5 found
Order:
  1.  15
    Evolution of Research Ethics in a Low Resource Setting: A Case for Uganda.Joseph Ochieng, Erisa Mwaka, Betty Kwagala & Nelson Sewankambo - 2020 - Developing World Bioethics 20 (1):50-60.
    Direct download  
     
    Export citation  
     
    Bookmark   1 citation  
  2.  5
    A Scoping Review of Genetics and Genomics Research Ethics Policies and Guidelines for Africa.Joseph Ochieng, Nelson K. Sewankambo, John Barugahare, Betty Kwagala, Juli M. Bollinger, Erisa Mwaka, Betty Cohn & Joseph Ali - 2021 - BMC Medical Ethics 22 (1):1-15.
    BackgroundGenetics and genomics research is increasingly being conducted around the world; yet, researchers and research oversight entities in many countries have struggled with ethical challenges. A range of ethics and regulatory issues need to be addressed through comprehensive policy frameworks that integrate with local environments. While important efforts have been made to enhance understanding and awareness of ethical dimensions of GGR in Africa, including through the H3Africa initiative, there remains a need for in-depth policy review, at a country-level, to inform (...)
    No categories
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   1 citation  
  3.  49
    Payments and Direct Benefits in HIV/AIDS Related Research Projects in Uganda.Julius Ecuru, Douglas Wassenaar & Betty Kwagala - 2010 - Ethics and Behavior 20 (2):95-109.
    Paying research participants in developing countries like Uganda raises ethical concerns over potential for undue inducement. This article, based on an exploratory study, reviewed 49 research protocols from a national HIV/AIDS research ethics committee database. Payments mainly adhered to the reimbursement and compensation payment models. Offers made were diverse but basic in order to limit undue inducement. Implications in terms of undue inducement and possible impact on participants and research are discussed. We end by recommending standardization across comparable studies in (...)
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark   2 citations  
  4. Collection and Use of Human Materials During TB Clinical Research; a Review of Practices.Nelson Sewankambo, Betty Kwagala & Joseph Ochieng - 2022 - BMC Medical Ethics 23 (1):1-6.
    BackgroundHuman biological materials are usually stored for possible future use in research because they preserve valuable biological information, save time and resources, which would have been spent on collection of fresh samples. However, use of these materials may pose ethical challenges such as unauthorized disclosure of genetic information, which can result in dire consequences for individuals or communities including discrimination, stigma, and psychological harm; has biosecurity implications; and loss of control or ownership of samples or data. To understand these problems (...)
    No categories
    Direct download (3 more)  
     
    Export citation  
     
    Bookmark  
  5.  2
    Perspectives and Ethical Considerations for Return of Genetics and Genomics Research Results: A Qualitative Study of Genomics Researchers in Uganda.Nelson K. Sewankambo, Joseph Ali, Deborah Ekusai-Sebatta, Erisa Mwaka, John Barugahare, Betty Kwagala & Joseph Ochieng - 2021 - BMC Medical Ethics 22 (1):1-9.
    BackgroundThe return of genetics and genomics research results has been a subject of ongoing global debate. Such feedback is ethically desirable to update participants on research findings particularly those deemed clinically significant. Although there is limited literature, debate continues in African on what constitutes appropriate practice regarding the return of results for genetics and genomics research. This study explored perspectives and ethical considerations of Ugandan genomics researchers regarding the return of genetics and genomics research results.MethodsThis was a qualitative study that (...)
    Direct download (2 more)  
     
    Export citation  
     
    Bookmark