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Bernice S. Elger [39]Bernice Simone Elger [28]
  1.  59
    Intentional machines: A defence of trust in medical artificial intelligence.Georg Starke, Rik van den Brule, Bernice Simone Elger & Pim Haselager - 2021 - Bioethics 36 (2):154-161.
    Trust constitutes a fundamental strategy to deal with risks and uncertainty in complex societies. In line with the vast literature stressing the importance of trust in doctor–patient relationships, trust is therefore regularly suggested as a way of dealing with the risks of medical artificial intelligence (AI). Yet, this approach has come under charge from different angles. At least two lines of thought can be distinguished: (1) that trusting AI is conceptually confused, that is, that we cannot trust AI; and (2) (...)
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  2.  83
    Mapping ethical issues in the use of smart home health technologies to care for older persons: a systematic review.Nadine Andrea Felber, Yi Jiao Tian, Félix Pageau, Bernice Simone Elger & Tenzin Wangmo - 2023 - BMC Medical Ethics 24 (1):1-13.
    Background The worldwide increase in older persons demands technological solutions to combat the shortage of caregiving and to enable aging in place. Smart home health technologies (SHHTs) are promoted and implemented as a possible solution from an economic and practical perspective. However, ethical considerations are equally important and need to be investigated. Methods We conducted a systematic review according to the PRISMA guidelines to investigate if and how ethical questions are discussed in the field of SHHTs in caregiving for older (...)
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  3.  35
    Intentional machines: A defence of trust in medical artificial intelligence.Georg Starke, Rik Brule, Bernice Simone Elger & Pim Haselager - 2021 - Bioethics 36 (2):154-161.
    Bioethics, Volume 36, Issue 2, Page 154-161, February 2022.
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  4.  34
    An update on the “empirical turn” in bioethics: analysis of empirical research in nine bioethics journals.Tenzin Wangmo, Sirin Hauri, Eloise Gennet, Evelyn Anane-Sarpong, Veerle Provoost & Bernice S. Elger - 2018 - BMC Medical Ethics 19 (1):6.
    A review of literature published a decade ago noted a significant increase in empirical papers across nine bioethics journals. This study provides an update on the presence of empirical papers in the same nine journals. It first evaluates whether the empirical trend is continuing as noted in the previous study, and second, how it is changing, that is, what are the characteristics of the empirical works published in these nine bioethics journals. A review of the same nine journals was conducted (...)
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  5.  44
    Artificial intelligence and the doctor–patient relationship expanding the paradigm of shared decision making.Giorgia Lorenzini, Laura Arbelaez Ossa, David Martin Shaw & Bernice Simone Elger - 2023 - Bioethics 37 (5):424-429.
    Artificial intelligence (AI) based clinical decision support systems (CDSS) are becoming ever more widespread in healthcare and could play an important role in diagnostic and treatment processes. For this reason, AI‐based CDSS has an impact on the doctor–patient relationship, shaping their decisions with its suggestions. We may be on the verge of a paradigm shift, where the doctor–patient relationship is no longer a dual relationship, but a triad. This paper analyses the role of AI‐based CDSS for shared decision‐making to better (...)
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  6.  64
    Emotion and Value in the Evaluation of Medical Decision-Making Capacity: A Narrative Review of Arguments.Helena Hermann, Manuel Trachsel, Bernice S. Elger & Nikola Biller-Andorno - 2016 - Frontiers in Psychology 7:197511.
    ver since the traditional criteria for medical decision-making capacity (understanding, appreciation, reasoning, evidencing a choice) were formulated, they have been criticized for not taking sufficient account of emotions or values that seem, according to the critics and in line with clinical experiences, essential to decision-making capacity. The aim of this paper is to provide a nuanced and structured overview of the arguments provided in the literature emphasizing the importance of these factors and arguing for their inclusion in competence evaluations. Moreover, (...)
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  7.  47
    Brain–Computer Interfaces, Completely Locked-In State in Neurodegenerative Diseases, and End-of-Life Decisions.Christopher Poppe & Bernice S. Elger - 2024 - Journal of Bioethical Inquiry 21 (1):19-27.
    In the future, policies surrounding end-of-life decisions will be faced with the question of whether competent people in a completely locked-in state should be enabled to make end-of-life decisions via brain-computer interfaces (BCI). This article raises ethical issues with acting through BCIs in the context of these decisions, specifically self-administration requirements within assisted suicide policies. We argue that enabling patients to end their life even once they have entered completely locked-in state might, paradoxically, prolong and uphold their quality of life.
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  8.  25
    Bioethical Implications of Vulnerability and Politics for Healthcare in Ethiopia and The Ways Forward.Kirubel Manyazewal Mussie, Bernice Simone Elger, Mirgissa Kaba, Félix Pageau & Isabelle Wienand - 2022 - Journal of Bioethical Inquiry 19 (4):667-681.
    Vulnerability and politics are among the relevant and key topics of discussion in the Ethiopian healthcare context. Attempts by the formal bioethics structure in Ethiopia to deliberate on ethical issues relating to vulnerability and politics in healthcare have been limited, even though the informal analysis of bioethical issues has been present in traditional Ethiopian communities. This is reflected in religion, social values, and local moral underpinnings. Thus, the aim of this paper is to discuss the bioethical implications of vulnerability and (...)
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  9.  37
    Towards a pragmatist dealing with algorithmic bias in medical machine learning.Georg Starke, Eva De Clercq & Bernice S. Elger - 2021 - Medicine, Health Care and Philosophy 24 (3):341-349.
    Machine Learning (ML) is on the rise in medicine, promising improved diagnostic, therapeutic and prognostic clinical tools. While these technological innovations are bound to transform health care, they also bring new ethical concerns to the forefront. One particularly elusive challenge regards discriminatory algorithmic judgements based on biases inherent in the training data. A common line of reasoning distinguishes between justified differential treatments that mirror true disparities between socially salient groups, and unjustified biases which do not, leading to misdiagnosis and erroneous (...)
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  10.  36
    Machine learning applications in healthcare and the role of informed consent: Ethical and practical considerations.Giorgia Lorenzini, David Martin Shaw, Laura Arbelaez Ossa & Bernice Simone Elger - forthcoming - Clinical Ethics:147775092210944.
    Informed consent is at the core of the clinical relationship. With the introduction of machine learning in healthcare, the role of informed consent is challenged. This paper addresses the issue of whether patients must be informed about medical ML applications and asked for consent. It aims to expose the discrepancy between ethical and practical considerations, while arguing that this polarization is a false dichotomy: in reality, ethics is applied to specific contexts and situations. Bridging this gap and considering the whole (...)
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  11.  45
    Relational Capacity: Broadening the Notion of Decision-Making Capacity in Paediatric Healthcare.Katharina M. Ruhe, Eva De Clercq, Tenzin Wangmo & Bernice S. Elger - 2016 - Journal of Bioethical Inquiry 13 (4):515-524.
    Problems arise when applying the current procedural conceptualization of decision-making capacity to paediatric healthcare: Its emphasis on content-neutrality and rational cognition as well as its implicit assumption that capacity is an ability that resides within a person jeopardizes children’s position in decision-making. The purpose of the paper is to challenge this dominant account of capacity and provide an alternative for how capacity should be understood in paediatric care. First, the influence of developmental psychologist Jean Piaget upon the notion of capacity (...)
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  12.  16
    IAB 16th World Congress.Voo Teck Chuan, Tenzin Wangmo & Bernice S. Elger - 2023 - Bioethics 38 (1):3-4.
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  13.  62
    Structural racism in precision medicine: leaving no one behind.Tenzin Wangmo, Bernice Simone Elger, David Shaw, Andrea Martani & Lester Darryl Geneviève - 2020 - BMC Medical Ethics 21 (1):1-13.
    Precision medicine is an emerging approach to individualized care. It aims to help physicians better comprehend and predict the needs of their patients while effectively adopting in a timely manner the most suitable treatment by promoting the sharing of health data and the implementation of learning healthcare systems. Alongside its promises, PM also entails the risk of exacerbating healthcare inequalities, in particular between ethnoracial groups. One often-neglected underlying reason why this might happen is the impact of structural racism on PM (...)
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  14.  21
    Evaluation of decision-making capacity in patients with dementia: challenges and recommendations from a secondary analysis of qualitative interviews.Christopher Poppe, Bernice S. Elger, Tenzin Wangmo & Manuel Trachsel - 2020 - BMC Medical Ethics 21 (1):1-8.
    BackgroundEvaluation of decision-making capacity to consent to medical treatment has proved to be difficult in patients with dementia. Studies showed that physicians are often insufficiently trained in the evaluation of decision-making capacity. In this study, we present findings from a secondary analysis of a qualitative interviews with physicians. These interviews were initially used to assess usability of an instrument for the evaluation of decision-making capacity. By looking at difficult cases of decision-making capacity evaluation in patients with dementia, we provide recommendations (...)
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  15.  19
    Trust trumps comprehension, visceral factors trump all: A psychological cascade constraining informed consent to clinical trials: A qualitative study with stable patients.Michael Rost, Rebecca Nast, Bernice S. Elger & David Shaw - 2021 - Research Ethics 17 (1):87-102.
    This paper addresses psychological factors that might interfere with informed consent on the part of stable patients as potential early-phase clinical trial participants. Thirty-six semistructured interviews with patients who had either diabetes or gout were conducted. We investigated stable patients’ attitudes towards participating in a fictitious first-in-human trial of a novel intervention. We focused on an in-depth analysis of those statements and explanations that indicated the existence of psychological factors impairing decision-making capacity. Three main themes emerged: insufficient comprehension of the (...)
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  16.  27
    Continuous Deep Sedation and Euthanasia in Pediatrics: Does One Really Exclude the Other for Terminally Ill Patients?Domnita O. Badarau, Eva De Clercq & Bernice S. Elger - 2019 - Journal of Medicine and Philosophy 44 (1):50-70.
    Debates on morally acceptable and lawful end-of-life practices in pediatrics were reignited by the recent amendment in Belgian law to allow euthanasia for minors of any age who meet the criteria for capacity. Euthanasia and its legalization in pediatrics are often opposed based on the availability of aggressive palliative sedation. For terminally ill patients, this type of sedation is often identified as continuous and deep sedation until death. We demonstrate that this reasoning is based on flawed assumptions: CDS is a (...)
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  17.  89
    CRISPR and the Rebirth of Synthetic Biology.Raheleh Heidari, David Martin Shaw & Bernice Simone Elger - 2017 - Science and Engineering Ethics 23 (2):351-363.
    Emergence of novel genome engineering technologies such as clustered regularly interspaced short palindromic repeat has refocused attention on unresolved ethical complications of synthetic biology. Biosecurity concerns, deontological issues and human right aspects of genome editing have been the subject of in-depth debate; however, a lack of transparent regulatory guidelines, outdated governance codes, inefficient time-consuming clinical trial pathways and frequent misunderstanding of the scientific potential of cutting-edge technologies have created substantial obstacles to translational research in this area. While a precautionary principle (...)
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  18.  27
    Adolescent oncofertility discussions: Recommendations from a systematic literature review.Dorit Barlevy, Bernice S. Elger, Tenzin Wangmo & Vardit Ravitsky - 2017 - AJOB Empirical Bioethics 8 (2):106-115.
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  19.  60
    Memory Interventions in the Criminal Justice System: Some Practical Ethical Considerations.Laura Y. Cabrera & Bernice S. Elger - 2016 - Journal of Bioethical Inquiry 13 (1):95-103.
    In recent years, discussion around memory modification interventions has gained attention. However, discussion around the use of memory interventions in the criminal justice system has been mostly absent. In this paper we start by highlighting the importance memory has for human well-being and personal identity, as well as its role within the criminal forensic setting; in particular, for claiming and accepting legal responsibility, for moral learning, and for retribution. We provide examples of memory interventions that are currently available for medical (...)
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  20.  36
    Patient education as empowerment and self-rebiasing.Fabrice Jotterand, Antonio Amodio & Bernice S. Elger - 2016 - Medicine, Health Care and Philosophy 19 (4):553-561.
    The fiduciary nature of the patient-physician relationship requires clinicians to act in the best interest of their patients. Patients are vulnerable due to their health status and lack of medical knowledge, which makes them dependent on the clinicians’ expertise. Competent patients, however, may reject the recommendations of their physician, either refusing beneficial medical interventions or procedures based on their personal views that do not match the perceived medical indication. In some instances, the patients’ refusal may jeopardize their health or life (...)
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  21.  45
    Digital Technologies for Schizophrenia Management: A Descriptive Review.Olga Chivilgina, Bernice S. Elger & Fabrice Jotterand - 2021 - Science and Engineering Ethics 27 (2):1-22.
    While the implementation of digital technology in psychiatry appears promising, there is an urgent need to address the implications of the absence of ethical design in the early development of such technologies. Some authors have noted the gap between technology development and ethical analysis and have called for an upstream examination of the ethical issues raised by digital technologies. In this paper, we address this suggestion, particularly in relation to digital healthcare technologies for patients with schizophrenia spectrum disorders. The introduction (...)
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  22.  29
    Paternalistic breaches of confidentiality in prison: mental health professionals’ attitudes and justifications.Bernice Simone Elger, Violet Handtke & Tenzin Wangmo - 2015 - Journal of Medical Ethics 41 (6):496-500.
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  23.  24
    Medical Ethics in Correctional Healthcare: An International Comparison of Guidelines.Bernice Simone Elger - 2008 - Journal of Clinical Ethics 19 (3):234-248.
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  24.  52
    End-of-Life Decision Making in Pediatrics: Literature Review on Children's and Adolescents’ Participation.Katharina M. Ruhe, Domnita O. Badarau, Bernice S. Elger & Tenzin Wangmo - 2014 - AJOB Empirical Bioethics 5 (2):44-54.
    Background: Pediatric guidelines recommend that children and adolescents participate in a developmentally appropriate way in end-of-life decision making. Shared decision making in pediatrics is unique because of the triadic relationship of patient, parents, and physician. The involvement of the patient may vary on a continuum from no involvement to being the sole decision maker. However, the effects of child participation have not been thoroughly studied. The aims of this literature review are to identify studies on end-of-life decision making in pediatrics, (...)
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  25.  44
    Disclosure of Past Crimes: An Analysis of Mental Health Professionals' Attitudes Towards Breaching Confidentiality.Tenzin Wangmo, Violet Handtke & Bernice Simone Elger - 2014 - Journal of Bioethical Inquiry 11 (3):347-358.
    Ensuring confidentiality is the cornerstone of trust within the doctor–patient relationship. However, health care providers have an obligation to serve not only their patient’s interests but also those of potential victims and society, resulting in circumstances where confidentiality must be breached. This article describes the attitudes of mental health professionals when patients disclose past crimes unknown to the justice system. Twenty-four MHPs working in Swiss prisons were interviewed. They shared their experiences concerning confidentiality practices and attitudes towards breaching confidentiality in (...)
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  26.  34
    Autonomy and Reproductive Rights of Married Ikwerre Women in Rivers State, Nigeria.Chitu Womehoma Princewill, Ayodele Samuel Jegede, Tenzin Wangmo, Anita Riecher-Rössler & Bernice Simone Elger - 2017 - Journal of Bioethical Inquiry 14 (2):205-215.
    A woman’s lack of or limited reproductive autonomy could lead to adverse health effects, feeling of being inferior, and above all being unable to adequately care for her children. Little is known about the reproductive autonomy of married Ikwerre women of Rivers State, Nigeria. This study demonstrates how Ikwerre women understand the terms autonomy and reproductive rights and what affects the exercise of these rights. An exploratory research design was employed for this study. A semi-structured interview schedule was used to (...)
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  27.  44
    Autonomy and Fear of Synthetic Biology: How Can Patients’ Autonomy Be Enhanced in the Field of Synthetic Biology? A Qualitative Study with Stable Patients.Milenko Rakic, Isabelle Wienand, David Shaw, Rebecca Nast & Bernice S. Elger - 2017 - Science and Engineering Ethics 23 (2):375-388.
    We analyzed stable patients’ views regarding synthetic biology in general, the medical application of synthetic biology, and their potential participation in trials of synthetic biology in particular. The aim of the study was to find out whether patients’ views and preferences change after receiving more detailed information about synthetic biology and its clinical applications. The qualitative study was carried out with a purposive sample of 36 stable patients, who suffered from diabetes or gout. Interviews were transcribed verbatim, translated and fully (...)
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  28.  40
    Parents’ and Physicians’ Perceptions of Children’s Participation in Decision-making in Paediatric Oncology: A Quantitative Study.Michael Rost, Tenzin Wangmo, Felix Niggli, Karin Hartmann, Heinz Hengartner, Marc Ansari, Pierluigi Brazzola, Johannes Rischewski, Maja Beck-Popovic, Thomas Kühne & Bernice S. Elger - 2017 - Journal of Bioethical Inquiry 14 (4):555-565.
    The goal is to present how shared decision-making in paediatric oncology occurs from the viewpoints of parents and physicians. Eight Swiss Pediatric Oncology Group centres participated in this prospective study. The sample comprised a parent and physician of the minor patient. Surveys were statistically analysed by comparing physicians’ and parents’ perspectives and by evaluating factors associated with children’s actual involvement. Perspectives of ninety-one parents and twenty physicians were obtained for 151 children. Results indicate that for six aspects of information provision (...)
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  29.  28
    Better to know than to imagine: Including children in their health care.Tenzin Wangmo, Eva De Clercq, Katharina M. Ruhe, Maja Beck-Popovic, Johannes Rischewski, Regula Angst, Marc Ansari & Bernice S. Elger - 2017 - AJOB Empirical Bioethics 8 (1):11-20.
    Background: This article describes the overall attitudes of children, their parents, and attending physicians toward including or excluding pediatric patients in medical communication and health care decision-making processes. Methods: Fifty-two interviews were carried out with pediatric patients (n = 17), their parents (n = 19), and attending oncologists (n = 16) in eight Swiss pediatric oncology centers. The interviews were analyzed using thematic coding. Results: Parenting styles, the child's personality, and maturity are factors that have a great impact upon the (...)
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  30.  43
    Research involving prisoners: Consensus and controversies in international and european regulations.Bernice S. Elger - 2008 - Bioethics 22 (4):224–238.
    This article examines international and European regulations on research involving prisoners for consensus, differences, and their consequences, and offers a critical evaluation of the various approaches. Agreement exists that prisoners are at risk of coercion, which might interfere with their ability to provide voluntary informed consent to research. Controversy exists about the magnitude of this risk and the consequences that should follow from this risk. Two strategies are proposed for a method of protecting prisoners that does not lead to discrimination: (...)
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  31.  41
    Defining Nano, Nanotechnology and Nanomedicine: Why Should It Matter?Priya Satalkar, Bernice Simone Elger & David M. Shaw - 2016 - Science and Engineering Ethics 22 (5):1255-1276.
    Nanotechnology, which involves manipulation of matter on a ‘nano’ scale, is considered to be a key enabling technology. Medical applications of nanotechnology are expected to significantly improve disease diagnostic and therapeutic modalities and subsequently reduce health care costs. However, there is no consensus on the definition of nanotechnology or nanomedicine, and this stems from the underlying debate on defining ‘nano’. This paper aims to present the diversity in the definition of nanomedicine and its impact on the translation of basic science (...)
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  32.  20
    Integrating ethics in AI development: a qualitative study.Laura Arbelaez Ossa, Giorgia Lorenzini, Stephen R. Milford, David Shaw, Bernice S. Elger & Michael Rost - 2024 - BMC Medical Ethics 25 (1):1-11.
    Background While the theoretical benefits and harms of Artificial Intelligence (AI) have been widely discussed in academic literature, empirical evidence remains elusive regarding the practical ethical challenges of developing AI for healthcare. Bridging the gap between theory and practice is an essential step in understanding how to ethically align AI for healthcare. Therefore, this research examines the concerns and challenges perceived by experts in developing ethical AI that addresses the healthcare context and needs. Methods We conducted semi-structured interviews with 41 (...)
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  33. Ethical Norms and the International Governance of Genetic Databases and Biobanks: Findings from an International Study.Alexander Morgan Capron, Alexandre Mauron, Bernice Simone Elger, Andrea Boggio, Agomoni Ganguli-Mitra & Nikola Biller-Andorno - 2009 - Kennedy Institute of Ethics Journal 19 (2):101-124.
    This article highlights major results of a study into the ethical norms and rules governing biobanks. After describing the methodology, the findings regarding four topics are presented: (1) the ownership of human biological samples held in biobanks; (2) the regulation of researchers’ use of samples obtained from biobanks; (3) what constitutes “collective consent” to genetic research, and when it is needed; and (4) benefit sharing and remuneration of research participants. The paper then summarizes key lessons to be drawn from the (...)
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  34.  24
    Expert Perspectives on Western European Prison Health Services: Do Ageing Prisoners Receive Equivalent Care?Wiebke Bretschneider & Bernice Simone Elger - 2014 - Journal of Bioethical Inquiry 11 (3):319-332.
    Health care in prison and particularly the health care of older prisoners are increasingly important topics due to the growth of the ageing prisoner population. The aim of this paper is to gain insight into the approaches used in the provision of equivalent health care to ageing prisoners and to confront the intuitive definition of equivalent care and the practical and ethical challenges that have been experienced by individuals working in this field. Forty interviews took place with experts working in (...)
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  35.  37
    Conducting Ethics Research in Prison: Why, Who, and What?David M. Shaw, Tenzin Wangmo & Bernice S. Elger - 2014 - Journal of Bioethical Inquiry 11 (3):275-278.
    Why devote an issue of an ethics journal to prison medicine? Why conduct ethics research in prisons in the first place? In this editorial, we explain why prison ethics research is vitally important and illustrate our argument by introducing and briefly discussing the fascinating papers in this special issue of the Journal of Bioethical Inquiry.Ethics is often regarded as a theoretical discipline. This is in large part due to ethics’ origin as a type of moral philosophy, which is frequently associated (...)
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  36.  12
    Emerging Issues in Prison Health.Bernice S. Elger, Catherine Ritter & Heino Stöver (eds.) - 2018 - Springer.
    This volume recognizes and addresses the health care issues of prisoners, to establish best practices and to learn about approaches to these challenges from around the world. It presents new evidence on several emerging and classical prison health issues. The first goal of this volume is to address emerging issues related to health in prison. Second, it presents the most recent research-based evidence and translates it to the practice. The third goal, is that it allows for sufficient diversity while also (...)
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  37.  27
    Contemporary Debates in Bioethics: European Perspectives.Emilian Mihailov, Tenzin Wangmo, Victoria Federiuc & Bernice S. Elger (eds.) - 2018 - [Berlin]: De Gruyter Open.
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  38.  29
    Rethinking advanced motherhood: a new ethical narrative.Eva De Clercq, Andrea Martani, Nicolas Vulliemoz, Bernice S. Elger & Tenzin Wangmo - 2023 - Medicine, Health Care and Philosophy 26 (4):591-603.
    The aim of the study is to rethink the ethics of advanced motherhood. In the literature, delayed childbearing is usually discussed in the context of reproductive justice, and in relationship to ethical issues associated with the use and risk of assisted reproductive technologies. We aim to go beyond these more “traditional” ways in which reproductive ethics is framed by revisiting ethics itself through the lens of the figure of the so-called “older” mother. For this purpose, we start by exploring some (...)
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  39.  32
    Application of Ethical Principles to Research using Public Health Data in The Global South: Perspectives from Africa.Evelyn Anane-Sarpong, Tenzin Wangmo, Osman Sankoh, Marcel Tanner & Bernice Simone Elger - 2018 - Developing World Bioethics 18 (2):98-108.
    Existing ethics guidelines, influential literature and policies on ethical research generally focus on real-time data collection from humans. They enforce individual rights and liberties, thereby lowering need for aggregate protections. Although dependable, emerging public health research paradigms like research using public health data raise new challenges to their application. Unlike traditional research, RUPD is population-based, aligned to public health activities, and often reliant on pre-collected longitudinal data. These characteristics, when considered in relation to the generally lower protective ethico-legal frameworks of (...)
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  40.  23
    Teaching Bioethics to a Large Number of Biology and Pharma Students: Lessons Learned.Sabrina Engel-Glatter, Laura Y. Cabrera, Yousri Marzouki & Bernice S. Elger - 2018 - Ethics and Behavior 28 (1):70-90.
    To be made aware of bioethical issues related to their disciplines, undergraduate students in biology and pharmaceutical sciences at the University of Basel are required to enroll in the bioethics course called “Introduction to Bioethics”. This article describes the chances and challenges faced when teaching a large number of undergraduate biology and pharmaceutical sciences students. Attention is drawn to the relevance and specific ethical issues that biology and pharmaceutical sciences students may be confronted with and to how these could be (...)
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  41.  43
    “You cannot collect data using your own resources and put It on open access”: Perspectives from Africa about public health data‐sharing.Evelyn Anane-Sarpong, Tenzin Wangmo, Claire Leonie Ward, Osman Sankoh, Marcel Tanner & Bernice Simone Elger - 2017 - Developing World Bioethics 18 (4):394-405.
    Data-sharing is a desired default in the field of public health and a source of much ethical deliberation. Sharing data potentially contributes the largest, most efficient source of scientific data, but is fraught with contextual challenges which make stakeholders, particularly those in under-resourced contexts hesitant or slow to share. Relatively little empirical research has engaged stakeholders in discussing the issue. This study sought to explore relevant experiences, contextual, and subjective explanations around the topic to provide a rich and detailed presentation (...)
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  42.  45
    Decision making in pediatric oncology: Views of parents and physicians in two European countries.Domnita O. Badarau, Katharina Ruhe, Thomas Kühne, Eva De Clercq, Anca Colita, Bernice S. Elger & Tenzin Wangmo - 2017 - AJOB Empirical Bioethics 8 (1):21-31.
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  43.  5
    AI Through Ethical Lenses: A Discourse Analysis of Guidelines for AI in Healthcare.Laura Arbelaez Ossa, Stephen R. Milford, Michael Rost, Anja K. Leist, David M. Shaw & Bernice S. Elger - 2024 - Science and Engineering Ethics 30 (3):1-21.
    While the technologies that enable Artificial Intelligence (AI) continue to advance rapidly, there are increasing promises regarding AI’s beneficial outputs and concerns about the challenges of human–computer interaction in healthcare. To address these concerns, institutions have increasingly resorted to publishing AI guidelines for healthcare, aiming to align AI with ethical practices. However, guidelines as a form of written language can be analyzed to recognize the reciprocal links between its textual communication and underlying societal ideas. From this perspective, we conducted a (...)
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  44.  62
    Attitudes of Future Lawyers and Psychologists to the Use of Genetic Testing for Criminal Behavior.Bernice S. Elger - 2005 - Cambridge Quarterly of Healthcare Ethics 14 (3):329-345.
    Developments in the last several years have sparked renewed interest in the ethics of research involving humans. Issues relating to the global extent of research and its guiding principles are of particular importance to researchers, health officials, and individual ethics committees who want a deeper and more encompassing inquiry regarding the foundation and evolution of human research. This department of CQ launches a long overdue effort to explore these wider issues. Readers are invited to submit papers to Charles MacKay, 5011 (...)
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  45.  17
    Machine learning and its impact on psychiatric nosology: Findings from a qualitative study among German and Swiss experts.Georg Starke, Bernice Simone Elger & Eva De Clercq - 2023 - Philosophy and the Mind Sciences 4.
    The increasing integration of Machine Learning (ML) techniques into clinical care, driven in particular by Deep Learning (DL) using Artificial Neural Nets (ANNs), promises to reshape medical practice on various levels and across multiple medical fields. Much recent literature examines the ethical consequences of employing ML within medical and psychiatric practice but the potential impact on psychiatric diagnostic systems has so far not been well-developed. In this article, we aim to explore the challenges that arise from the recent use of (...)
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  46.  30
    ‘Doctor, what would you do in my position?’ Health professionals and the decision-making process in pregnancy monitoring.Solène Gouilhers Hertig, Samuele Cavalli, Claudine Burton-Jeangros & Bernice S. Elger - 2014 - Journal of Medical Ethics 40 (5):310-314.
    Objective Routine prenatal screening for Down syndrome challenges professional non-directiveness and patient autonomy in daily clinical practices. This paper aims to describe how professionals negotiate their role when a pregnant woman asks them to become involved in the decision-making process implied by screening.Methods Forty-one semi-structured interviews were conducted with gynaecologists–obstetricians and midwives in a large Swiss city.Results Three professional profiles were constructed along a continuum that defines the relative distance or proximity towards patients’ demands for professional involvement in the decision-making (...)
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  47.  43
    Understanding Death in Custody: A Case for a Comprehensive Definition.Géraldine Ruiz, Tenzin Wangmo, Patrick Mutzenberg, Jessica Sinclair & Bernice Simone Elger - 2014 - Journal of Bioethical Inquiry 11 (3):387-398.
    Prisoners sometimes die in prison, either due to natural illness, violence, suicide, or a result of imprisonment. The purpose of this study is to understand deaths in custody using qualitative methodology and to argue for a comprehensive definition of death in custody that acknowledges deaths related to the prison environment. Interviews were conducted with 33 experts, who primarily work as lawyers or forensic doctors with national and/or international organisations. Responses were coded and analysed qualitatively. Defining deaths in custody according to (...)
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  48.  19
    It takes a pirate to know one: ethical hackers for healthcare cybersecurity.Bernice Simone Elger, David Martin Shaw & Giorgia Lorenzini - 2022 - BMC Medical Ethics 23 (1):1-8.
    Healthcare cybersecurity is increasingly targeted by malicious hackers. This sector has many vulnerabilities and health data is very sensitive and valuable. Consequently, any damage caused by malicious intrusions is particularly alarming. The consequences of these attacks can be enormous and endanger patient care. Amongst the already-implemented cybersecurity measures and the ones that need to be further improved, this paper aims to demonstrate how penetration tests can greatly benefit healthcare cybersecurity. It is already proven that this approach has enforced cybersecurity in (...)
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  49.  41
    Proceed with diligence.Bernice S. Elger - 2012 - Journal of Medical Ethics 38 (9):529-530.
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  50.  25
    Cancer care in Romania: challenges and pitfalls of children's and adolescents' multifaceted involvement.Domnita O. Badarau, Eva De Clercq, Tenzin Wangmo, Monica Dragomir, Ingrid Miron, Thomas Kühne & Bernice S. Elger - 2016 - Journal of Medical Ethics 42 (12):757-761.
    Communication about diagnosis and medical treatment for children suffering from life-threatening illnesses is complex. It is a primary step in involving underage patients and families in care and lays the foundation for obtaining parental permission and patient assent for treatment. In practice child participation in care is often difficult to obtain due to patients' different and sometimes fluctuating preferences, but also parents' protective strategies. Physicians may be susceptible to parental wishes to limit information and feel uncomfortable discussing issues related to (...)
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