12 found
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  1.  31
    Incidental Findings in Low‐Resource Settings.Haley K. Sullivan & Benjamin E. Berkman - 2018 - Hastings Center Report 48 (3):20-28.
    Much new global genetic research employs whole genome sequencing, which provides researchers with large amounts of data. The quantity of data has led to the generation and discovery of more incidental or secondary findings and to vigorous theoretical discussions about the ethical obligations that follow from these incidental findings. After a decade of debate in the genetic research community, there is a growing consensus that researchers should, at the very least, offer to return incidental findings that provide high‐impact, medically relevant (...)
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  2.  29
    Distinguishing “Reasonable Accommodation” From Physical Assistance in Aid-in-Dying.Isabel Astrachan & Benjamin E. Berkman - 2023 - American Journal of Bioethics 23 (9):28-30.
    Shavelson et al. (2023) identify an important problem in their Target article: a significant number of terminally ill patients with impaired motor function are wrongfully excluded from receiving ai...
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  3.  7
    The “Right Not to Know” in the Genomic Era: Time to Break From Tradition?Benjamin E. Berkman - 2014 - American Journal of Bioethics 14 (3):28-31.
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  4. An ethical framework for genetic counseling in the genomic era.Leila Jamal, Will Schupmann & Benjamin E. Berkman - 2021 - In I. Glenn Cohen, Nita A. Farahany, Henry T. Greely & Carmel Shachar (eds.), Consumer genetic technologies: ethical and legal considerations. New York, NY: Cambridge University Press.
     
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  5.  33
    Prenatal Whole Genome Sequencing: An Argument for Professional Self-Regulation.Benjamin E. Berkman & Michelle Bayefsky - 2017 - American Journal of Bioethics 17 (1):26-28.
  6.  37
    A Proposed Process for Reliably Updating the Common Rule.Benjamin E. Berkman, David Wendler, Haley K. Sullivan & Christine Grady - 2017 - American Journal of Bioethics 17 (7):8-14.
    The recent Common Rule revision process took almost a decade and the resulting changes are fairly modest, particularly when compared to the ambitious ideas proposed in the advance notice of proposed rulemaking and notice of proposed rulemaking. Furthermore, the revision process did not even attempt to tackle any of the Common Rule subparts pertaining to vulnerable populations where commentators think the rules unduly restrict important research. We believe that this was a missed opportunity to make desirable changes, and that given (...)
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  7.  37
    The “Reasonable Person” Standard for Research Informed Consent.Laura M. Odwazny & Benjamin E. Berkman - 2017 - American Journal of Bioethics 17 (7):49-51.
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  8.  11
    Using the PHERCC Matrix to Define Essential Workers During Public Health Emergencies.Elika Somani & Benjamin E. Berkman - 2024 - American Journal of Bioethics 24 (4):94-96.
    The risk and crisis communication process in public health emergencies (PHERCC, public health emergency risk and crisis communication) matrix, as proposed by Spitale, Germani, and Biller-Andorno (2...
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  9.  16
    Incorporating Research Burden and Utility Considerations as Limiting Factors in a Framework for Returning IRR.Chloe Connor & Benjamin E. Berkman - 2024 - American Journal of Bioethics 24 (2):96-98.
    The authors of the Target article, Shen and colleagues (2024) argue that there is a need for an ethical framework to help analyze when it is appropriate to return individualized research results (I...
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  10.  17
    Toward the Ethical Allocation of Uterine Transplants.Michelle J. Bayefsky & Benjamin E. Berkman - 2018 - American Journal of Bioethics 18 (7):16-17.
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  11.  24
    The Potential Role of Nudging in Expanded Noninvasive Prenatal Testing.Kelsey Mumford, Nina Roesner & Benjamin E. Berkman - 2023 - American Journal of Bioethics 23 (3):61-63.
    The authors of the target article discuss the expansion of the scope of noninvasive prenatal testing (NIPT) that is likely to occur in the near future, including its possible extension to “non-medi...
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  12.  34
    Access to Expanded Prenatal Genetic Testing: Response to Open Peer Commentaries.Michelle J. Bayefsky & Benjamin E. Berkman - 2022 - American Journal of Bioethics 22 (5):1-3.
    We would like to thank the authors of the excellent Open Peer Commentaries on our target article, “Implementing Expanded Prenatal Genetic Testing: Should Parents Have Access to Any and All Fetal Ge...
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