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How experience makes a difference: practitioners' views on the use of deferred consent in paediatric and neonatal emergency care trials
BMC Medical Ethics 14 (1):45 (2013)
Abstract
In 2008 UK legislation was amended to enable the use of deferred consent for paediatric emergency care (EC) trials in recognition of the practical and ethical difficulties of obtaining prospective consent in an emergency situation. However, ambiguity about how to make deferred consent acceptable to parents, children and practitioners remains. In particular, little is known about practitioners’ views and experiences of seeking deferred consent in this settingAuthor's Profile
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Citations of this work
Written versus verbal consent: a qualitative study of stakeholder views of consent procedures used at the time of recruitment into a peripartum trial conducted in an emergency setting.J. Lawton, N. Hallowell, C. Snowdon, J. E. Norman, K. Carruthers & F. C. Denison - 2017 - BMC Medical Ethics 18 (1):36.
Biobanking and consenting to research: a qualitative thematic analysis of young people’s perspectives in the North East of England.Momodou Ndure, Isatou Sarr, Anna Roca, Kalifa Bojang, Effua Usuf, Fiona Cresswell, Elizabeth Fitchett, David Bath, Manuel Dewez, Shunmay Yeung, Sebastian Schroepf, Carola Schoen, Karl Reiter, Esther Maier, Eberhard Lurz, Matthias Kappler, Sabrina Juranek, Tobias Feuchtinger, Matthias Griese, Florian Hoffmann, Niklaus Haas, Katharina Danhauser, Irene Alba-Alejandre, Ioanna Mavridi, Patricia Schmied, Laura Kolberg, Ulrich von Both, Maike K. Tauchert, Elmar Wallner, Volker Strenger, Andrea Skrabl-Baumgartner, Siegfried Rödl, Klaus Pfurtscheller, Andreas Pfleger, Heidemarie Pilch, Tobias Niedrist, Sabine Löffler, Markus Keldorfer, Andreas Kapper, Christa Hude, Almuthe Hauer, Harald Haidl, Siegfried Gallistl, Ernst Eber, Astrid Ceolotto, Martin Benesch, Sebastian Bauchinger, Manfred G. Sagmeister, Martina Strempfl, Bianca Stoiser, Glorija Rajic, Alexandra Rusu, Lena Pölz, Manuel Leitner, Susanne Hösele, Christoph Zurl, Nina A. Schweintzger, Daniel S. Kohlfürst, Benno Kohlmaier & Ale Binder - 2023 - BMC Medical Ethics 24 (1):1-11.
A comprehensive systematic review of stakeholder attitudes to alternatives to prospective informed consent in paediatric acute care research.Jeremy Furyk, Kris McBain-Rigg, Bronia Renison, Kerrianne Watt, Richard Franklin, Theophilus I. Emeto, Robin A. Ray, Franz E. Babl & Stuart Dalziel - 2018 - BMC Medical Ethics 19 (1):89.
References found in this work
Principles of biomedical ethics.Tom L. Beauchamp - 1994 - New York: Oxford University Press. Edited by James F. Childress.
Principles of Biomedical Ethics.Ezekiel J. Emanuel, Tom L. Beauchamp & James F. Childress - 1995 - Hastings Center Report 25 (4):37.
The Concept of Voluntary Consent.Robert M. Nelson, Tom Beauchamp, Victoria A. Miller, William Reynolds, Richard F. Ittenbach & Mary Frances Luce - 2011 - American Journal of Bioethics 11 (8):6-16.
Empirical research in medical ethics: How conceptual accounts on normative-empirical collaboration may improve research practice.Sabine Salloch, Jan Schildmann & Jochen Vollmann - 2012 - BMC Medical Ethics 13 (1):5.
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