Results for 'Bernice E. Elger'

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  1.  32
    Prioritising Healthcare Workers for Ebola Treatment: Treating Those at Greatest Risk to Confer Greatest Benefit.Priya Satalkar, Bernice E. Elger & David M. Shaw - 2015 - Developing World Bioethics 15 (2):59-67.
    The Ebola epidemic in Western Africa has highlighted issues related to weak health systems, the politics of drug and vaccine development and the need for transparent and ethical criteria for use of scarce local and global resources during public health emergency. In this paper we explore two key themes. First, we argue that independent of any use of experimental drugs or vaccine interventions, simultaneous implementation of proven public health principles, community engagement and culturally sensitive communication are critical as these measures (...)
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  2.  31
    Attitudes of Future Lawyers and Psychologists to the Use of Genetic Testing for Criminal Behavior.Bernice S. Elger - 2005 - Cambridge Quarterly of Healthcare Ethics 14 (3):329-345.
    Developments in the last several years have sparked renewed interest in the ethics of research involving humans. Issues relating to the global extent of research and its guiding principles are of particular importance to researchers, health officials, and individual ethics committees who want a deeper and more encompassing inquiry regarding the foundation and evolution of human research. This department of CQ launches a long overdue effort to explore these wider issues. Readers are invited to submit papers to Charles MacKay, 5011 (...)
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  3.  38
    Protecting Human Health and Security in Digital Europe: How to Deal with the “Privacy Paradox”?Isabell Büschel, Rostane Mehdi, Anne Cammilleri, Yousri Marzouki & Bernice Elger - 2014 - Science and Engineering Ethics 20 (3):639-658.
    This article is the result of an international research between law and ethics scholars from Universities in France and Switzerland, who have been closely collaborating with technical experts on the design and use of information and communication technologies in the fields of human health and security. The interdisciplinary approach is a unique feature and guarantees important new insights in the social, ethical and legal implications of these technologies for the individual and society as a whole. Its aim is to shed (...)
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  4.  9
    Research on Prisoners ''“ a Comparison Between the Iom Committee Recommendations (2006) and European Regulations.Anne Spaulding Bernice S. Elger - 2010 - Bioethics 24 (1):1-13.
    ABSTRACTThe Institute of Medicine Committee on Ethical Considerations for Revisions to DHHS Regulations for Protection of Prisoners Involved in Research published its report in 2006. It was charged with developing an ethical framework for the conduct of research with prisoners and identifying the safeguards and conditions necessary to ensure that research with prisoners is conducted ethically. The recommendations contained in the IOM report differ from current European regulations in several ways, some being more restrictive and some less so. For example, (...)
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  5.  35
    Emotion and Value in the Evaluation of Medical Decision-Making Capacity: A Narrative Review of Arguments.Helena Hermann, Manuel Trachsel, Bernice S. Elger & Nikola Biller-Andorno - 2016 - Frontiers in Psychology 7.
    ver since the traditional criteria for medical decision-making capacity (understanding, appreciation, reasoning, evidencing a choice) were formulated, they have been criticized for not taking sufficient account of emotions or values that seem, according to the critics and in line with clinical experiences, essential to decision-making capacity. The aim of this paper is to provide a nuanced and structured overview of the arguments provided in the literature emphasizing the importance of these factors and arguing for their inclusion in competence evaluations. Moreover, (...)
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  6.  4
    Evaluation of Decision-Making Capacity in Patients with Dementia: Challenges and Recommendations From a Secondary Analysis of Qualitative Interviews.Christopher Poppe, Bernice S. Elger, Tenzin Wangmo & Manuel Trachsel - 2020 - BMC Medical Ethics 21 (1):1-8.
    BackgroundEvaluation of decision-making capacity to consent to medical treatment has proved to be difficult in patients with dementia. Studies showed that physicians are often insufficiently trained in the evaluation of decision-making capacity. In this study, we present findings from a secondary analysis of a qualitative interviews with physicians. These interviews were initially used to assess usability of an instrument for the evaluation of decision-making capacity. By looking at difficult cases of decision-making capacity evaluation in patients with dementia, we provide recommendations (...)
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  7.  4
    Emerging Issues in Prison Health.Bernice S. Elger, Catherine Ritter & Heino Stöver (eds.) - 2018 - Springer.
    This volume recognizes and addresses the health care issues of prisoners, to establish best practices and to learn about approaches to these challenges from around the world. It presents new evidence on several emerging and classical prison health issues. The first goal of this volume is to address emerging issues related to health in prison. Second, it presents the most recent research-based evidence and translates it to the practice. The third goal, is that it allows for sufficient diversity while also (...)
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  8.  16
    The Notion of Free Will and its Ethical Relevance for Decision-Making Capacity.Tobias Zürcher, Bernice Elger & Manuel Trachsel - 2019 - BMC Medical Ethics 20 (1):31.
    Obtaining informed consent from patients is a moral and legal duty and, thus, a key legitimation for medical treatment. The pivotal prerequisite for valid informed consent is decision-making capacity of the patient. Related to the question of whether and when consent should be morally and legally valid, there has been a long-lasting philosophical debate about freedom of will and the connection of freedom and responsibility. The scholarly discussion on decision-making capacity and its clinical evaluation does not sufficiently take into account (...)
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  9.  7
    Intentional Machines: A Defence of Trust in Medical Artificial Intelligence.Georg Starke, Rik Brule, Bernice Simone Elger & Pim Haselager - 2022 - Wiley: Bioethics 36 (2):154-161.
    Bioethics, Volume 36, Issue 2, Page 154-161, February 2022.
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  10.  8
    Paternalistic Breaches of Confidentiality in Prison: Mental Health Professionals’ Attitudes and Justifications.Bernice Simone Elger, Violet Handtke & Tenzin Wangmo - 2015 - Journal of Medical Ethics 41 (6):496-500.
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  11.  8
    Medical Ethics in Correctional Healthcare: An International Comparison of Guidelines.Bernice Simone Elger - 2008 - Journal of Clinical Ethics 19 (3):234.
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  12.  34
    Structural Racism in Precision Medicine: Leaving No One Behind.Tenzin Wangmo, Bernice Simone Elger, David Shaw, Andrea Martani & Lester Darryl Geneviève - 2020 - BMC Medical Ethics 21 (1):1-13.
    Precision medicine is an emerging approach to individualized care. It aims to help physicians better comprehend and predict the needs of their patients while effectively adopting in a timely manner the most suitable treatment by promoting the sharing of health data and the implementation of learning healthcare systems. Alongside its promises, PM also entails the risk of exacerbating healthcare inequalities, in particular between ethnoracial groups. One often-neglected underlying reason why this might happen is the impact of structural racism on PM (...)
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  13.  27
    Research Involving Prisoners: Consensus and Controversies in International and European Regulations.Bernice S. Elger - 2008 - Bioethics 22 (4):224–238.
    This article examines international and European regulations on research involving prisoners for consensus, differences, and their consequences, and offers a critical evaluation of the various approaches. Agreement exists that prisoners are at risk of coercion, which might interfere with their ability to provide voluntary informed consent to research. Controversy exists about the magnitude of this risk and the consequences that should follow from this risk. Two strategies are proposed for a method of protecting prisoners that does not lead to discrimination: (...)
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  14.  40
    Memory Interventions in the Criminal Justice System: Some Practical Ethical Considerations.Laura Y. Cabrera & Bernice S. Elger - 2016 - Journal of Bioethical Inquiry 13 (1):95-103.
    In recent years, discussion around memory modification interventions has gained attention. However, discussion around the use of memory interventions in the criminal justice system has been mostly absent. In this paper we start by highlighting the importance memory has for human well-being and personal identity, as well as its role within the criminal forensic setting; in particular, for claiming and accepting legal responsibility, for moral learning, and for retribution. We provide examples of memory interventions that are currently available for medical (...)
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  15.  10
    Relational Capacity: Broadening the Notion of Decision-Making Capacity in Paediatric Healthcare.Bernice Elger, Tenzin Wangmo, Eva Clercq & Katharina Ruhe - 2016 - Journal of Bioethical Inquiry 13 (4):515-524.
    Problems arise when applying the current procedural conceptualization of decision-making capacity to paediatric healthcare: Its emphasis on content-neutrality and rational cognition as well as its implicit assumption that capacity is an ability that resides within a person jeopardizes children’s position in decision-making. The purpose of the paper is to challenge this dominant account of capacity and provide an alternative for how capacity should be understood in paediatric care. First, the influence of developmental psychologist Jean Piaget upon the notion of capacity (...)
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  16. Ethical Issues of Human Genetic Databases: A Challenge to Classical Health Research Ethics?Bernice Elger - 2010 - Routledge.
    Elger splendidly describes the evolving global responses---both creative and misguided---to the ethical challenges arising in research using genetic databases and offers thoughtful suggestions for balancing the interests of science and `donors'. As insightful as it is comprehensive, this book is essential reading not only for bioethicists but for anyone who uses, oversees, or simply wants to understand biobanks, which are playing an increasingly essential role in biomedical and epidemiological research. Alexander M. Capron, University of Southern California, USA --.
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  17. Forensic Mental Health Professionals’ Perceptions of Their Dual Loyalty Conflict: Findings From a Qualitative Study.Tenzin Wangmo, Bernice Elger, Marcelo F. Aebi, Elmar Habermeyer, Ariel Eytan, Sophie Haesen & Helene Merkt - 2021 - BMC Medical Ethics 22 (1):1-15.
    BackgroundMental health professionals working in court-mandated treatment settings face ethical dilemmas due to their dual role in assuring their patient’s well-being while guaranteeing the security of the population. Clear practical guidelines to support these MHPs’ decision-making are lacking, amongst others, due to the ethical conflicts within this field. This qualitative interview study contributes to the much-needed empirical research on how MHPs resolve these ethical conflicts in daily clinical practice. Methods31 MHPs working in court-mandated treatment settings were interviewed. The interviews were (...)
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  18. Preventing Human Rights Violations in Prison – the Role of Guidelines.Bernice Elger & David Shaw - forthcoming - In Bernice Elger, Catherine Ritter & Heino Stöver (eds.), Emerging Issues in Prison Health. Springer.
    It is well known that prisoners’ human rights are often violated. In this chapter we examine whether guidelines can be effective in preventing such violations and in helping physicians resolve the significant conflicts of interest that they often face in trying to protect prisoners’ rights. We begin by explaining the role of clinical and ethical guidelines outside prisons, in the context of healthcare for non-incarcerated prisoners, and then the specific role of such guidelines within prisons, where the main concerns are (...)
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  19.  6
    Trust Trumps Comprehension, Visceral Factors Trump All: A Psychological Cascade Constraining Informed Consent to Clinical Trials: A Qualitative Study with Stable Patients.Michael Rost, Rebecca Nast, Bernice S. Elger & David Shaw - 2021 - Research Ethics 17 (1):87-102.
    This paper addresses psychological factors that might interfere with informed consent on the part of stable patients as potential early-phase clinical trial participants. Thirty-six semistructured interviews with patients who had either diabetes or gout were conducted. We investigated stable patients’ attitudes towards participating in a fictitious first-in-human trial of a novel intervention. We focused on an in-depth analysis of those statements and explanations that indicated the existence of psychological factors impairing decision-making capacity. Three main themes emerged: insufficient comprehension of the (...)
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  20. Evidence-Based Persuasion: An Ethical Imperative.David Shaw & Bernice Elger - 2013 - Journal of the American Medical Association 309 (16):1689-90.
    The primacy in modern medical ethics of the principle of respect for autonomy has led to the widespread assumption that it is unethical to change someone’s beliefs, because doing so would constitute coercion or paternalism., In this Viewpoint we suggest that persuasion is not necessarily paternalistic and is an essential component of modern medical practice.
     
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  21.  17
    Automated Vehicles, Big Data and Public Health.David Shaw, Bernard Favrat & Bernice Elger - 2020 - Medicine, Health Care and Philosophy 23 (1):35-42.
    In this paper we focus on how automated vehicles can reduce the number of deaths and injuries in accident situations in order to protect public health. This is actually a problem not only of public health and ethics, but also of big data—not only in terms of all the different data that could be used to inform such decisions, but also in the sense of deciding how wide the scope of data should be. We identify three key different types of (...)
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  22.  13
    Digital Technologies for Schizophrenia Management: A Descriptive Review.Olga Chivilgina, Bernice S. Elger & Fabrice Jotterand - 2021 - Science and Engineering Ethics 27 (2):1-22.
    While the implementation of digital technology in psychiatry appears promising, there is an urgent need to address the implications of the absence of ethical design in the early development of such technologies. Some authors have noted the gap between technology development and ethical analysis and have called for an upstream examination of the ethical issues raised by digital technologies. In this paper, we address this suggestion, particularly in relation to digital healthcare technologies for patients with schizophrenia spectrum disorders. The introduction (...)
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  23.  26
    Proceed with Diligence.Bernice S. Elger - 2012 - Journal of Medical Ethics 38 (9):529-530.
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  24. What is a Biobank? Differing Definitions Among Biobank Stakeholders.David Shaw, Bernice Elger & Flora Colledge - 2014 - Clinical Genetics 85 (3):223-7.
    Aim: While there is widespread agreement on the broad aspects of what constitutes a biobank, there is much disagreement regarding the precise definition. This research aimed to describe and analyse the definitions of the term biobank offered by various stakeholders in biobanking. Methods: Interviews were conducted with 36 biobanking stakeholders with international experience currently working in Switzerland. Results: The results show that, in addition to the core concepts of biological samples and linked data, the planned use of samples (including sharing) (...)
     
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  25.  9
    Adolescent Oncofertility Discussions: Recommendations From a Systematic Literature Review.Dorit Barlevy, Bernice S. Elger, Tenzin Wangmo & Vardit Ravitsky - 2017 - Ajob Empirical Bioethics 8 (2):106-115.
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  26.  19
    Patient Education as Empowerment and Self-Rebiasing.Fabrice Jotterand, Antonio Amodio & Bernice S. Elger - 2016 - Medicine, Health Care and Philosophy 19 (4):553-561.
    The fiduciary nature of the patient-physician relationship requires clinicians to act in the best interest of their patients. Patients are vulnerable due to their health status and lack of medical knowledge, which makes them dependent on the clinicians’ expertise. Competent patients, however, may reject the recommendations of their physician, either refusing beneficial medical interventions or procedures based on their personal views that do not match the perceived medical indication. In some instances, the patients’ refusal may jeopardize their health or life (...)
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  27.  33
    Disclosure of Past Crimes: An Analysis of Mental Health Professionals' Attitudes Towards Breaching Confidentiality.Tenzin Wangmo, Violet Handtke & Bernice Simone Elger - 2014 - Journal of Bioethical Inquiry 11 (3):347-358.
    Ensuring confidentiality is the cornerstone of trust within the doctor–patient relationship. However, health care providers have an obligation to serve not only their patient’s interests but also those of potential victims and society, resulting in circumstances where confidentiality must be breached. This article describes the attitudes of mental health professionals when patients disclose past crimes unknown to the justice system. Twenty-four MHPs working in Swiss prisons were interviewed. They shared their experiences concerning confidentiality practices and attitudes towards breaching confidentiality in (...)
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  28.  10
    Expert Perspectives on Western European Prison Health Services: Do Ageing Prisoners Receive Equivalent Care?Wiebke Bretschneider & Bernice Simone Elger - 2014 - Journal of Bioethical Inquiry 11 (3):319-332.
    Health care in prison and particularly the health care of older prisoners are increasingly important topics due to the growth of the ageing prisoner population. The aim of this paper is to gain insight into the approaches used in the provision of equivalent health care to ageing prisoners and to confront the intuitive definition of equivalent care and the practical and ethical challenges that have been experienced by individuals working in this field. Forty interviews took place with experts working in (...)
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  29.  27
    Research on Prisoners – a Comparison Between the Iom Committee Recommendations (2006) and European Regulations.Bernice S. Elger & Anne Spaulding - 2010 - Bioethics 24 (1):1-13.
    The Institute of Medicine (IOM) Committee on Ethical Considerations for Revisions to DHHS Regulations for Protection of Prisoners Involved in Research published its report in 2006. It was charged with developing an ethical framework for the conduct of research with prisoners and identifying the safeguards and conditions necessary to ensure that research with prisoners is conducted ethically. The recommendations contained in the IOM report differ from current European regulations in several ways, some being more restrictive and some less so. For (...)
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  30. Response to Douglas and Goold.Bernice S. Elger - 2008 - Journal of Clinical Ethics 19 (3):271-273.
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  31.  22
    When Information Can Save Lives: The Duty to Warn Relatives About Sudden Cardiac Death and Environmental Risks.Bernice Elger, Katarzyna Michaud & Patrice Mangin - 2010 - Hastings Center Report 40 (3):39-45.
  32. Confidentiality in Prison Health Care – A Practical Guide.Bernice Elger & David Shaw - forthcoming - In Bernice Elger, Catherine Ritter & Heino Stöver (eds.), Emerging Issues in Prison Health. Springer.
    The importance of medical confidentiality is obvious to anyone who has ever been a patient, and protecting private information about patients is one of the key responsibilities of healthcare professionals. However, maintaining the confidentiality of patients who are incarcerated in prisons poses several ethical challenges. In this chapter we explain the importance of confidentiality in general, and the dilemmas that sometimes face doctors with regard to it, before describing some of the specific difficulties faced by prison doctors. Although healthcare professionals (...)
     
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  33.  20
    Should Children and Adolescents Be Tested for Huntington’s Disease? Attitudes of Future Lawyer.Bernice S. Elger & Timothy W. Harding - 2006 - Bioethics 20 (3):158-167.
  34.  27
    Defining Nano, Nanotechnology and Nanomedicine: Why Should It Matter?Priya Satalkar, Bernice Simone Elger & David M. Shaw - 2016 - Science and Engineering Ethics 22 (5):1255-1276.
    Nanotechnology, which involves manipulation of matter on a ‘nano’ scale, is considered to be a key enabling technology. Medical applications of nanotechnology are expected to significantly improve disease diagnostic and therapeutic modalities and subsequently reduce health care costs. However, there is no consensus on the definition of nanotechnology or nanomedicine, and this stems from the underlying debate on defining ‘nano’. This paper aims to present the diversity in the definition of nanomedicine and its impact on the translation of basic science (...)
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  35.  11
    Beneficence Today, or Autonomy (Maybe) Tomorrow?Bernice S. Elger & Jean-Claude Chevrolet - 2000 - Hastings Center Report 30 (1):18.
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  36.  9
    M Any Common Diseases Are Believed to Result From Defects in Multiple Genes in Combination with Lifestyle.Bernice S. Elger - 2009 - In Vardit Ravitsky, Autumn Fiester & Arthur L. Caplan (eds.), The Penn Center Guide to Bioethics. Springer Publishing Company. pp. 403.
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  37.  9
    Research and Publication.Samia Hurstand Bernice Elger - 2010 - In G. A. van Norman, S. Jackson, S. H. Rosenbaum & S. K. Palmer (eds.), Clinical Ethics in Anesthesiology. Cambridge University Press.
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  38.  14
    Case Study: Beneficence Today, or Autonomy (Maybe) Tomorrow?Bernice S. Elger & Jean-Claude Chevrolet - 2000 - Hastings Center Report 30 (1):18.
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  39.  13
    Synthetic Biology and the Translational Imperative. [REVIEW]Marc Folcher, Bernice Elger, Marcello Ienca & Raheleh Heidari Feidt - 2019 - Science and Engineering Ethics 25 (1):33-52.
    Advances at the interface between the biological sciences and engineering are giving rise to emerging research fields such as synthetic biology. Harnessing the potential of synthetic biology requires timely and adequate translation into clinical practice. However, the translational research enterprise is currently facing fundamental obstacles that slow down the transition of scientific discoveries from the laboratory to the patient bedside. These obstacles including scarce financial resources and deficiency of organizational and logistic settings are widely discussed as primary impediments to translational (...)
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  40.  6
    Altruism Reconsidered: Exploring New Approaches to Property in Human Tissue (Review).Bernice Elger - 2010 - Asian Bioethics Review 2 (4):342-246.
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  41. The Relevance of Relevance in Research.David Shaw & Bernice Elger - 2013 - Swiss Medical Weekly.
    A new Swiss law requires that any research involving humans must aim to answer "a relevant research question". This paper explains the relevance of the relevance criterion in research, analyses the Swiss and British guidelines on relevance, and proposes a framework for researchers and REC members that enables a clearer conception of the role of relevance in research. We conclude that research must be either scientifically or societally beneficial in order to qualify as relevant, and RECs therefore cannot avoid reviewing (...)
     
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  42.  10
    Ethical Design of Intelligent Assistive Technologies for Dementia: A Descriptive Review.Marcello Ienca, Tenzin Wangmo, Fabrice Jotterand, Reto W. Kressig & Bernice Elger - 2018 - Science and Engineering Ethics 24 (4):1035-1055.
    The use of Intelligent Assistive Technology in dementia care opens the prospects of reducing the global burden of dementia and enabling novel opportunities to improve the lives of dementia patients. However, with current adoption rates being reportedly low, the potential of IATs might remain under-expressed as long as the reasons for suboptimal adoption remain unaddressed. Among these, ethical and social considerations are critical. This article reviews the spectrum of IATs for dementia and investigates the prevalence of ethical considerations in the (...)
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  43.  29
    Getting a Fair Share: Attitudes and Perceptions of Biobank Stakeholders Concerning the Fairness of Sample Sharing.Flora Colledge & Bernice Elger - 2015 - Bioethics 29 (6):424-430.
    Biobanks are essential tools for furthering a broad range of medical research areas. However, despite the plethora of national and international laws and guidelines which apply to them, the access and sharing policies of biobanks are only sparsely addressed by regulatory bodies. The ‘give and take’ process of biosample sharing is largely left up to biobank stakeholders themselves to oversee; it is therefore both in stakeholders' power, and in their interest, to ensure that sample accessibility is fair. This is an (...)
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  44.  19
    Intentional Machines: A Defence of Trust in Medical Artificial Intelligence.Georg Starke, Rik van den Brule, Bernice Simone Elger & Pim Haselager - 2022 - Bioethics 36 (2):154-161.
  45. “Conferring Authorship”: Biobank Stakeholders’ Experiences with Publication Credit in Collaborative Research.Flora Colledge, Bernice Elger & David Shaw - 2013 - PLoS ONE 8:e76686.
    Background: Multi-collaborator research is increasingly becoming the norm in the field of biomedicine. With this trend comes the imperative to award recognition to all those who contribute to a study; however, there is a gap in the current “gold standard” in authorship guidelines with regards to the efforts of those who provide high quality biosamples and data, yet do not play a role in the intellectual development of the final publication. -/- Methods and findings: We carried out interviews with 36 (...)
     
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  46.  9
    Correction To: Synthetic Biology and the Translational Imperative.Marc Folcher, Bernice Elger, Marcello Ienca & Raheleh Heidari Feidt - 2019 - Science and Engineering Ethics 25 (1):53-53.
    The author group of above-mentioned review paper was incorrectly published in the online article.
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  47.  11
    Sample and Data Sharing Barriers in Biobanking: Consent, Committees, and Compromises.Flora Colledge, Kirsten Persson, Bernice Elger & David Shaw - 2014 - Annals of Diagnostic Pathology 18 (2):78-81.
    The ability to exchange samples and data is crucial for the rapidly growth of biobanking. However, sharing is based on the assumption that the donor has given consent to a given use of her or his sample. Biobanking stakeholders, therefore, must choose 1 of 3 options: obtain general consent enabling multiple future uses before taking a sample from the donor, try to obtain consent again before sharing a previously obtained sample, or look for a legally endorsed way to share a (...)
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  48.  9
    The Meaning and Importance of Genetic Relatedness: Fertility Preservation Decision Making Among Israeli Adolescent Cancer Survivors and Their Parents.Dorit Barlevy, Bernice S. Elger, Tenzin Wangmo, Shifra Ash & Vardit Ravitsky - unknown
    Background: With multiple options available today to become a parent, how does the matter of genetic relatedness factor into adolescent cancer patients’ fertility preservation decision making? This study reports on and normatively analyzes this aspect of FP decision making. Methods: A convenience sample of Israeli adolescent cancer survivors and their parents were invited to participate in individual, semi-structured interviews. Results: In discussing the importance of genetic relatedness to future children or grandchildren, participants repeatedly brought up the interrelated issues of nature, (...)
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  49. Persuading Bereaved Families to Permit Organ Donation.David Shaw & Bernice Elger - 2014 - Intensive Care Medicine 40:96-98.
    The annual UK potential donor audit captures families’ reasons for not consenting to donation of their deceased family members’ organs . Given that many families’ refusals and vetoes are based on false beliefs, cognitive bias and misunderstanding, it is incumbent upon doctors, nurses and transplant coordinators to invest sufficient time to facilitate informed consent or authorization. While such families are distressed, organ donation rates could be substantially improved if they were made aware of any mistaken beliefs, using recently suggested criteria (...)
     
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  50.  17
    Relational Capacity: Broadening the Notion of Decision-Making Capacity in Paediatric Healthcare.Katharina M. Ruhe, Eva De Clercq, Tenzin Wangmo & Bernice S. Elger - 2016 - Journal of Bioethical Inquiry 13 (4):515-524.
    Problems arise when applying the current procedural conceptualization of decision-making capacity to paediatric healthcare: Its emphasis on content-neutrality and rational cognition as well as its implicit assumption that capacity is an ability that resides within a person jeopardizes children’s position in decision-making. The purpose of the paper is to challenge this dominant account of capacity and provide an alternative for how capacity should be understood in paediatric care. First, the influence of developmental psychologist Jean Piaget upon the notion of capacity (...)
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