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Bryn Williams-Jones
Université de Montréal
  1. Authorship and Responsibility in Health Sciences Research: A Review of Procedures for Fairly Allocating Authorship in Multi-Author Studies.Elise Smith & Bryn Williams-Jones - 2012 - Science and Engineering Ethics 18 (2):199-212.
    While there has been significant discussion in the health sciences and ethics literatures about problems associated with publication practices (e.g., ghost- and gift-authorship, conflicts of interest), there has been relatively little practical guidance developed to help researchers determine how they should fairly allocate credit for multi-authored publications. Fair allocation of credit requires that participating authors be acknowledged for their contribution and responsibilities, but it is not obvious what contributions should warrant authorship, nor who should be responsible for the quality and (...)
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  2.  25
    Misconduct and Misbehavior Related to Authorship Disagreements in Collaborative Science.Elise Smith, Bryn Williams-Jones, Zubin Master, Vincent Larivière, Cassidy R. Sugimoto, Adèle Paul-Hus, Min Shi & David B. Resnik - 2020 - Science and Engineering Ethics 26 (4):1967-1993.
    Scientific authorship serves to identify and acknowledge individuals who “contribute significantly” to published research. However, specific authorship norms and practices often differ within and across disciplines, labs, and cultures. As a consequence, authorship disagreements are commonplace in team research. This study aims to better understand the prevalence of authorship disagreements, those factors that may lead to disagreements, as well as the extent and nature of resulting misbehavior. Methods include an international online survey of researchers who had published from 2011 to (...)
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  3.  80
    Epigenetics and the Environment in Bioethics.Charles Dupras, Vardit Ravitsky & Bryn Williams-Jones - 2012 - Bioethics 28 (7):327-334.
    A rich literature in public health has demonstrated that health is strongly influenced by a host of environmental factors that can vary according to social, economic, geographic, cultural or physical contexts. Bioethicists should, we argue, recognize this and – where appropriate – work to integrate environmental concerns into their field of study and their ethical deliberations. In this article, we present an argument grounded in scientific research at the molecular level that will be familiar to – and so hopefully more (...)
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  4. Bio-ethics and one health: a case study approach to building reflexive governance.Antoine Boudreau LeBlanc, Bryn Williams-Jones & Cécile Aenishaenslin - 2022 - Frontiers in Public Health 10 (648593).
    Surveillance programs supporting the management of One Health issues such as antibiotic resistance are complex systems in themselves. Designing ethical surveillance systems is thus a complex task (retroactive and iterative), yet one that is also complicated to implement and evaluate (e.g., sharing, collaboration, and governance). The governance of health surveillance requires attention to ethical concerns about data and knowledge (e.g., performance, trust, accountability, and transparency) and empowerment ethics, also referred to as a form of responsible self-governance. Ethics in reflexive governance (...)
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  5. À la recherche du chaînon manquant entre bio et éthique.Antoine Boudreau LeBlanc, Bryn Williams-Jones & Cécile Aenishaenslin - 2022 - Canadian Journal of Bioethics / Revue canadienne de bioéthique 1 (5):103-118.
    Van Rensselaer Potter (1911-2001), le biologiste à l’origine du terme « bioéthique » dans les écrits nord-américains, considère que « real bioethics falls in the context of the ideals of […] Aldo Leopold », un forestier, philosophe et poète ayant marqué le XXe siècle. Associer Leopold à Potter a pour effet de placer la bioéthique dans la famille des éthiques de l’environnement, ce qui la différencie du sens conventionnel retenu en médecine et en recherche depuis le Rapport Belmont (1979), une (...)
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  6.  22
    Ethical Issues in Research: Perceptions of Researchers, Research Ethics Board Members and Research Ethics Experts.Marie-Josée Drolet, Eugénie Rose-Derouin, Julie-Claude Leblanc, Mélanie Ruest & Bryn Williams-Jones - 2023 - Journal of Academic Ethics 21 (2):269-292.
    In the context of academic research, a diversity of ethical issues, conditioned by the different roles of members within these institutions, arise. Previous studies on this topic addressed mainly the perceptions of researchers. However, to our knowledge, no studies have explored the transversal ethical issues from a wider spectrum, including other members of academic institutions as the research ethics board (REB) members, and the research ethics experts. The present study used a descriptive phenomenological approach to document the ethical issues experienced (...)
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  7.  36
    Towards an Integration of PrEP into a Safe Sex Ethics Framework for Men Who Have Sex with Men.Julien Brisson, Vardit Ravitsky & Bryn Williams-Jones - 2019 - Public Health Ethics 12 (1):54-63.
    The ethics of safe sex in the gay community has, for many years, been focused on debates surrounding the responsibility regarding the use of condoms to prevent HIV transmission, once the only tool available. With the development of Truvada as a pre-exposure prophylaxis for HIV, for the first time in the history of the HIV/AIDS epidemic there is the potential to significantly reduce the risk of HIV transmission during sex without the use of condoms. The introduction of PrEP necessitates a (...)
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  8. Global bioethics – myth or reality?Søren Holm & Bryn Williams-Jones - 2006 - BMC Medical Ethics 7 (1):1-10.
    Background There has been debate on whether a global or unified field of bioethics exists. If bioethics is a unified global field, or at the very least a closely shared way of thinking, then we should expect bioethicists to behave the same way in their academic activities anywhere in the world. This paper investigates whether there is a 'global bioethics' in the sense of a unified academic community. Methods To address this question, we study the web-linking patterns of bioethics institutions, (...)
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  9.  48
    Researchers’ Perceptions of Ethical Authorship Distribution in Collaborative Research Teams.Elise Smith, Bryn Williams-Jones, Zubin Master, Vincent Larivière, Cassidy R. Sugimoto, Adèle Paul-Hus, Min Shi, Elena Diller, Katie Caudle & David B. Resnik - 2020 - Science and Engineering Ethics 26 (4):1995-2022.
    Authorship is commonly used as the basis for the measurement of research productivity. It influences career progression and rewards, making it a valued commodity in a competitive scientific environment. To better understand authorship practices amongst collaborative teams, this study surveyed authors on collaborative journal articles published between 2011 and 2015. Of the 8364 respondents, 1408 responded to the final open-ended question, which solicited additional comments or remarks regarding the fair distribution of authorship in research teams. This paper presents the analysis (...)
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  10. Beyond a pejorative understanding of conflict of interest.Bryn Williams-Jones - 2011 - American Journal of Bioethics 11 (1):1 - 2.
    In seeking to clarify the concept of conflict of interest (COI) in debates about physician–industry relationships, Howard Brody (2011) highlights the extent to which the prob- lem turns on a common pejorative understanding of COI. Whether it is the academic or public policy “pharmapologists” or “pharmascolds” talking about COI, there is often a straightforward and overly simplistic correlation made: that is, a conflict of interest—by definition—leads to fraudulent or corrupt behavior. The same type of reasoning is com- monly found in (...)
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  11. Applying the ecosystem approach to global bioethics: building on the Leopold legacy.Antoine Boudreau LeBlanc & Bryn Williams-Jones - 2023 - Global Bioethics 34 (1):2280289.
    For Van Rensselaer Potter (1911–2001), Global Bio-Ethics is about building on the legacy of Aldo Leopold (1887–1948), one of the most notable forest managers of the twentieth century who brought to light the importance of pragmatism in the sciences and showed us a new way to proceed with environmental ethics. Following Richard Huxtable and Jonathan Ives's methodological 'Framework for Empirical Bioethics Research Projects' called 'Mapping, framing, shaping,' published in BMC Medicine Ethics (2019)), we propose operationalizing a framework for Global Bio-Ethics (...)
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  12.  25
    Conceptualising Ethical Issues in the Conduct of Research: Results from a Critical and Systematic Literature Review.Élie Beauchemin, Louis Pierre Côté, Marie-Josée Drolet & Bryn Williams-Jones - 2022 - Journal of Academic Ethics 20 (3):335-358.
    This article concerns the ways in which authors from various fields conceptualise the ethical issues arising in the conduct of research. We reviewed critically and systematically the literature concerning the ethics of conducting research in order to engage in a reflection about the vocabulary and conceptual categories used in the publications reviewed. To understand better how the ethical issues involved in conducting research are conceptualised in the publications reviewed, we 1) established an inventory of the conceptualisations reviewed, and 2) we (...)
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  13.  51
    A University Wide Model for the Ethical Review of Human Subjects Research.Bryn Williams-Jones & Søren Holm - 2005 - Research Ethics 1 (2):39-44.
    In the United Kingdom, there are moves to extend formal ethical review of research involving human subjects beyond the traditional oversight by NHS local or multi-centre research ethics committees of medical or clinical research, to also encompass all ‘non-clinical’ research involving human subjects. This paper describes and analyses the development and implementation of a model for ethical review within the university sector. At Cardiff University, a devolved or two-tiered system of ethics review has been created in which a top-level university (...)
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  14. Biopolitical Barriers to a Potterian Bioethics: The (Potentially) Missed Opportunity of Epigenetics.Charles Dupras, Bryn Williams-Jones & Vardit Ravitsky - 2017 - American Journal of Bioethics 17 (9):15-17.
    Lee (2017) calls for greater attention to the shared epistemological and normative grounds of both public health ethics and environmental ethics, and to Potter’s original conception of bioethics, which, as she rightly observes, has been largely disregarded in contemporary North American bioethics scholarship and practice. In a previous publication we also argued in favor of reviving the Potterian approach to bioethics; we built a case grounded in “the relatively new field of molecular epigenetics [that] provides novel information that should serve (...)
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  15. Ethics and genetics: Susceptibility testing in the workplace.Chris MacDonald & Bryn Williams-Jones - 2002 - Journal of Business Ethics 35 (3):235-241.
    Genetic testing in the workplace is a technology both full of promise and fraught with ethical peril. Though not yet common, it is likely to become increasingly so. We survey the key arguments in favour of such testing, along with the most significant ethical worries. We further propose a set of pragmatic criteria, which, if met, would make it permissible for employers to offer (but not to require) workplace genetic testing.
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  16. Commercial Surrogacy and the Redefinition of Motherhood.Bryn Williams-Jones - 2002 - Journal of Philosophy, Science and Law 2:1-16.
  17. Barriers to Research on Research Ethics Review and Conflicts of Interest.Bryn Williams-Jones, Marie-Josée Potvin, Ghislaine Mathieu & Elise Smith - 2013 - IRB: Ethics & Human Research 35 (5):14-20.
    Research on research ethics—regarding both the governance and practice of the ethical review of human subjects research—has a tumultuous history in North America and Europe. Much of the academic literature focuses on issues to do with regulating the conduct and quality of ethics review of research protocols by ethics committees (research ethics boards (REBs) in Canada and institutional review boards (IRBs) in the United States). In addition, some of the literature attends to issues particular to the review of qualitative research, (...)
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  18.  21
    Ethics education in public health: where are we now and where are we going?Victoria Doudenkova, Jean-Christophe Bélisle-Pipon, Louise Ringuette, Vardit Ravitsky & Bryn Williams-Jones - 2017 - International Journal of Ethics Education 2 (2):109-124.
    Over the last decade there has been a noticeable increase in attention, on the part of public health scholars and professionals, to the important ethical challenges that arise in the context of public health policy, practice and research. This has arguably been a driver for the development of public health ethics as both a specialized field of study in bioethics and a subject for professional education. But how is PHE taught in public health programs and schools? Are current educational approaches (...)
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  19.  21
    Accessibility and transparency of editor conflicts of interest policy instruments in medical journals.Elise Smith, Marie-Josée Potvin & Bryn Williams-Jones - 2012 - Journal of Medical Ethics 38 (11):679-684.
    Background There has been significant discussion about the need to manage conflict of interest (COI) in medical journals. This has lead many journals to implement policies to manage COI for authors and reviewers; however, surprisingly little attention has been focused on the COI of journal editors. Objective The goal of this exploratory study was to determine whether the policies were accessible to the public and to researchers, and to discuss the potential impact on public transparency. Design The authors conducted an (...)
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  20.  81
    Social contract theory and just decision making: Lessons from genetic testing for the BRCA mutations.Bryn Williams-Jones & Michael M. Burgess - 2004 - Kennedy Institute of Ethics Journal 14 (2):115-142.
    : Decisions about funding health services are crucial to controlling costs in health care insurance plans, yet they encounter serious challenges from intellectual property protection—e.g., patents—of health care services. Using Myriad Genetics' commercial genetic susceptibility test for hereditary breast cancer (BRCA testing) in the context of the Canadian health insurance system as a case study, this paper applies concepts from social contract theory to help develop more just and rational approaches to health care decision making. Specifically, Daniels's and Sabin's "accountability (...)
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  21.  67
    Reproductive tourism in argentina: Clinic accreditation and its implications for consumers, health professionals and policy makers.Elise Smith, Jason Behrmann, Carolina Martin & Bryn Williams-Jones - 2009 - Developing World Bioethics 10 (2):59-69.
    A subcategory of medical tourism, reproductive tourism has been the subject of much public and policy debate in recent years. Specific concerns include: the exploitation of individuals and communities, access to needed health care services, fair allocation of limited resources, and the quality and safety of services provided by private clinics. To date, the focus of attention has been on the thriving medical and reproductive tourism sectors in Asia and Eastern Europe; there has been much less consideration given to more (...)
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  22. The global HLA banking of embryonic stem cells requires further scientific justification.Zubin Master & Bryn Williams-Jones - 2007 - American Journal of Bioethics 7 (8):45-46.
    There is a widely acknowledged shortage of and an increasing demand for transplantable human organs and tissues (e.g., kidney, heart, lung, liver, cornea) in developed and developing countries around the world. In response to this need, Lott and Savulescu (2007) propose the creation of a human embryonic stem (hESC) bank to facilitate the equitable and efficient dissemination of human leukocyte anti- gen (HLA) matched tissues and organs to patients in need of replacement. Although not an unreasonable proposal, the authors go (...)
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  23. Colombian adolescents’ preferences for independently accessing sexual and reproductive health services: a cross-sectional and bioethics analysis.Julien Brisson, Bryn Williams-Jones & Vardit Ravitsky - 2022 - Sexual and Reproductive Healthcare 100698 (32).
    Objective Our study sought to (1) describe the practices and preferences of Colombian adolescents in accessing sexual and reproductive health services: accompanied versus alone; (2) compare actual practices with stated preferences; and (3) determine age and gender differences regarding the practice and these stated preferences. -/- Methods 812 participants aged 11–24 years old answered a survey in two Profamilia clinics in the cities of Medellin and Cali in Colombia. A cross-sectional analysis was performed to compare participants’ answers based on the (...)
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  24. La conduite responsable en recherche en sciences humaines et sociales.Sihem Neila Abtroun, Marie-Alexia Masella, Marie-Alexandra Gagné & Bryn Williams-Jones - 2021 - In Christian Hervé & Michèle Stanton Jean (eds.), Ethique, intégrité scientifique et fausses nouvelles. pp. 121-134.
    Jusqu’à présent, les discussions au sein de la communauté universitaire et dans la littérature scientifique sur la conduite responsable en recherche (CRR), incluant l’intégrité scientifique et l’éthique de la recherche, ont principalement été menées par les chercheurs en sciences de la santé et en sciences fondamentales. Préoccupés, à juste titre, par des problèmes d’inconduite, leurs effets négatifs sur la rigueur scientifique et la confiance du public dans l’entreprise de la recherche, ces débats ont conduit à l’élaboration et à la mise (...)
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  25. Impacts of the Early COVID-19 Pandemic on the Work of Bioethicists in Canada.Marilou Charron, Jean-Christophe Bélisle-Pipon, Vincent Couture, Bryn Williams-Jones, Vardit Ravitsky & Charles Dupras - 2022 - Canadian Journal of Bioethics / Revue canadienne de bioéthique 5 (4):20-29.
    Bioethics experts played a key role in ensuring a coherent ethical response to the COVID-19 pandemic in the fields of healthcare, public health, and scientific research in Canada. In the province of Quebec, a group of academic and practicing bioethicists met periodically in the early months of the pandemic to discuss approaches and solutions to ethical dilemmas encountered during the crisis. These meetings created the opportunity for a national survey of bioethics practitioners from different fields. The survey, in which forty-five (...)
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  26. Bioéthique et "bioéthicien" : révélation d’une profession.Sihem Neila Abtroun & Bryn Williams-Jones - 2022 - In Christian Hervé, Michèle Stanton-Jean, Mylène Deschênes & Henri-Corto Stoeklé (eds.), Covid-19, One Health et intelligence artificielle. Paris, France: Dalloz.
    Depuis 2020, le monde a connu une situation sanitaire exceptionnelle à la suite de la pandémie de Covid-19, faisant face à une incertitude dans le monde médical clinique, de la recherche et dans l’ensemble des domaines connexes en santé publique. Le caractère imprévisible et l’absence de données fiables en lien avec ce virus ont fait émerger une quantité d’enjeux éthiques concrets, cela a donc révélé un domaine particulier, la bioéthique, et plus particulièrement une profession, les bioéthiciens. Les « bioéthiciens » (...)
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  27. Challenges for Corporate Ethics in Marketing Genetic Tests.Bryn Williams-Jones & Vural Ozdemir - 2008 - Journal of Business Ethics 77 (1):33-44.
    Public discussions of ethical issues related to the biotechnology industry tend to treat "biotechnology" as a single, undifferentiated technology. Similarly, the pros and cons associated with this entire sector tend to get lumped together, such that individuals and groups often situate themselves as either "pro-" or "anti-" biotechnology as a whole. But different biotechnologies and their particular application context pose very different challenges for ethical corporate decision-making. Even within a single product category, different specialty products can pose strikingly different ethical (...)
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  28. La personne âgée « assistée technologiquement »: quels défis éthiques?Bryn Williams-Jones, Nathalie Bier, Vincent Rialle, Abdelaziz Djellal, Miguel Jean & Christophe Brissonneau - 2022 - Canadian Journal of Bioethics / Revue canadienne de bioéthique 2 (5):171-183.
    Dans notre société de plus en plus digitalisée, avons-nous vraiment le choix d’adopter ou non les technologies? Comment cette digitalisation impacte-t-elle les personnes âgées en particulier et son écosystème? Quels sont les enjeux éthiques soulevés par cette digitalisation? Ce texte vise à amener des éléments de réflexions en lien avec ces enjeux selon le point de vue de divers experts des domaines de la technologie, du vieillissement et de la bioéthique. Ces experts se sont rencontrés lors d’un symposium ayant eu (...)
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  29. 10 Years On: Looking Back in Order to Move Forward into the Future.Bryn Williams-Jones & Aliya Affdal - 2022 - Canadian Journal of Bioethics/Revue canadienne de bioéthique 5 (4):1-4.
  30.  94
    Experts sous influence? Quand la non-divulgation des conflits d’intérêts met à risque la confiance du public.Bryn Williams-Jones, Jean-Christophe Bélisle Pipon, Louise Ringuette, Anne-Isabelle Cloutier & Victoria Doudenkova - 2016 - In Christian Hervé, Michèle Stanton Jean & Marie France Mamzer (eds.), Autour de l’intégrité scientifique, la loyauté, et la probité: aspects clinique, éthiques et juridiques. Paris, France: Dalloz. pp. 27-44.
    L’érosion actuelle de la confiance du public envers les campagnes de vaccination et les décisions de politiques publiques qui y sont associées, aggravée par des scandales comme ceux relatifs à la pandémie H1N1 et l’utilisation du Tamiflu™, risque de diminuer de façon significative l’efficacité de ces interventions importantes pour la santé publique. Un manque de confiance de la population envers les acteurs de santé publique peut conduire à une méfiance accrue face aux interventions, pouvant ainsi compromettre l’atteinte des objectifs recherchés (...)
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  31. Drug Familiarization and Therapeutic Misconception Via Direct-to-Consumer Information.Jean-Christophe Bélisle-Pipon & Bryn Williams-Jones - 2015 - Journal of Bioethical Inquiry 12 (2):259-267.
    Promotion of prescription drugs may appear to be severely limited in some jurisdictions due to restrictions on direct-to-consumer advertising. However, in most jurisdictions, strategies exist to raise consumer awareness about prescription drugs, notably through the deployment of direct-to-consumer information campaigns that encourage patients to seek help for particular medical conditions. In Canada, DTCI is presented by industry and regulated by Health Canada as being purely informational activities, but their design and integration in broader promotional campaigns raise very similar ethical concerns (...)
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  32.  24
    Are Military and Medical Ethics Necessarily Incompatible? A Canadian Case Study.Christiane Rochon & Bryn Williams-Jones - 2016 - Journal of Law, Medicine and Ethics 44 (4):639-651.
    Military physicians are often perceived to be in a position of ‘dual loyalty’ because they have responsibilities towards their patients but also towards their employer, the military institution. Further, they have to ascribe to and are bound by two distinct codes of ethics, each with its own set of values and duties, that could at first glance be considered to be very different or even incompatible. How, then, can military physicians reconcile these two codes of ethics and their distinct professional/institutional (...)
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  33.  71
    Challenges for corporate ethics in marketing genetic tests.Bryn Williams-Jones & Vural Ozdemir - 2008 - Journal of Business Ethics 77 (1):33 - 44.
    Public discussions of ethical issues related to the biotechnology industry tend to treat “biotechnology” as a single, undifferentiated technology. Similarly, the pros and cons associated with this entire sector tend to get lumped together, such that individuals and groups often situate themselves as either “pro-” or “anti-” biotechnology as a whole. But different biotechnologies and their particular application context pose very different challenges for ethical corporate decision-making. Even within a single product category, different specialty products can pose strikingly different ethical (...)
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  34. BioéthiqueOnline: Moving to Peer-Review / BioéthiqueOnline : Passage à l’évaluation par les pairs.Zubin Master, Carolina Martin, Jason Behrmann, Charles Marsan, Lise Levesque, Maude Laliberté, Charles Dupras, Elise Smith, Renaud Boulanger, Jean-Christophe Belisle Pipon, Bryn Williams-Jones, Christopher McDougall, Ali Okhowat & Sonia Paradis - 2012 - BioéthiqueOnline 1 (Ed2).
  35. Should we perform kidney transplants on foreign nationals?Marie-Chantal Fortin & Bryn Williams-Jones - 2014 - Journal of Medical Ethics 40 (12):821-826.
    In Canada, there are currently no guidelines at either the federal or provincial level regarding the provision of kidney transplantation services to foreign nationals (FN). Renal transplant centres have, in the past, agreed to put refugee claimants and other FNs on the renal transplant waiting list, in part, because these patients (refugee claimants) had health insurance through the Interim Federal Health Programme to cover the costs of medication and hospital care. However, severe cuts recently made to this programme have forced (...)
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  36. Managing Antimicrobial Resistance In Food Production: Conflicts Of Interest And Politics In The Development Of Public Health Policy.Bryn Williams-Jones & Béatrice Doize - 2010 - Les ateliers de l'éthique/The Ethics Forum 5 (1):156-169.
    Antimicrobial resistance is a growing public health concern and is associated with the over - or inappropriate use of antimicrobials in both humans and agriculture. While there has been recognition of this problem on the part of agricultural and public health authorities, there has nonetheless been significant difficulty in translating policy recommendations into practical guidelines. In this paper, we examine the process of public health policy development in Quebec agriculture, with a focus on the case of pork production and the (...)
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  37. Managing Antimicrobial Resistance In Food Production : Conflicts Of Interest And Politics In The Development Of Public Health Policy.Bryn Williams-Jones & Béatrice Doize - 2010 - Les Ateliers de L’Ethique 5 (1):156-169.
    Antimicrobial resistance is a growing public health concern and is associated with the over- or inappropriate use of antimicrobials in both humans and agriculture. While there has been reco- gnition of this problem on the part of agricultural and public health authorities, there has none- theless been significant difficulty in translating policy recommendations into practical guidelines. In this paper, we examine the process of public health policy development in Quebec agriculture, with a focus on the case of pork production and (...)
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  38. Access to Personal Information for Public Health Research: Transparency Should Always Be Mandatory.Louise Ringuette, Jean-Christophe Bélisle-Pipon, Victoria Doudenkova & Bryn Williams-Jones - 2018 - Canadian Journal of Bioethics/Revue canadienne de bioéthique 1 (2):94-98.
    In Québec, the Act Respecting Access to Documents Held by Public Bodies and the Protection of Personal Information provides an exception to transparency to most public institutions where public health research is conducted by allowing them to not disclose their uses of personal data. This exceptionalism is ethically problematic due to important concerns and we argue that all those who conduct research should be transparent and accountable for the work they do in the public interest.
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  39.  19
    Colombian adolescents’ perceptions of autonomy and access to sexual and reproductive health services: an ethical analysis.Bryn Williams-Jones, Julien Brisson & Vardit Ravitsky - forthcoming - Journal of Adolescent Research.
    There are conceptual and ethical challenges to defining adolescents’ autonomy to access health care, and these can lead to health care norms and practices that could be maladjusted to the needs and preferences of adolescents. Particularly sensitive is access to sexual and reproductive health care services (SRHS). Yet, while there has been substantial conceptual work to conceptualize autonomy (e.g., as independence), there is a lack of empirical research that documents the perceptions of adolescents regarding on how they access or wish (...)
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  40. Pharmacogenetics: the bioethical problem of DNA investment banking.Oonagh P. Corrigan & Bryn Williams-Jones - 2006 - Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences 37 (3):550-565.
  41. Imagining Truly Open Access Bioethics: From Dreams to Reality.Bryn Williams-Jones, Vincent Couture, Renaud Boulanger & Charles Dupras - 2017 - American Journal of Bioethics 17 (10):19-20.
    Imagine that you are part of the editorial board of a young bioethics journal committed to publishing open access (OA) and to ensuring accessibility to high quality and innovative scholarship. To support junior and interna- tional scholars who might not otherwise find places for their work in the leading Western bioethics journals, you do not charge author fees. Imagine also that you have no financial resources to pay for a professional website, auto- mated submissions manager, or even a part-time coordina- (...)
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  42.  15
    Colombian youth express interest in receiving sex education from their parents.Julien Brisson, Vardit Ravitsky & Bryn Williams-Jones - 2023 - Sexuality and Culture 1 (27):266-289.
    Despite having essential health needs regarding sexual and reproductive health services (SRHS), young people (e.g., adolescents) in many countries show low use of such services. The World Health Organization advocates fostering young people’s autonomy to access health services to address this global health problem. However, there are gaps in the literature to understand how young people’s autonomy can be fostered to access SRHS. In 2019–2020, we conducted semi-structured interviews with 45 young people aged 14–23 years old in Colombia to explore (...)
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  43. Pharmacogenetics: the bioethical problem of DNA investment banking.Oonagh P. Corrigan & Bryn Williams-Jones - 2004 - Studies in History and Philosophy of Biological and Biomedical Sciences 37 (3):550-565.
    Concern about the ethics of clinical drug trials research on patients and healthy volunteers has been the subject of significant ethical analysis and policy development—protocols are reviewed by Research Ethics Committees and subjects are protected by informed consent procedures. More recently attention has begun to be focused on DNA banking for clinical and pharmacogenetics research. It is, however, surprising how little attention has been paid to the commercial nature of such research, or the unique issues that present when subjects are (...)
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  44. How do medical device manufacturers' websites frame the value of health innovation? An empirical ethics analysis of five Canadian innovations.Pascale Lehoux, M. Hivon, Bryn Williams-Jones, Fiona A. Miller & David R. Urbach - 2012 - Medicine, Health Care and Philosophy 15 (1):61-77.
    While every health care system stakeholder would seem to be concerned with obtaining the greatest value from a given technology, there is often a disconnect in the perception of value between a technology’s promoters and those responsible for the ultimate decision as to whether or not to pay for it. Adopting an empirical ethics approach, this paper examines how five Canadian medical device manufacturers, via their websites, frame the corporate “value proposition” of their innovation and seek to respond to what (...)
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  45. Nothing New Under the Sun: Policy & Clinical Implications of Nanomedicine.Chris MacDonald & Bryn Williams-Jones - 2012 - BioéthiqueOnline 1:11.
    Nanotechnology research is beginning to see widespread coverage in the media and popular science literatures, but discussions of hopes and fears about nanotechnology have already become polarised into utopian and dystopian visions. More moderate discussions focus on the near-term applications of nanotechnologies, and on potential benefits and harms. However, in exploring the social and ethical implications of nanotechnology, important lessons should be learned from experiences in other fields. In particular, studies of the ethical, legal, and social issues of genetics research (...)
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  46. Reference Letters and Conflict of Interest: A Professor’s Dilemma.Bryn Williams-Jones - 2012 - BioéthiqueOnline 1:10.
    This case study examines some of the challenges, and in particular conflicts of interest, that professors face in writing letters of reference for their students.
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  47. Launch of the Canadian Journal of Bioethics/Lancement de la Revue canadienne de bioéthique.Bryn Williams-Jones, Charles Dupras, Vincent Couture & Renaud Boulanger - 2018 - Canadian Journal of Bioethics/Revue canadienne de bioéthique 1 (1):1-3.
  48. Principles for Incorporating Farmers in the Ethical Assessment of Genetically Modified Crops.Jason Behrmann & Bryn Williams-Jones - 2010 - Ethics in Biology, Engineering and Medicine 1 (2):83-99.
    A current advance within the agricultural industry is the use of genetic engineering to produce novel crops for food production. This technology raises questions about how societies should position themselves with respect to genetically modified (GM) crop development and implementation; namely, how should the potentials and risks of this technology be evaluated? We argue that current methods to evaluate the risks and benefits of GM crops are inadequate and not conducive to the strategic development of this technology, where a way (...)
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  49.  14
    Agency, pleasure and justice: a public health ethics perspective on the use of PrEP by gay and other homosexually-active men.Julien Brisson, Vardit Ravitsky & Bryn Williams-Jones - 2021 - In Sarah Bernays, Adam Bourne, Susan Kippax, Peter Aggleton & Richard Parker (eds.), Remaking HIV Prevention in the 21st Century: The Promise of TasP, U=U and PrEP. Springer. pp. 131-144.
    The introduction of pre-exposure prophylaxis (PrEP) for HIV has triggered critical analysis within the social sciences. For example, some have signalled how PrEP may lead to a renewed medicalisation of gay and other homosexually-active men’s sexuality. This chapter challenges some of those accounts. Adopting a public health ethics perspective, it argues that gay men should be understood as agentic in their use of PrEP, as opposed to being the passive victims of medicalisation, and that greater attention should be paid to (...)
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  50.  97
    Somatic Cell Therapy: A Genetic Rescue for a Tattered Immune System?Bryn Williams-Jones - 2012 - BioéthiqueOnline 1:4.
    The case of Andrew Gobea, the first child to receive experimental gene therapy for SCID, and a reflection on the associated ethical implications of gene therapy research.
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