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  1.  58
    Developments in the practice of physician-assisted dying: perceptions of physicians who had experience with complex cases.Marianne C. Snijdewind, Donald G. van Tol, Bregje D. Onwuteaka-Philipsen & Dick L. Willems - 2018 - Journal of Medical Ethics 44 (5):292-296.
    Background Since the enactment of the euthanasia law in the Netherlands, there has been a lively public debate on assisted dying that may influence the way patients talk about euthanasia and physician-assisted suicide with their physicians and the way physicians experience the practice of EAS. Aim To show what developments physicians see in practice and how they perceive the influence of the public debate on the practice of EAS. Methods We conducted a secondary analysis of in-depth interviews with 28 Dutch (...)
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  2.  70
    Two Decades of Research on Euthanasia from the Netherlands. What Have We Learnt and What Questions Remain?Judith Ac Rietjens, Paul J. van der Maas, Bregje D. Onwuteaka-Philipsen, Johannes Jm van Delden & Agnes van der Heide - 2009 - Journal of Bioethical Inquiry 6 (3):271-283.
    Two decades of research on euthanasia in the Netherlands have resulted into clear insights in the frequency and characteristics of euthanasia and other medical end-of-life decisions in the Netherlands. These empirical studies have contributed to the quality of the public debate, and to the regulating and public control of euthanasia and physician-assisted suicide. No slippery slope seems to have occurred. Physicians seem to adhere to the criteria for due care in the large majority of cases. Further, it has been shown (...)
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  3.  69
    Can physicians conceive of performing euthanasia in case of psychiatric disease, dementia or being tired of living?Eva Elizabeth Bolt, Marianne C. Snijdewind, Dick L. Willems, Agnes van der Heide & Bregje D. Onwuteaka-Philipsen - 2015 - Journal of Medical Ethics 41 (8):592-598.
  4. Older peoples' attitudes towards euthanasia and an end-of-life pill in The Netherlands: 2001–2009.Hilde M. Buiting, Dorly J. H. Deeg, Dirk L. Knol, Jochen P. Ziegelmann, H. Roeline W. Pasman, Guy A. M. Widdershoven & Bregje D. Onwuteaka-Philipsen - 2012 - Journal of Medical Ethics 38 (5):267-273.
    Introduction With an ageing population, end-of-life care is increasing in importance. The present work investigated characteristics and time trends of older peoples' attitudes towards euthanasia and an end-of-life pill. Methods Three samples aged 64 years or older from the Longitudinal Ageing Study Amsterdam (N=1284 (2001), N=1303 (2005) and N=1245 (2008)) were studied. Respondents were asked whether they could imagine requesting their physician to end their life (euthanasia), or imagine asking for a pill to end their life if they became tired (...)
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  5.  54
    Public and physicians’ support for euthanasia in people suffering from psychiatric disorders: a cross-sectional survey study.Kirsten Evenblij, H. Roeline W. Pasman, Agnes van der Heide, Johannes J. M. van Delden & Bregje D. Onwuteaka-Philipsen - 2019 - BMC Medical Ethics 20 (1):1-10.
    Although euthanasia and assisted suicide in people with psychiatric disorders is relatively rare, the increasing incidence of EAS requests has given rise to public and political debate. This study aimed to explore support of the public and physicians for euthanasia and assisted suicide in people with psychiatric disorders and examine factors associated with acceptance and conceivability of performing EAS in these patients. A survey was distributed amongst a random sample of Dutch 2641 citizens and 3000 physicians. Acceptance and conceivability of (...)
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  6.  37
    Pressure in dealing with requests for euthanasia or assisted suicide. Experiences of general practitioners.Marike E. De Boer, Marja F. I. A. Depla, Marjolein den Breejen, Pauline Slottje, Bregje D. Onwuteaka-Philipsen & Cees M. P. M. Hertogh - 2019 - Journal of Medical Ethics 45 (7):425-429.
    The majority of Dutch physicians feel pressure when dealing with a request for euthanasia or physician-assisted suicide. This study aimed to explore the content of this pressure as experienced by general practitioners. We conducted semistructured in-depth interviews with 15 Dutch GPs, focusing on actual cases. The interviews were transcribed and analysed with use of the framework method. Six categories of pressure GPs experienced in dealing with EAS requests were revealed: emotional blackmail, control and direction by others, doubts about fulfilling the (...)
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  7.  54
    Physicians’ views on the role of relatives in euthanasia and physician-assisted suicide decision-making: a mixed-methods study among physicians in the Netherlands.H. Roeline Pasman, Agnes van der Heide, Bregje D. Onwuteaka-Philipsen & Sophie C. Renckens - 2024 - BMC Medical Ethics 25 (1):1-14.
    BackgroundRelatives have no formal position in the practice of euthanasia and physician-assisted suicide (EAS) according to Dutch legislation. However, research shows that physicians often involve relatives in EAS decision-making. It remains unclear why physicians do (not) want to involve relatives. Therefore, we examined how many physicians in the Netherlands involve relatives in EAS decision-making and explored reasons for (not) involving relatives and what involvement entails.MethodsIn a mixed-methods study, 746 physicians (33% response rate) completed a questionnaire, and 20 were interviewed. The (...)
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  8.  33
    Continuing or forgoing treatment at the end of life? Preferences of the general public and people with an advance directive.Matthijs P. S. van Wijmen, H. Roeline W. Pasman, Guy A. M. Widdershoven & Bregje D. Onwuteaka-Philipsen - 2015 - Journal of Medical Ethics 41 (8):599-606.
  9.  33
    Trajectories to seeking demedicalised assistance in suicide: a qualitative in-depth interview study.Martijn Hagens, Bregje D. Onwuteaka-Philipsen & H. Roeline W. Pasman - 2017 - Journal of Medical Ethics 43 (8):543-548.
    Background In the Netherlands, people can receive (limited) demedicalised assistance in suicide (DAS)—an option less well known than physician-assisted dying (PAD). Aim This study explores which trajectories people take to seek DAS, through open-coding and inductive analysis of in-depth interviews with 17 people who receive(d) DAS from counsellors facilitated by foundation De Einder. Results People sought DAS as a result of current suffering or as a result of anticipating possible prospective suffering. People with current suffering were unable or assumed they (...)
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  10.  37
    A protocol for consultation of another physician in cases of euthanasia and assisted suicide.Bregje D. Onwuteaka-Philipsen & Gerrit van der Wal - 2001 - Journal of Medical Ethics 27 (5):331-337.
    Objective—Consultation of another physician is an important method of review of the practice of euthanasia. For the project “support and consultation in euthanasia in Amsterdam” which is aimed at professionalising consultation, a protocol for consultation was developed to support the general practitioners who were going to work as consultants and to ensure uniformity. Participants—Ten experts (including general practitioners who were experienced in euthanasia and consultation, a psychiatrist, a social geriatrician, a professor in health law and a public prosecutor) and the (...)
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  11.  44
    Old age and forgoing treatment: a nationwide mortality follow-back study in the Netherlands.Sandra Martins Pereira, H. Roeline Pasman, Agnes van der Heide, Johannes J. M. van Delden & Bregje D. Onwuteaka-Philipsen - 2015 - Journal of Medical Ethics 41 (9):766-770.
  12.  56
    Advance directives in the netherlands: An empirical contribution to the exploration of a cross-cultural perspective on advance directives.Matthijs P. S. van Wijmen, Mette L. Rurup, H. Roeline W. Pasman, Pam J. Kaspers & Bregje D. Onwuteaka-Philipsen - 2010 - Bioethics 24 (3):118-126.
    Research Objective: This study focuses on ADs in the Netherlands and introduces a cross-cultural perspective by comparing it with other countries. Methods: A questionnaire was sent to a panel comprising 1621 people representative of the Dutch population. The response was 86%. Results: 95% of the respondents didn't have an AD, and 24% of these were not familiar with the idea of drawing up an AD. Most of those familiar with ADs knew about the Advanced Euthanasia Directive (AED, 64%). Both low (...)
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  13.  41
    End-of-life decisions for children under 1 year of age in the Netherlands: decreased frequency of administration of drugs to deliberately hasten death.Katja ten Cate, Suzanne van de Vathorst, Bregje D. Onwuteaka-Philipsen & Agnes van der Heide - 2015 - Journal of Medical Ethics 41 (10):795-798.
    Objective To assess whether the frequency of end-of-life decisions for children under 1 year of age in the Netherlands has changed since ultrasound examination around 20 weeks of gestation became routine in 2007 and after a legal provision for deliberately ending the life of a newborn was set up that same year. Methodology This was a recurrent nationwide cross-sectional study in the Netherlands. In 2010, a sample of death certificates from children under 1 year of age was derived from the (...)
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  14.  27
    Patient perspectives on advance euthanasia directives in Huntington’s disease. A qualitative interview study.Bregje D. Onwuteaka-Philipsen, Cees M. P. M. Hertogh, Ruth B. Veenhuizen, Els M. L. Verschuur, Marja F. I. A. Depla & Marina R. Ekkel - 2022 - BMC Medical Ethics 23 (1):1-8.
    BackgroundHuntington’s disease has a poor prognosis. For HD patients in the Netherlands, one way of dealing with their poor prognosis is by drawing up an advance euthanasia directive. Little is known about the perspectives of HD patients on their AED.AimTo gain insight into patients’ views on and attitudes towards their AED, and changes over time.MethodsA longitudinal qualitative interview study using 1 to 6 semi-structured interviews over a period of maximum three years. Nine HD patients who either had an AED or (...)
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  15.  34
    Current wishes to die; characteristics of middle-aged and older Dutch adults who are ready to give up on life: a cross-sectional study.Bregje D. Onwuteaka-Philipsen, Wim Benneker, Martijn Huisman, H. Roeline W. Pasman & Roosmarijne M. K. Kox - 2021 - BMC Medical Ethics 22 (1):1-14.
    BackgroundLiterature shows that middle-aged and older adults sometimes experience a wish to die. Reasons for these wishes may be complex and involve multiple factors. One important question is to what extent people with a wish to die have medically classifiable conditions. Aim(1) Estimate the prevalence of a current wish to die among middle-aged and older adults in The Netherlands; (2) explore which factors within domains of vulnerability (physical, cognitive, social and psychological) are associated with a current wish to die; (3) (...)
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  16.  44
    Consultation and Discussion with Other Physicians in Cases of Requests for Euthanasia and Assisted Suicide Refused by Family Physicians.Bregje D. Onwuteaka-Philipsen, Gerrit van der Wal & Lode Wigersma - 2000 - Cambridge Quarterly of Healthcare Ethics 9 (3):381-390.
    In the Netherlands, in 1995 approximately 9700 people explicitly requested euthanasia or assisted suicide, and EAS was performed approximately 3600 times. The most important reasons for not performing EAS when requested by a patient were that the patient died before EAS was performed, or that the physician refused the request.
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  17.  28
    Experiences with counselling to people who wish to be able to self-determine the timing and manner of one’s own end of life: a qualitative in-depth interview study.Martijn Hagens, Marianne C. Snijdewind, Kirsten Evenblij, Bregje D. Onwuteaka-Philipsen & H. Roeline W. Pasman - 2021 - Journal of Medical Ethics 47 (1):39-46.
    BackgroundIn the Netherlands, Foundation De Einder offers counselling to people who wish to be able to self-determine the timing and manner of their end of life.AimThis study explores the experiences with counselling that counselees receive from counsellors facilitated by Foundation De Einder.MethodsOpen coding and inductive analysis of in-depth interviews with 17 counselees.ResultsCounselling ranged from solely receiving information about lethal medication to combining this with psychological counselling about matters of life and death, and the effects for close ones. Counselees appreciated the (...)
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