7 found
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  1.  5
    The Nordic data imaginary.Heta Tarkkala, Karoliina Snell & Aaro Tupasela - 2020 - Big Data and Society 7 (1).
    The Nordic countries aim to have a unique place within the European and global health data economy. They have extensive nationally maintained and centralized health data records, as well as numerous biobanks where data from individuals can be connected based on personal identification numbers. Much of this phenomenon can be attributed to the emergence and development of the Nordic welfare state, where Nordic countries sought to systematically collect large amounts of population data to guide decision making and improve the health (...)
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  2.  50
    Ethical sharing of health data in online platforms- which values should be considered?Brígida Riso, Aaro Tupasela, Danya F. Vears, Heike Felzmann, Julian Cockbain, Michele Loi, Nana C. H. Kongsholm, Silvia Zullo & Vojin Rakic - 2017 - Life Sciences, Society and Policy 13 (1):1-27.
    Intensified and extensive data production and data storage are characteristics of contemporary western societies. Health data sharing is increasing with the growth of Information and Communication Technology platforms devoted to the collection of personal health and genomic data. However, the sensitive and personal nature of health data poses ethical challenges when data is disclosed and shared even if for scientific research purposes. With this in mind, the Science and Values Working Group of the COST Action CHIP ME ‘Citizen's Health through (...)
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  3.  17
    Concordance as evidence in the Watson for Oncology decision-support system.Aaro Tupasela & Ezio Di Nucci - 2020 - AI and Society 35 (4):811-818.
    Machine learning platforms have emerged as a new promissory technology that some argue will revolutionize work practices across a broad range of professions, including medical care. During the past few years, IBM has been testing its Watson for Oncology platform at several oncology departments around the world. Published reports, news stories, as well as our own empirical research show that in some cases, the levels of concordance over recommended treatment protocols between the platform and human oncologists have been quite low. (...)
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  4.  1
    Ethics Policies and Ethics Work in Cross-national Genetic Research and Data Sharing: Flows, Nonflows, and Overflows.Malene Bøgehus Rasmussen, Aaro Tupasela & Klaus Hoeyer - 2017 - Science, Technology, and Human Values 42 (3):381-404.
    In recent years, cross-national collaboration in medical research has gained increased policy attention. Policies are developed to enhance data sharing, ensure open-access, and harmonize international standards and ethics rules in order to promote access to existing resources and increase scientific output. In tandem with this promotion of data sharing, numerous ethics policies are developed to control data flows and protect privacy and confidentiality. Both sets of policy making, however, pay limited attention to the moral decisions and social ties enacted in (...)
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  5.  1
    Constructing populations in biobanking.Jose A. Cañada, Karoliina Snell & Aaro Tupasela - 2015 - Life Sciences, Society and Policy 11 (1).
    This article poses the question of whether biobanking practices and standards are giving rise to the construction of populations from which various biobanking initiatives increasingly draw on for legitimacy? We argue that although recent biobanking policies encourage various forms of engagement with publics to ensure legitimacy, different biobanks conceptualize their engagement strategies very differently. We suggest that biobanks undertake a broad range of different strategies with regard to engagement. We argue that these different approaches to engagement strategies are contributing to (...)
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  6.  7
    Finnish people's attitudes towards biomedical research and its sponsorship.Thomas Lemke, Theo Papaioannou, Lyn Turney, Elina Hemminki, Aaro Tupasela, Piia Jallinoja, Arja J. Aro, Karoliina Snell, Sinikka Sihvo & Almut Caspary - 2009 - Genomics, Society and Policy 5 (2):1-13.
    The purpose of the research was to study Finnish people's attitudes towards biomedical research and whether the research sponsor makes a difference to those attitudes. A survey questionnaire was sent to a random sample of 25-64 years old. Respondents had a positive attitude towards biomedical research and there were only small variations by population group. When asked whether one's own clinical blood samples could be used in scientific biomedical research, 84 per cent of the respondents would allow it. The most (...)
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  7.  1
    Finnish people's attitudes towards biomedical research and its sponsorship.Elina Hemminki, Aaro Tupasela, Piia Jallinoja, Arja Aro & Karolina Snell - 2009 - Genomics, Society and Policy 5 (1):1-13.
    The purpose of the research was to study Finnish people's attitudes towards biomedical research and whether the research sponsor makes a difference to those attitudes. A survey questionnaire was sent to a random sample of 25-64 years old. Respondents had a positive attitude towards biomedical research and there were only small variations by population group. When asked whether one's own clinical blood samples could be used in scientific biomedical research, 84 per cent of the respondents would allow it. The most (...)
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