When it comes to using patient data from the National Health Service for research, we are often told that it is a matter of trust: we need to trust, we need to build trust, we need to restore trust. Various policy papers and reports articulate and develop these ideas and make very important contributions to public dialogue on the trustworthiness of our research institutions. But these documents and policies are apparently constructed with little sustained reflection on the nature of trust (...) and trustworthiness, and therefore are missing important features that matter for how we manage concerns related to trust. We suggest that what we mean by ‘trust’ and ‘trustworthiness’ matters and should affect the policies and guidance that govern data sharing in the NHS. We offer a number of initial, general reflections on the way in which some of these features might affect our approach to principles, policies and strategies that are related to sharing patient data for research. This paper is the outcome of a ‘public ethics’ coproduction activity which involved members of the public and two academic ethicists. Our task was to consider collectively the accounts of trust developed by philosophers as they applied in the context of the NHS and to coproduce an argumentative position relevant to this context. (shrink)

The meta-problem of consciousness is framed as a route into investigating why there are problems in understanding consciousness by describing the mechanisms underpinning our tendency to describe consciousness as problematic, and the evolutionary origins of these mechanisms. This is framed as a means of uniting illusionists and realists toward a common goal, but this supposes that the only viable form of illusionism is what I call 'hard-wired' illusionism, under which phenomenal judgments are a direct product of natural selection. I argue (...) that, instead, 'soft-wired' illusionism is more plausible, where phenomenal judgments are seen to be cultural phenomena. Since the problem of consciousness arises from a flawed theory of consciousness, pointing out the mechanisms underlying expression of the theory and the historical origins of the theory will not suffice to tell us why the theory is problematic. As such, the meta-problem is exclusionary toward soft-wired illusionism. (shrink)

Externalism about colour phenomenology claims that the phenomenal character of colour experiences is determined by mind-independent properties of perceptual objects. The structural mismatch argument shows that physical properties of perceived mind-independent things are not similar in ways that correlate with the ways in which the phenomenal character of colour experiences are similar. Structural mismatch has thus been perceived by some to demonstrate that correlative externalism (which takes mind-independent physical properties to correlate systematically with colour phenomenology) is false. This argument is (...) defused if there are broad physical properties that can bear similarity relations that do correlate with those held by the phenomenal character of colour experiences. I defend the view that disjunctive properties can perform this role by showing that disjunctive properties can account for metamerism, the unique and binary hue distinction, and differences in perceived colours between subjects. Finally, I argue that correlative externalism is better placed than other views to explain why the physical properties identified by the physical sciences correlate with colour experiences with the particular phenomenal character they have. (shrink)

In this paper, we explore the idea of digital technologies as truth‐bearers in health care and argue that devices like SenseCam, which facilitate reflection and memory recall, have a potentially vital role in healthcare situations when questions of veracity are at stake (e.g., when best interest decisions are being made). We discuss the role of digital technologies as truth‐bearers in the context of nursing people with dementia, as this is one area of health care in which the topic of truth‐telling (...) has been hotly debated. People with dementia have been excluded from research studies and decisions that affect their lives because they are not regarded as truth‐bearers—that is, as being capable of giving truthful accounts of their experiences. Also, considerable research has focused on the ethics of lying to and deceiving people with dementia. Given their increasing prominence in healthcare settings, there has been surprisingly little discussion of what role digital technologies might play in relation to these questions of truth and deception. Drawing on theories from science and technology studies (STS), we explore their possible future role in some of the truth‐making processes of health care. In particular, we discuss the potential value of constraints on use of SenseCam to support the accounts of people with dementia as part of their care. (shrink)