37 found
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  1.  53
    Ethical Review of Health Systems Research in Low- and Middle-Income Countries: A Conceptual Exploration.Adnan A. Hyder, Abbas Rattani, Carleigh Krubiner, Abdulgafoor M. Bachani & Nhan T. Tran - 2014 - American Journal of Bioethics 14 (2):28-37.
    Given that health systems research involves different aims, approaches, and methodologies as compared to more traditional clinical trials, the ethical issues present in HSR may be unique or particularly nuanced. This article outlines eight pertinent ethical issues that are particularly salient in HSR and argues that the ethical review process should be better tailored to ensure more efficient and appropriate oversight of HSR with adequate human protections, especially in low- and middle-income countries. The eight ethical areas we discuss include the (...)
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  2.  38
    Governance of Transnational Global Health Research Consortia and Health Equity.Bridget Pratt & Adnan A. Hyder - 2016 - American Journal of Bioethics 16 (10):29-45.
    Global health research partnerships are increasingly taking the form of consortia of institutions from high-income countries and low- and middle-income countries that undertake programs of research. These partnerships differ from collaborations that carry out single projects in the multiplicity of their goals, scope of their activities, and nature of their management. Although such consortia typically aim to reduce health disparities between and within countries, what is required for them to do so has not been clearly defined. This article takes a (...)
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  3.  44
    Fair Resource Allocation to Health Research: Priority Topics for Bioethics Scholarship.Adnan A. Hyder & Bridget Pratt - 2017 - Bioethics 31 (4):454-466.
    This article draws attention to the limited amount of scholarship on what constitutes fairness and equity in resource allocation to health research by individual funders. It identifies three key decisions of ethical significance about resource allocation that research funders make regularly and calls for prioritizing scholarship on those topics – namely, how health resources should be fairly apportioned amongst public health and health care delivery versus health research, how health research resources should be fairly allocated between health problems experienced domestically (...)
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  4.  20
    Promoting Ethical Payments in Human Challenge Studies Conducted in LMICs: Are We Asking the Right Questions?Paul Ndebele & Adnan A. Hyder - 2021 - American Journal of Bioethics 21 (3):51-53.
    The paper by Lynch et al. raises interesting ethical questions regarding whether and how much SARS-CoV-2 Human Challenge Studies participants should be paid. We appreciate the timely e...
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  5.  28
    Global Justice and Health Systems Research in Low‐ and Middle‐Income Countries.Bridget Pratt & Adnan A. Hyder - 2015 - Journal of Law, Medicine and Ethics 43 (1):143-161.
    Scholarship focusing on how international research can contribute to justice in global health has primarily explored requirements for the conduct of clinical trials. Yet health systems research in low- and middle-income countries has increasingly been identified as vital to the reduction of health disparities between and within countries. This paper expands an existing ethical framework based on the health capability paradigm – research for health justice – to externally-funded health systems research in LMICs. It argues that a specific form of (...)
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  6.  33
    Designing research funding schemes to promote global health equity: An exploration of current practice in health systems research.Bridget Pratt & Adnan A. Hyder - 2018 - Developing World Bioethics 18 (2):76-90.
    International research is an essential means of reducing health disparities between and within countries and should do so as a matter of global justice. Research funders from high-income countries have an obligation of justice to support health research in low and middle-income countries that furthers such objectives. This paper investigates how their current funding schemes are designed to incentivise health systems research in LMICs that promotes health equity. Semi-structured in-depth interviews were performed with 16 grants officers working for 11 funders (...)
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  7.  22
    Applying a Global Justice Lens to Health Systems Research Ethics: An Initial Exploration.Bridget Pratt & Adnan A. Hyder - 2015 - Kennedy Institute of Ethics Journal 25 (1):35-66.
    Recent scholarship has considered what, if anything, rich people owe to poor people to achieve justice in global health and the implications of this for international research. Yet this work has primarily focused on international clinical research. Health systems research is increasingly being performed in low and middle income countries and is essential to reducing global health disparities. This paper provides an initial description of the ethical issues related to priority setting, capacity-building, and the provision of post-study benefits that arise (...)
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  8.  39
    Operationalizing the Ethical Review of Global Health Policy and Systems Research: A Proposed Checklist.Abbas Rattani & Adnan A. Hyder - 2021 - Journal of Law, Medicine and Ethics 49 (1):92-122.
    There has been growing consensus to develop relevant guidance to improve the ethical review of global health policy and systems research and address the current absence of formal ethics guidance.
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  9.  43
    Exploring the ethics of global health research priority-setting.Bridget Pratt, Mark Sheehan, Nicola Barsdorf & Adnan A. Hyder - 2018 - BMC Medical Ethics 19 (1):94.
    Thus far, little work in bioethics has specifically focused on global health research priority-setting. Yet features of global health research priority-setting raise ethical considerations and concerns related to health justice. For example, such processes are often exclusively disease-driven, meaning they rely heavily on burden of disease considerations. They, therefore, tend to undervalue non-biomedical research topics, which have been identified as essential to helping reduce health disparities. In recognition of these ethical concerns and the limited scholarship and dialogue addressing them, we (...)
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  10.  20
    Research Capacity Strengthening in Low- and Middle-Income Countries: Ethical Explorations.Adnan A. Hyder, Abbas Rattani & Bridget Pratt - 2017 - Journal of Law, Medicine and Ethics 45 (1):129-137.
    With developed country governments and high resource institutions engaging in research in low- and middle-income countries, we argue that these entities have a moral obligation to help build and strengthen research infrastructure and capacity so local scientists and institutions can adequately conduct studies to understand and resolve the health burdens in low and middle income countries. We explore the moral justifications and motivations behind engaging in research capacity strengthening in the health sector in LMIC at multiple levels. In highlighting these (...)
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  11.  71
    Research Ethics Capacity Development in Africa: Exploring a Model for Individual Success.Joseph Ali, Adnan A. Hyder & Nancy E. Kass - 2012 - Developing World Bioethics 12 (2):55-62.
    The Johns Hopkins‐Fogarty African Bioethics Training Program (FABTP) has offered a fully‐funded, one‐year, non‐degree training opportunity in research ethics to health professionals, ethics committee members, scholars, journalists and scientists from countries across sub‐Saharan Africa. In the first 9 years of operation, 28 trainees from 13 African countries have trained with FABTP. Any capacity building investment requires periodic critical evaluation of the impact that training dollars produce. In this paper we describe and evaluate FABTP and the efforts of its trainees.Our data (...)
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  12. Research ethics capacity development in Africa: Exploring a model for individual success.A. L. I. Joseph, Adnan A. Hyder & Nancy E. Kass - 2012 - Developing World Bioethics 12 (2):55-62.
    The Johns Hopkins-Fogarty African Bioethics Training Program (FABTP) has offered a fully-funded, one-year, non-degree training opportunity in research ethics to health professionals, ethics committee members, scholars, journalists and scientists from countries across sub-Saharan Africa. In the first 9 years of operation, 28 trainees from 13 African countries have trained with FABTP. Any capacity building investment requires periodic critical evaluation of the impact that training dollars produce. In this paper we describe and evaluate FABTP and the efforts of its trainees.Our data (...)
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  13.  27
    A Scoping Study on the Ethics of Health Systems Research.Abdulgafoor M. Bachani, Abbas Rattani & Adnan A. Hyder - 2016 - Developing World Bioethics 16 (3):124-132.
    Currently, health systems research is reviewed by the same ethical standards as clinical research, which has recently been argued in the literature to be an inappropriate standard of evaluation. The issues unique to HSR warrant a different review by research ethics committees, as it does not impose the same risks to study participants as other types of clinical or public health research. However, there are limited tools and supporting documents that clarify the ethical considerations. Therefore, there is a need for (...)
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  14.  33
    Ethical Issues in Health Systems Research in Low and Middle‐Income Countries.Paul Ndebele & Adnan A. Hyder - 2016 - Developing World Bioethics 16 (3):122-123.
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  15.  64
    Exploring Institutional Research Ethics Systems: A Case Study From Uganda.Adnan A. Hyder, Joseph Ali, Kristina Hallez, Tara White, Nelson K. Sewankambo & Nancy E. Kass - 2015 - AJOB Empirical Bioethics 6 (3):1-14.
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  16.  28
    Changing the Discourse on Health Systems Research: Response to Open Peer Commentaries on “Ethical Review of Health Systems Research in Low- and Middle-Income Countries: A Conceptual Exploration”.Adnan A. Hyder & Abbas Rattani - 2014 - American Journal of Bioethics 14 (2):W1-W2.
    Given that health systems research involves different aims, approaches, and methodologies as compared to more traditional clinical trials, the ethical issues present in HSR may be unique or particularly nuanced. This article outlines eight pertinent ethical issues that are particularly salient in HSR and argues that the ethical review process should be better tailored to ensure more efficient and appropriate oversight of HSR with adequate human protections, especially in low- and middle-income countries. The eight ethical areas we discuss include the (...)
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  17.  35
    Reinterpreting Responsiveness for Health Systems Research in Low and Middle‐Income Countries.Bridget Pratt & Adnan A. Hyder - 2014 - Bioethics 29 (6):379-388.
    The ethical concept of responsiveness has largely been interpreted in the context of international clinical research. In light of the increasing conduct of externally funded health systems research in low- and middle-income countries, this article examines how responsiveness might be understood for such research and how it can be applied. It contends that four features set HSR in LMICs apart from international clinical research: a focus on systems; being context-driven; being policy-driven; and being closely linked to development objectives. These features (...)
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  18. Emergency care research ethics in low- and middle-income countries.Joseph Millum, Blythe Beecroft, Timothy C. Hardcastle, Jon Mark Hirshon, Adnan A. Hyder, Jennifer A. Newberry & Carla Saenz - 2019 - BMJ Global Health 4:e001260.
    A large proportion of the total global burden of disease is caused by emergency medical conditions. Emergency care research is essential to improving emergency medicine but this research can raise some distinctive ethical challenges, especially with regard to (1) standard of care and risk–benefit assessment; (2) blurring of the roles of clinician and researcher; (3) enrolment of populations with intersecting vulnerabilities; (4) fair participant selection; (5) quality of consent; and (6) community engagement. Despite the importance of research to improve emergency (...)
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  19.  27
    Priority Setting Is More Than Resource Allocation: Reflecting on the Content of Funders’ Duties and Their Implications for Current Practice.Bridget Pratt & Adnan A. Hyder - 2018 - American Journal of Bioethics 18 (11):27-30.
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  20.  45
    (2 other versions)Ethical challenges in research on post-abortion care with adolescents: experiences of researchers in Zambia.Joseph M. Zulu, Joseph Ali, Kristina Hallez, Nancy E. Kass, Charles Michelo & Adnan A. Hyder - 2018 - Tandf: Global Bioethics:1-16.
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  21.  44
    If Research Is a Pillar of Health System Development, Why Only Focus on Clinical Trials?Bridget Pratt, Joseph Ali & Adnan A. Hyder - 2016 - American Journal of Bioethics 16 (6):14-17.
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  22.  20
    Establishment of a collaborative research ethics training program to prepare the next generation of ethics researchers in Mali.Seydou Doumbia, Heather E. Rosen, Nino Paichadze, Housseini Dolo, Djeneba Dabitao, Zana Lamissa Sanogo, Karim Traore, Bassirou Diarra, Yeya dit Sadio Sarro, Awa Keita, Seydou Samake, Cheick Oumar Tangara, Hamadoun Sangho, Samba Ibrahim Diop, Mahamadou Diakite, Adnan A. Hyder & Paul Ndebele - 2023 - International Journal of Ethics Education 8 (2):309-319.
    Background: Despite an increase in health research conducted in Africa, there are still inadequate human resources with research ethics training and lack of local long-term training opportunities in research ethics. A research ethics training program named United States-Mali Research Ethics Training Program (US-Mali RETP) was established through a partnership between the George Washington University Milken Institute School of Public Health (GWSPH), USA and University of Sciences, Techniques & Technologies of Bamako (USTTB), to address the critical need for improved bioethics training, (...)
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  23.  70
    (2 other versions)Improving institutional research ethics capacity assessments: lessons from sub-Saharan Africa.Molly Deutsch-Feldman, Joseph Ali, Nancy Kass, Nthabiseng Phaladze, Charles Michelo, Nelson Sewankambo & Adnan A. Hyder - 2018 - Tandf: Global Bioethics:1-13.
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  24.  24
    Interpersonal stranger violence and American Muslims: an exploratory study of lived experiences and coping strategies.Priyanka Agrawal, Yousra Yusuf, Omrana Pasha, Shahmir H. Ali, Homayra Ziad & Adnan A. Hyder - 2019 - Global Bioethics 30 (1):28-42.
    ABSTRACTHate crimes in the United States have drastically increased since 2015, particularly for the American Muslim population. There was a 17% hike in hate crimes against American Muslims in 2017...
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  25.  31
    Assessing training needs in health research ethics: a case study from the University of Zambia School of Medicine.Gershom Chongwe, Bornwell Sikateyo, Linda Kampata, Joseph Ali, Kristina Hallez, Adnan A. Hyder, Nancy Kass & Charles Michelo - 2020 - Global Bioethics 31 (1):155-163.
    In many settings, and perhaps especially in low-middle income countries, training institutions do not adequately prepare their students for the ethical challenges that confront them in professional life. We conducted a survey to assess the training needs in research ethics among the faculty at the University of Zambia, School of Medicine using a structured questionnaire distributed to faculty members in January 2015. The study was approved by the University of Zambia Biomedical Research Ethics Committee. Seventy-five faculty members of various ranks (...)
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  26.  56
    Equity and resource allocation in health care: Dialogue between Islam and Christianity.Christoph Benn & Adnan A. Hyder - 2002 - Medicine, Health Care and Philosophy 5 (2):181-189.
    Inequities in health and health care are one of the greatest challenges facing the international community today. This problem raises serious questions for health care planners, politicians and ethicists alike. The major world religions can play an important role in this discussion. Therefore, interreligious dialogue on this topic between ethicists and health care professionals is of increasing relevance and urgency. This article gives an overview on the positions of Islam and Christianity on equity and the distribution of resources in health (...)
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  27.  30
    Response.Christoph Benn & Adnan A. Hyder - 2003 - Medicine, Health Care and Philosophy 6 (1):73-73.
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  28.  27
    Understanding the 'de jure' standard of care for research: A reply to Faust.Liza Dawson & Adnan A. Hyder - 2007 - Developing World Bioethics 7 (1):46–47.
  29.  22
    Bold Societal Responses Are Needed in Tackling Serious Ethical Violations in Medicine.Adnan A. Hyder & Paul Ndebele - 2019 - American Journal of Bioethics 19 (1):44-46.
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  30.  33
    (2 other versions)Providing monetary and non-monetary goods to research participants: perspectives and practices of researchers and Research Ethics Committees in Zambia.Chris Mweemba, Joseph Ali & Adnan A. Hyder - 2018 - Tandf: Global Bioethics:1-14.
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  31.  23
    Ethical guidelines for military-based health research: an unmet need in Africa?Julius Mbekem Nwobegahay, Joseph Ali, Adnan A. Hyder & Daniel Ter Goon - 2015 - South African Journal of Bioethics and Law 8 (2):11.
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  32.  33
    Health Systems Research Consortia and the Promotion of Health Equity in Low and Middle‐Income Countries.Bridget Pratt, Katharine A. Allen & Adnan A. Hyder - 2016 - Developing World Bioethics 16 (3):148-157.
    Health systems research is widely identified as an indispensable means to achieve the goal of health equity between and within countries. Numerous health systems research consortia comprised of institutions from high-income countries and low and middle-income countries are currently undertaking programs of research in LMICs. These partnerships differ from collaborations that carry out single projects in the multiplicity of their goals, scope of their activities, and nature of their management. Recent conceptual work has explored what features might be necessary for (...)
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  33.  20
    Linking the Governance of Research Consortia to Global Health Justice: A Case Study of Future Health Systems.Bridget Pratt & Adnan A. Hyder - 2017 - Journal of Law, Medicine and Ethics 45 (4):664-681.
    Global health research partnerships are increasingly taking the form of consortia. Recent scholarship has proposed what features of governance may be necessary for these consortia to advance justice in global health. That guidance purports three elements of global health research consortia are essential — their research priorities, research capacity development strategies, research translation strategies — and should be structured to promote the health of the worst-off globally. This paper adopted a reflective equilibrium approach, testing the proposed ethical guidance against the (...)
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  34.  38
    Promoting equity through health systems research in low- and middle-income countries: Practices of researchers.Bridget Pratt, Katharine A. Allen & Adnan A. Hyder - 2016 - AJOB Empirical Bioethics 7 (3):199-208.
  35.  27
    Response to Open Peer Commentaries on “Governance of Transnational Global Health Research Consortia and Health Equity”.Adnan A. Hyder & Bridget Pratt - 2017 - American Journal of Bioethics 17 (1):4-6.
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  36.  10
    Letter to the Editor.Abbas Rattani & Adnan A. Hyder - 2021 - Journal of Law, Medicine and Ethics 49 (4):692-693.
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  37. Evaluating institutional capacity for research ethics in Africa: a case study from Botswana. [REVIEW]Adnan A. Hyder, Waleed Zafar, Joseph Ali, Robert Ssekubugu, Paul Ndebele & Nancy Kass - 2013 - BMC Medical Ethics 14 (1):31.
    The increase in the volume of research conducted in Low and Middle Income Countries (LMIC), has brought a renewed international focus on processes for ethical conduct of research. Several programs have been initiated to strengthen the capacity for research ethics in LMIC. However, most such programs focus on individual training or development of ethics review committees. The objective of this paper is to present an approach to institutional capacity assessment in research ethics and application of this approach in the form (...)
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