- Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives.J. Patrick Woolley, Michelle L. McGowan, Harriet J. A. Teare, Victoria Coathup, Jennifer R. Fishman, Richard A. Settersten, Sigrid Sterckx, Jane Kaye & Eric T. Juengst - 2016 - BMC Medical Ethics 17 (1):1.details
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Health Research with Big Data: Time for Systemic Oversight.Effy Vayena & Alessandro Blasimme - 2018 - Journal of Law, Medicine and Ethics 46 (1):119-129.details
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Research led by participants: a new social contract for a new kind of research.Effy Vayena, Roger Brownsword, Sarah Jane Edwards, Bastian Greshake, Jeffrey P. Kahn, Navjoyt Ladher, Jonathan Montgomery, Daniel O'Connor, Onora O'Neill, Martin P. Richards, Annette Rid, Mark Sheehan, Paul Wicks & John Tasioulas - 2016 - Journal of Medical Ethics 42 (4):216-219.details
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Genetic Privacy and Confidentiality: Why They Are So Hard to Protect.Mark A. Rothstein - 1998 - Journal of Law, Medicine and Ethics 26 (3):198-204.details
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Genetic Privacy and Confidentiality: Why They are So Hard to Protect.Mark A. Rothstein - 1998 - Journal of Law, Medicine and Ethics 26 (3):198-204.details
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Currents in Contemporary Ethics GINA, the ADA, and Genetic Discrimination in Employment.Mark A. Rothstein - 2008 - Journal of Law, Medicine and Ethics 36 (4):837-840.details
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Regulating Risk: Defining Genetic Privacy in the United States and Britain.Shobita Parthasarathy - 2004 - Science, Technology, and Human Values 29 (3):332-352.details
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Genetic Discrimination in the Workplace.Paul Steven Miller - 1998 - Journal of Law, Medicine and Ethics 26 (3):189-197.details
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Genetic Discrimination in the Workplace.Paul Steven Miller - 1998 - Journal of Law, Medicine and Ethics 26 (3):189-197.details
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Research 2.0: Social Networking and Direct-To-Consumer (DTC) Genomics.Sandra Soo-Jin Lee & LaVera Crawley - 2009 - American Journal of Bioethics 9 (6-7):35-44.details
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Scientific research is a moral duty.J. Harris - 2005 - Journal of Medical Ethics 31 (4):242-248.details
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A market in the making: the past, present and future of direct-to-consumer genomics.Stuart Hogarth & Paula Saukko - 2017 - New Genetics and Society 36 (3):197-208.details
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Regulatory controls for direct-to-consumer genetic tests: a case study on how the FDA exercised its authority.Margaret Curnutte - 2017 - New Genetics and Society 36 (3):209-226.details
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Personal utility is inherent to direct-to-consumer genomic testing.Matthew Wai Heng Chung & Joseph Chi Fung Ng - 2016 - Journal of Medical Ethics 42 (10):649-652.details
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Drafting the Genetic Privacy Act: Science, Policy, and Practical Considerations.George J. Annas, Leonard H. Glantz & Patricia A. Roche - 1995 - Journal of Law, Medicine and Ethics 23 (4):360-366.details
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Drafting the Genetic Privacy Act: Science, Policy, and Practical Considerations.George J. Annas, Leonard H. Glantz & Patricia A. Roche - 1995 - Journal of Law, Medicine and Ethics 23 (4):360-366.details
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