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Danya F. Vears [10]Danya Vears [1]
  1.  5
    Why genomics researchers are sometimes morally required to hunt for secondary findings.Julian J. Koplin, Julian Savulescu & Danya F. Vears - 2020 - BMC Medical Ethics 21 (1):1-11.
    Genomic research can reveal ‘unsolicited’ or ‘incidental’ findings that are of potential health or reproductive significance to participants. It is widely thought that researchers have a moral obligation, grounded in the duty of easy rescue, to return certain kinds of unsolicited findings to research participants. It is less widely thought that researchers have a moral obligation to actively look for health-related findings. This paper examines whether there is a moral obligation, grounded in the duty of easy rescue, to actively hunt (...)
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  2.  44
    Ethical Sharing of Health Data in Online Platforms- Which Values Should Be Considered?Brígida Riso, Aaro Tupasela, Danya F. Vears, Heike Felzmann, Julian Cockbain, Michele Loi, Nana C. H. Kongsholm, Silvia Zullo & Vojin Rakic - 2017 - Life Sciences, Society and Policy 13 (1):1-27.
    Intensified and extensive data production and data storage are characteristics of contemporary western societies. Health data sharing is increasing with the growth of Information and Communication Technology platforms devoted to the collection of personal health and genomic data. However, the sensitive and personal nature of health data poses ethical challenges when data is disclosed and shared even if for scientific research purposes. With this in mind, the Science and Values Working Group of the COST Action CHIP ME ‘Citizen's Health through (...)
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  3.  19
    Participation of Children in Medical Decision-Making: Challenges and Potential Solutions.Vida Jeremic, Karine Sénécal, Pascal Borry, Davit Chokoshvili & Danya F. Vears - 2016 - Journal of Bioethical Inquiry 13 (4):525-534.
    Participation in healthcare decision-making is considered to be an important right of minors, and is highlighted in both international legislation and public policies. However, despite the legal recognition of children’s rights to participation, and also the benefits that children experience by their involvement, there is evidence that legislation is not always translated into healthcare practice. There are a number of factors that may impact on the ability of the child to be involved in decisions regarding their medical care. Some of (...)
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  4.  4
    On the Epistemic Status of Prenatal Ultrasound: Are Ultrasound Scans Photographic Pictures?Maddalena Favaretto, Danya F. Vears & Pascal Borry - 2020 - Journal of Medicine and Philosophy 45 (2):231-250.
    Medical imaging is predominantly a visual field. In this context, prenatal ultrasound images assume intense social, ethical, and psychological significance by virtue of the subject they represent: the fetus. This feature, along with the sophistication introduced by three-dimensional ultrasound imaging that allows improved visualization of the fetus, has contributed to the common impression that prenatal ultrasound scans are like photographs of the fetus. In this article we discuss the consistency of such a comparison. First, we investigate the epistemic role of (...)
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  5.  19
    Predictive Psychiatric Genetic Testing in Minors: An Exploration of the Non-Medical Benefits.Arianna Manzini & Danya F. Vears - 2018 - Journal of Bioethical Inquiry 15 (1):111-120.
    Predictive genetic testing for susceptibility to psychiatric conditions is likely to become part of standard practice. Because the onset of most psychiatric diseases is in late adolescence or early adulthood, testing minors could lead to early identification that may prevent or delay the development of these disorders. However, due to their complex aetiology, psychiatric genetic testing does not provide the immediate medical benefits that current guidelines require for testing minors. While several authors have argued non-medical benefits may play a crucial (...)
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  6.  2
    Moving From ‘Fully’ to ‘Appropriately’ Informed Consent in Genomics: The PROMICE Framework.Julian J. Koplin, Christopher Gyngell, Julian Savulescu & Danya F. Vears - 2022 - Bioethics 36 (6):655-665.
    Bioethics, Volume 36, Issue 6, Page 655-665, July 2022.
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  7.  4
    Old Challenges or New Issues? Genetic Health Professionals’ Experiences Obtaining Informed Consent in Diagnostic Genomic Sequencing.Danya F. Vears, Pascal Borry, Julian Savulescu & Julian K. Koplin - forthcoming - Ajob Empirical Bioethics:1-12.
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  8.  8
    Pre- and Post-Testing Counseling Considerations for the Provision of Expanded Carrier Screening: Exploration of European Geneticists’ Views.Sandra Janssens, Davit Chokoshvili, Danya F. Vears, Anne De Paepe & Pascal Borry - 2017 - BMC Medical Ethics 18 (1):46.
    BackgroundCarrier screening is generally performed with the aim of identifying healthy couples at risk of having a child affected with a monogenic disorder to provide them with reproductive options. Expanded carrier screening, which provides the opportunity for multiple conditions to be screened in one test, offers a more cost-effective and comprehensive option than screening for single disorders. However, implementation of ECS at a population level would have implications for genetic counseling practice.MethodsWe conducted semi-structured interviews with sixteen European clinical and molecular (...)
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  9.  5
    Old Challenges or New Issues? Genetic Health Professionals’ Experiences Obtaining Informed Consent in Diagnostic Genomic Sequencing.Danya F. Vears, Pascal Borry, Julian Savulescu & Julian J. Koplin - 2021 - AJOB Empirical Bioethics 12 (1):12-23.
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  10.  5
    Correction To: Predictive Psychiatric Genetic Testing in Minors: An Exploration of the Non-Medical Benefits.Arianna Manzini & Danya F. Vears - 2018 - Journal of Bioethical Inquiry 15 (1):121-121.
    The article [Title], written by [AuthorNames], was originally published electronically on the publisher’s internet portal on [date of OnlineFirst publication] without open access.
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  11.  1
    Consent for Rapid Genomic Sequencing for Critically Ill Children: Legal and Ethical Issues.Danya Vears, Zornitza Stark, Fiona Lynch & Christopher Gyngell - 2021 - Monash Bioethics Review 39 (Suppl 1):117-129.
    Although rapid genomic sequencing is improving care for critically ill children with rare disease, it also raises important ethical questions that need to be explored as its use becomes more widespread. Two such questions relate to the degree of consent that should be required for RGS to proceed and whether it might ever be appropriate to override parents’ decisions not to allow RGS to be performed in their critically ill child. To explore these questions, we first examine the legal frameworks (...)
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