ethical Considerations.Katrina A. Muñoz, Jennifer Blumenthal-Barby, Eric A. Storch, Laura Torgerson & Gabriel Lázaro-muñoz - 2020 - Cambridge Quarterly of Healthcare Ethics 29 (4):557-573.
    Dystonia is a movement disorder that can have a debilitating impact on motor functions and quality of life. There are 250,000 cases in the United States, most with childhood onset. Due to the limited effectiveness and side effects of available treatments, pediatric deep brain stimulation has emerged as an intervention for refractory dystonia. However, there is limited clinical and neuroethics research in this area of clinical practice. This paper examines whether it is ethically justified to offer pDBS to children with (...)
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  2.  31
    Neuroethics at 15: Keep the Kant but Add More Bacon.Gabriel Lázaro-Muñoz, Peter Zuk, Stacey Pereira, Kristin Kostick, Laura Torgerson, Demetrio Sierra-Mercado, Mary Majumder, J. Blumenthal-Barby, Eric A. Storch, Wayne K. Goodman & Amy L. McGuire - 2019 - American Journal of Bioethics Neuroscience 10 (3):97-100.
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  3.  38
    Perspectives on informed assent and bodily integrity in prospective deep brain stimulation for youth with refractory obsessive-compulsive disorder.Jared N. Smith, Natalie Dorfman, Meghan Hurley, Ilona Cenolli, Kristin Kostick-Quenet, Gabriel Lazaro-Munoz, Eric A. Storch & Jennifer Blumenthal-Barby - forthcoming - Clinical Ethics.
    BackgroundDeep brain stimulation is approved for treating refractory obsessive-compulsive disorder in adults under the US Food and Drug Administration Humanitarian Device Exemption, and studies hav...
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  4.  28
    Testimonial injustice: considering caregivers in paediatric behavioural healthcare.Michelle Trang Pham, Eric A. Storch & Gabriel Lázaro-Muñoz - 2021 - Journal of Medical Ethics 47 (11):738-739.
    Harcourt argues that in clinical contexts, children and young people with mental health illness can experience epistemic, specifically testimonial, injustice when their perspectives are unjustifiably discounted by health service providers.1 Our goal in this commentary was to illustrate how caregivers, a critical component of CYP treatment triad, can also engage in testimonial injustice towards CYP patients. Testimonial injustice occurs when one suffers a credibility deficit and that credibility deficit is based on prejudice.2 Harcourt expands Fricker’s account of testimonial injustice by (...)
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  5.  16
    Adolescent OCD Patient and Caregiver Perspectives on Identity, Authenticity, and Normalcy in Potential Deep Brain Stimulation Treatment.Jared N. Smith, Natalie Dorfman, Meghan Hurley, Ilona Cenolli, Kristin Kostick-Quenet, Eric A. Storch, Gabriel Lázaro-Muñoz & Jennifer Blumenthal-Barby - forthcoming - Cambridge Quarterly of Healthcare Ethics:1-14.
    The ongoing debate within neuroethics concerning the degree to which neuromodulation such as deep brain stimulation (DBS) changes the personality, identity, and agency (PIA) of patients has paid relatively little attention to the perspectives of prospective patients. Even less attention has been given to pediatric populations. To understand patients’ views about identity changes due to DBS in obsessive-compulsive disorder (OCD), the authors conducted and analyzed semistructured interviews with adolescent patients with OCD and their parents/caregivers. Patients were asked about projected impacts (...)
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  6.  13
    Personalized Roadmaps for Returning Results From Digital Phenotyping.Kristin Marie Kostick-Quenet, John Herrington & Eric A. Storch - 2024 - American Journal of Bioethics 24 (2):102-105.
    While the intellectual challenge of digital phenotyping (DP) has evolved from data collection to more complex data analysis (Onnela 2021), core ethical considerations remain centered on patient pri...
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  7.  24
    Hope and Optimism in Pediatric Deep Brain Stimulation: Key Stakeholder Perspectives.Natalie Dorfman, Lilly Snellman, Ynez Kerley, Kristin Kostick-Quenet, Gabriel Lazaro-Munoz, Eric A. Storch & Jennifer Blumenthal-Barby - 2023 - Neuroethics 16 (3):1-15.
    IntroductionDeep brain stimulation (DBS) is utilized to treat pediatric refractory dystonia and its use in pediatric patients is expected to grow. One important question concerns the impact of hope and unrealistic optimism on decision-making, especially in “last resort” intervention scenarios such as DBS for refractory conditions.ObjectiveThis study examined stakeholder experiences and perspectives on hope and unrealistic optimism in the context of decision-making about DBS for childhood dystonia and provides insights for clinicians seeking to implement effective communication strategies.Materials and MethodsSemi-structured interviews (...)
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  8.  66
    Psychometric Properties of the Persian Version of the Teasing Questionnaire 23.Ali Ebrahimi, Mojtaba Elhami Athar, Mitra Hakim Shooshtari, Hossain Karsazi & Eric A. Storch - 2021 - Frontiers in Psychology 12.
    The current study was a cross-sectional research and aimed to investigate the factor structure, internal consistency, and validities of the Persian version of the Teasing Questionnaire-Revised. Forward and backward translations of the TQ-R were performed; face and content validities were determined based on comments by a sample of psychology students and specialists. Using the cluster sampling method, 290 participants were recruited, and 201 valid data were analyzed. The factor structure was assessed by confirmatory and exploratory factor analysis. The result of (...)
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  9.  50
    Deep Brain Stimulation for Parkinson’s Disease During the COVID-19 Pandemic: Patient Perspective.Chencheng Zhang, Jing Zhang, Xian Qiu, Yingying Zhang, Zhengyu Lin, Peng Huang, Yixin Pan, Eric A. Storch, Bomin Sun & Dianyou Li - 2021 - Frontiers in Human Neuroscience 15.
    BackgroundPublic health guidelines have recommended that elective medical procedures, including deep brain stimulation surgery for Parkinson’s disease, should not be scheduled during the coronavirus pandemic to prevent further virus spread and overload on health care systems. However, delaying DBS surgery for PD may not be in the best interest of individual patients and is not called for in regions where virus spread is under control and inpatient facilities are not overloaded.MethodsWe administered a newly developed phone questionnaire to 20 consecutive patients (...)
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  10.  16
    Reconceptualizing Triage to Incorporate Principles of Risk and Uncertainty: An Example from Deep Brain Stimulation Patients with Treatment-Resistant Disorders.Lavina Kalwani, Kristin Kostick, Eric A. Storch & Gabriel Lázaro-Muñoz - 2020 - American Journal of Bioethics 20 (7):207-209.
    Volume 20, Issue 7, July 2020, Page 207-209.
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  11.  19
    The Ethics of Getting Ahead When All Heads Are Enhanced.Kristin Marie Kostick, J. S. Blumenthal-Barby, Eric A. Storch & Gabriel Lázaro-Muñoz - 2020 - American Journal of Bioethics Neuroscience 11 (4):256-258.
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  12.  12
    Assessing Symptom Accommodation of Social Anxiety Symptoms Among Chinese Adults: Factor Structure and Psychometric Properties of Family Accommodation Scale Anxiety—Adult Report.Congmei Lou, Xiaolu Zhou, Eli R. Lebowitz, Laurel L. Williams & Eric A. Storch - 2020 - Frontiers in Psychology 11.
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