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  1.  62
    Investigating Trust, Expertise, and Epistemic Injustice in Chronic Pain.Daniel Z. Buchman, Anita Ho & Daniel S. Goldberg - 2017 - Journal of Bioethical Inquiry 14 (1):31-42.
    Trust is central to the therapeutic relationship, but the epistemic asymmetries between the expert healthcare provider and the patient make the patient, the trustor, vulnerable to the provider, the trustee. The narratives of pain sufferers provide helpful insights into the experience of pain at the juncture of trust, expert knowledge, and the therapeutic relationship. While stories of pain sufferers having their testimonies dismissed are well documented, pain sufferers continue to experience their testimonies as being epistemically downgraded. This kind of epistemic (...)
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  2.  54
    Investigating Trust, Expertise, and Epistemic Injustice in Chronic Pain.Daniel S. Goldberg, Anita Ho & Daniel Z. Buchman - 2017 - Journal of Bioethical Inquiry 14 (1):31-42.
    Trust is central to the therapeutic relationship, but the epistemic asymmetries between the expert healthcare provider and the patient make the patient, the trustor, vulnerable to the provider, the trustee. The narratives of pain sufferers provide helpful insights into the experience of pain at the juncture of trust, expert knowledge, and the therapeutic relationship. While stories of pain sufferers having their testimonies dismissed are well documented, pain sufferers continue to experience their testimonies as being epistemically downgraded. This kind of epistemic (...)
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  3. Trusting experts and epistemic humility in disability.Anita Ho - 2011 - International Journal of Feminist Approaches to Bioethics 4 (2):102-123.
    It is generally accepted that the therapeutic relationship between professionals and patients is one of trust. Nonetheless, some patient groups carry certain social vulnerabilities that can be exacerbated when they extend trust to health-care professionals. In exploring the epistemic and ethical implications of expert status, this paper examines how calls to trust may increase epistemic oppression and perpetuate the vulnerability of people with impairments. It critically evaluates the processes through which epistemic communities are formed or determined, and examines the institutional (...)
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  4. Beyond informed consent: the therapeutic misconception and trust.Inmaculada de Melo-Martin & A. Ho - 2008 - Journal of Medical Ethics 34 (3):202-205.
    The therapeutic misconception has been seen as presenting an ethical problem because failure to distinguish the aims of research participation from those receiving ordinary treatment may seriously undermine the informed consent of research subjects. Hence, most theoretical and empirical work on the problems of the therapeutic misconception has been directed to evaluate whether, and to what degree, this confusion invalidates the consent of subjects. We argue here that this focus on the understanding component of informed consent, while important, might be (...)
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  5.  45
    So It Is, So It Shall Be: Group Regularities License Children's Prescriptive Judgments.Steven O. Roberts, Susan A. Gelman & Arnold K. Ho - 2017 - Cognitive Science 41 (S3):576-600.
    When do descriptive regularities become prescriptive norms? We examined children's and adults' use of group regularities to make prescriptive judgments, employing novel groups that engaged in morally neutral behaviors. Participants were introduced to conforming or non-conforming individuals. Children negatively evaluated non-conformity, with negative evaluations declining with age. These effects were replicable across competitive and cooperative intergroup contexts and stemmed from reasoning about group regularities rather than reasoning about individual regularities. These data provide new insights into children's group concepts and have (...)
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  6. The individualist model of autonomy and the challenge of disability.Anita Ho - 2008 - Journal of Bioethical Inquiry 5 (2-3):193-207.
    In recent decades, the intertwining ideas of self-determination and well-being have received tremendous support in bioethics. Discussions regarding self-determination, or autonomy, often focus on two dimensions—the capacity of the patient and the freedom from external coercion. The practice of obtaining informed consent, for example, has become a standard procedure in therapeutic and research medicine. On the surface, it appears that patients now have more opportunities to exercise their self-determination than ever. Nonetheless, discussions of patient autonomy in the bioethics literature, which (...)
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  7.  4
    Taking Family-Centered Care Seriously.Anita Ho - 2020 - American Journal of Bioethics 20 (6):65-67.
    Volume 20, Issue 6, June 2020, Page 65-67.
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  8.  6
    Unmasking the Ethics of Public Health Messaging in a Pandemic.Anita Ho & Vivian Huang - 2021 - Journal of Bioethical Inquiry 18 (4):549-559.
    Uncertainty is inherent in new and unexpected viral outbreaks such as the current COVID-19 pandemic. It imposes challenges for health officials in soliciting cooperative behavioural changes based on incomplete information. In this paper, we use evolving mask recommendations in the United States as an example to analyse the ethical importance and practical demonstration of trustworthiness in pandemic messaging and decision-making. We argue that responsible public health interventions in the time of uncertainties requires explicit intersecting ethical considerations both in action and (...)
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  9.  8
    Medical assistance in dying legislation: Hospice palliative care providers’ perspectives.Soodabeh Joolaee, Anita Ho, Kristie Serota, Matthieu Hubert & Daniel Z. Buchman - 2022 - Nursing Ethics 29 (1):231-244.
    Background: After over 4 years since medical assistance in dying legalization in Canada, there is still much uncertainty about how this ruling has affected Canadian society. Objective: To describe the positive aspects of medical assistance in dying legalization from the perspectives of hospice palliative care providers engaging in medical assistance in dying. Design: In this qualitative descriptive study, we conducted an inductive thematic analysis of semi-structured interviews with hospice palliative care providers. Participants and setting: Multi-disciplinary hospice palliative care providers in (...)
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  10.  68
    What's trust got to do with it? Revisiting opioid contracts.Daniel Z. Buchman & Anita Ho - 2014 - Journal of Medical Ethics 40 (10):673-677.
    Prescription opioid abuse (POA) is an escalating clinical and public health problem. Physician worries about iatrogenic addiction and whether patients are ‘drug seeking’, ‘abusing’ and ‘diverting’ prescription opioids exist against a backdrop of professional and legal consequences of prescribing that have created a climate of distrust in chronic pain management. One attempt to circumvent these worries is the use of opioid contracts that outline conditions patients must agree to in order to receive opioids. Opioid contracts have received some scholarly attention, (...)
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  11.  16
    Racism and Bioethics: Are We Part of the Problem?Anita Ho - 2016 - American Journal of Bioethics 16 (4):23-25.
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  12.  18
    Leaving patients to their own devices? Smart technology, safety and therapeutic relationships.Anita Ho & Oliver Quick - 2018 - BMC Medical Ethics 19 (1):18.
    This debate article explores how smart technologies may create a double-edged sword for patient safety and effective therapeutic relationships. Increasing utilization of health monitoring devices by patients will likely become an important aspect of self-care and preventive medicine. It may also help to enhance accurate symptom reports, diagnoses, and prompt referral to specialist care where appropriate. However, the development, marketing, and use of such technology raise significant ethical implications for therapeutic relationships and patient safety. Drawing on lessons learned from other (...)
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  13.  16
    Relational solidarity and COVID-19: an ethical approach to disrupt the global health disparity pathway.Anita Ho & Iulia Dascalu - 2021 - Global Bioethics 32 (1):34-50.
    While the effects of COVID-19 are being felt globally, the pandemic disproportionately affects lower- and middle-income countries (LMICs) by exacerbating existing global health disparities. In this article, we illustrate how intersecting upstream social determinants of global health form a disparity pathway that compromises LMICs’ ability to respond to the pandemic. We consider pre-existing disease burden and baseline susceptibility, limited disease prevention resources, and unequal access to basic and specialized health care, essential drugs, and clinical trials. Recognizing that ongoing and underlying (...)
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  14.  38
    "They just don't get it!" When family disagrees with expert opinion.A. Ho - 2009 - Journal of Medical Ethics 35 (8):497-501.
    The notions of “expert” and “expertise” imply that some people have more credibility than others on certain matters. While expert authority is often taken for granted, there are questions as to whether expert power in some cases can be a form of epistemic oppression. Informed by bedside disagreements between family and clinicians as well as feminist discussions of epistemic oppression, this paper argues for a commitment to epistemic humility and the adoption of a two-way collaborative approach between clinicians and families (...)
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  15.  39
    Family and informed consent in multicultural setting.Anita Ho - 2006 - American Journal of Bioethics 6 (1):26 – 28.
    Akabayashi and Slingsby's (2006) article reminds us that the North American emphasis on individualistic autonomy is not universal. As the authors explain, personal identity in Japan is not construc...
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  16.  18
    Social Determinants of Mental Health and Physician Aid-in-Dying: The Real Moral Crisis.Joshua S. Norman & Anita Ho - 2019 - American Journal of Bioethics 19 (10):52-54.
    Volume 19, Issue 10, October 2019, Page 52-54.
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  17.  32
    Power Hierarchy and Epistemic Injustice in Clinical Ethics Consultation.Anita Ho & Dave Unger - 2015 - American Journal of Bioethics 15 (1):40-42.
  18.  21
    Global Disparity and Solidarity in a Pandemic.Anita Ho & Iulia Dascalu - 2020 - Hastings Center Report 50 (3):65-67.
    While the domestic effect of structural racism and other social vulnerabilities on Covid‐19 mortality in the United States has received some attention, there has been much less discussion (with some notable exceptions) of how structural global inequalities will further exacerbate Covid‐related health disparity across the world. This may be partially due to the delayed availability of accurate and comparable data from overwhelmed systems, particularly in low‐ and middle‐income countries. However, early methods to procure and develop treatments and vaccines by some (...)
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  19. Multi-Level Ethical Considerations of Artificial Intelligence Health Monitoring for People Living with Parkinson’s Disease.Anita Ho, Itai Bavli, Ravneet Mahal & Martin J. McKeown - forthcoming - AJOB Empirical Bioethics.
    Artificial intelligence (AI) has garnered tremendous attention in health care, and many hope that AI can enhance our health system’s ability to care for people with chronic and degenerative conditions, including Parkinson’s Disease (PD). This paper reports the themes and lessons derived from a qualitative study with people living with PD, family caregivers, and health care providers regarding the ethical dimensions of using AI to monitor, assess, and predict PD symptoms and progression. Thematic analysis identified ethical concerns at four intersecting (...)
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  20.  63
    Deep Ethical Learning: Taking the Interplay of Human and Artificial Intelligence Seriously.Anita Ho - 2019 - Hastings Center Report 49 (1):36-39.
    From predicting medical conditions to administering health behavior interventions, artificial intelligence technologies are being developed to enhance patient care and outcomes. However, as Mélanie Terrasse and coauthors caution in an article in this issue of the Hastings Center Report, an overreliance on virtual technologies may depersonalize medical interactions and erode therapeutic relationships. The increasing expectation that patients will be actively engaged in their own care, regardless of the patients’ desire, technological literacy, and economic means, may also violate patients’ autonomy and (...)
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  21.  32
    Reconciling Patient Safety and Epistemic Humility: An Ethical Use of Opioid Treatment Plans.Anita Ho - 2017 - Hastings Center Report 47 (3):34-35.
    In this issue of the Hastings Center Report, Joshua Rager and Peter Schwartz suggest using opioid treatment agreements as public health monitoring tools to inform patients about “the requirements entailed by undergoing opioid therapy,” rather than as contractual agreements to alter patients’ individual behavior or to benefit them directly. Because Rager and Schwartz's argument presents suspected OTA violations as a justification to stop providing opioids yet does not highlight the broader epistemic and systemic context within which clinicians prescribe these medications, (...)
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  22.  85
    Disability in the Bioethics Curriculum.Anita Ho - 2007 - Teaching Philosophy 30 (4):403-420.
    While disability has emerged as a major theme in academic and political discourses, a perusal of many bioethics textbooks reveals that most editors and philosophers still do not consider disability to be central to developing either critical perspective or social conscience in addressing the core questions in bioethics. This essay explores how disability issues are typically portrayed in bioethics textbooks by looking at the examples of genetic testing and medically assisted death. It explains how incorporation of disability perspectives helps to (...)
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  23. Moral uncertainty and distress about voluntary assisted dying prior to legalisation and the implications for post-legalisation practice: a qualitative study of palliative and hospice care providers in Queensland, Australia.David G. Kirchhoffer, C. - W. Lui & A. Ho - 2023 - BMJ Open 13.
    ABSTRACT Objectives There is little research on moral uncertainties and distress of palliative and hospice care providers (PHCPs) working in jurisdictions anticipating legalising voluntary assisted dying (VAD). This study examines the perception and anticipated concerns of PHCPs in providing VAD in the State of Queensland, Australia prior to legalisation of the practice in 2021. The findings help inform strategies to facilitate training and support the health and well-being of healthcare workers involved in VAD. Design The study used a qualitative approach (...)
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  24.  11
    Leaving patients to their own devices? Smart technology, safety and therapeutic relationships.Anita Ho & Oliver Quick - forthcoming - Most Recent Articles: Bmc Medical Ethics.
    This debate article explores how smart technologies may create a double-edged sword for patient safety and effective therapeutic relationships. Increasing utilization of health monitoring devices by patients w...
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  25.  25
    Preventive Ethics Through Expanding Education.Anita Ho, Lisa Mei-Hwa MacDonald & David Unger - 2016 - HEC Forum 28 (1):69-74.
    Healthcare institutions have been making increasing efforts to standardize consultation methodology and to accredit both bioethics training programs and the consultants accordingly. The focus has traditionally been on the ethics consultation as the relevant unit of ethics intervention. Outcome measures are studied in relation to consultations, and the hidden assumption is that consultations are the preferred or best way to address day-to-day ethical dilemmas. Reflecting on the data from an internal quality improvement survey and the literature, we argue that having (...)
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  26.  47
    Authenticity as a Necessary Condition for Voluntary Choice: A Case Study in Cancer Clinical Trial Participation.Jennifer Bell & Anita Ho - 2011 - American Journal of Bioethics 11 (8):33-35.
    The American Journal of Bioethics, Volume 11, Issue 8, Page 33-35, August 2011.
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  27.  7
    Ethical concerns around privacy and data security in AI health monitoring for Parkinson’s disease: insights from patients, family members, and healthcare professionals.Itai Bavli, Anita Ho, Ravneet Mahal & Martin J. McKeown - forthcoming - AI and Society:1-11.
    Artificial intelligence (AI) technologies in medicine are gradually changing biomedical research and patient care. High expectations and promises from novel AI applications aiming to positively impact society raise new ethical considerations for patients and caregivers who use these technologies. Based on a qualitative content analysis of semi-structured interviews and focus groups with healthcare professionals (HCPs), patients, and family members of patients with Parkinson’s Disease (PD), the present study investigates participant views on the comparative benefits and problems of using human versus (...)
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  28.  6
    Global Health Disparity and Pharmaceutical Companies’ Obligation to Assist.Anita Ho - 2017 - In Dien Ho (ed.), Philosophical Issues in Pharmaceutics: Development, Dispensing, and Use. Springer.
    This chapter critically explores the extent to which pharmaceutical companies have a moral obligation to assist poor patients in least developed countries who currently have no or inadequate access to lifesaving medications. Focusing on the ongoing HIV/AIDS epidemic in LDCs, the first section of this essay begins with some background information of the disproportionate burden of HIV/AIDS in LDCs. The second section provides a brief overview of some of the salient arguments for holding multinational antiretroviral treatment manufacturers as morally responsible (...)
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  29.  9
    Sowing the SEED for Patient Empowerment.Anita Ho, Kim Jameson & Arnold Eiser - 2017 - American Journal of Bioethics 17 (11):42-45.
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  30.  8
    What We Owe Those Who Chat Woe: A Relational Lens for Mental Health Apps.Anita Ho & Joseph Perry - 2023 - American Journal of Bioethics 23 (10):77-80.
    Since ChatGPT’s debut in 2022, questions abound what ethical implications artificial intelligence (AI) platforms enabled by large language models (LLMs) have for medicine (Cohen 2023). In the area...
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  31.  22
    Using Family Members as Interpreters in the Clinical Setting.Anita Ho - 2008 - Journal of Clinical Ethics 19 (3):223-233.
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  32.  20
    International Business vs. Globalization.Anita Ho - 2003 - Business and Professional Ethics Journal 22 (2):51-69.
  33.  3
    Ethical dilemmas in prioritizing patients for scarce radiotherapy resources.Cyprien Shyirambere, Vincent K. Cubaka, Scott A. Triedman, Lawrence N. Shulman, Katherine Van Loon, Nicaise Nsabimana, Jean Bosco Bigirimana, Grace Umutesi, Cam Nguyen, Espérance Mutoniwase, Anita Ho & Rebecca J. DeBoer - 2024 - BMC Medical Ethics 25 (1).
    BackgroundRadiotherapy is an essential component of cancer treatment, yet many countries do not have adequate capacity to serve all patients who would benefit from it. Allocation systems are needed to guide patient prioritization for radiotherapy in resource-limited contexts. These systems should be informed by allocation principles deemed relevant to stakeholders. This study explores the ethical dilemmas and views of decision-makers engaged in real-world prioritization of scarce radiotherapy resources at a cancer center in Rwanda in order to identify relevant principles.MethodsSemi-structured interviews (...)
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  34.  6
    An International Validation of a Clinical Tool to Assess Carers’ Quality of Life in Huntington’s Disease.Aimee Aubeeluck, Edward J. N. Stupple, Malcolm B. Schofield, Alis C. Hughes, Lucienne van der Meer, Bernhard Landwehrmeyer & Aileen K. Ho - 2019 - Frontiers in Psychology 10:442788.
    Family carers of individual’s living with Huntington’s Disease (HD) manage a distinct and unique series of difficulties arising from the complex nature of HD. This paper presents the validation of the definitive measure of quality of life for this group. The Huntington’s Disease Quality of Life Battery for carers (HDQoL-C) was expanded and then administered to an international sample of 1716 partners and family carers from 13 countries. In terms of the psychometric properties of the tool, exploratory analysis of half (...)
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  35.  43
    A Shared Responsibility: U.S. Employers and the Provision of Health Insurance to Employees.Sara R. Collins, Karen Davis & Alice Ho - 2005 - Inquiry: The Journal of Health Care Organization, Provision, and Financing 42 (1):6-15.
  36.  15
    Procedural fairness for radiotherapy priority setting in a low resource context.Rebecca J. DeBoer, Cam Nguyen, Espérance Mutoniwase, Anita Ho, Grace Umutesi, Jean Bosco Bigirimana, Scott A. Triedman & Cyprien Shyirambere - 2021 - Bioethics 36 (5):500-510.
    Bioethics, Volume 36, Issue 5, Page 500-510, June 2022.
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  37.  3
    “Data is the new oil”: citizen science and informed consent in an era of researchers handling of an economically valuable resource.Gerardine Doyle, Katie Kirkwood, Eamonn Ambrose, Aileen K. Ho, David M. Doyle, Ingrid Holme & Etain Quigley - 2021 - Life Sciences, Society and Policy 17 (1):1-13.
    As with other areas of the social world, academic research in the contemporary healthcare setting has undergone adaptation and change. For example, research methods are increasingly incorporating citizen participation in the research process, and there has been an increase in collaborative research that brings academic and industry partners together. There have been numerous positive outcomes associated with both of these growing methodological and collaborative processes; nonetheless, both bring with them ethical considerations that require careful thought and attention. This paper addresses (...)
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  38.  5
    Can Public Health Investment and Oversight save Digital Mental Health?Anita Ho - 2022 - American Journal of Bioethics Neuroscience 13 (3):201-203.
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  39.  13
    Correcting social ills through mandatory research participation.Anita Ho - 2008 - American Journal of Bioethics 8 (10):39 – 40.
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  40.  21
    Continuous Surveillance of Persons with Disabilities: Conflicts and Compatibilities of Personal and Public Goods.Anita Ho, Anita Silvers & Tim Stainton - 2014 - Journal of Social Philosophy 45 (3):348-368.
  41. Healthcare ethics education in Singapore.Anita Ho, Jacqueline Chin & Voo Teck Chuan - 2019 - In Alastair V. Campbell, Voo Teck Chuan, Richard Huxtable & N. S. Peart (eds.), Healthcare ethics, law and professionalism: essays on the works of Alastair V. Campbell. Routledge, Taylor & Francis Group.
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  42.  4
    International Business vs. Globalization: Implications for Business Ethics.Anita Ho - 2003 - Business and Professional Ethics Journal 22 (2):51 - 69.
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  43.  5
    Live like nobody is watching.Anita Ho - 2023 - New York, NY: Oxford University Press.
    In recent years, artificial intelligence (AI) has garnered tremendous attention across a range of sectors, including health care. AI is a comprehensive term, broadly defined as computational machines making decisions and performing tasks that previously required human intelligence or cognition. There are high expectations of what AI can do; enthusiasts sometimes refer to it as a central pillar of the Fourth Industrial Revolution, with an impact on humanity as profound as that of the steam power engine or electricity. Building on (...)
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  44.  36
    Pharmaceutical Corporations and the Duty to Aid in HIV/AIDS Epidemic.Anita Ho - 2005 - Business and Professional Ethics Journal 24 (4):51-81.
  45.  3
    Relational Solidarity and the COVID-19 Pandemic.Anita Ho - 2022 - International Journal of Feminist Approaches to Bioethics 15 (1):117-118.
    Two years after the first confirmed COVID-19 case in the world, a few waves and surges of the pandemic have moved across various regions. While the effects of COVID-19 are being felt globally, the pandemic continues to disproportionately affect lower-income countries, exacerbating existing global health disparities. As the pandemic lingers, the true total and intergenerational impact may not be known for months and years to come, particularly for LICs that have endured the effects for longer and may not have accurate (...)
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  46.  2
    The Professional Online: Stranger in a Strange Land.Anita Ho & Nigel Hee - 2017 - Asian Bioethics Review 9 (3):251-255.
    In recent years, many medical schools around the world have formally established professionalism education as part of their standard curriculum. While the call to prepare future doctors to behave ethically and professionally is not new, what is new is the emphasis on identity formation in the context of the expanding online universe. Nonetheless, role modelling the professional image is challenging in the digital age, especially when cultures and customs across disciplines and generations collide. Against the backdrop of hyper-vigilance about our (...)
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  47.  4
    CortexVR: Immersive analysis and training of cognitive executive functions of soccer players using virtual reality and machine learning.Christian Krupitzer, Jens Naber, Jan-Philipp Stauffert, Jan Mayer, Jan Spielmann, Paul Ehmann, Noel Boci, Maurice Bürkle, André Ho, Clemens Komorek, Felix Heinickel, Samuel Kounev, Christian Becker & Marc Erich Latoschik - 2022 - Frontiers in Psychology 13.
    GoalThis paper presents an immersive Virtual Reality system to analyze and train Executive Functions of soccer players. EFs are important cognitive functions for athletes. They are a relevant quality that distinguishes amateurs from professionals.MethodThe system is based on immersive technology, hence, the user interacts naturally and experiences a training session in a virtual world. The proposed system has a modular design supporting the extension of various so-called game modes. Game modes combine selected game mechanics with specific simulation content to target (...)
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  48.  12
    Health and human rights advocacy: Perspectives from a Rwandan refugee camp.C. Pavlish, A. Ho & A. -M. Rounkle - 2012 - Nursing Ethics 19 (4):538-549.
    Working at the bedside and within communities as patient advocates, nurses frequently intervene to advance individuals’ health and well-being. However, the International Council of Nurses’ Code of Ethics asserts that nurses should expand beyond the individual model and also promote a rights-enabling environment where respect for human dignity is paramount. This article applies the results of an ethnographic human rights study with displaced populations in Rwanda to argue for a rights-based social advocacy role for nurses. Human rights advocacy strategies include (...)
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  49.  81
    Effect of ethnicity, gender and drug use history on achieving high rates of affirmative informed consent for genetics research: impact of sharing with a national repository.Brenda Ray, Colin Jackson, Elizabeth Ducat, Ann Ho, Sara Hamon & Mary Jeanne Kreek - 2011 - Journal of Medical Ethics 37 (6):374-379.
    Aim Genetic research representative of the population is crucial to understanding the underlying causes of many diseases. In a prospective evaluation of informed consent we assessed the willingness of individuals of different ethnicities, gender and drug dependence history to participate in genetic studies in which their genetic sample could be shared with a repository at the National Institutes of Health. Methods Potential subjects were recruited from the general population through the use of flyers and referrals from previous participants and clinicians (...)
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  50.  16
    Ṣedeq and Ṣedaqah in the Hebrew BibleSedeq and Sedaqah in the Hebrew Bible.S. David Sperling & Ahuva Ho - 1993 - Journal of the American Oriental Society 113 (4):620.
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