7 found
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  1.  16
    Young People's Experiences of Participation in Clinical Trials: Reasons for Taking Part.Malou Luchtenberg, Els Maeckelberghe, Louise Locock, Lesley Powell & A. A. Eduard Verhagen - 2015 - American Journal of Bioethics 15 (11):3-13.
    Given the lack of knowledge about safety and efficacy of many treatments for children, pediatric clinical trials are important, but recruitment for pediatric research is difficult. Little is known about children's perspective on participating in trials. The purpose of this study was to understand the experiences and motivations of young people who took part in clinical trials. This is a qualitative interview study of 25 young people aged 10–23 who were invited to take part in clinical trials. Interviews were audio (...)
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  2.  27
    The Groningen Protocol for Newborn Euthanasia; Which Way Did the Slippery Slope Tilt?A. A. Eduard Verhagen - 2013 - Journal of Medical Ethics 39 (5):293-295.
    In The Netherlands, neonatal euthanasia has become a legal option and the Groningen Protocol contains an approach to identify situations in which neonatal euthanasia might be appropriate. In the 5 years following the publication of the protocol, neither the prediction that this would be the first step on a slippery slope, nor the prediction of complete transparency and legal control became true. Instead, we experienced a transformation of the healthcare system after antenatal screening policy became a part of antenatal care. (...)
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  3.  6
    The Age Limit for Euthanasia Requests in the Netherlands: A Delphi Study Among Paediatric Experts.Sedona Celine de Keijzer, Guy Widdershoven, A. A. Eduard Verhagen & H. Roeline Pasman - forthcoming - Journal of Medical Ethics.
    BackgroundThe Dutch Euthanasia Act applies to patients 12 years and older, which makes euthanasia for minors younger than 12 legally impossible. The issue under discussion specifically regards the capacity of minors to request euthanasia.ObjectiveGain insight in paediatric experts’ views about which criteria are important to assess capacity, from what age minors can meet those criteria, what an assessment procedure should look like and what role parents should have.MethodsA Delphi study with 16 experts who work in Children Comfort Teams in Dutch (...)
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  4.  32
    A Case Against Something That is Not the Case: The Groningen Protocol and the Moral Principle of Non-Maleficence.Martine C. de Vries & A. A. Eduard Verhagen - 2008 - American Journal of Bioethics 8 (11):29-31.
  5.  54
    "Are Their Babies Different From Ours?": Dutch Culture and the Groningen Protocol.A. A. Eduard Verhagen, Pieter J. Sauer, Daniel Callahan, Frank A. Chervenak, Laurence B. McCullough, Birgit Arabin, Tim Smith & Georgia Goldfarb - 2008 - Hastings Center Report 38 (4):4-7.
  6.  13
    Nurturing Futility in the NICU: The Dutch Perspective.A. A. Eduard Verhagen - 2018 - Perspectives in Biology and Medicine 60 (3):449-455.
    In 2015, the ATS/AACN/ACCP/ESICM/SCCM published an official policy statement about responding to requests for potentially inappropriate treatments in intensive care units. The Multiorganization Statement aims to provide guidance for clinicians to prevent and manage disputes about patients with advanced critical illness. Recommendations 2 and 3 focus on terminology and suggest an alternative set of words to define and to help manage medical futility. Recommendations 1 and 4 focus on conflict resolution strategies and the development of new policies or legislation about (...)
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  7.  7
    A Response to the Open Peer Commentaries on “Young People's Experiences of Participation in Clinical Trials: Reasons for Taking Part”.Malou Luchtenberg, Els Maeckelberghe, Louise Locock, Lesley Powell & A. A. Eduard Verhagen - 2016 - American Journal of Bioethics 16 (2):10-12.
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